Re: Re: New Diagnosis Jaymie

July 6, 2004

Jaymie-

Thanks for more information regarding your husband. Still I

am at a loss for words. May I ask, where are you at, in the US, and what

state?? I wish you well, and will definitely keep you in my prayers.

Sandie

-- " jaymiesharp " wrote:

In 2001, my husband started experiencing unusual symptoms with his

eyes and his legs. He was subsequently diagnosed with Optical

Neuritis and myclonic jerks. At first the neurologist was convinced

that this was MS, we received several opinions on this and MS was the

resounding thought. However, his MRIs never confirmed MS and the

neurologist would never issue an official diagnosis and began MS

meds. My husband has been taking Clonopin and Depakote to control

the jerks. He has recently also started on Levapro for anxiety.

About mid-2002, my husband started noticing that he was having

difficulty voicing his thoughts, he just could not come up with the

right words. Since then, other issues have surfaced: he doesn't

work well in a busy environment, he cannot remember numbers, etc.

The neurologists ran the test for Alzhimer's, that was negative. At

this point, the neurologist said that he has abosolutly no idea what

was wrong. So, he sent us to a psychologist to perform cognative

testing. The result was LBD, which our neurologist confirmed was in

line with what he was thinking, some sort of dementia (hence, the

Alzheimer test). He will not start any meds for this until there is

a firm diagnosis, which he does not want to give until we run the

congative testing again in 9-12 months. I'm concerned that by that

time, we may be getting too far down the road.

Welcome to LBDcaregivers.

Recommended Posts