[Fwd: New here, our story]

[Guest guest]

> Hi ,

>

> I also wanted to mention that with continued use of Ativan one can

> experience rebound anxiety - the very drug that is suppose to calm you

> down will get you going worse than before. I used to take Ativan and

> this happened to me many times.

>

> This is a terrible disease that will take you and your family on quite

> the roller-coaster ride. Hang in there and don't be afraid to

> advocate on your dad's behalf.

> Courage

>

> wrote:

>

>> Thanks for being here everyone. I was able to do some on-line

>> research

>> last night and found two sites which stated Ativan should not be

>> used in

>> patients with psychosis, brain disorders, Parkinson's patients or

>> those

>> taking sinemet (among many others reasons ont to use it). That is a

>> few

>> too many strikes against it for me. We are trying to make sure he

>> doesn't receive it again. I saw him Saturday afternoon after he had

>>

>> been given the Ativan in the morning. He was disoriented, tremoring

>> and

>> drifting in and out of sleep. He was also talking incoherently in

>> both

>> in his sleep and when he was awake. He asked me if I had brought up

>> the

>> laundry (something I used to do for them when visiting their old

>> house

>> 2-3 years ago), and if my brother had put up the sound system yet

>> (same

>> time frame with that). My mom has asked the doctors to contact me

>> about

>> his care since I am the one with time to research and she can't

>> think

>> clearly enough to cope right now. I hope that is enough

>> authorization

>> for them (with this new HIPPA stuff). She has a durable power of

>> attorney and so does my sister if we need it.

>>

>> I am beginning to think a return to the hospital might not be a bad

>> thing, but I know it will be a fight with their insurance for

>> approval,

>> they forced the discharge before he was ready last time. Apparently

>> the

>> NH doctors generally do not change any meds within 30 days of

>> admission,

>> so no one had any intention of working on continuing to wean him off

>> the

>> PD drugs. One bad thing is losing the bed. Since he is " medicare

>> pending " and has been there less than 30 days the NH won't guarantee

>> the

>> bed, but if they have one open when he needs it he could return. My

>>

>> other reservation about the hospital is that he was so very upset by

>>

>> being there on the psych ward, you know ... full lockdown no

>> shoelaces,

>> sharp objects, 2 visitors at a time two hours a day, double locked

>> doors, no visitors under 16. He misses my daughters (2 and 5) and

>> the

>> older one is having a hard time understanding what is going on. She

>> has

>> only seen him twice since Christmas and we used to see him 3 - 4

>> times a

>> week.

>>

>>

>>

>>

>> Welcome to LBDcaregivers.

>>

>>

>>

>>

>>

[Guest guest]

casthy,

hi, a personal note about ativan, i had surgery years ago, and had a severe

reaction to ativan, i had 'creepy crawly things' all over my body and severe

hallucinations, scared teh fire out of me, and the creepy crawlys were so real

they had to glove my hands as i clawed myself bloody,

so be wary of it, hope this helps, sharon m

Date: 2005/02/15 Tue PM 11:43:41 EST

To: lbd <LBDcaregivers >

Subject: [Fwd: New here, our story]

> Hi ,

>

> I also wanted to mention that with continued use of Ativan one can

> experience rebound anxiety - the very drug that is suppose to calm you

> down will get you going worse than before. I used to take Ativan and

> this happened to me many times.

>

> This is a terrible disease that will take you and your family on quite

> the roller-coaster ride. Hang in there and don't be afraid to

> advocate on your dad's behalf.

> Courage

>

> wrote:

>

>> Thanks for being here everyone. I was able to do some on-line

>> research

>> last night and found two sites which stated Ativan should not be

>> used in

>> patients with psychosis, brain disorders, Parkinson's patients or

>> those

>> taking sinemet (among many others reasons ont to use it). That is a

>> few

>> too many strikes against it for me. We are trying to make sure he

>> doesn't receive it again. I saw him Saturday afternoon after he had

>>

>> been given the Ativan in the morning. He was disoriented, tremoring

>> and

>> drifting in and out of sleep. He was also talking incoherently in

>> both

>> in his sleep and when he was awake. He asked me if I had brought up

>> the

>> laundry (something I used to do for them when visiting their old

>> house

>> 2-3 years ago), and if my brother had put up the sound system yet

>> (same

>> time frame with that). My mom has asked the doctors to contact me

>> about

>> his care since I am the one with time to research and she can't

>> think

>> clearly enough to cope right now. I hope that is enough

>> authorization

>> for them (with this new HIPPA stuff). She has a durable power of

>> attorney and so does my sister if we need it.

>>

>> I am beginning to think a return to the hospital might not be a bad

>> thing, but I know it will be a fight with their insurance for

>> approval,

>> they forced the discharge before he was ready last time. Apparently

>> the

>> NH doctors generally do not change any meds within 30 days of

>> admission,

>> so no one had any intention of working on continuing to wean him off

>> the

>> PD drugs. One bad thing is losing the bed. Since he is " medicare

>> pending " and has been there less than 30 days the NH won't guarantee

>> the

>> bed, but if they have one open when he needs it he could return. My

>>

>> other reservation about the hospital is that he was so very upset by

>>

>> being there on the psych ward, you know ... full lockdown no

>> shoelaces,

>> sharp objects, 2 visitors at a time two hours a day, double locked

>> doors, no visitors under 16. He misses my daughters (2 and 5) and

>> the

>> older one is having a hard time understanding what is going on. She

>> has

>> only seen him twice since Christmas and we used to see him 3 - 4

>> times a

>> week.

>>

>>

>>

>>

>> Welcome to LBDcaregivers.

>>

>>

>>

>>

>>