Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 After I read the story from 's son, her son's life is the exact picture that I have been dreamt for ever since we were told our son is autistic... If we can our son live a life with independency, enojoy life like any other guys, we will do everything we can to make the picture alive... So, how and where to start cutler protocol? Go get the book? following 3 hours round chelation? Do I need to get a DAN to do it? Or can I start it on our own now? We will have a phone consultation with our DAN this week, should I wait until we speak with our DAN? Like any other children in this group, my son has yeast, bacterial ( candidas) problems, low sIgA ( weak immune), so far, he is taking tones of B2,B6 and MB12, tones of amino acids, GSE, OLE, tones of DHA and CLO... we can see he is doing much better, much more clear language, very opinionated ( such as he will say "I disagree.." or "it is very important.." or he says "I know.." or he will say "don't bother me, I am busy.." these statements really crack us up and make us tearing...) but, he is still OCD over certain topics, items, and anxiety... Mostly, we are concerned if Cutler Protocol will interfer or conflict with his two medications--zoloft ( ssri) and risperdal ( anti-psychotic).. should we chelate and continue the two meds at the same time? I am sure once his murecry level gone down, or yeast under control, we eventually do not need to rely zoloft and risperdal.. but how do I balance these two with chelation... Anybody with experiences in it? Sincerely, Rei Branch Manager Network Funding, LP 6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell: Lower your mortgage payment on a 5.5% fixed rate today!!! We can't control gas price, but we can help you lower your house payment. The photos are titled "bestbirths child 1"Here is her story that I have saved, because it is SO inspiring:I haven't kept up with this thread but we recovered our son who is now 19when he was 17-18. We did not fully chelate, probably only got ½ donethrough the andy cutler method before having to stop to pay for medicationfor our daughter with uveitis. We chelated 8 months.Here is an update: A few days ago he went to rockfest and had so much funand came back sunburned from 14 hours in the sun. He has a car, and a joband is in college. He wrote a persuasive speech for his speech class onprocrastination. He has other college students that want to roommate withhim and they all went looking for apartments by the college but they wouldnot rent to them because it was too many kids in a 3 bedroom so now they arelooking for a house to rent.He is brilliant in his job with computers, helps me around the house, andhas friends and goes out socially, he gives eye contact and can haveconversations now. He interacts with his siblings and his "chore" is tomotivate them to do their chores since he is so great at that. Yesterday hetold me that while watching my younger son work, he found that he didn't getany work done because he spent the day tattling on other people and annoyingthem so they couldn't get their chores done. He shows great managementskill potential and shows insight into others with his thinking. Prior tochelation, he didn't bathe, didn't leave his room (ocd) and didn't have aconversation beyond "need food" or can you buy me such and such video game.This is the boy that was hardly verbal and relatives told me that setting agoal of driving was too ambitious of a goal to ever set for him.I still do not think we are finished Chelating him. My next step I thinkshould be testing his adrenals and fixing them, and then he might feel likecontinuing on with chelation again when we can afford it. His sleep clockis off, so that is one gain that has regressed. Please understand that Iget a lot of people wanting to know what we did so I can't answer everyprivate email as I would like. We did the andy cutler method of chelationwith a strong continual rotation of yeast fighters (everything but thekitchen sink) protocol in place while he ate a diet of pizza hut, tacobell, burger king and subway. So, basically you can chelate successfullyand eat crap which I find really interesting because I could go from allorganic foods and eat crap to afford chelators then go back to all organic,in theory it would work…Most often we would do a 3 day round every 2 weeks for 8 months, takinglonger breaks for illness if yeast got out of control but staying onsupplements inbetween rounds as well as on rounds using dmsa/ala. Dmsa onlyfor the first month or two. Starting with very low doses, like 12.5mg, dosedevery 4 hours dmsa, every 3 with ala. We also had an extremesupplementation protocol (if he needed it, he got it, and he needed a lotbecause of his symptoms and diet), with high zinc, clo, and amino acidswhich was inspired by the Pfeiffer protocol. He also needed d-lactate freeprobiotics. Chelation is so individual. YMMV, your mileage may vary.Each supplement, and there was about 20 different ones, with like probably100 individual vitamins/minerals/ etc. a day or more, maybe 150. It was anamazing amount of pills. Fistfulls of pills. Not everyone will need thatmuch. The vitamin C alone was fourty capsules a day (you give to boweltolerance). He took 4 caps of C0-Q10 a day, we gave him lots of extravitamins he needed. The CoQ was for his headaches. You will find theindividual supplements your child needs, and test each one individually, sobe prepared for that. I can't emphasize enough how financially ready youhave to be, and purchase supplements in bulk and own a capsule makingmachine. Then there are people who do it for much less money and use thebasic supplements. I am just saying what it took to recover our son was onthe extreme end of cost and amount of supplements. When we begin chelatingagain, he might not need all that. He eats a much healthier diet now, drinkswater, and eats food at home.Ref list of supplements he took (to find your childs dosage and needs searchonibasu.com)Vit C as sodium ascorbate (10,000 mg a day)Magnesium chelatedCalciumChelated zinc (54mg 4 times a day which is way over the RDA, FYI)SeleniummolybdenumVit eCod liver oilGrapeseed extract with phosphodytlcholineWe found phosphydyltcholine gave him gains so we switched to lethicin Metzger's research states CLO/Combined with other supplements givegains and we saw this with our son.L TaurineOrthomegaPfeiffer aminos (search Pfeiffer protocol-they gave me their amino list overthe phone when I explained my son's gains)P5PChromiumCan't remember all of them sorryNow B-50L lysine (can't remember why)Gut/yeastHoustons trio with foodCustom probiotics away from foodCandidase away from foodRotation of 2months of each MCT oil/Uva Ursi/GSE for yeastSuper strength oregano away from everything dosed middle of night.Reducing sugar at times, sometimes on round. ALA stirs up yeast so 1 monthprior get yeast protocol in place if yourChild is yeasty. Reduce sugars prior to ala.Activated charcoal/bentonite clay/to absorb yeast dieoff given l hour afteryeast fightersBad breath/casket breathSilva solution then we switched to a better and more effective solution(andy does not agree with giving silver, so we found something that workedthat was different, Chlorophyll)Chlorophyll for bacterial smellFor sleepInositolFor migranesCo Q 10 I think he took 100 mgs 4x a day, buy powder from now for $100, capit yourself in small capsHe took 4 small caps a day.On the frequency of dmsa/ala we always used andy's protocol of 3 or 4 hourson the half life depending on what we were giving ala, dmsa, or bothtogether. We would fail the round if we missed a dose and stop the round.I find it shocking and appauling that people would use less frequentdosing…this is pointless in my opinion, displacing mercury and heavy metalsrather than chelating them out.I probably have missed some things but this gives a general idea….My son iswell now. His chemical sensitivity is gone and he is no longer receivingdisability benefits because he said "He is no longer disabled". He alsoused to be chemically sensitive and was receiving ssi for that and is nolonger.Andy if I ever met you in real life I think I would burst into tears andgive you such a big hug.We rearranged our entire lives around the 3 or 4 hour schedules, havingmultiple people manning phones with multiple cellphone alarms set, withbackup plans A through G to make sure he took the doses on time. If I wasnot home and could not get ahold of someone at home to give him his dose, Iimmediately turned around and headed home to dose him myself. This happenedso many times I can't even count. Even when I pre planned to have twopeople home by the phone (my mom or my son's siblings).Plus when my son's sleep schedule was off and he was awake nights and sleptdays, I dosed him his supplements every four hours at night!!!! Then, heeventually six months into chelation could take his pills himself. Towardsthe end, he could spend the weekend at a friends and chelate himself and setalarms and be responsible for his own doses. On top of that, when he gotbetter and was awake days instead of nights, my son needed an extra dose oforegano for yeast and the only time to give it was in the middle of thenight since it needed to be away from supplements and he took so many. So Iwoke up in the middle of the night every night during the last 3 months orso to wake him so that he took that.3 Words..SO WORTH IT!!!!!!!!So Worth itSo Worth itWhen I see my son right now that is all I can say to encourage you newparents to stick around. It is like birthing a new baby, and parenting anewborn, and we all know that takes being up nights, and really.it's a smallprice to pay for wellness. A new brain is forming, think of it that way.Chelation is a beautiful dance, and the chelator claws out the toxins, andevery three or four hours depending on what you are taking, the chelatorneeds to change dance partners, that is when you give another. Each newdose of chelator claws onto those heavy metals and gracefully dances thetoxins out of the body, and this dance takes place with new partners everythree/four hours over three days. To miss a dose is to miss the dancepartner and drop the mercury and heavy metals (what we call displacement)and stop that dance from happening. That was an analogy from Andy thathelped me understand how it works. I don't want to just move mercury allaround and displace it, I want to escort it out of the building. It helpedme to think of it that way when I was up at night.> > > >> My son's hair test reported with very high level of > aluminum. How> > > >> do I get alumimum down? Any suggetions on cookware without> > > >> aluminum or any alternative cookware to avoid aluminum?> > > >> Sincerely,> > > >>> > > >> Rei > > > >> *Branch Manager*> > > >> Network Funding, LP> > > >> 6070 Gateway East, Suite 509> > > >> El Paso, TX 79905> > > >> Phone: > > > >> Fax: > > > >> Cell: > > > >> Less in Debt. More in Life.> > > >> Ask me about debt consolidation loans.> > > >> > > > >>> > > >>> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 I would first join the Autism-Mercury group and read the files. The book is called " Amalgam Illness " and can be bought at www.noamalgam.com. There is a lot of useful information in it, it is not an easy read (written by chemist), but you will get used to it and probably refer to it over and over. You can search the group at www.onibasu.com with key words in all your questions, such as " risperdal " . You don't need a DAN!, in fact, they are not always supportive because most want you to come in for IV chelation. It is nice to have a doctor who you can go to from time to time with questions or to get tests and this may involve calling many doctors and finding one who is willing work with you. > > > > >> My son's hair test reported with very high level of > > aluminum. How > > > > >> do I get alumimum down? Any suggetions on cookware without > > > > >> aluminum or any alternative cookware to avoid aluminum? > > > > >> Sincerely, > > > > >> > > > > >> Rei > > > > >> *Branch Manager* > > > > >> Network Funding, LP > > > > >> 6070 Gateway East, Suite 509 > > > > >> El Paso, TX 79905 > > > > >> Phone: > > > > >> Fax: > > > > >> Cell: > > > > >> Less in Debt. More in Life. > > > > >> Ask me about debt consolidation loans. > > > > >> > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 Good advice from . I would also second the notion that you need to be cautious in regards to a DAN doctor. I think they can be very helpful, and I feel we are lucky there are at least some doctors who are trying to make a big difference for ASD patients. However when it comes to chelation, a lot of them are misinformed and often make recommendations for incorrect protocols that cause too much heavy metal redistribution and even regression. I have seen this happen with a few families now, and they are now trying to use Cutler protocol to reverse the damage that was done from chelating incorrectly. So if you can find a DAN doctor that supports Cutler protocol and is well read about it, that is fantastic. However if you can't, you can do this yourself, like many of us are. Soliday wrote: I would first join the Autism-Mercury group and read the files. The book is called "Amalgam Illness" and can be bought at www.noamalgam.com. There is a lot of useful information in it, it is not an easy read (written by chemist), but you will get used to it and probably refer to it over and over. You can search the group at www.onibasu.com with key words in all your questions, such as "risperdal". You don't need a DAN!, in fact, they are not always supportive because most want you to come in for IV chelation. It is nice to have a doctor who you can go to from time to time with questions or to get tests and this may involve calling many doctors and finding one who is willing work with you. > > > > >> My son's hair test reported with very high level of > > aluminum. How > > > > >> do I get alumimum down? Any suggetions on cookware without > > > > >> aluminum or any alternative cookware to avoid aluminum? > > > > >> Sincerely, > > > > >> > > > > >> Rei > > > > >> *Branch Manager* > > > > >> Network Funding, LP > > > > >> 6070 Gateway East, Suite 509 > > > > >> El Paso, TX 79905 > > > > >> Phone: > > > > >> Fax: > > > > >> Cell: > > > > >> Less in Debt. More in Life. > > > > >> Ask me about debt consolidation loans. > > > > >> > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 What damage is done by chelating via IV or suppository? And what do you see? > > Good advice from . > > I would also second the notion that you need to be cautious in regards > to a DAN doctor. I think they can be very helpful, and I feel we are > lucky there are at least some doctors who are trying to make a big > difference for ASD patients. However when it comes to chelation, a lot > of them are misinformed and often make recommendations for incorrect > protocols that cause too much heavy metal redistribution and even > regression. I have seen this happen with a few families now, and they > are now trying to use Cutler protocol to reverse the damage that was > done from chelating incorrectly. > > So if you can find a DAN doctor that supports Cutler protocol and is > well read about it, that is fantastic. However if you can't, you can do > this yourself, like many of us are. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 Thank you, , . As we email, I have ordered the book from Cutler, for saftey conern, I just emailed Andy Cutler regarding this protocol with SSRI and anti-psychotic drugs intakes that my son is on... If I get any feedback from Andy Cutler, I will share the info with our group. Sincerely, Rei Branch Manager Network Funding, LP 6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell: Less in Debt. More in Life. Ask me about debt consolidation loans. I would first join the Autism-Mercury group and read the files. The book is called "Amalgam Illness" and can be bought at www.noamalgam. com. There is a lot of useful information in it, it is not an easy read (written by chemist), but you will get used to it and probably refer to it over and over. You can search the group at www.onibasu. com with key words in all your questions, such as "risperdal". You don't need a DAN!, in fact, they are not always supportive because most want you to come in for IV chelation. It is nice to have a doctor who you can go to from time to time with questions or to get tests and this may involve calling many doctors and finding one who is willing work with you. > > > > >> My son's hair test reported with very high level of > > aluminum. How> > > > >> do I get alumimum down? Any suggetions on cookware without> > > > >> aluminum or any alternative cookware to avoid aluminum?> > > > >> Sincerely,> > > > >>> > > > >> Rei > > > > >> *Branch Manager*> > > > >> Network Funding, LP> > > > >> 6070 Gateway East, Suite 509> > > > >> El Paso, TX 79905> > > > >> Phone: > > > > >> Fax: > > > > >> Cell: > > > > >> Less in Debt. More in Life.> > > > >> Ask me about debt consolidation loans.> > > > >> > > > > >>> > > > >>> > > > >> > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 And which detox protocol we should not touch? Sincerely, Rei Branch Manager Network Funding, LP 6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell: Less in Debt. More in Life. Ask me about debt consolidation loans. Subject: Re: How and where to start Cutler Protocol--detox mercury?To: mb12 valtrex Date: Monday, September 8, 2008, 9:51 AM What damage is done by chelating via IV or suppository? And what do you see?>> Good advice from .> > I would also second the notion that you need to be cautious in regards > to a DAN doctor. I think they can be very helpful, and I feel we are > lucky there are at least some doctors who are trying to make a big > difference for ASD patients. However when it comes to chelation, a lot > of them are misinformed and often make recommendations for incorrect > protocols that cause too much heavy metal redistribution and even > regression. I have seen this happen with a few families now, and they > are now trying to use Cutler protocol to reverse the damage that was > done from chelating incorrectly.> > So if you can find a DAN doctor that supports Cutler protocol and is > well read about it, that is fantastic. However if you can't, you can do > this yourself, like many of us are.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 What damage is done by chelating via IV or suppository? >>>risking redistribution of metals, possibly to a worse place than they were mobilsed from And what do you see? >>Most folks call it a 'detox reaction'............... Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 Damage via redistribution all depends upon the chelator used and the timing and dosage in which it is used. That's why Cutler has looked are research papers in the use of various chelators to work out the best dosage and timing of doses to minimize redistribution. IVs So lets take IV EDTA for example (In most cases I'd say don't do it but if you do make sure its calcium EDTA by the way). Doing IV chelation only makes sense if the exposure was very recent and the heavy metals are still in the blood. Heavy metals will leave the blood very quickly and go into cells and tissue. Once this happens IV chelation is not the best option. Now in relation to EDTA, this is a chelator for lead, but two important things to note are DMSA is actually a better chelator for lead than EDTA. Most importantly, if you ALSO have a mercury problem, then EDTA is not advised at all because it can actually cause the mercury to concentrate in the brain, which we REALLY don't want. Suppository The logic behind suppositories is to try and bypass gut issues, which makes sense to some degree, however psychological issues also come into consideration. The other point on this issue is that it makes a lot of sense to try and heal the gut as much as possible before chelation, however there are some kids that are so damaged by metals, that until some initial chelation is done, healing of the gut can be impossible for some. So what this means, is if you have been working vigorously to heal the gut for many years and are not making progress, you really need to reconsider your strategy..... anyway, back to the suppository example, you could, for example use a DMPS suppository, every 8 hours, which is the correct timing for DMPS administration as per Cutler, and the absolute MAX dose, as per Cutler is 1mg per kg, or half a mg per pound. Damage The specific damage that can come from incorrect chelation varies from person to person. When the metals are redistributed into new cells, those cells now become damaged and it is the function of those cells that will determine what damage you see on the surface. Often the worse cases result in an increase in ASD symptoms, worse eye contact, worse speech, worse stims, etc. Hope that answers the question. nicolewallaceouaf wrote: What damage is done by chelating via IV or suppository? And what do you see? > > Good advice from . > > I would also second the notion that you need to be cautious in regards > to a DAN doctor. I think they can be very helpful, and I feel we are > lucky there are at least some doctors who are trying to make a big > difference for ASD patients. However when it comes to chelation, a lot > of them are misinformed and often make recommendations for incorrect > protocols that cause too much heavy metal redistribution and even > regression. I have seen this happen with a few families now, and they > are now trying to use Cutler protocol to reverse the damage that was > done from chelating incorrectly. > > So if you can find a DAN doctor that supports Cutler protocol and is > well read about it, that is fantastic. However if you can't, you can do > this yourself, like many of us are. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 A common trap people fall into is using chlorella. Chlorella is pushed as a natural, safe detox method. However for mercury toxic people chlorella can do a lot of harm, as it will move the metals around and cause redistribution damage, but it is not strong enough to carry the metals all of the way out of the body. The whole natural VS not natural argument is a mind trap people often fall into. In general, I agree it is good to be as natural as possible, particularly with food. But with something as serious as getting mercury out of the brain, then you can't just rely on a simple philosophy of "natural is the only way". After all, if we methylate mercury, then we have organic mercury. Does anyone want to argue that organic mercury is safe because it is natural? Rei wrote: And which detox protocol we should not touch? Sincerely, Rei Branch Manager Network Funding, LP 6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell: Less in Debt. More in Life. Ask me about debt consolidation loans. From: nicolewallaceouaf <nicolewallaceouaf> Subject: Re: How and where to start Cutler Protocol--detox mercury? To: mb12 valtrex Date: Monday, September 8, 2008, 9:51 AM What damage is done by chelating via IV or suppository? And what do you see? > > Good advice from . > > I would also second the notion that you need to be cautious in regards > to a DAN doctor. I think they can be very helpful, and I feel we are > lucky there are at least some doctors who are trying to make a big > difference for ASD patients. However when it comes to chelation, a lot > of them are misinformed and often make recommendations for incorrect > protocols that cause too much heavy metal redistribution and even > regression. I have seen this happen with a few families now, and they > are now trying to use Cutler protocol to reverse the damage that was > done from chelating incorrectly. > > So if you can find a DAN doctor that supports Cutler protocol and is > well read about it, that is fantastic. However if you can't, you can do > this yourself, like many of us are. > > Quote Link to comment Share on other sites More sharing options...
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