Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 > donna, my dad does best with routine, he get his medicines andbrunch at 1130 everyday, he get up with donnie at 8am to go to the bathroom, and he gets his hospice aide for baths on monday and thursday, and nursing tues and friday. daddy eats dinner at 530 and gets his evening meds with dessert at 8pm. friday nites donnie and i bowl, i am secretary of the league and there are 6 weeks a year taht we do not bowl however our caregiver still comes ands tays with dad and we go out and 'go bowling ' as usual. any changing of this routine upsets dad horribly, so we try to keep as many things constant as we can, even if it means some adlibbing, like when meals on wheels is late, i fix eggs for breakfast and save his lunch for dinner. etc. the more constant teh routine the easier it is for dad, and therefore easier for us too. now not everyting is possible in a routine but put as much in a routine as possible, stuructured lives seems to be beneficial for them. good luck sharon m > > Date: 2005/01/14 Fri AM 08:58:08 EST > To: LBDcaregivers > Subject: Re: QUESTION FOR GROUP > > > donna, > > There are many people here who have talked about this problem. I am not sure I have heard anyone say it ever goes away, even if it gets better. > > There is a link on the LBD page that talks about what meds can be used for surgery instead the the typical ones everyone else gets. > > It is very scary and at the same time may be just what is coming anyway. Confusion is a part of this disease. It seems to get pushed ahead with anesthesia (sp?) So while it may " get better, " it may never go back to what it was. > > Routine is so important to these people and when they find themselves in a strange setting (the hospital) and with new and different people, and sometimes meds they shouldn't be having, coupled with the anesthetic that is not good for them, they just have a hard time coping. > > Sorry you are experiencing this. Let us know how we can help. I found each time Mom had an " new event " , she took a turn for the worse. > > Donna R > > QUESTION FOR GROUP > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
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