Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 In a message dated 4/17/2004 12:20:47 AM Central Standard Time, CheLynHur343@... writes: Hi all, My name is Cheri and I am new to this list. I will be having my DS performed on May 11th by Dr. Keshishian. I made my room reservations to day and have been getting my protein in and 1500 mg calcium. I look forward to getting to know all of you and your stories. Cheri Welcome Cheri, I am From Alabama...I went 3000 miles to have surgery with Dr, K. You've done well and picked a good guy. Believe you me, I'm a nurse and my opinions of most surgeons are kind of Jaded, so if I think he's great, you know he's got to be great!! So you want a story? Here's a start...... To My dearest friends..... You guys will never know how much you mean to me. I have never written a 1 year update, because I was hospitalized receiving blood transfusions at the time and battling depression and fear over my health and really worried. Even as a nurse, I had never seen a HGB that was less than 6 outside of an ICU and then it was a panic situation. So I thought I would write this now. I have been through so much in the past 16 months, The ride isn't over yet so I'm still hanging on. The weight loss is still 5-6 lbs a month which I think is great this far out. I look to people like Pat and others who are doing great and still losing past their window as my ideals. I look to Marta as a shining success, and I look at the PICS of all of my friends online and see the changes and think, WOW! For those of you who know me well, It has been a long hard road for me. I have been through not 1, not 2, but 3 major surgeries in my fight against my weight. At this point in my life I am the smallest I have been ever! I Know I'm not tiny at 242lbs, But when you've spent the biggest part of your life at 350 or more, 242 is tiny to you. I know Sometimes I have a hard time explaining myself, Part of my emotional baggage from the traumas of living growing up morbidly obese is that I need people to understand me. One of the biggest hurts I have felt since becoming post op was being told that I don't understand the pain of being morbid obesity. Lord, If anyone who is 433lbs at age 17 has no idea, I have no clue who does. Many times growing up I prayed to die. Until you have lived the pain of high school at 400+ lbs, you can never understand. I lived the trauma of being the fat one. One of my friends in Jr. High school had alopecia and it was auto immune in nature and had to wear a wig from puberty on. She was teased unmercifully and so was, I so we became friends. They called us Piggly wiggly(The name of a local grocery store). I can remember as a child going into a Winn Dixie with Momma after one of our many weight watchers meetings, I always loved the lobster tank...LOL....I was only about 10. An older lady came up to me and said ...Girl, you don't need to be here you need to be home reducing. I ran to the car crying and my mother never knew what happened. I refuesed to tell anyone till this group. Momma had trouble finding clothes to fit my size 52 frame and what she did find were very expensive...(my dad did as little as possible) and I had 3 or 4 good pair of pants (Always stretch) when my friends had tons of jeans and clothes. I always wanted clothes like my friends. Teens now are lucky....All I had available were old lady clothes...polyester stretch...mostly black. No tees because they didn't make them to fit me. At 17 I had the VBG...Lost to high 270s or 280s. Got married and had kids. Over the years the weight came back and I was vomiting. I had been diagnosed with pseudo tumor cerebri, and had to have every 6 months -1yr spinal taps from the age of 17 on. I was told that weight made this worse. I couldn't go to 6 flags and ride roller coasters, because they wouldn't fit....How embarrassing to stand in line for hrs and not be able to ride when you get up. And everyone knows why you weren't allowed to ride. My RNY was a horrible failure. I was treated like crap by the doc when I wasn't a shining success, And friends who had lost more didn't want to discuss the problems and went on with lives, leaving me with the shame. I refused to tell people that I had it done. All of you by now know that I had multiple medical problems related to the RNY. I wanted desperately to get it fixed. I was passing 350 and dieted down to 340 and hit a 3 week plateau, and gave up once again. I was sent to a doc due to passing out and the first thing the cardio guy said was can't they fix it??? So I started looking into it, first planning to use Dr. Booth, then he retired. I considered a RNY to More distal RNY revision with a ring....Then one day, Fate put me in touch with Dee. Looking back It was a God thing. I had a pre cancerous condition called menetrieres syndrome. If I hadn't had the DS revision, It would have continues to progress unknown until it invaded another more important organ and by then it would have been too late. It wasn't easy, I fought Insurance tooth and nail. BUT then again God had a hand. He sent me to DR. K who had a great revision record, and in touch with you guys who were my lifeline throughout the wait. So many things that if I had given up would have been the end of me....Literally. I waited until my Medicare, which I wouldn't have had without the fibro and the Car wreck, and it eventually got me the surgery. Tom's job was sent to Mexico and it left his 401 K for travel available. So many things worked together to help me get what I desperately needed and just didn't know how bad. I couldn't sleep well due to fat and tissue around my neck and shoulders. I was winded after minimal exertion....Knee and hip pains, The pseudo tumor caused horrible headaches. My B/P was sky high and not being controlled well. My labs were lousy but with no followup from my RNY doc, I never knew it. Between 18 yrs of lifting and a car wreck, My neck and thoracic areas were in horrible shape, and I ended up with 2 spinal compression fractures, and a metal plate in my neck and a cervical fusion.I also have bone spurs compressing nerves on my back from tiny cracks in the vertabrae and the resulting inflamatoin that was caused. I was miserable and wanted God to put me out of my misery. With my consult with Dr. K I was told that I might only lose to 277lbs. I told him, that it was fine with me, because it would be better than gaining once again past 400lbs. I knew I was dying. Fast forward 16 months. The 100 lbs Dr. K predicted is now 135 lbs gone. I still have 8 or so more months on my window and no plastics yet...So no matter what, I am up 35 lbs on his estimate. My best goal is 200lbs which I may or may not hit....But probably will with Plastics. I have a special insight ibeyond the typical DSer because I came into it with a knowledge that I was never a very small person and never expected to lose this much. So every day to me is wonderful because I am still losing and have gained much back. Emotionally I have a better ability to handle the slower losses and plateaus, although it is frustrating,because I was warned not to expect as much, where other might not have been told this. It was my reality. The pseudotumor is much better. With minimal symptoms, I haven't needed a spinal tap in over 2 yrs. They are painful and although they provide a little short term relief from symptoms, with the losses, I may never ever have need for regular taps again. This is amazing when you realize that 2 yrs ago I was facing a cranial shunt to relieve my pressure and save my eyesight. I am still night blind and have trouble from eyes adjusting with light changes, but nothing as bad as before. I can sleep (when I sleep) without smothering...I can go to a restaurant and be amazed at the room between me and the table. While my pain is still unbearable at times from the fibro, It is easier to bear when there isn't 135 extra lbs on top of me weighing down. Emotionally, I don't feel like people are staring at me. A close friend told me today how beautiful I am....Me? I never saw myself as beautiful. I mean I knew I wasn't dog ugly, but beautiful? I'm even thinking of going to 6 flags with in a few weeks....impossible last year. \ I can drive tom's truck (when it runs....LOL) and before surgery, I couldn't fit into the seat behind the wheel(It was a ranger, very small). I don't wonder if anyone who is giggling is laughing at me. I find I love new clothes, and would love lots of pretty frilly clothes, but they will have to wait until Tom's new job gets money situated. We had to pay state income tax this year, so his first check is going to pay back the money from that. I'm hoping maybe things will be well enough I can schedule my arm work and possible Boob reduction at the end of summer. I'm expecting to have to pay cash for the arms.... I have very few Bowel issues, about the same as the RNY except I can drink and eat dairy products now and couldn't before. Potato chips are still sent from Satan himself in my opinion.....LOL. I will now return to lurking. I will post more later when I feel more comfortable with the situation. Anyone who is debating, I say go for it! Life gets better by the day and it is well worth the pain. If someone had told me 2 years ago I'd be here, I'd never have believed them. And it's only getting better. So this is my one year update, 4 months Late....LOL.... You know God is Good, He saved my health, he sent Me good friends and Dr. K's group, provided when I needed him. I have love, family, friends, and my mental health. Things, That a few more years of SMO might have robbed from me. My kids have a momma who can do more with them. If the fibro and Chronic pain would disappear, there'd be no stopping me!! So This is my Late, late, 1 year update...LOL. Cheri and those new folks, You have found a great source of info , as we have all been there and done that, I have done all 3 and if you ever have any doubts wether you chose right, ask me, and I'll give the god the bad and the ugly on all of them. I am not the most gifted writer of the bunch...I delegate that to Ann and the rest of the talented writers. I remain on revision boards much of the time, because I think I can help many people there who Are hurting as much as I did. I wish there was some way I could get the word out to the RNY and other failed surgeries that they aren't alone....Maybe help someone get their pain relieved and know that someone understands. It hurts like hell to be stuck, not understanding why things didn't work for you and it did for others. I e-mailed the lady who told me about Booth the other day and told her that she saved my life more than she will ever know. Maybe I can pay it forward. I wish I could do something in this area to help people in my situation but the only local docs are RNY, and even though I think it's ok For some, I feel like there is more problems people don't know. Almost daily for the last week, I have recieved e-mails from my Home page on AOL telling me how I inspired them. I talk to people all over the US and explain to them they are not alone. Maybe God put me in this situation for a reason, But maybe one day I will see. So I will return to lurking for now. One last word is I love you guys and I am sooooo glad that most of you are in my life. in Bama VBG 1982 (lost from 433lbs to 270's) VBG -RNY1996 revision(Lost from 343 to 299) RNY-DS revision Dec 2002 -down 135 lbs (377.7 to 242.2 and still going) Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html Many thanks to Dr. K willing to take on a 3rd timer....LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Cindee, Heres the story...I am 44years old, married 16 years, have 3 children two girls 13 & 10, one boy 8. I home school all my children. I have been over weight almost all my life, with a few short periods of being slim. My husband and I were just talking, I have been on a diet every Easter for the last 16 years. I have been on every diet ever invented, I even made up a few of mine own. My old PCP strongly recommended that I have WLS and within two days I was approved for the RNY. Every time I thought about I would cry, I got online and started to research the RNY and I joined an email list not unlike this one, I received an email from I think it was Dina McBride or something like that, saying that before I do anything I should look into the DS. I did and there was no going back. I started trying to get my medical group to approve an out of network doctor so I could have the DS. I was told that my BMI was not high enough and was denied. I gained 25pounds giving me a BMI of 51. I changed PCP's back to the one who delivered my three babies and within two weeks was approved for my consult, I did that on March 18th. Two weeks later I got the call that I had been approved for the DS and that my insurance was going to cover everything but the program fee, I was then given my date of May 11th. I meet with Dr. K at the end of a long busy vacation in Southern California, we ran all over Disneyland and California Adventure, we went to taping of the Judge Judy show and the Wayne Brady Show. At Judge Judy I am in the front row of the audience, so if you watch her show, look for a blonde in a green shirt looking very bloated, that will be me. I did allow my husband to take two pictures of me at Disneyland, if I ever get brave and start seeing changes in my body after I'm switched I will post them, they are the first pictures taken of me in 13 years. I can't wait for these first steps to changing my life to start. Did you having the DS change the lives of your family? I am in hopes that by my getting healthy it will help me to help my family to eat better, I do all the cooking in my house and the shopping. So I pray that the changes in me will have some of the trickle down effect. Sorry it is so long, but that's the starting story, you'll all have to stay tuned for the next chapter. Cheri PS Cindee, I have been reading about your story for the last year, as well as others on this and many other DS sites. Those are what encourage me. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 welcome to the group cheri this is a great group for sharing info take care amber I'm New Hi all, My name is Cheri and I am new to this list. I will be having my DS performed on May 11th by Dr. Keshishian. I made my room reservations to day and have been getting my protein in and 1500 mg calcium. I look forward to getting to know all of you and your stories. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Welcome Cheri! You have found the perfect place to be !! We have all fought that war with Obesity and underestand the battles and the resulting comorbidities. We can relate and we welcome you with open arms! Just like any large, loving family there is always gonna be a little nagging, bickering and good hearted teasing, and even more so there is love and support and encouragement and lots of shoulders to lean on when you need a friend! Tell us a bit about you, family? age? married? job? Just whatever you feel comfortable sharing.!! How did you come to chose the ds and Dr K? Also, always feel free to sk us anything you like, LOL, no matter how silly, petty, gross, or repulsive, we have been there! Cindee Hanford, Ca highest weight 252 pounds size 26/28, 3X - BMI 42 preop weight 238 pounds size 22/24, 2X - BMI 39.4 DS 10/15/02 with Dr Zarihya Hernia repair/tummy tuck 01/09/04 todays weight 137 and a size 8 - BMI 23 Minus 101 pounds!!! No more aching hips, no more aching knees, no more blood pressure medications!!! Asthma meds cut to once daily as opposed to 4-6 times daily (I still have just 1 lung, darn it!) Healthier, happier, and loving life! My Weight Loss Journey http://www.geocities.com/firecoupleinca > Hi all, > > My name is Cheri and I am new to this list. I will be having my DS performed > on May 11th by Dr. Keshishian. I made my room reservations to day and have > been getting my protein in and 1500 mg calcium. > > I look forward to getting to know all of you and your stories. > > Cheri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 we missed you and I loved your post and I am sending good thoughts that all continues to be good in your life take care amber Re: I'm New In a message dated 4/17/2004 12:20:47 AM Central Standard Time, CheLynHur343@... writes: Hi all, My name is Cheri and I am new to this list. I will be having my DS performed on May 11th by Dr. Keshishian. I made my room reservations to day and have been getting my protein in and 1500 mg calcium. I look forward to getting to know all of you and your stories. Cheri Welcome Cheri, I am From Alabama...I went 3000 miles to have surgery with Dr, K. You've done well and picked a good guy. Believe you me, I'm a nurse and my opinions of most surgeons are kind of Jaded, so if I think he's great, you know he's got to be great!! So you want a story? Here's a start...... To My dearest friends..... You guys will never know how much you mean to me. I have never written a 1 year update, because I was hospitalized receiving blood transfusions at the time and battling depression and fear over my health and really worried. Even as a nurse, I had never seen a HGB that was less than 6 outside of an ICU and then it was a panic situation. So I thought I would write this now. I have been through so much in the past 16 months, The ride isn't over yet so I'm still hanging on. The weight loss is still 5-6 lbs a month which I think is great this far out. I look to people like Pat and others who are doing great and still losing past their window as my ideals. I look to Marta as a shining success, and I look at the PICS of all of my friends online and see the changes and think, WOW! For those of you who know me well, It has been a long hard road for me. I have been through not 1, not 2, but 3 major surgeries in my fight against my weight. At this point in my life I am the smallest I have been ever! I Know I'm not tiny at 242lbs, But when you've spent the biggest part of your life at 350 or more, 242 is tiny to you. I know Sometimes I have a hard time explaining myself, Part of my emotional baggage from the traumas of living growing up morbidly obese is that I need people to understand me. One of the biggest hurts I have felt since becoming post op was being told that I don't understand the pain of being morbid obesity. Lord, If anyone who is 433lbs at age 17 has no idea, I have no clue who does. Many times growing up I prayed to die. Until you have lived the pain of high school at 400+ lbs, you can never understand. I lived the trauma of being the fat one. One of my friends in Jr. High school had alopecia and it was auto immune in nature and had to wear a wig from puberty on. She was teased unmercifully and so was, I so we became friends. They called us Piggly wiggly(The name of a local grocery store). I can remember as a child going into a Winn Dixie with Momma after one of our many weight watchers meetings, I always loved the lobster tank...LOL....I was only about 10. An older lady came up to me and said ...Girl, you don't need to be here you need to be home reducing. I ran to the car crying and my mother never knew what happened. I refuesed to tell anyone till this group. Momma had trouble finding clothes to fit my size 52 frame and what she did find were very expensive...(my dad did as little as possible) and I had 3 or 4 good pair of pants (Always stretch) when my friends had tons of jeans and clothes. I always wanted clothes like my friends. Teens now are lucky....All I had available were old lady clothes...polyester stretch...mostly black. No tees because they didn't make them to fit me. At 17 I had the VBG...Lost to high 270s or 280s. Got married and had kids. Over the years the weight came back and I was vomiting. I had been diagnosed with pseudo tumor cerebri, and had to have every 6 months -1yr spinal taps from the age of 17 on. I was told that weight made this worse. I couldn't go to 6 flags and ride roller coasters, because they wouldn't fit....How embarrassing to stand in line for hrs and not be able to ride when you get up. And everyone knows why you weren't allowed to ride. My RNY was a horrible failure. I was treated like crap by the doc when I wasn't a shining success, And friends who had lost more didn't want to discuss the problems and went on with lives, leaving me with the shame. I refused to tell people that I had it done. All of you by now know that I had multiple medical problems related to the RNY. I wanted desperately to get it fixed. I was passing 350 and dieted down to 340 and hit a 3 week plateau, and gave up once again. I was sent to a doc due to passing out and the first thing the cardio guy said was can't they fix it??? So I started looking into it, first planning to use Dr. Booth, then he retired. I considered a RNY to More distal RNY revision with a ring....Then one day, Fate put me in touch with Dee. Looking back It was a God thing. I had a pre cancerous condition called menetrieres syndrome. If I hadn't had the DS revision, It would have continues to progress unknown until it invaded another more important organ and by then it would have been too late. It wasn't easy, I fought Insurance tooth and nail. BUT then again God had a hand. He sent me to DR. K who had a great revision record, and in touch with you guys who were my lifeline throughout the wait. So many things that if I had given up would have been the end of me....Literally. I waited until my Medicare, which I wouldn't have had without the fibro and the Car wreck, and it eventually got me the surgery. Tom's job was sent to Mexico and it left his 401 K for travel available. So many things worked together to help me get what I desperately needed and just didn't know how bad. I couldn't sleep well due to fat and tissue around my neck and shoulders. I was winded after minimal exertion....Knee and hip pains, The pseudo tumor caused horrible headaches. My B/P was sky high and not being controlled well. My labs were lousy but with no followup from my RNY doc, I never knew it. Between 18 yrs of lifting and a car wreck, My neck and thoracic areas were in horrible shape, and I ended up with 2 spinal compression fractures, and a metal plate in my neck and a cervical fusion.I also have bone spurs compressing nerves on my back from tiny cracks in the vertabrae and the resulting inflamatoin that was caused. I was miserable and wanted God to put me out of my misery. With my consult with Dr. K I was told that I might only lose to 277lbs. I told him, that it was fine with me, because it would be better than gaining once again past 400lbs. I knew I was dying. Fast forward 16 months. The 100 lbs Dr. K predicted is now 135 lbs gone. I still have 8 or so more months on my window and no plastics yet...So no matter what, I am up 35 lbs on his estimate. My best goal is 200lbs which I may or may not hit....But probably will with Plastics. I have a special insight ibeyond the typical DSer because I came into it with a knowledge that I was never a very small person and never expected to lose this much. So every day to me is wonderful because I am still losing and have gained much back. Emotionally I have a better ability to handle the slower losses and plateaus, although it is frustrating,because I was warned not to expect as much, where other might not have been told this. It was my reality. The pseudotumor is much better. With minimal symptoms, I haven't needed a spinal tap in over 2 yrs. They are painful and although they provide a little short term relief from symptoms, with the losses, I may never ever have need for regular taps again. This is amazing when you realize that 2 yrs ago I was facing a cranial shunt to relieve my pressure and save my eyesight. I am still night blind and have trouble from eyes adjusting with light changes, but nothing as bad as before. I can sleep (when I sleep) without smothering...I can go to a restaurant and be amazed at the room between me and the table. While my pain is still unbearable at times from the fibro, It is easier to bear when there isn't 135 extra lbs on top of me weighing down. Emotionally, I don't feel like people are staring at me. A close friend told me today how beautiful I am....Me? I never saw myself as beautiful. I mean I knew I wasn't dog ugly, but beautiful? I'm even thinking of going to 6 flags with in a few weeks....impossible last year. \ I can drive tom's truck (when it runs....LOL) and before surgery, I couldn't fit into the seat behind the wheel(It was a ranger, very small). I don't wonder if anyone who is giggling is laughing at me. I find I love new clothes, and would love lots of pretty frilly clothes, but they will have to wait until Tom's new job gets money situated. We had to pay state income tax this year, so his first check is going to pay back the money from that. I'm hoping maybe things will be well enough I can schedule my arm work and possible Boob reduction at the end of summer. I'm expecting to have to pay cash for the arms.... I have very few Bowel issues, about the same as the RNY except I can drink and eat dairy products now and couldn't before. Potato chips are still sent from Satan himself in my opinion.....LOL. I will now return to lurking. I will post more later when I feel more comfortable with the situation. Anyone who is debating, I say go for it! Life gets better by the day and it is well worth the pain. If someone had told me 2 years ago I'd be here, I'd never have believed them. And it's only getting better. So this is my one year update, 4 months Late....LOL.... You know God is Good, He saved my health, he sent Me good friends and Dr. K's group, provided when I needed him. I have love, family, friends, and my mental health. Things, That a few more years of SMO might have robbed from me. My kids have a momma who can do more with them. If the fibro and Chronic pain would disappear, there'd be no stopping me!! So This is my Late, late, 1 year update...LOL. Cheri and those new folks, You have found a great source of info , as we have all been there and done that, I have done all 3 and if you ever have any doubts wether you chose right, ask me, and I'll give the god the bad and the ugly on all of them. I am not the most gifted writer of the bunch...I delegate that to Ann and the rest of the talented writers. I remain on revision boards much of the time, because I think I can help many people there who Are hurting as much as I did. I wish there was some way I could get the word out to the RNY and other failed surgeries that they aren't alone....Maybe help someone get their pain relieved and know that someone understands. It hurts like hell to be stuck, not understanding why things didn't work for you and it did for others. I e-mailed the lady who told me about Booth the other day and told her that she saved my life more than she will ever know. Maybe I can pay it forward. I wish I could do something in this area to help people in my situation but the only local docs are RNY, and even though I think it's ok For some, I feel like there is more problems people don't know. Almost daily for the last week, I have recieved e-mails from my Home page on AOL telling me how I inspired them. I talk to people all over the US and explain to them they are not alone. Maybe God put me in this situation for a reason, But maybe one day I will see. So I will return to lurking for now. One last word is I love you guys and I am sooooo glad that most of you are in my life. in Bama VBG 1982 (lost from 433lbs to 270's) VBG -RNY1996 revision(Lost from 343 to 299) RNY-DS revision Dec 2002 -down 135 lbs (377.7 to 242.2 and still going) Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html Many thanks to Dr. K willing to take on a 3rd timer....LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Cheri! Welcome, welcome, welcome to our group and congratulations on your insurance approval and your " date " with Dr. Keshishian! I believe you'll find him a wonderful, caring doctor and you won't be sorry about your choice. I homeschooled my two boys, too (they are 23 and 19 now), so we have that in common. I am 50 (yikes when did THAT happen!) LOL I had my GR-DS 17 months ago. I, too, had been on every diet ever invented, plus my own, could have been easily approved for the RNY, but decided not to go that way. Had an insurance battle, but ended up with approval. I am recuperating from a tummy tuck/hernia repair, with wound complications, so I am not the nicest person right now...frustrated and antsy is more like it! LOL I have lost 153 pounds, " lost " diabetes and asthma, too, and will be working on the problems I have with a degenerative spinal disease after I recover from this. That's the quick version! LOL (Oh, and I have a handsome, wonderful, supportive hubby who has been quite wonderful throughout my healing times during the surgeries.) I welcome you to our group and look forward to watching your journey of discovery and health! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Good to hear from you Mel! I missed you so don't lurk too much okay? Hugs! Tracey > So I will return to lurking for now. One last word is I love you guys > and I am sooooo glad that most of you are in my life. > in Bama > VBG 1982 (lost from 433lbs to 270's) > VBG -RNY1996 revision(Lost from 343 to 299) > RNY-DS revision Dec 2002 -down 135 lbs (377.7 to 242.2 and still going) > Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html > Many thanks to Dr. K willing to take on a 3rd timer....LOL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Cheri, Welcome and you are going have to have a great ride after the DS. It is the best decision I have ever made other than marring my DH. PW lap ds 7-15-03 down 125 pounds ----- getting there …. 5' 3 " sw/cw/goal~(healthy) 320/195/??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Cheri, Welcome and you are going have to have a great ride after the DS. It is the best decision I have ever made other than marring my DH. PW lap ds 7-15-03 down 125 pounds ----- getting there …. 5' 3 " sw/cw/goal~(healthy) 320/195/??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Cheri, Welcome and you are going have to have a great ride after the DS. It is the best decision I have ever made other than marring my DH. PW lap ds 7-15-03 down 125 pounds ----- getting there …. 5' 3 " sw/cw/goal~(healthy) 320/195/??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Hi, I'm pretty sure I did this, but I'll try it again. I have been having a hard time posting, so maybe it didn't go through the first time. Hi my name is Cheri. Dr. K is performing my DS on May 11th. I have attended one of the group meetings in San and this Saturday will be my 2nd meeting. My starting weight is 320-325 I pray with the help of the DS I will get down to 170-150. I am just starting to have problems with do to my weight, but for a long time I have pulled out of doing things because of my size. I am ready to be a part of my families life again, I want to be active and build memories with them, instead of having them think about all the fun things they have done and remember I wasn't there because I couldn't do the things they could. I hope to get to know all of you, I have been reading all your success stories, you have all done a great job. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Jo, I though I did, but I have tried to post several other messages but they never went through. Then I got an email stating the rules of the group saying that I would need to post a short note to the group telling who I am ect. So I did. Thanks Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > I'm pretty sure I did this, but I'll try it again. I have been having a hard > time posting, so maybe it didn't go through the first time. ============================ Hi Cheri You did send an " I'm new " post...it was post number 40401...and you received 5 replys. If you didn't get to read them you can go look at the post on the Yahoo groups website, just look up you post number. I'm glad your here to learn, to share your experiences and just to become part of our sister/brotherhood of friends. Hugs Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > I'm pretty sure I did this, but I'll try it again. I have been having a hard > time posting, so maybe it didn't go through the first time. ============================ Hi Cheri You did send an " I'm new " post...it was post number 40401...and you received 5 replys. If you didn't get to read them you can go look at the post on the Yahoo groups website, just look up you post number. I'm glad your here to learn, to share your experiences and just to become part of our sister/brotherhood of friends. Hugs Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > Hi, > > I'm pretty sure I did this, but I'll try it again. I have been having a hard > time posting, so maybe it didn't go through the first time. > > Hi my name is Cheri. Dr. K is performing my DS on May 11th. I have attended > one of the group meetings in San and this Saturday will be my 2nd > meeting. > > My starting weight is 320-325 I pray with the help of the DS I will get down > to 170-150. I am just starting to have problems with do to my weight, but for > a long time I have pulled out of doing things because of my size. > > I am ready to be a part of my families life again, I want to be active and > build memories with them, instead of having them think about all the fun things > they have done and remember I wasn't there because I couldn't do the things > they could. > > I hope to get to know all of you, I have been reading all your success > stories, you have all done a great job. > > Cheri ~~~~~~~~~~~~~` Cheri, Once agin we welcome you to the group,have a great ride and ask away on the questions...Someone will answer you. I started out at 334 and on 1-7-02 I had my surgery,and I was a revision,I am now at 170 and loving life.Walked all over the adventure dome in Vegas at Circus,circus last weekend and the only thing that bothered me was my knees,going up and down the stairs. Have a wonderful time here and ask away... God bless, Pat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hi Cheri! I started at 310 pounds and am now at 155 (18 months out). I thought you might find this stat encouraging, since we started at similar places. I wish you all luck and welcome to our world! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Best of everything for your surgery Cheri! Tracey > Hi, > > I'm pretty sure I did this, but I'll try it again. I have been having a hard > time posting, so maybe it didn't go through the first time. > > Hi my name is Cheri. Dr. K is performing my DS on May 11th. I have attended > one of the group meetings in San and this Saturday will be my 2nd > meeting. > > My starting weight is 320-325 I pray with the help of the DS I will get down > to 170-150. I am just starting to have problems with do to my weight, but for > a long time I have pulled out of doing things because of my size. > > I am ready to be a part of my families life again, I want to be active and > build memories with them, instead of having them think about all the fun things > they have done and remember I wasn't there because I couldn't do the things > they could. > > I hope to get to know all of you, I have been reading all your success > stories, you have all done a great job. > > Cheri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Tracey, Thanks. I should be packing at this very minute, but it can wait until morning. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Hello Joanne you have found home i think EH!! Welcome im 32 diagnosed Oct 2002 my onset put me in hospital for month it was rough the virus,flu ect everthing else but after awhile the Flu & Virus just dosent fit.You will find a way to tell ur littleone & im sure alot here will have sugestions,I know they will!!! Today im feelin great & hope it gets better for you too,take care. d.Canada I'm New Hello my name is Joanne i am 27 and live in a small town near Rochester New York. I am married and have a 2 year old. When i was 10 in 1987 i was diagnosed with JRA. It took 2 months of testing to figure it out. The flare only lasted about 6 months. In the end of June 2004 I started feeling very stiff. My Doc gave me muscle relaxers. Then they said it was a virus. I had all the Stills symptoms just like all of you. 2 emergency room visits 1 ambulance ride A ton of blood work 2 xrays 1 ct scan and they decided it was Stills. I am now on 7mg of pred and 20 of Plaquenil. I go for blood work every 2 weeks. I have been out of work for 2 months now. The worste part of this was telling my 2 year old Mommy hurts to much to hug. I am so happy to have foung this web site. It is nice to know i am not alone. Joanne Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Hi Joanne, and Welcome, I would just like to put forth my warmest welcome to you. I don't post much anymore, but I will say to push through, press on, never give up and keep on smiling. My name is Patti and I was diagnosed when I was 19, 2 years ago and I still remember it like it was yesterday but I am now set free, hopefully forever. God Bless Patti~CaNADA _________________________________________________________________ Scan and help eliminate destructive viruses from your inbound and outbound e-mail and attachments. http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://\ hotmail.com/enca & HL=Market_MSNIS_Taglines Start enjoying all the benefits of MSN® Premium right now and get the first two months FREE*. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Welcome Joanne; My daughter was two many years ago when I was diagnosed. My sister used to come over to play with her because I couldn't. So you bring back many memories for me there. Those worse days are long past and my wishes for you are the same. My nickname is Melt and several forms thereof and I am sure you will do just fine. We are like family here and welcome you in. We look forward to knowing you better, Smiles, Melt I'm New Hello my name is Joanne i am 27 and live in a small town near Rochester New York. I am married and have a 2 year old. When i was 10 in 1987 i was diagnosed with JRA. It took 2 months of testing to figure it out. The flare only lasted about 6 months. In the end of June 2004 I started feeling very stiff. My Doc gave me muscle relaxers. Then they said it was a virus. I had all the Stills symptoms just like all of you. 2 emergency room visits 1 ambulance ride A ton of blood work 2 xrays 1 ct scan and they decided it was Stills. I am now on 7mg of pred and 20 of Plaquenil. I go for blood work every 2 weeks. I have been out of work for 2 months now. The worste part of this was telling my 2 year old Mommy hurts to much to hug. I am so happy to have foung this web site. It is nice to know i am not alone. Joanne Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Welcome to the group Joanne. Sorry you have this but you have come to the right place for support and information. I am 33, married with two sons (6 & 3) and was diagnosed 4/04 after 3 hospitalizations that began in January. I hope you feel better soon. Kirk. I'm New Hello my name is Joanne i am 27 and live in a small town near Rochester New York. I am married and have a 2 year old. When i was 10 in 1987 i was diagnosed with JRA. It took 2 months of testing to figure it out. The flare only lasted about 6 months. In the end of June 2004 I started feeling very stiff. My Doc gave me muscle relaxers. Then they said it was a virus. I had all the Stills symptoms just like all of you. 2 emergency room visits 1 ambulance ride A ton of blood work 2 xrays 1 ct scan and they decided it was Stills. I am now on 7mg of pred and 20 of Plaquenil. I go for blood work every 2 weeks. I have been out of work for 2 months now. The worste part of this was telling my 2 year old Mommy hurts to much to hug. I am so happy to have foung this web site. It is nice to know i am not alone. Joanne Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Hi Joanne! You've definitely made it to the right place! All of us here are genuinely supportive of each other, though most of us have never met. I drop in every now and then to say hello and see what or who is new. I do my best to stay busy and work while I can. Typically, I flare every 4 - 6 weeks, mostly bcause of adjustments to my medication - I can't seem to get below 12MG daily without problems. I hope we can answer some questions for you, or at the very least, provide the support you need. Have a great day! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Hi Joanne, Sorry to hear about all your problems. It must be hard with a child, I have 2 grand children and I worry about that too. I've had stills about 3 years and there was a time I felt as you, but as time goes along and you get more control over the disease, you will do better too. We'll all be praying for you. you've come to a great site. Hugs, B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi Bob, I'm so glad that you found your way here, this is THE very best group available. A super bunch of folks, most that really care about one another and helping see each other through.. A wonderful place to have questions answered or just vent and have others understand. Welcome! Sheena tinman85708 wrote: Hello All,I'm newly diagnosed. I'm anticipating my liver biopsy in April/May timeframe as that seems to be the soonest I can get in to see a specialist. I hope to learn a great deal about Hep-C through all of you as well as turn to you for support. My initial barrage of blood tests show my ATL level to be within the normal range but I still don't know if I've had this for a while or if it's a recent development. Thank you all as this seems to be a very supportive group. I'll post as I get info on where I'm at with this disease.Bob Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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