Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 One thing stuck out in your message and that was Ativan. Ativan can cause more agitation and worsen all LBD symptoms. Most people on this board will tell you to stay away from Ativan. At first it can seem to help, but it is usually detrimental in the end. Many believe that it did permanent damage to their LO. My Mother also has agitation problems and we found that Aricept made them worse, but Exelon has helped a great deal. We also have her on Seroquel and have worked it up to a high dose. She also takes an antidepressant. We have just started her on Namenda, too early to tell if it helps. Please be cautious with Ativan and Haldol. in Dallas > > Well, I'm not sure where to start. Life is busy with day to day > things, but my LO keeps us hopping!.. We are having such a struggle > with his agitation, anger or both. He is so mad at his family. > Especially his wife and his son . He still is calm with me and will > talk with me. We are the enemy. We are taking his farm, his money, > and all his things. After sneaking off past his limited area for > driving, last Sunday we took his remaining vehicle. I think that was > the hardest thing I ever had to do. Such anger, tears, etc.. The > agitation got to bad this past week, that we called the doctor, made > up a phony story to get my LO there, he added seroquel and ativan to > see if it would help with calming him. He also took him off the > requip thinking it might be working adversely with the aricept. By > Saturday, we saw a major difference. Not a good one tho. The > mobility changed drastically. The doc told us if we saw him become > feeble from taking him off the requip to just start it right back. He > is acting out so much. Everytime the phone rings we cringe. Sorry > this is so long, but I guess I needed to vent a little. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 > > > > Well, I'm not sure where to start. Life is busy with day to day > > things, but my LO keeps us hopping!.. We are having such a struggle > > with his agitation, anger or both. He is so mad at his family. > > Especially his wife and his son . He still is calm with me and will > > talk with me. We are the enemy. We are taking his farm, his money, > > and all his things. After sneaking off past his limited area for > > driving, last Sunday we took his remaining vehicle. I think that was > > the hardest thing I ever had to do. Such anger, tears, etc.. The > > agitation got to bad this past week, that we called the doctor, made > > up a phony story to get my LO there, he added seroquel and ativan to > > see if it would help with calming him. He also took him off the > > requip thinking it might be working adversely with the aricept. By > > Saturday, we saw a major difference. Not a good one tho. The > > mobility changed drastically. The doc told us if we saw him become > > feeble from taking him off the requip to just start it right back. He > > is acting out so much. Everytime the phone rings we cringe. Sorry > > this is so long, but I guess I needed to vent a little. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Just my 2 cents on Ativan. My father was put on ativan because he would pick up plants and chairs. He was very mobile. Ativan dopes them right up and I firmly believe it is the cause of Dad's fall. If your LO is still mobile and on Ativan for agitation, insist on them being taken off. List it as a drug allergy if you have to. Those NH people will try to slip an Ativan whereever possible because it makes THEIR job easier. Its not for the patients benefit!!! > > > > > > Well, I'm not sure where to start. Life is busy with day to day > > > things, but my LO keeps us hopping!.. We are having such a > struggle > > > with his agitation, anger or both. He is so mad at his family. > > > Especially his wife and his son . He still is calm with me and > will > > > talk with me. We are the enemy. We are taking his farm, his > money, > > > and all his things. After sneaking off past his limited area > for > > > driving, last Sunday we took his remaining vehicle. I think > that was > > > the hardest thing I ever had to do. Such anger, tears, etc.. > The > > > agitation got to bad this past week, that we called the doctor, > made > > > up a phony story to get my LO there, he added seroquel and > ativan to > > > see if it would help with calming him. He also took him off the > > > requip thinking it might be working adversely with the aricept. > By > > > Saturday, we saw a major difference. Not a good one tho. The > > > mobility changed drastically. The doc told us if we saw him > become > > > feeble from taking him off the requip to just start it right > back. He > > > is acting out so much. Everytime the phone rings we cringe. > Sorry > > > this is so long, but I guess I needed to vent a little. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Ativan put my Dad in a stupor like state for days... But that was nothing compared to Haldol which put him in a stupor like state for nearly a month. SO bad - he needed a feeding tube for meds/ water and food ! I'm definitely one of those that feel that these drugs were the beginning of the end for my Dad. HUGS donna > > > > > > > > > > Well, I'm not sure where to start. Life is busy with day to day > > > things, but my LO keeps us hopping!.. We are having such a > struggle > > > with his agitation, anger or both. He is so mad at his family. > > > Especially his wife and his son . He still is calm with me and > will > > > talk with me. We are the enemy. We are taking his farm, his > money, > > > and all his things. After sneaking off past his limited area > for > > > driving, last Sunday we took his remaining vehicle. I think > that was > > > the hardest thing I ever had to do. Such anger, tears, etc.. > The > > > agitation got to bad this past week, that we called the doctor, > made > > > up a phony story to get my LO there, he added seroquel and > ativan to > > > see if it would help with calming him. He also took him off the > > > requip thinking it might be working adversely with the aricept. > By > > > Saturday, we saw a major difference. Not a good one tho. The > > > mobility changed drastically. The doc told us if we saw him > become > > > feeble from taking him off the requip to just start it right > back. He > > > is acting out so much. Everytime the phone rings we cringe. > Sorry > > > this is so long, but I guess I needed to vent a little. Thanks! > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 : You wrote: " List it as a drug allergy if you have to. Those NH people will try to slip an Ativan whereever possible because it makes THEIR job easier. Its not for the patients benefit!!! ****** I second your comments all the way!! I remember when I told the NH I was taking my dad off the Ativan. They threw a FIT! Told me dad NEEDED it for his agitation and I replied that dad is agitated BECAUSE of the Ativan. They fought me to the point they called an emergency meeting that had many staff members including some from corporate. Me against them, it was terrible but I stood my ground. As I had said in a reply to Lolly, the damage had already been done though. My dad passed away about 7 months after I had him taken off the Ativan...grrrrrrhhhhh!!! Sandie -- Re: just an update Just my 2 cents on Ativan. My father was put on ativan because he would pick up plants and chairs. He was very mobile. Ativan dopes them right up and I firmly believe it is the cause of Dad's fall. If your LO is still mobile and on Ativan for agitation, insist on them being taken off. List it as a drug allergy if you have to. Those NH people will try to slip an Ativan whereever possible because it makes THEIR job easier. Its not for the patients benefit!!! > > > > > > Well, I'm not sure where to start. Life is busy with day to day > > > things, but my LO keeps us hopping!.. We are having such a > struggle > > > with his agitation, anger or both. He is so mad at his family. > > > Especially his wife and his son . He still is calm with me and > will > > > talk with me. We are the enemy. We are taking his farm, his > money, > > > and all his things. After sneaking off past his limited area > for > > > driving, last Sunday we took his remaining vehicle. I think > that was > > > the hardest thing I ever had to do. Such anger, tears, etc.. > The > > > agitation got to bad this past week, that we called the doctor, > made > > > up a phony story to get my LO there, he added seroquel and > ativan to > > > see if it would help with calming him. He also took him off the > > > requip thinking it might be working adversely with the aricept. > By > > > Saturday, we saw a major difference. Not a good one tho. The > > > mobility changed drastically. The doc told us if we saw him > become > > > feeble from taking him off the requip to just start it right > back. He > > > is acting out so much. Everytime the phone rings we cringe. > Sorry > > > this is so long, but I guess I needed to vent a little. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Lolly, I believe that the others have answered why not to use Ativan. With my Mother it added to her agitation and the next day after taking it, she would be generally out of it and would drool. The Aricept made my Mother very agitated while the Exelon (an older Alzheimer's drug) helped her be calmer as well as improving her memory. We started taking my Mother to a Geriatric Psychiatrist and he has helped us get right mix of drugs to help my Mother be calmer. in Dallas > > > > > > Well, I'm not sure where to start. Life is busy with day to day > > > things, but my LO keeps us hopping!.. We are having such a > struggle > > > with his agitation, anger or both. He is so mad at his family. > > > Especially his wife and his son . He still is calm with me and > will > > > talk with me. We are the enemy. We are taking his farm, his > money, > > > and all his things. After sneaking off past his limited area > for > > > driving, last Sunday we took his remaining vehicle. I think > that was > > > the hardest thing I ever had to do. Such anger, tears, etc.. > The > > > agitation got to bad this past week, that we called the doctor, > made > > > up a phony story to get my LO there, he added seroquel and > ativan to > > > see if it would help with calming him. He also took him off the > > > requip thinking it might be working adversely with the aricept. > By > > > Saturday, we saw a major difference. Not a good one tho. The > > > mobility changed drastically. The doc told us if we saw him > become > > > feeble from taking him off the requip to just start it right > back. He > > > is acting out so much. Everytime the phone rings we cringe. > Sorry > > > this is so long, but I guess I needed to vent a little. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 > > > > > > > > Well, I'm not sure where to start. Life is busy with day to day > > > > things, but my LO keeps us hopping!.. We are having such a > > struggle > > > > with his agitation, anger or both. He is so mad at his family. > > > > Especially his wife and his son . He still is calm with me and > > will > > > > talk with me. We are the enemy. We are taking his farm, his > > money, > > > > and all his things. After sneaking off past his limited area > > for > > > > driving, last Sunday we took his remaining vehicle. I think > > that was > > > > the hardest thing I ever had to do. Such anger, tears, etc.. > > The > > > > agitation got to bad this past week, that we called the doctor, > > made > > > > up a phony story to get my LO there, he added seroquel and > > ativan to > > > > see if it would help with calming him. He also took him off the > > > > requip thinking it might be working adversely with the aricept. > > By > > > > Saturday, we saw a major difference. Not a good one tho. The > > > > mobility changed drastically. The doc told us if we saw him > > become > > > > feeble from taking him off the requip to just start it right > > back. He > > > > is acting out so much. Everytime the phone rings we cringe. > > Sorry > > > > this is so long, but I guess I needed to vent a little. Thanks! > > > > > > > > > > > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Hello everyone, I have not posted in ages. I do read most of the emails though. Sorry to hear about Jerry Lamb. He really helped me and I tried to continue the group after he moved to AZ 2 years ago. I had my DS on Sept 19, 2006. Tummy tuck, hernia repair and breast lift on June 13, 2008. I just found out last month I am pregnant with child number 4 last month. I have 3 daughter. Their ages are 20, 17 and 11. This baby is a COMPLETE surprise. I am 43 and was not desiring or wanting more, but I will be having this one and I hope before Halloween. My weight was about 250 and was down to 135 for the most part. I am 143 now but also 15 weeks pregnant. I too am in College. I go to Folsom . I would love to meet you sometime. I wish there was a support group around. I have more then my share of tummy bloating and really trying to watch what I eat does not help or make a difference. I have no carbonation and stay away from lactose as well. I am at a lost cause my stomach is in pain quite often Kaufman Quote Link to comment Share on other sites More sharing options...
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