Thank you ALL

[Guest guest]

Thank you to all who has responded. I am going to sign off of this support

group. I believe you are a very tight-knit group. You support one another and

your kind. I think you have missed few minor points, there is a whole world out

there that is suffering. Although Stills creates havoc in ones life, it doesn't

dictate who we are and our believes.

Best of luck to all

Michele

[Guest guest]

Eh?!

Doug & Carole UK

Re: THANK YOU ALL

Thank you to all who has responded. I am going to sign off of this support group. I believe you are a very tight-knit group. You support one another and your kind. I think you have missed few minor points, there is a whole world out there that is suffering. Although Stills creates havoc in ones life, it doesn't dictate who we are and our believes. Best of luck to allMicheleVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Hhmmm, did we hurt someone here? Anyone know what this is about?

Terry

[Guest guest]

OK, thank you Doug and Carole...lol I had the same response .

Sometimes I get lost but I am glad you were there in the confusion

with me!!!

Best of luck to the person who signed off, sorry we weren't what you

needed.

I think I may dance tonight as my toe nails are lime green and I

didn't get a second interview for a job I wanted. So I am happy and

eagerly awaiting the next opportunity, therefore...dance....

Have a most loverly day!!!!!!!

G.otF.M.

[Guest guest]

Doug and Carole.....

I second that "Eh?". Made no sense to me.....

Mi. Carmen

[Guest guest]

Dance, our Goddess ......Dance until your lime green polish falls off.

Sorry you didn't get your second interview but as I always say to my son..."When one door closes, another opens". Gosh I am so deep tonight. Here's to a better job opportunity !!D!

Mi. Carmen

That was really a weird letter from Michele. Yes, we are a tight group and I love everyone here !!!

[Guest guest]

Hi Michele,

I did notice that in one of your posts to the group you mentioned you were on chemo

for Cancer. I am sorry that I didn't ask you more about your situation, but if you have

noticed, I haven't posted much of anything lately. You see my mom (who is 85) and

suffering dementia's is dying. She refuses to eat and is now down to only 85 pounds.

I have been very, very busy trying to visit with her as much as possible, also my husband

and I were taking care of my mom's two cats for many weeks. On top of all that, I had

to remove my Fentanyl patch as it has been causing me to sweat almost constantly.

I imagine by morning I will be shuffling in pain. Also, I have to be in court again tom.

for the appointment of a permanent guardian for my dying mom. I have been at several

meetings with Social Workers, doctor's etc. over the past weeks. You see, my two

brothers *think* we can care for mom at home....this is a long story..but, we can not.

Sorry about your problems not being addressed Michele, but I don't even think you

shared with us where your Cancer is, or how severe it is...so I assumed as I'm sure

others did, that you didn't want to share this info. Or did I miss something else?

If the points missed were indeed minor...then why the fuss? Trust me, I do think that

we all realize there are a lot of people suffering in the world, we can only try to help

so many at a time.

I disagree somewhat about the statment that you made that "although Stills creates havoc

in one's life, it doesn't dictate who we are and our beliefs." Stills has been dictating how

I live my life for the past 30+ years, and it has caused me to believe there are many kind

and loving people who love me even if I am sick and in pain. Had Stills not "dictated"

that I would be "disabled" most all of my life...I would have been able to hold down a

job, done volunteer work, shared more in "pet rescue work.." and the list goes on....

however..*please know* I am NOT bitter or angry. I also feel that the Stills has made me

more aware that there is so much suffering going on in the world. It doesn't take many

visits to the Mayo Clinic to figure that one out!

May you find the peace and comfort you seek...I am sorry we "missed those minor points."

From Wisconsin,

Tricia

-- Re: THANK YOU ALL

Thank you to all who has responded. I am going to sign off of this support group. I believe you are a very tight-knit group. You support one another and your kind. I think you have missed few minor points, there is a whole world out there that is suffering. Although Stills creates havoc in ones life, it doesn't dictate who we are and our believes. Best of luck to allMichele

[Guest guest]

So much incredible support from you all, it's amazing and

appreciated so much.

I slept like a top (go figure) after seeing Sam and getting so upset.

I woke late, had no time to think and went into my meeting confident.

I just said straight out, I want my job, I think I have a good 5

years left, I want you to say straight out if there is a position

open for me that does not insult my intellegence and reflects my

past efforts and length of service. As much as I want and in fact

need a job, I will not however be insulted and treated badly, my

dignity is at stake and I would rather leave today.

He said he still saw my roll and position as vital to the structure

of Council. He was not aware what was happening within my department

and would not approve of it.

I told him I acknowledge I could do extra tasks and was happy to do

so but would not be the 'ball boy' on the engineering 'team'.

(My exact words were 'they said they want me to be part of their

team and my reply was every team has a ball boy, don't think I will

be your's).

I also told him I had lost faith, trust and respect for my managers

and would prefer if my section where transfered to another dept. He

agreed in principle and suggested I speak with this other Manager (I

already have) who was away ill today. He will also speak with him to

sort out if it is viable.

Bottom line,

I will return to work next Tuesday to my former job. He will

attempt to have the position classified under another dept. mean-

time.

I am not expected to be given menial and insulting duties and I will

definitely not be required to work under the young female engineer,

in fact, he indicated that she is likely to be moved to another

section or back where she came from. He was not happy that she was

working in my section, which he also had not been made aware.

All in all I felt okay when I left his office but now I will have to

wait and see the reception I receive next Tuesday when I return.

There has been no loyalty extended to me by my boss/friend and today

first time ever, I extended none to him.

The GM asked where all this was coming from and I was up front, I

said power lust and beefing up ones own position and status at my

expense.

So now it's wait and see but I do feel happier knowing I put my side

accross and knowing he is aware of what is happening .

Still feel shit about Sam, I'll get over it, I know he is not worth

my thoughts and caring.

Thank you all for supporting and encouraging me. You are great

friends and I am grateful.

Maree

[Guest guest]

Whew, that all sounds promising and

encouraging, you must be feeling very drained. If it is not normal council

procedure may I suggest that you ask the person you met with today to type up a

summary of your meeting including the outcome of his talks with the other

manager. That’s coming from too many years working in the government and

having to dot your I’s and cross the T’s, however in the government

a typed summary of the meeting was always produced without having to ask for

it.

Good luck Maree, I hope you get what you

want, you deserve it.

Leanne

--

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[Guest guest]

This is how I finally found a doctor......I knew I couldn't afford some of them and I didn't have any insurance.....but I called anyway....thinking one of them would lead me in the right direction....and they did....I've seen a doctor....getting my labs done....on my way to getting tx.....with very little out of pocket expense......wishing you all the best nancy Tinacurlytoes45 wrote: I found this in a search.....maybe this might help......good luck to you

nancy http://www.ucomparehealthcare.com/drs/montana/gastroenterologists/ SHARON CROSBY <csharonxoxomsn> wrote: My daughter lives there, I can call her and see what she can find.... Sharon in NW WashingtonAll I have seen teaches me to trust in the Creator for all that I have not seen. Ralph Waldo Emerson Re: Thank you all Hi nancy Well hon, thats what we're here for,, we ALL remember being new here and needing some help and so we are here to pay it forward! do you remember that movie? I just loved it,, We will have a

member here that either lives near Bozeman or knows someone who does,, Im sure that there will be good gastro's or hepatologists there as Bozeman is one of the bigger towns in Montana,, so finding you a good doc shouldnt be too hard... and the drug pharmies will provide you the meds.. dont worry about the government knowing that you have hep c,, they know about all of us, its how they keep records and in all likelihood, we're all just a number now to them! What CAN happen is that when and if you go to work for a company that has medical insurance, they usually cover everyone under an umbrella policy that will cover everyone,, and if your husband's work wont offer insurance, well you can still get the meds and get your tx covered by the pharmies... at least they can give you the meds and that is the most important part.. Perhaps you can work something out with your doc about office calls and only doing labs

when you really need them.. Even if you get anemic which most of us do while on tx, the drug co's can provide you with the procrit and neupo if needed as well... anyway hon,, one step at a time.. now we need to find you a good doc,,, so heads up everyone,, we need a doc in Bozeman, Montana.. nancysodemann <nancysodemann> wrote: Morning to all..I am sitting hear with tears running down my face. I can't tell you how good it feels to have people to talk to who understand what I am going through. I have been living a nightmare. I feel like I can breath.....I live in a town called Townsend. I am only 50 miles from

Bozeman. I have a wonderful supportive husband whom I have been married to for 8 years., my husband works very hard outside in a saw mill and makes little money and pay's BIG child support, so we can't afford insurance, when I got my diagnoses we were insured through another job. I don't think a insurance company would except me now anyway. I do know that my illness was reported to the Illinois Health Department (which was embarrassing) They contacted me to tell me I needed a Hep B vaccine. gotta go for now..nancyJackie Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

This is how I finally found a doctor......I knew I couldn't afford some of them and I didn't have any insurance.....but I called anyway....thinking one of them would lead me in the right direction....and they did....I've seen a doctor....getting my labs done....on my way to getting tx.....with very little out of pocket expense......wishing you all the best nancy Tinacurlytoes45 wrote: I found this in a search.....maybe this might help......good luck to you

nancy http://www.ucomparehealthcare.com/drs/montana/gastroenterologists/ SHARON CROSBY <csharonxoxomsn> wrote: My daughter lives there, I can call her and see what she can find.... Sharon in NW WashingtonAll I have seen teaches me to trust in the Creator for all that I have not seen. Ralph Waldo Emerson Re: Thank you all Hi nancy Well hon, thats what we're here for,, we ALL remember being new here and needing some help and so we are here to pay it forward! do you remember that movie? I just loved it,, We will have a

member here that either lives near Bozeman or knows someone who does,, Im sure that there will be good gastro's or hepatologists there as Bozeman is one of the bigger towns in Montana,, so finding you a good doc shouldnt be too hard... and the drug pharmies will provide you the meds.. dont worry about the government knowing that you have hep c,, they know about all of us, its how they keep records and in all likelihood, we're all just a number now to them! What CAN happen is that when and if you go to work for a company that has medical insurance, they usually cover everyone under an umbrella policy that will cover everyone,, and if your husband's work wont offer insurance, well you can still get the meds and get your tx covered by the pharmies... at least they can give you the meds and that is the most important part.. Perhaps you can work something out with your doc about office calls and only doing labs

when you really need them.. Even if you get anemic which most of us do while on tx, the drug co's can provide you with the procrit and neupo if needed as well... anyway hon,, one step at a time.. now we need to find you a good doc,,, so heads up everyone,, we need a doc in Bozeman, Montana.. nancysodemann <nancysodemann> wrote: Morning to all..I am sitting hear with tears running down my face. I can't tell you how good it feels to have people to talk to who understand what I am going through. I have been living a nightmare. I feel like I can breath.....I live in a town called Townsend. I am only 50 miles from

Bozeman. I have a wonderful supportive husband whom I have been married to for 8 years., my husband works very hard outside in a saw mill and makes little money and pay's BIG child support, so we can't afford insurance, when I got my diagnoses we were insured through another job. I don't think a insurance company would except me now anyway. I do know that my illness was reported to the Illinois Health Department (which was embarrassing) They contacted me to tell me I needed a Hep B vaccine. gotta go for now..nancyJackie Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I got a Hep-A vaccine as well as the Hep-B.

Please ask about the Hep-A shot/s-!

>

> Morning to all..I am sitting hear with tears running down my face.

I can't tell you how good it

> feels to have people to talk to who understand what I am going

through. I have been living a

> nightmare. I feel like I can breath.....I live in a town called

Townsend. I am only 50 miles from

> Bozeman. I have a wonderful supportive husband whom I have been

married to for 8 years.,

> my husband works very hard outside in a saw mill and makes little

money and pay's BIG child

> support, so we can't afford insurance, when I got my diagnoses we

were insured through

> another job. I don't think a insurance company would except me now

anyway. I do know that

> my illness was reported to the Illinois Health Department (which

was embarrassing) They

> contacted me to tell me I needed a Hep B vaccine. gotta

go for now..nancy

>

[Guest guest]

I got a Hep-A vaccine as well as the Hep-B.

Please ask about the Hep-A shot/s-!

>

> Morning to all..I am sitting hear with tears running down my face.

I can't tell you how good it

> feels to have people to talk to who understand what I am going

through. I have been living a

> nightmare. I feel like I can breath.....I live in a town called

Townsend. I am only 50 miles from

> Bozeman. I have a wonderful supportive husband whom I have been

married to for 8 years.,

> my husband works very hard outside in a saw mill and makes little

money and pay's BIG child

> support, so we can't afford insurance, when I got my diagnoses we

were insured through

> another job. I don't think a insurance company would except me now

anyway. I do know that

> my illness was reported to the Illinois Health Department (which

was embarrassing) They

> contacted me to tell me I needed a Hep B vaccine. gotta

go for now..nancy

>

[Guest guest]

I've had the pneumonia-shot around three times in my lifetime.

I 'know' that people are 'told' that it only takes ONE shot,....

Somehow, I had/have a hard time believing 'that'-!

Now, since I've had it several times over the course of a number of

years,....

I'll opt to NOT have it again,...unless otherwise informed/directed

by health-professionals..etc.

Once, I had a flu-shot AND a Pneumonia-shot at the same time-!

I was SO MUCH more 'ill-feeling' than just the flu-shot,....

NEVER-AGAIN-!..............

> >

> > Morning to all..I am sitting hear with tears running down my

face.

> I can't tell you how good it

> > feels to have people to talk to who understand what I am going

> through. I have been living a

> > nightmare. I feel like I can breath.....I live in a town called

> Townsend. I am only 50 miles from

> > Bozeman. I have a wonderful supportive husband whom I have been

> married to for 8 years.,

> > my husband works very hard outside in a saw mill and makes little

> money and pay's BIG child

> > support, so we can't afford insurance, when I got my diagnoses we

> were insured through

> > another job. I don't think a insurance company would except me

now

> anyway. I do know that

> > my illness was reported to the Illinois Health Department (which

> was embarrassing) They

> > contacted me to tell me I needed a Hep B vaccine. gotta

> go for now..nancy

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

[Guest guest]

I've had the pneumonia-shot around three times in my lifetime.

I 'know' that people are 'told' that it only takes ONE shot,....

Somehow, I had/have a hard time believing 'that'-!

Now, since I've had it several times over the course of a number of

years,....

I'll opt to NOT have it again,...unless otherwise informed/directed

by health-professionals..etc.

Once, I had a flu-shot AND a Pneumonia-shot at the same time-!

I was SO MUCH more 'ill-feeling' than just the flu-shot,....

NEVER-AGAIN-!..............

> >

> > Morning to all..I am sitting hear with tears running down my

face.

> I can't tell you how good it

> > feels to have people to talk to who understand what I am going

> through. I have been living a

> > nightmare. I feel like I can breath.....I live in a town called

> Townsend. I am only 50 miles from

> > Bozeman. I have a wonderful supportive husband whom I have been

> married to for 8 years.,

> > my husband works very hard outside in a saw mill and makes little

> money and pay's BIG child

> > support, so we can't afford insurance, when I got my diagnoses we

> were insured through

> > another job. I don't think a insurance company would except me

now

> anyway. I do know that

> > my illness was reported to the Illinois Health Department (which

> was embarrassing) They

> > contacted me to tell me I needed a Hep B vaccine. gotta

> go for now..nancy

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

[Guest guest]

I've had the pneumonia-shot around three times in my lifetime.

I 'know' that people are 'told' that it only takes ONE shot,....

Somehow, I had/have a hard time believing 'that'-!

Now, since I've had it several times over the course of a number of

years,....

I'll opt to NOT have it again,...unless otherwise informed/directed

by health-professionals..etc.

Once, I had a flu-shot AND a Pneumonia-shot at the same time-!

I was SO MUCH more 'ill-feeling' than just the flu-shot,....

NEVER-AGAIN-!..............

> >

> > Morning to all..I am sitting hear with tears running down my

face.

> I can't tell you how good it

> > feels to have people to talk to who understand what I am going

> through. I have been living a

> > nightmare. I feel like I can breath.....I live in a town called

> Townsend. I am only 50 miles from

> > Bozeman. I have a wonderful supportive husband whom I have been

> married to for 8 years.,

> > my husband works very hard outside in a saw mill and makes little

> money and pay's BIG child

> > support, so we can't afford insurance, when I got my diagnoses we

> were insured through

> > another job. I don't think a insurance company would except me

now

> anyway. I do know that

> > my illness was reported to the Illinois Health Department (which

> was embarrassing) They

> > contacted me to tell me I needed a Hep B vaccine. gotta

> go for now..nancy

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

[Guest guest]

not true,, some pneumonia shots only last for 3-5 years, some are 10 year shots,, ask which type and dose they want to give you before you decline,, DUG wrote: I've had the pneumonia-shot around three times in my lifetime.I 'know' that people are 'told' that it only takes ONE shot,....Somehow, I had/have a hard time believing 'that'-!Now, since I've had it several times over the course of a number of years,.... I'll opt to NOT have it again,...unless otherwise informed/directed by health-professionals..etc.Once, I had a flu-shot AND a Pneumonia-shot at the same time-!I was SO MUCH more 'ill-feeling' than just the flu-shot,....NEVER-AGAIN-!.............. > >> > Morning to all..I am sitting hear with tears running down my face. > I can't tell you how good it > > feels to have people to talk to who understand what I am going > through. I have been living a > > nightmare. I feel like I can breath.....I live in a town called > Townsend. I am only 50 miles from > > Bozeman. I have a wonderful supportive husband whom I have been > married to for 8 years., > > my husband works very hard outside in a saw mill

and makes little > money and pay's BIG child > > support, so we can't afford insurance, when I got my diagnoses we > were insured through > > another job. I don't think a insurance company would except me now > anyway. I do know that > > my illness was reported to the Illinois Health Department (which > was embarrassing) They > > contacted me to tell me I needed a Hep B vaccine. gotta > go for now..nancy> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>Jackie

[Guest guest]

The pnuemonia shot is usually every 5 yrs and not just once ..

Re: Thank you all

I've had the pneumonia-shot around three times in my lifetime.I 'know' that people are 'told' that it only takes ONE shot,....Somehow, I had/have a hard time believing 'that'-!Now, since I've had it several times over the course of a number of years,.... I'll opt to NOT have it again,...unless otherwise informed/directed by health-professionals..etc.Once, I had a flu-shot AND a Pneumonia-shot at the same time-!I was SO MUCH more 'ill-feeling' than just the flu-shot,....NEVER-AGAIN-!.............. > >> > Morning to all..I am sitting hear with tears running down my face. > I can't tell you how good it > > feels to have people to talk to who understand what I am going > through. I have been living a > > nightmare. I feel like I can breath.....I live in a town called > Townsend. I am only 50 miles from > > Bozeman. I have a wonderful supportive husband whom I have been > married to for 8 years., > > my husband works very hard outside in a saw mill and makes little > money and pay's BIG child > > support, so we can't afford insurance, when I got my diagnoses we > were insured through > > another job. I don't think a insurance company would except me now > anyway. I do know that > > my illness was reported to the Illinois Health Department (which > was embarrassing) They > > contacted me to tell me I needed a Hep B vaccine. gotta > go for now..nancy> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

[Guest guest]

The pnuemonia shot is usually every 5 yrs and not just once ..

Re: Thank you all

I've had the pneumonia-shot around three times in my lifetime.I 'know' that people are 'told' that it only takes ONE shot,....Somehow, I had/have a hard time believing 'that'-!Now, since I've had it several times over the course of a number of years,.... I'll opt to NOT have it again,...unless otherwise informed/directed by health-professionals..etc.Once, I had a flu-shot AND a Pneumonia-shot at the same time-!I was SO MUCH more 'ill-feeling' than just the flu-shot,....NEVER-AGAIN-!.............. > >> > Morning to all..I am sitting hear with tears running down my face. > I can't tell you how good it > > feels to have people to talk to who understand what I am going > through. I have been living a > > nightmare. I feel like I can breath.....I live in a town called > Townsend. I am only 50 miles from > > Bozeman. I have a wonderful supportive husband whom I have been > married to for 8 years., > > my husband works very hard outside in a saw mill and makes little > money and pay's BIG child > > support, so we can't afford insurance, when I got my diagnoses we > were insured through > > another job. I don't think a insurance company would except me now > anyway. I do know that > > my illness was reported to the Illinois Health Department (which > was embarrassing) They > > contacted me to tell me I needed a Hep B vaccine. gotta > go for now..nancy> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

[Guest guest]

The pnuemonia shot is usually every 5 yrs and not just once ..

Re: Thank you all

I've had the pneumonia-shot around three times in my lifetime.I 'know' that people are 'told' that it only takes ONE shot,....Somehow, I had/have a hard time believing 'that'-!Now, since I've had it several times over the course of a number of years,.... I'll opt to NOT have it again,...unless otherwise informed/directed by health-professionals..etc.Once, I had a flu-shot AND a Pneumonia-shot at the same time-!I was SO MUCH more 'ill-feeling' than just the flu-shot,....NEVER-AGAIN-!.............. > >> > Morning to all..I am sitting hear with tears running down my face. > I can't tell you how good it > > feels to have people to talk to who understand what I am going > through. I have been living a > > nightmare. I feel like I can breath.....I live in a town called > Townsend. I am only 50 miles from > > Bozeman. I have a wonderful supportive husband whom I have been > married to for 8 years., > > my husband works very hard outside in a saw mill and makes little > money and pay's BIG child > > support, so we can't afford insurance, when I got my diagnoses we > were insured through > > another job. I don't think a insurance company would except me now > anyway. I do know that > > my illness was reported to the Illinois Health Department (which > was embarrassing) They > > contacted me to tell me I needed a Hep B vaccine. gotta > go for now..nancy> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>