Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 , I agree. My oldest daughter was born prematurely she suffered a lot of brain damage. Mostly from hydrocephalus. We were lucky to have one of the worlds top five neonatologists work with us. We had doctors working with her from two hospitals. My point is NEVER did any of those doctors mention any form of autism as a result of the brain damage. They did mention a host of other things but never autism. My middle daughter has AS and she never had a head injury. I also have fibro and I was never told it was caused by brain damage. To: autism-aspergers Sent: Tuesday, February 14, 2012 9:19 PM Subject: Re: Re: PDD-NOS Actually, neurological issues are not anywhere close to the same thing as brain damage. Such issues can certainly result from brain damage, but they can also result from a wide array of things that are in no way connected to actual damage of the brain. My daughter is on the spectrum, has had numerous MRIs, CT scans, etc. and there is no evidence of any damage anywhere. Similarly, I have fibromyalgia, which includes many neurological issues. Again, no evidence of brain damage in any of my scans. Put quite simply, the two things are not synonymous and should never be treated as such. To claim otherwise is flat-out wrong. is right that it is not worth anyone's time or energy to worry about what Phil (because as a doctoral candidate myself, I simply refuse to call him Dr.) says. He has absolutely no interest in reading or replying to a single comment anyone here makes. He has proven this time and time again and we are well past having to assume ill intent on his behalf. Those who have paid attention to his track record know it. And let's be clear -- he is not, in any way, trying to educate anyone (which, of course, would require that he first educate himself). His sole objective in posting here is to make money. He will try like crazy to sell his snake oil to any unsuspecting and desperate person he can find. And it is up to those of us who recognize him for what he is to point it out to others who don't yet know or haven't yet caught on. I think Phil's post makes a lot of sense. I don't think we need to be so sensitive. Many of us discuss neurological issues, which is pretty much the same thing as saying brain damage. I really do think Phil's posts are trying to educate others -- not offend. I love my child who is on the spectrum, but I also know he has neurological disfunctions. It doesn't mean I don't love him, or give up on trying to help. I'm just honest with myself. My son has made huge strides by therapies and is a wonderfully bright and smart little boy, but he has asperges and the poor coordination that comes along with it. We work on these areas, and he knows they are weaknesses, but joyfully overcomes so much. Because of his great determination, he has learned to play basketball and be pretty good at it. Just because I admit there's neurological damage does not mean that I do not love him. I love him all the more! I know it's hard sometimes, because we all have our daily frustrations, but I think a group like this works better if we don't assume someone's intent is bad just because you don't agree with them. All the best,Lora To: autism-aspergers From: lauren.hassell@... Date: Wed, 15 Feb 2012 00:29:49 +0000Subject: Re: PDD-NOS Hi Carly, try not to let his posts upset you - it obvious he doesn't read any of the replies. :-/ > > Brain Damage? You have got to be kidding me to use that language! Have you ever loved a kid with ADD, ADHD, or on the spectrum? If not, then your medical degree alone can't make you an expert on our kids. > Sent from my Verizon Wireless BlackBerry > > PDD-NOS > > The DSM has no real meaning today with regard to virtually all "mental" > problems. It keeps getting added to in the effort to get doctors paid for > what they do by insurance. Diagnosis for most mental problems is > impossible since there are no "real" tests available as in physical > problems where we can measure blood and urine and even hair. We can't > measure brain cells, or thoughts. > > The traditional measurements are word tests like the MMPA, and many others, > but they are only good to a small extent, and depend on too many factors to > be anything but "maybe". So, to measure ADD or Autism, there are some > older tests that are somewhat useful - free versions are found at: > http://drbate.com/content/ > testing_diagnostics.shtml > > There's a further problem. The ADD/ADHD symptoms are virtually always part > of Aspergers, and there is no clear division between. The line is whether > there is brain damage or not. and we have no definitive tests to determine > this. Then, how much damage has been done by mercury or other toxic > minerals, or physical damage is impossible to determine with any accuracy. > Add to that the INDIVIDUALITY of each affected person, and it is literally > impossible to diagnose with any accuracy just where the child is. The > doctors have to "guess", and they really don't know, but no doctor can > admit that. > > All of the above is further complicated by the insurance rules, and so to > get paid for doling work, the DSM was invented, and keeps growing. Realize > that few MD's have any real training about autism or ADD/ADHD in Med > School, and little or no training in anything except drugs. And it is now > known that drugs do not cure these. > > The problem is mostly toxicity from mercury, aluminum, lead, etc. It > doesn't show up in blood, urine or hair in autism patients. The liver > filters out these toxins and stores them unless it is overloaded. But it > releases these IF, AND ONLY IF, there is a chemical in the blood ;that can > combine with such metals ;and take it out of the body. The two "natural" > chemicals are ascorbic acid vitamin C, and glutathione. If these are not > in the blood, then any measurement gives a "false negative", because the > liver can't release them back into the blood. (This has been Big Pharma's > legal defense, but now the facts are becoming known to defense lawyers, and > the government is paying out millions (or maybe billions) in compensation > secretly. > > The curve of mercury pollution in our culture matches very closely the rise > of autism (all forms) in our culture - coincidence" I think not. Vaccines > containing either mercury or aluminum are a major cause of autism coupled > with too much mercury in the mother during pregnancy. Big Pharma has > consistently lied about mercury being "out" in drugs. Vaccines still > contain it. > > So, from the above, it is thought by most persons that there is "NO CURE" > for all forms of autism. This is simply not true. The former Pfeiffer > Clinic in Chicago literally cured hundreds of cases of autism, and those > children are now doing well as adults or near adults. > > There is a similar inexpensive set of therapies that duplicates the > Pfeiffer therapies, but is done at home, thus affordable for mid and low > income families. An article describing these four therapies is > downloadable free at: > http://drbate.com/content/integrated.shtml > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 The brain makes up a part of the neurological system, and in fact the brain controls much of the neurological system. I'm sure if you looked the word up in the dictionary, it would say that the field of neurology studies the brain, spinal cord and neural network. You don't have to have suffered a head injury to have brain damage. Viruses can cause it, as well as many other things. I'm not saying that we need to use the phrase, because generally I don't, but I was just saying it's not necessary to be so harsh to someone who has. Many of the children on the spectrum have had or do have seizures. Seizures do cause brain damage. I don't know why we're arguing about this. It's really not important. The original poster wasn't saying anyone in particular had brain damage. I don't know the poster, and I don't know his history of trying sell some cure. I was simply reponding to one particular post regarding my own experience. You can still love your child and yet recognize that they have brain damage. Since we all have different children and thus facing different obstacles, no one has to take one post so personally. One of the bad things about this group is the sheer volume of petty arguments there are. That is one of the reasons I stopped reading most posts, and probably won't contribute much in the future. To: autism-aspergers From: alexandriairma@...Date: Wed, 15 Feb 2012 08:56:58 -0800Subject: Re: Re: PDD-NOS , I agree. My oldest daughter was born prematurely she suffered a lot of brain damage. Mostly from hydrocephalus. We were lucky to have one of the worlds top five neonatologists work with us. We had doctors working with her from two hospitals. My point is NEVER did any of those doctors mention any form of autism as a result of the brain damage. They did mention a host of other things but never autism. My middle daughter has AS and she never had a head injury. I also have fibro and I was never told it was caused by brain damage. To: autism-aspergers Sent: Tuesday, February 14, 2012 9:19 PM Subject: Re: Re: PDD-NOS Actually, neurological issues are not anywhere close to the same thing as brain damage. Such issues can certainly result from brain damage, but they can also result from a wide array of things that are in no way connected to actual damage of the brain. My daughter is on the spectrum, has had numerous MRIs, CT scans, etc. and there is no evidence of any damage anywhere. Similarly, I have fibromyalgia, which includes many neurological issues. Again, no evidence of brain damage in any of my scans. Put quite simply, the two things are not synonymous and should never be treated as such. To claim otherwise is flat-out wrong. is right that it is not worth anyone's time or energy to worry about what Phil (because as a doctoral candidate myself, I simply refuse to call him Dr.) says. He has absolutely no interest in reading or replying to a single comment anyone here makes. He has proven this time and time again and we are well past having to assume ill intent on his behalf. Those who have paid attention to his track record know it. And let's be clear -- he is not, in any way, trying to educate anyone (which, of course, would require that he first educate himself). His sole objective in posting here is to make money. He will try like crazy to sell his snake oil to any unsuspecting and desperate person he can find. And it is up to those of us who recognize him for what he is to point it out to others who don't yet know or haven't yet caught on. I think Phil's post makes a lot of sense. I don't think we need to be so sensitive. Many of us discuss neurological issues, which is pretty much the same thing as saying brain damage. I really do think Phil's posts are trying to educate others -- not offend. I love my child who is on the spectrum, but I also know he has neurological disfunctions. It doesn't mean I don't love him, or give up on trying to help. I'm just honest with myself. My son has made huge strides by therapies and is a wonderfully bright and smart little boy, but he has asperges and the poor coordination that comes along with it. We work on these areas, and he knows they are weaknesses, but joyfully overcomes so much. Because of his great determination, he has learned to play basketball and be pretty good at it. Just because I admit there's neurological damage does not mean that I do not love him. I love him all the more! I know it's hard sometimes, because we all have our daily frustrations, but I think a group like this works better if we don't assume someone's intent is bad just because you don't agree with them. All the best,Lora To: autism-aspergers From: lauren.hassell@... Date: Wed, 15 Feb 2012 00:29:49 +0000Subject: Re: PDD-NOS Hi Carly, try not to let his posts upset you - it obvious he doesn't read any of the replies. :-/ > > Brain Damage? You have got to be kidding me to use that language! Have you ever loved a kid with ADD, ADHD, or on the spectrum? If not, then your medical degree alone can't make you an expert on our kids. > Sent from my Verizon Wireless BlackBerry > > PDD-NOS > > The DSM has no real meaning today with regard to virtually all "mental" > problems. It keeps getting added to in the effort to get doctors paid for > what they do by insurance. Diagnosis for most mental problems is > impossible since there are no "real" tests available as in physical > problems where we can measure blood and urine and even hair. We can't > measure brain cells, or thoughts. > > The traditional measurements are word tests like the MMPA, and many others, > but they are only good to a small extent, and depend on too many factors to > be anything but "maybe". So, to measure ADD or Autism, there are some > older tests that are somewhat useful - free versions are found at: > http://drbate.com/content/ > testing_diagnostics.shtml > > There's a further problem. The ADD/ADHD symptoms are virtually always part > of Aspergers, and there is no clear division between. The line is whether > there is brain damage or not. and we have no definitive tests to determine > this. Then, how much damage has been done by mercury or other toxic > minerals, or physical damage is impossible to determine with any accuracy. > Add to that the INDIVIDUALITY of each affected person, and it is literally > impossible to diagnose with any accuracy just where the child is. The > doctors have to "guess", and they really don't know, but no doctor can > admit that. > > All of the above is further complicated by the insurance rules, and so to > get paid for doling work, the DSM was invented, and keeps growing. Realize > that few MD's have any real training about autism or ADD/ADHD in Med > School, and little or no training in anything except drugs. And it is now > known that drugs do not cure these. > > The problem is mostly toxicity from mercury, aluminum, lead, etc. It > doesn't show up in blood, urine or hair in autism patients. The liver > filters out these toxins and stores them unless it is overloaded. But it > releases these IF, AND ONLY IF, there is a chemical in the blood ;that can > combine with such metals ;and take it out of the body. The two "natural" > chemicals are ascorbic acid vitamin C, and glutathione. If these are not > in the blood, then any measurement gives a "false negative", because the > liver can't release them back into the blood. (This has been Big Pharma's > legal defense, but now the facts are becoming known to defense lawyers, and > the government is paying out millions (or maybe billions) in compensation > secretly. > > The curve of mercury pollution in our culture matches very closely the rise > of autism (all forms) in our culture - coincidence" I think not. Vaccines > containing either mercury or aluminum are a major cause of autism coupled > with too much mercury in the mother during pregnancy. Big Pharma has > consistently lied about mercury being "out" in drugs. Vaccines still > contain it. > > So, from the above, it is thought by most persons that there is "NO CURE" > for all forms of autism. This is simply not true. The former Pfeiffer > Clinic in Chicago literally cured hundreds of cases of autism, and those > children are now doing well as adults or near adults. > > There is a similar inexpensive set of therapies that duplicates the > Pfeiffer therapies, but is done at home, thus affordable for mid and low > income families. An article describing these four therapies is > downloadable free at: > http://drbate.com/content/integrated.shtml > Quote Link to comment Share on other sites More sharing options...
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