Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Patti: Welcome. I'm so glad you're joining us. I know you'll find this site extremely supportive and very warm. Those of us who visit regularly can't imagine not checking in or connecting with this group. The info. you provided re: the Alzheimer's Association will be very valuable to those who still are caring for their LOs at home. Unfortuantely, my dad has been in a nh since January (it still hurts to think of him there) since my mom, who would have been his primary caregiver, is also ill and couldn't care for him on her own. I do know that several members will appreciate the info. though. Anyhow Patti, welcome again. Hope to " see " you here often. All good things, Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Welcome Patti This is a group you will want to keep in touch with. They are like a lifeline to caregivers. Kath Patti > Patti: > > Welcome. I'm so glad you're joining us. I know you'll find this > site extremely supportive and very warm. Those of us who visit > regularly can't imagine not checking in or connecting with this group. > > The info. you provided re: the Alzheimer's Association will be very > valuable to those who still are caring for their LOs at home. > Unfortuantely, my dad has been in a nh since January (it still hurts > to think of him there) since my mom, who would have been his primary > caregiver, is also ill and couldn't care for him on her own. I do > know that several members will appreciate the info. though. > > Anyhow Patti, welcome again. Hope to " see " you here often. > > All good things, > > Abby > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Ed: Rose is so lucky to have you! Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Patti, I have been trying to get through to you about my Rose who has LBD and is your age.... would you be willing to e-mail her directly? Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hello Abby, Nice to meet you. I am 55 and was diagnosed last week with Diffuse Lewy Body Disease. I was ffinally told after 7 years of seeing my Neurologist that I had PD In 1996. It was before my Dad died with PD. Thank you for taking the time to read what I write. I hadn't thought at first when I joined that you all would have questions of me and would be interested so it has really made me feel welcome in thinking I do have something to offer back to you....Hugs....Patti > Hello: > > I just had to say hello. I've search back for your first post and > haven't been able to locate it. Am I right in assuming you've been > diagnosed with LBD or a dementia of some sort? > > My name is Abby and my dad was diagnosed with LBD October of 2003. > He also has a brain tumour and some pretty debilitating Parkinson's > symptoms. Nevertheless, he is having a good time now and we're > grateful for having him with us. > > I've been a part of this group since my dad was diagnosed and it has > been a godsend. I hope this group brings you just as much as it has > to me but if you're half as lucky you're still in a good spot. > > Welcome to this board. I can tell people really appreciate your > input. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Patti,just wanted to introduce myself, i'm . I'm in Glasgow,Scotland and i joined the group in January 2003 when my granda Bert was coming into the last stages of the disease(he passed on 16th August 2003). I'm so glad you've joined the group, you sound like one amazing lady and i look forward to getting to know you. Love .x Re: Patti Hello Abby, Nice to meet you. I am 55 and was diagnosed last week with Diffuse Lewy Body Disease. I was ffinally told after 7 years of seeing my Neurologist that I had PD In 1996. It was before my Dad died with PD. Thank you for taking the time to read what I write. I hadn't thought at first when I joined that you all would have questions of me and would be interested so it has really made me feel welcome in thinking I do have something to offer back to you....Hugs....Patti > Hello: > > I just had to say hello. I've search back for your first post and > haven't been able to locate it. Am I right in assuming you've been > diagnosed with LBD or a dementia of some sort? > > My name is Abby and my dad was diagnosed with LBD October of 2003. > He also has a brain tumour and some pretty debilitating Parkinson's > symptoms. Nevertheless, he is having a good time now and we're > grateful for having him with us. > > I've been a part of this group since my dad was diagnosed and it has > been a godsend. I hope this group brings you just as much as it has > to me but if you're half as lucky you're still in a good spot. > > Welcome to this board. I can tell people really appreciate your > input. > > Abby Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 I am very Pleased to make your aquaintance . I hope we can get to know one another as well. Oooooh If I could make one last request in life it would be to visit England, Ireland, Scotland and even Wales. It is the area of my heritage. That is my dream and I am not giving it up. Thank you so much for responding and very happy to see you here.....Hugs.....Patti > > Hello: > > > > I just had to say hello. I've search back for your first post and > > haven't been able to locate it. Am I right in assuming you've been > > diagnosed with LBD or a dementia of some sort? > > > > My name is Abby and my dad was diagnosed with LBD October of 2003. > > He also has a brain tumour and some pretty debilitating Parkinson's > > symptoms. Nevertheless, he is having a good time now and we're > > grateful for having him with us. > > > > I've been a part of this group since my dad was diagnosed and it > has > > been a godsend. I hope this group brings you just as much as it > has > > to me but if you're half as lucky you're still in a good spot. > > > > Welcome to this board. I can tell people really appreciate your > > input. > > > > Abby > > > > Welcome to LBDcaregivers. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hmm Patti, let me think about how we can maybe bring a piece of Scotland to you, i'll get back to you on that one. .x Re: Patti I am very Pleased to make your aquaintance . I hope we can get to know one another as well. Oooooh If I could make one last request icen life it would be to visit England, Ireland, Scotland and even Wales. It is the area of my heritage. That is my dream and I am not giving it up. Thank you so much for responding and very happy to see you here.....Hugs.....Patti > > Hello: > > > > I just had to say hello. I've search back for your first post and > > haven't been able to locate it. Am I right in assuming you've been > > diagnosed with LBD or a dementia of some sort? > > > > My name is Abby and my dad was diagnosed with LBD October of 2003. > > He also has a brain tumour and some pretty debilitating Parkinson's > > symptoms. Nevertheless, he is having a good time now and we're > > grateful for having him with us. > > > > I've been a part of this group since my dad was diagnosed and it > has > > been a godsend. I hope this group brings you just as much as it > has > > to me but if you're half as lucky you're still in a good spot. > > > > Welcome to this board. I can tell people really appreciate your > > input. > > > > Abby > > > > Welcome to LBDcaregivers. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Abby, I must agree with you. They are friends though we would not have met otherwise and withthe internet it opens up a whole new line of ways of meeting people you would never get to know. Each in their own way offers a richness to our lives. I believe we can only be better humans for meeting them and sharing in our happy times as well as sad ones. Each day is a miracle in itself. I am certainly greatful I have met each of you and I hope you all will enjoy sharing with me just what you have been through for it settles in my mind some ideas I have about the brains function itself. It also provides a loving a caring atmosphere to communicate my fearsand experiences to you. I feel comfortable here and that makes it easy for me to open up. I only wished that more people who are going through this first hand would join in as well and maybe I can somehow set an example to let them know it is ok to talk about this and to not be ashamed as it is not their fault. Communication leads to knowledge and knowledge will lead to better treatment and cure.....Hugs....Patti > Patti: > > Seeing new names on the board is such a mixed blessing. We're happy > people found us and want others to have the help and understanding > we've all found on here but we're sad that there is a need for us to > meet here in the first place. We wish we could meet under different > circumstances. > > I applaud your courage for joining and being willing to educate. I > look forward to speaking to you often on this board. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 " Communication leads to knowledge and knowledge will lead to better treatment and cure..... " Patti- I greatly admire what you write, and how you say it. Thank you for being here, and allowing me insight to Lewy Body itself. Hugs from Des Moines- Sandie -- " Patti " wrote: Abby, I must agree with you. They are friends though we would not have met otherwise and withthe internet it opens up a whole new line of ways of meeting people you would never get to know. Each in their own way offers a richness to our lives. I believe we can only be better humans for meeting them and sharing in our happy times as well as sad ones. Each day is a miracle in itself. I am certainly greatful I have met each of you and I hope you all will enjoy sharing with me just what you have been through for it settles in my mind some ideas I have about the brains function itself. It also provides a loving a caring atmosphere to communicate my fearsand experiences to you. I feel comfortable here and that makes it easy for me to open up. I only wished that more people who are going through this first hand would join in as well and maybe I can somehow set an example to let them know it is ok to talk about this and to not be ashamed as it is not their fault. Communication leads to knowledge and knowledge will lead to better treatment and cure.....Hugs....Patti > Patti: > > Seeing new names on the board is such a mixed blessing. We're happy > people found us and want others to have the help and understanding > we've all found on here but we're sad that there is a need for us to > meet here in the first place. We wish we could meet under different > circumstances. > > I applaud your courage for joining and being willing to educate. I > look forward to speaking to you often on this board. > > Abby Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 I agree with you wholeheartedly. Communication is the key insofar as illnesses such as this are concerned. I long for the day when I can tell someone my dad has Lewey Body Dementia and not have them look at me as if I've suddenly sprouted thirteen really unattractive heads. The only way to be successful in this regard is via us getting out there and you, who are actually living the cause, are our very best resource. I will certainly be willing to share my fears with you although, be forewarned, they tend to be many although, since my father is doing somewhat better, I'll be happy to share my good times with you as well so it won't be all doom and gloom. Good to know you are enjoying your life. I assure you, your participation on this site is incredible and so very welcome. Abby Quote Link to comment Share on other sites More sharing options...
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