Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Oh, Bren. My heart and prayers got out to you. This can be so difficult to cope with. Sounds like you've had a real nightmare. Come back here as often as you need to. We're open 24/7! Hang in there. Hope I don't lose my mind My daughter is having so many different medical problems and school problems that I am starting to wake up having panic attacks at 3:00 in the morning or 4:00. Today it was 5:00. She's had a staph infection in her feet that has kept her immobilized for 3 and a half weeks. She's a very serious ballet dancer and hasn't been able to do a thing for three weeks. She finally finished her second round of antibiotics Sunday but then the skin started coming off her toes in sheets. I took her back to the er and they said it was ok as long as it wasn't red ore sore and that she could go back to dance. She was supposed to go back Monday but had to have a sleep study done for narcolepsy and sleep apnea on Tuesday night thus had to go without out her medicine that keeps her awake for 3 days. The days were horrible. She didn't want to go to dance on Monday because she felt badly from being tired - so ok, I'll call and tell them she'll be there Wednesday. They kept her until 5:00 Wed at the sleep study. We got in a huge fight because her latest thing seems to be obsessing that she is getting wrinkles. I told her we had to leave at 6:30 to eat and get to the sleep place. She obsessed over looking up the ingredients in moisturizers to make sure they are acceptable until 5;00 and then started pilates instead of getting dressed. (Getting dressed and showered is at least a 2 hour thing) I lost my temper with her because I knew we had to be there at a certain time to do the study or they couldn't do it. We've been trying to schedule this study since last June. She gets hysterical because she gets hysterical if she thinks I'm mad but refused to stop the pilates (I'm almost done ) but she kept at it for another 25 minutes. Now it's 6:15 and she isn't dressed, hasn't showered and washed and dryed her hair which had to be done before the study and we were supposed to leave at 6:30. She also hadn't packed. I just nearly lost it. Sometimes things have been so bad lately that I have fantasized about putting a gun to my head. We have her first apptmt with and ocd psychiatrist next Wednesday and I'm just trying to make it until then. I'm starting to get scared that I'm going to crack up over all this as I am with her 24/7 with little support from my husband. Sorry for rambling. I'm just having such a bad day. Bren <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Never miss a thing. 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Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi Bren: I am with you and really understand about lossing temper. I am mother of 4 and my husband travels each week from monday through friday, so eventhough he is supportive, he is not here. You have to hang on, your daugther needs you, show her your love, even if you are angry. You have us to talk to. Best wishes nextweek in the appointment. AGF > > Oh, Bren. My heart and prayers got out to you. This can be so difficult to cope with. > Sounds like you've had a real nightmare. Come back here as often as you need to. > We're open 24/7! > > Hang in there. > > > Hope I don't lose my mind > > > > > > > > > > > > > > > My daughter is having so many different medical problems and school > > problems that I am starting to wake up having panic attacks at 3:00 > > in the morning or 4:00. Today it was 5:00. She's had a staph > > infection in her feet that has kept her immobilized for 3 and a half > > weeks. She's a very serious ballet dancer and hasn't been able to do > > a thing for three weeks. She finally finished her second round of > > antibiotics Sunday but then the skin started coming off her toes in > > sheets. I took her back to the er and they said it was ok as long as > > it wasn't red ore sore and that she could go back to dance. She was > > supposed to go back Monday but had to have a sleep study done for > > narcolepsy and sleep apnea on Tuesday night thus had to go without > > out her medicine that keeps her awake for 3 days. The days were > > horrible. She didn't want to go to dance on Monday because she felt > > badly from being tired - so ok, I'll call and tell them she'll be > > there Wednesday. They kept her until 5:00 Wed at the sleep study. > > We got in a huge fight because her latest thing seems to be obsessing > > that she is getting wrinkles. I told her we had to leave at 6:30 to > > eat and get to the sleep place. She obsessed over looking up the > > ingredients in moisturizers to make sure they are acceptable until > > 5;00 and then started pilates instead of getting dressed. (Getting > > dressed and showered is at least a 2 hour thing) I lost my temper > > with her because I knew we had to be there at a certain time to do > > the study or they couldn't do it. We've been trying to schedule this > > study since last June. She gets hysterical because she gets > > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > > almost done ) but she kept at it for another 25 minutes. Now it's > > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > > hair which had to be done before the study and we were supposed to > > leave at 6:30. She also hadn't packed. I just nearly lost it. > > Sometimes things have been so bad lately that I have fantasized about > > putting a gun to my head. We have her first apptmt with and ocd > > psychiatrist next Wednesday and I'm just trying to make it until > > then. I'm starting to get scared that I'm going to crack up over all > > this as I am with her 24/7 with little support from my husband. > > Sorry for rambling. I'm just having such a bad day. Bren > > > > > > > > > > > > > > > <!-- > > #ygrp-mkp{ > border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line- height:122%;margin:10px 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text- transform:uppercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text- align:right;padding-right:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc{ > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o{font-size:0;} > .MsoNormal{ > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq{margin:4;} > --> > > > > > > > > > _____________________________________________________________________ _______________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 ((((Bren)))) Do you do anything for your panic attacks? There are medications and breathing techniques that can help. You need your rest. Getting overtired can make it harder to cope. I'm a bit concerned that you've fantasized about putting a gun to your head. I admit we've gone through dark times where I've found myself thinking that I wished I wasn't here, and even wished my son wasn't here too, because then he wouldn't have to suffer. . But not to the point of considering making that happen, and how. Have you considered therapy or medication for yourself? Maybe talking to someone would help you. You need to take care of you too, so you can be there for your daughter. Gee, I wish I had a dollar for every time I've been told that. <grin> But, it's true. I know it's hard to steal time for yourself, but you need to. I apologize if I'm overstepping my boundaries. . .I don't mean to be. I'm genuinely concerned. Having a child with OCD can be VERY stressful. I can relate to some of what you are saying. Our son procrastinates and procrastinates. Sometimes I feel like the biggest nagger in the world. It seems he would even forget to eat unless I told him to. My husband disconnects, so he isn't much support either. He sort of justifies it by telling me I'm stronger than him. Hmmmmmm. . .Okay, sure. Try some deep diaphramatic breathing. It helped me a lot when I had panic attacks. Hang in there, Hon. We are here to listen and support you. Hugs, BJ > > My daughter is having so many different medical problems and school > problems that I am starting to wake up having panic attacks at 3:00 > in the morning or 4:00. Today it was 5:00. She's had a staph > infection in her feet that has kept her immobilized for 3 and a half > weeks. She's a very serious ballet dancer and hasn't been able to do > a thing for three weeks. She finally finished her second round of > antibiotics Sunday but then the skin started coming off her toes in > sheets. I took her back to the er and they said it was ok as long as > it wasn't red ore sore and that she could go back to dance. She was > supposed to go back Monday but had to have a sleep study done for > narcolepsy and sleep apnea on Tuesday night thus had to go without > out her medicine that keeps her awake for 3 days. The days were > horrible. She didn't want to go to dance on Monday because she felt > badly from being tired - so ok, I'll call and tell them she'll be > there Wednesday. They kept her until 5:00 Wed at the sleep study. > We got in a huge fight because her latest thing seems to be obsessing > that she is getting wrinkles. I told her we had to leave at 6:30 to > eat and get to the sleep place. She obsessed over looking up the > ingredients in moisturizers to make sure they are acceptable until > 5;00 and then started pilates instead of getting dressed. (Getting > dressed and showered is at least a 2 hour thing) I lost my temper > with her because I knew we had to be there at a certain time to do > the study or they couldn't do it. We've been trying to schedule this > study since last June. She gets hysterical because she gets > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > almost done ) but she kept at it for another 25 minutes. Now it's > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > hair which had to be done before the study and we were supposed to > leave at 6:30. She also hadn't packed. I just nearly lost it. > Sometimes things have been so bad lately that I have fantasized about > putting a gun to my head. We have her first apptmt with and ocd > psychiatrist next Wednesday and I'm just trying to make it until > then. I'm starting to get scared that I'm going to crack up over all > this as I am with her 24/7 with little support from my husband. > Sorry for rambling. I'm just having such a bad day. Bren > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 I'm glad you are feeling a bit better today, Bren. ) We all get days where we are overwhelmed. But, if it gets that more days are like that than not, you might talk to your doc to see if you can try a med change, or even try a different counselor that understands YOU need the help to cope, so you can be there for your daughter. . . So it doesn't become about therapy for her. We homeschool also, and our son has had to take a half a year off last year when he relapsed really badly. We are trying to catch up on the work without stressing him out. It is complicated when you have a child with OCD. I've had to tell myself that what he is doing is good enough. He's a smart kid and the most it might do is slow him down a bit from progressing to college when we'd like. He wouldn't be the only kid to delay going to college though. Reading some of your other responses to posts, I could relate. Our son also tunes us out a lot. I used to think he was strong willed, now I think it is OCD controlling the moment. He gets stuck. I don't know if that's the situation with you, but I'm pretty sure it is here. He NEEDS to complete whatever he is doing before he can move on to anything else, no matter what the cost. The whole meltdown you mentioned if things aren't settled also sounds like OCD. We've had those too. Although I suspect some of it can be typical teenage behavior too. Sometimes it's hard to separate the two. Heck, even our son's psychologist can't sort it out sometimes, so that gets me off the hook. lol You mentioned you will be seeing an OCD psychiatrist. I'm assuming your daughter is not on medication then? If so, starting some could help by quieting the OCD down a bit. But, is she also going to see a therapist specializing in the treatment of OCD, who uses ERP (exposure and response prevention) and CBT (cognitive behavioral therapy) specific to OCD? That can be very helpful in teaching her how to fight her OCD and gain some control over it. The Serenity Prayer helps me a lot some days. . . . . God grant me the serenity to accept the things I cannot change. The courage to change the things I can. And the wisdom to know the difference. Some days I pray that and REALLY mean it. It helps me have perspective. I'm glad you feel it's safe to share here. You need that support, and I'm truly glad you are here. Keep communicating here. Vent when you need to. . .Cry when you need to. . (we all do). . .Use this group as a place to dump some of your stuff, or gather information about what to do, so you can make it through another day, one step at a time. Hang in there. BJ > > > > My daughter is having so many different medical problems and school > > problems that I am starting to wake up having panic attacks at 3:00 > > in the morning or 4:00. Today it was 5:00. She's had a staph > > infection in her feet that has kept her immobilized for 3 and a half > > weeks. She's a very serious ballet dancer and hasn't been able to do > > a thing for three weeks. She finally finished her second round of > > antibiotics Sunday but then the skin started coming off her toes in > > sheets. I took her back to the er and they said it was ok as long as > > it wasn't red ore sore and that she could go back to dance. She was > > supposed to go back Monday but had to have a sleep study done for > > narcolepsy and sleep apnea on Tuesday night thus had to go without > > out her medicine that keeps her awake for 3 days. The days were > > horrible. She didn't want to go to dance on Monday because she felt > > badly from being tired - so ok, I'll call and tell them she'll be > > there Wednesday. They kept her until 5:00 Wed at the sleep study. > > We got in a huge fight because her latest thing seems to be obsessing > > that she is getting wrinkles. I told her we had to leave at 6:30 to > > eat and get to the sleep place. She obsessed over looking up the > > ingredients in moisturizers to make sure they are acceptable until > > 5;00 and then started pilates instead of getting dressed. (Getting > > dressed and showered is at least a 2 hour thing) I lost my temper > > with her because I knew we had to be there at a certain time to do > > the study or they couldn't do it. We've been trying to schedule this > > study since last June. She gets hysterical because she gets > > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > > almost done ) but she kept at it for another 25 minutes. Now it's > > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > > hair which had to be done before the study and we were supposed to > > leave at 6:30. She also hadn't packed. I just nearly lost it. > > Sometimes things have been so bad lately that I have fantasized about > > putting a gun to my head. We have her first apptmt with and ocd > > psychiatrist next Wednesday and I'm just trying to make it until > > then. I'm starting to get scared that I'm going to crack up over all > > this as I am with her 24/7 with little support from my husband. > > Sorry for rambling. I'm just having such a bad day. Bren > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 I'm glad you are feeling a bit better today, Bren. ) We all get days where we are overwhelmed. But, if it gets that more days are like that than not, you might talk to your doc to see if you can try a med change, or even try a different counselor that understands YOU need the help to cope, so you can be there for your daughter. . . So it doesn't become about therapy for her. We homeschool also, and our son has had to take a half a year off last year when he relapsed really badly. We are trying to catch up on the work without stressing him out. It is complicated when you have a child with OCD. I've had to tell myself that what he is doing is good enough. He's a smart kid and the most it might do is slow him down a bit from progressing to college when we'd like. He wouldn't be the only kid to delay going to college though. Reading some of your other responses to posts, I could relate. Our son also tunes us out a lot. I used to think he was strong willed, now I think it is OCD controlling the moment. He gets stuck. I don't know if that's the situation with you, but I'm pretty sure it is here. He NEEDS to complete whatever he is doing before he can move on to anything else, no matter what the cost. The whole meltdown you mentioned if things aren't settled also sounds like OCD. We've had those too. Although I suspect some of it can be typical teenage behavior too. Sometimes it's hard to separate the two. Heck, even our son's psychologist can't sort it out sometimes, so that gets me off the hook. lol You mentioned you will be seeing an OCD psychiatrist. I'm assuming your daughter is not on medication then? If so, starting some could help by quieting the OCD down a bit. But, is she also going to see a therapist specializing in the treatment of OCD, who uses ERP (exposure and response prevention) and CBT (cognitive behavioral therapy) specific to OCD? That can be very helpful in teaching her how to fight her OCD and gain some control over it. The Serenity Prayer helps me a lot some days. . . . . God grant me the serenity to accept the things I cannot change. The courage to change the things I can. And the wisdom to know the difference. Some days I pray that and REALLY mean it. It helps me have perspective. I'm glad you feel it's safe to share here. You need that support, and I'm truly glad you are here. Keep communicating here. Vent when you need to. . .Cry when you need to. . (we all do). . .Use this group as a place to dump some of your stuff, or gather information about what to do, so you can make it through another day, one step at a time. Hang in there. BJ > > > > My daughter is having so many different medical problems and school > > problems that I am starting to wake up having panic attacks at 3:00 > > in the morning or 4:00. Today it was 5:00. She's had a staph > > infection in her feet that has kept her immobilized for 3 and a half > > weeks. She's a very serious ballet dancer and hasn't been able to do > > a thing for three weeks. She finally finished her second round of > > antibiotics Sunday but then the skin started coming off her toes in > > sheets. I took her back to the er and they said it was ok as long as > > it wasn't red ore sore and that she could go back to dance. She was > > supposed to go back Monday but had to have a sleep study done for > > narcolepsy and sleep apnea on Tuesday night thus had to go without > > out her medicine that keeps her awake for 3 days. The days were > > horrible. She didn't want to go to dance on Monday because she felt > > badly from being tired - so ok, I'll call and tell them she'll be > > there Wednesday. They kept her until 5:00 Wed at the sleep study. > > We got in a huge fight because her latest thing seems to be obsessing > > that she is getting wrinkles. I told her we had to leave at 6:30 to > > eat and get to the sleep place. She obsessed over looking up the > > ingredients in moisturizers to make sure they are acceptable until > > 5;00 and then started pilates instead of getting dressed. (Getting > > dressed and showered is at least a 2 hour thing) I lost my temper > > with her because I knew we had to be there at a certain time to do > > the study or they couldn't do it. We've been trying to schedule this > > study since last June. She gets hysterical because she gets > > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > > almost done ) but she kept at it for another 25 minutes. Now it's > > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > > hair which had to be done before the study and we were supposed to > > leave at 6:30. She also hadn't packed. I just nearly lost it. > > Sometimes things have been so bad lately that I have fantasized about > > putting a gun to my head. We have her first apptmt with and ocd > > psychiatrist next Wednesday and I'm just trying to make it until > > then. I'm starting to get scared that I'm going to crack up over all > > this as I am with her 24/7 with little support from my husband. > > Sorry for rambling. I'm just having such a bad day. Bren > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Bren, Glad she made it to the sleep study! Do update us after all those appts next week; until then, this is a great place to vent on those rough days! I do know that others that have had sleep apnea, some I know ended up wearing some type mask/device to sleep in and actually did so much better using it (not OCD related). > > They were able to do the sleep study and we find out the results next Thursday. The techs that did it told us she had several apneas (I don't know if this means she has sleep apnea because their not trained to make the reports) and that she also had the REM sleep numerous times during the daytime naps they gave her which is supposed to be how they diagnose narcolepsy -- I just don't know Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Bren, Glad she made it to the sleep study! Do update us after all those appts next week; until then, this is a great place to vent on those rough days! I do know that others that have had sleep apnea, some I know ended up wearing some type mask/device to sleep in and actually did so much better using it (not OCD related). > > They were able to do the sleep study and we find out the results next Thursday. The techs that did it told us she had several apneas (I don't know if this means she has sleep apnea because their not trained to make the reports) and that she also had the REM sleep numerous times during the daytime naps they gave her which is supposed to be how they diagnose narcolepsy -- I just don't know Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 <<<I just worry how in the world I'm going to get her finished with high school. She's still on the middle of her sophomore year and she's a junior and that's where she was when we took her out of school last year this time.>>> Hi Bren, My daughter (almost 16) also homeschools and is doing her sophomore year by corespondence mainly. She is actually working on 9th and 10th grade slowly and simulataneously b/c of her 3 mo hospitalization last year and the pre and post status (kind of chaotic) around that event. I have notified her curriculum provider she needs extended time, and she can finish highschool at her own pace as far as I'm concerned b/c she would not be ready for college as an 18 yr old anyways. She really likes writing and her writing is great to read, so she is taking an online comunity college writing course that is more motivating than her regular coursework. It is impotant to keep her stimulated with things that esp motivate her, then she keeps at the other stuff a bit better too. Othwewise she jusy f goes into a slump. she is also very motivated to learn to drive (but it is slow going with her visu-spatail sensori-motor stuff). I use these things to try to keep her eating well enough too. nancy grace > > > > My daughter is having so many different medical problems and school > > problems that I am starting to wake up having panic attacks at 3:00 > > in the morning or 4:00. Today it was 5:00. She's had a staph > > infection in her feet that has kept her immobilized for 3 and a half > > weeks. She's a very serious ballet dancer and hasn't been able to do > > a thing for three weeks. She finally finished her second round of > > antibiotics Sunday but then the skin started coming off her toes in > > sheets. I took her back to the er and they said it was ok as long as > > it wasn't red ore sore and that she could go back to dance. She was > > supposed to go back Monday but had to have a sleep study done for > > narcolepsy and sleep apnea on Tuesday night thus had to go without > > out her medicine that keeps her awake for 3 days. The days were > > horrible. She didn't want to go to dance on Monday because she felt > > badly from being tired - so ok, I'll call and tell them she'll be > > there Wednesday. They kept her until 5:00 Wed at the sleep study. > > We got in a huge fight because her latest thing seems to be obsessing > > that she is getting wrinkles. I told her we had to leave at 6:30 to > > eat and get to the sleep place. She obsessed over looking up the > > ingredients in moisturizers to make sure they are acceptable until > > 5;00 and then started pilates instead of getting dressed. (Getting > > dressed and showered is at least a 2 hour thing) I lost my temper > > with her because I knew we had to be there at a certain time to do > > the study or they couldn't do it. We've been trying to schedule this > > study since last June. She gets hysterical because she gets > > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > > almost done ) but she kept at it for another 25 minutes. Now it's > > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > > hair which had to be done before the study and we were supposed to > > leave at 6:30. She also hadn't packed. I just nearly lost it. > > Sometimes things have been so bad lately that I have fantasized about > > putting a gun to my head. We have her first apptmt with and ocd > > psychiatrist next Wednesday and I'm just trying to make it until > > then. I'm starting to get scared that I'm going to crack up over all > > this as I am with her 24/7 with little support from my husband. > > Sorry for rambling. I'm just having such a bad day. Bren > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 <<<I just worry how in the world I'm going to get her finished with high school. She's still on the middle of her sophomore year and she's a junior and that's where she was when we took her out of school last year this time.>>> Hi Bren, My daughter (almost 16) also homeschools and is doing her sophomore year by corespondence mainly. She is actually working on 9th and 10th grade slowly and simulataneously b/c of her 3 mo hospitalization last year and the pre and post status (kind of chaotic) around that event. I have notified her curriculum provider she needs extended time, and she can finish highschool at her own pace as far as I'm concerned b/c she would not be ready for college as an 18 yr old anyways. She really likes writing and her writing is great to read, so she is taking an online comunity college writing course that is more motivating than her regular coursework. It is impotant to keep her stimulated with things that esp motivate her, then she keeps at the other stuff a bit better too. Othwewise she jusy f goes into a slump. she is also very motivated to learn to drive (but it is slow going with her visu-spatail sensori-motor stuff). I use these things to try to keep her eating well enough too. nancy grace > > > > My daughter is having so many different medical problems and school > > problems that I am starting to wake up having panic attacks at 3:00 > > in the morning or 4:00. Today it was 5:00. She's had a staph > > infection in her feet that has kept her immobilized for 3 and a half > > weeks. She's a very serious ballet dancer and hasn't been able to do > > a thing for three weeks. She finally finished her second round of > > antibiotics Sunday but then the skin started coming off her toes in > > sheets. I took her back to the er and they said it was ok as long as > > it wasn't red ore sore and that she could go back to dance. She was > > supposed to go back Monday but had to have a sleep study done for > > narcolepsy and sleep apnea on Tuesday night thus had to go without > > out her medicine that keeps her awake for 3 days. The days were > > horrible. She didn't want to go to dance on Monday because she felt > > badly from being tired - so ok, I'll call and tell them she'll be > > there Wednesday. They kept her until 5:00 Wed at the sleep study. > > We got in a huge fight because her latest thing seems to be obsessing > > that she is getting wrinkles. I told her we had to leave at 6:30 to > > eat and get to the sleep place. She obsessed over looking up the > > ingredients in moisturizers to make sure they are acceptable until > > 5;00 and then started pilates instead of getting dressed. (Getting > > dressed and showered is at least a 2 hour thing) I lost my temper > > with her because I knew we had to be there at a certain time to do > > the study or they couldn't do it. We've been trying to schedule this > > study since last June. She gets hysterical because she gets > > hysterical if she thinks I'm mad but refused to stop the pilates (I'm > > almost done ) but she kept at it for another 25 minutes. Now it's > > 6:15 and she isn't dressed, hasn't showered and washed and dryed her > > hair which had to be done before the study and we were supposed to > > leave at 6:30. She also hadn't packed. I just nearly lost it. > > Sometimes things have been so bad lately that I have fantasized about > > putting a gun to my head. We have her first apptmt with and ocd > > psychiatrist next Wednesday and I'm just trying to make it until > > then. I'm starting to get scared that I'm going to crack up over all > > this as I am with her 24/7 with little support from my husband. > > Sorry for rambling. I'm just having such a bad day. Bren > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
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