Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 (I assume?) My Mom, during the last year of her life, didn't seem to be able to open her eyes. I ask her to and didn't know why she wasn't. As I read some of the grieving stuff, it seemed to indicate that people start to withdraw toward the end. I don't know if that is what you are talking about and I did not know what it was called, but she did it a lot and she wasn't asleep. Welcome to the group. Can you give a little more info about what is happening? Donna R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hi (?) My dad used to go through what I termed as 'sleep modes'. He was impossible to wake up...moreso that he was awake and couldn't open his eyes. Although there were times also, that he couldn't be woken either. There were times when both these incidents would go on for days...day upon day. Hope this answers your question- Sandie Des Moines, IA -- " peterwilner2003 " wrote: Does anyone have any experience with treatment of levator inhibition (inability to raise the eyelids) in people with LBD? Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hello , My mother on some days seemed to have difficulty raising her eyelids. she would be awke and respond, but when I asked her to open her eyelids she would raise hwr eyebrows, but the eylids wouldn't come open. Eventually she would get them open a little bit thn they would close once again. I always though ti was just the medication that day or just that she was more tired and asked them to lay her down. It was not an everyday thing and after a nap it always seemed better. As for myself I have DLBD and I have noticed that some days my eyelids are more open than on others, but there again I have always put it off on being tired.Welcome to the Group!....Hugs....Patti > this refers to the physical inability to control your eyelids. It > appears that the patient is not paying attention, or has zoned out,- > but that's not necessarily the case. My father, even when awake, has > great difficulty keeping his eyes open. He's been diagnosed with LBD > for a bit more than a year, and this condition has existed for > probably (I don't remember exactly) 3 to 4 months. It's a secondary > symtom of LBD and Parkinson's from what I've read. We converse even > when his eyes are closed-taking into account that some of his > references are in an alternate reality. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 My dad used to have a hard time opening nis eyes and would listen to a conversation with his eyes closed. My mom used to ask him to open his eyes, he said he was more comfortable with his eyes closed, but would open them when asked. Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hi, my mom does on occassion as well. She looks as though she is asleep but she's awake and will engage in conversation with her eyes closed. Courage levator inhibition >this refers to the physical inability to control your eyelids. It >appears that the patient is not paying attention, or has zoned out,- >but that's not necessarily the case. My father, even when awake, has >great difficulty keeping his eyes open. He's been diagnosed with LBD >for a bit more than a year, and this condition has existed for >probably (I don't remember exactly) 3 to 4 months. It's a secondary >symtom of LBD and Parkinson's from what I've read. We converse even >when his eyes are closed-taking into account that some of his >references are in an alternate reality. > > > > >Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Hello peterwilner2003 Sally here in the UK. My dad died to LBD Oct 2002. He was 67. He had great difficulty keeping his eyes open - so much so that at one point the doctors were thinking that the underlying cause might not have been LBD but something fantastical called 'supra nuclear palsy'(?) ... but I have never wavered in my opinion that this semi comatose, crippling fatigue look is part of the LBD experience. This problem of constant eye closure was mainly in the final 2 months of his life - he barely opened his eyes at all in the last couple of weeks. Keep strong - Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Sally and peterwilner2003: I agree with your recollection about the eyes being closed in the final stages. We knew he had glaucoma, and wondered if there were problems seeing, but it did seem more likely to be what Sally calls " crippling fatigue " in the later stages.... Mark > Hello peterwilner2003 > Sally here in the UK. > My dad died to LBD Oct 2002. He was 67. > He had great difficulty keeping his eyes open - so much so that at one point > the doctors were thinking that the underlying cause might not have been LBD > but something fantastical called 'supra nuclear palsy'(?) ... but I have > never wavered in my opinion that this semi comatose, crippling fatigue look > is part of the LBD experience. > This problem of constant eye closure was mainly in the final 2 months of his > life - he barely opened his eyes at all in the last couple of weeks. > Keep strong - > Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 I used to ask Liam why he watched TV with his eyes closed and he said he was more comfortable that way. Simmel Re: levator inhibition My dad used to have a hard time opening nis eyes and would listen to a conversation with his eyes closed. My mom used to ask him to open his eyes, he said he was more comfortable with his eyes closed, but would open them when asked. Josie Quote Link to comment Share on other sites More sharing options...
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