Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously.There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 , my heart goes out to you and your family. If you are not aware, please know that there are many resources out there that can help you and your family. First I want to ask, do you get disability for your daughter? There is an act that supports autistic individuals and their families.With that being said, it guarantees services you would not get otherwise. Look into that. Also, I don't know what your faith is, but with God all things are possible. Let Him carry your burdens and remember this prayer: God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference. , take one day at a time. My son is on the spectrum and it is truly difficult, I have 3 other kids, I am single, looking for work and I go to school full time. My prayers are with you and your family. Be blessedIn His Grace OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 You are not alone!! I don't have any good advice, except just put one foot in front of the other and keep moving forward. What is the next step? Work on that. My mom gave me great generic parenting advice when my girls were babies. " Is this going to be important in 6 months? " Say, you keep your daugther home today because she's crying, OR you don't. Also, our Neuropsychologist told us that our most important job with all kids, but espcecially kids on the spectrum is to love them unconditionally. That means accept them, love them and try to do the best everyday (not a small feat) and take one day at a time. You are seriously not alone!!! OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously.There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Thanks . We dont get disablity for her because we have money in savings from when our house was flooded. We are saving the money till Dec when I graduate to look for a home. We tired to explain all that to SS however that said it was an asset and we dont qualify. To: autism-aspergers Sent: Tuesday, October 18, 2011 11:14 AMSubject: Re: Sometimes I lose all hope , my heart goes out to you and your family. If you are not aware, please know that there are many resources out there that can help you and your family. First I want to ask, do you get disability for your daughter? There is an act that supports autistic individuals and their families.With that being said, it guarantees services you would not get otherwise. Look into that. Also, I don't know what your faith is, but with God all things are possible. Let Him carry your burdens and remember this prayer: God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference. , take one day at a time. My son is on the spectrum and it is truly difficult, I have 3 other kids, I am single, looking for work and I go to school full time. My prayers are with you and your family.Be blessedIn His Grace OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Thank you . It is hard to go sometimes when they cant tell you what bothers them. That is the most frustrating thing in our house with both my kids. To: autism-aspergers Sent: Tuesday, October 18, 2011 11:16 AMSubject: Re: Sometimes I lose all hope You are not alone!! I don't have any good advice, except just put one foot in front of the other and keep moving forward. What is the next step? Work on that. My mom gave me great generic parenting advice when my girls were babies. "Is this going to be important in 6 months?" Say, you keep your daugther home today because she's crying, OR you don't. Also, our Neuropsychologist told us that our most important job with all kids, but espcecially kids on the spectrum is to love them unconditionally. That means accept them, love them and try to do the best everyday (not a small feat) and take one day at a time. You are seriously not alone!!! OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 That's a crappy answer. There's no "cure" for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Maybe is there a list of occupational therapists that accept Medicaid? Or any kind of therapists that can refer you? Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 She has mad great progress in speech. It just that she cant communicate feeling or have empathy and I dont think you can teach that. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:30 PMSubject: Re: Sometimes I lose all hope That's a crappy answer. There's no "cure" for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Can she identify different facial emotions (happy, sad, angry)? Point to the picture of the child who is mad? Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 10:43 AMSubject: Re: Sometimes I lose all hope She has mad great progress in speech. It just that she cant communicate feeling or have empathy and I dont think you can teach that. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:30 PMSubject: Re: Sometimes I lose all hope That's a crappy answer. There's no "cure" for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 We have tried the pictures. And i think we finally got the sad. Because when she acts up she says Mommy's sad. But she has no empathy. The things she does say we have taught her to say. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:52 PMSubject: Re: Sometimes I lose all hope Can she identify different facial emotions (happy, sad, angry)? Point to the picture of the child who is mad? Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 10:43 AMSubject: Re: Sometimes I lose all hope She has mad great progress in speech. It just that she cant communicate feeling or have empathy and I dont think you can teach that. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:30 PMSubject: Re: Sometimes I lose all hope That's a crappy answer. There's no "cure" for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 I can relate to you. I'm sorry your struggling. I have 2 sons,14 and 22 both with Autism. Sorry I have no answers but you have my support if you need it. Kathy > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 I just went through one of those days last week. I have one son on the spectrum. I was just gonna tell you that with my son, before he would tell us what hurt, we had pictures of almost every body part and would just have him point. It worked really well. It is something small, but thought it may help you. Sorry it is so tough for ya. hope this helps a littleTo: autism-aspergers Sent: Tuesday, October 18, 2011 2:25 PMSubject: Re: Sometimes I lose all hope I can relate to you. I'm sorry your struggling. I have 2 sons,14 and 22 both with Autism. Sorry I have no answers but you have my support if you need it. Kathy > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 As I read your post I remember all the nights I cried myself to sleep. Dealing with autism is a life changer - no question about that. I didn't think I could handle all the attention, time, appts, $$$ that this life requires. I mourn all the parties, school clubs, friends, etc my little girl will never have. You are not alone precious. If you make a conscious decision to be the best mother to your child possible and put all your effort into that goal, you'll be able to sleep at night. The hardest part for me was accepting that my role as a mother was my daughters biggest asset. (I had a career!). and that it is the most important role I will ever have. It is important that I will speak for her because she cannot and I will not let her be treated shabbily or 2nd best by anyone. I demand appropriate services for my child and do not let her needs go unattended. (Some of the institutions - (Schools) you deal with will try to put minimum effort & $$ into meeting (the schools min goals) without real regard for your childs learning ability, needs or success.) My husband and I are united in our effort to get the best treatment for our daughter. It has actually bound us tighter. We do not agree on much else but U both have to be committed to your children and you can work everything else out. And on those days, when you can't stand to deal with one more thing, just know that at night you will close your eyes, and when you open them you will have a fresh opportunity. Just make it to the end of the day... Sending lots of love your way! Cammy http://stores.ebay.com/Cammys-Clothing-Treasures > > > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 I understand what you're saying. I wonder if for some it's like reading. When a child first "reads," they're just memorizing what you've said, rather than actually reading each word individually. But it forms a foundation. May be something to talk with her speech person to get more information. Best wishes to you and your precious girl. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 11:02 AMSubject: Re: Sometimes I lose all hope We have tried the pictures. And i think we finally got the sad. Because when she acts up she says Mommy's sad. But she has no empathy. The things she does say we have taught her to say. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:52 PMSubject: Re: Sometimes I lose all hope Can she identify different facial emotions (happy, sad, angry)? Point to the picture of the child who is mad? Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 10:43 AMSubject: Re: Sometimes I lose all hope She has mad great progress in speech. It just that she cant communicate feeling or have empathy and I dont think you can teach that. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:30 PMSubject: Re: Sometimes I lose all hope That's a crappy answer. There's no "cure" for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure." To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for. Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 It’s possible to use social stories to explain feelings and empathy. Stacie From: autism-aspergers [mailto:autism-aspergers ] On Behalf Of amanda johnsSent: Tuesday, October 18, 2011 12:44 PMTo: autism-aspergers Subject: Re: Sometimes I lose all hope She has mad great progress in speech. It just that she cant communicate feeling or have empathy and I dont think you can teach that. To: " autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 12:30 PMSubject: Re: Sometimes I lose all hope That's a crappy answer. There's no " cure " for hay fever, but there's plenty of ways to help ease the symptoms. I'd start seeing if there are resources at colleges near you, either for studies you can be involve in, or services to be offered. May want to see what other drs have to say about your daughter and possible speech therapy recommendations. Using something like PECS (cards that help a nonverbal child communicate) may be helpful. Sherri 15:5 I am the vine; you are the branches. If a man remains in me, and I in him, he will bear much fruit; apart from me you can do nothing. To: " autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 9:38 AMSubject: Re: Sometimes I lose all hope We have medicaid. However the is no one in Louisiana that specializes in this. And when I asked our doctor about what to do she looked at me and said " what do you want there is no cure. " To: autism-aspergers Sent: Tuesday, October 18, 2011 10:51 AMSubject: Re: Sometimes I lose all hope Please be strong, don't lose hope. Can you qualify for Medicaid or something like that? I have been there with you when my son was the same age. Thankfully with occupational therapy, group, etc, it has been so much better. Medication has helped tremendously. There has been some days where I wish my child was neurotypical, but there are some days where I wouldn't change him for the world. Big hugs to you. Feel free to vent away, that's what we're here for.Subject: Sometimes I lose all hopeTo: autism-aspergers Date: Tuesday, October 18, 2011, 11:39 AM OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 Hi , I Have had days like this. I think the other night when reality hit me that I needed to get my daughter re-evaluated I started crying. It was a very long and hard road with my youngest son. Things however have looked up. But sometimes my daughter won't tell me why she is crying and the guessing is the hardest part. Just out of curiosity is her class big or small? Is it noisy in there? My son couldn't handle the class size and the noise. He was full of anxiety and I saw this more in a full day then I did in a half day. Stacie Sometimes I lose all hope OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 Thank you so much! for your time. Just the fact you took the time to listen helps. I am wondering since I dont have doctors here to steer me through treament how I shoudl go about getting her what she needs. To: autism-aspergers Sent: Tuesday, October 18, 2011 1:46 PMSubject: Re: Sometimes I lose all hope As I read your post I remember all the nights I cried myself to sleep. Dealing with autism is a life changer - no question about that. I didn't think I could handle all the attention, time, appts, $$$ that this life requires. I mourn all the parties, school clubs, friends, etc my little girl will never have. You are not alone precious. If you make a conscious decision to be the best mother to your child possible and put all your effort into that goal, you'll be able to sleep at night. The hardest part for me was accepting that my role as a mother was my daughters biggest asset. (I had a career!). and that it is the most important role I will ever have. It is important that I will speak for her because she cannot and I will not let her be treated shabbily or 2nd best by anyone. I demand appropriate services for my child and do not let her needs go unattended. (Some of the institutions - (Schools) you deal with will try to put minimum effort & $$ into meeting (the schools min goals) without real regard for your childs learning ability, needs or success.) My husband and I are united in our effort to get the best treatment for our daughter. It has actually bound us tighter. We do not agree on much else but U both have to be committed to your children and you can work everything else out. And on those days, when you can't stand to deal with one more thing, just know that at night you will close your eyes, and when you open them you will have a fresh opportunity. Just make it to the end of the day... Sending lots of love your way! Cammy http://stores.ebay.com/Cammys-Clothing-Treasures > > > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 Will try that thanks!! To: "autism-aspergers " <autism-aspergers >Sent: Tuesday, October 18, 2011 1:34 PMSubject: Re: Re: Sometimes I lose all hope I just went through one of those days last week. I have one son on the spectrum. I was just gonna tell you that with my son, before he would tell us what hurt, we had pictures of almost every body part and would just have him point. It worked really well. It is something small, but thought it may help you. Sorry it is so tough for ya. hope this helps a littleFrom: csadler239 To: autism-aspergers Sent: Tuesday, October 18, 2011 2:25 PMSubject: Re: Sometimes I lose all hope I can relate to you. I'm sorry your struggling. I have 2 sons,14 and 22 both with Autism. Sorry I have no answers but you have my support if you need it. Kathy > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 You need to find a paediatrician who understand autism. If you cannot find one, then you need to look for a support group. An online group like this is great, but they can't give you the specific information on your local area that is really needed. Even finding just one mother locally who has been through the same thing can be a great help. Don't leave you husband out of it - often when dealing with professionals a man can get results when a woman might not. That isn't always true, and it doesn't say much good about society, but sometimes you just have to work with how things are rather than how they should be. In some cases it is the mother who can deal with professionals and the father who just accepts what they say and won't argue - if that is the case, it's a good argument for leaving the kids with Dad while Mum goes after the professionals. Don't worry about what is 'expected' or 'socially acceptable', just go with whatever works. Take a long term view. What will matter most to you in 10 years time: that you offended a teacher or doctor by being 'pushy', or that you got the help your kid needs? My son had mostly teachers who wanted to help him, but I still sometimes had to argue for what I thought he needed. And we changed peadiatricians when it became obvious the first one we saw was not really going to be much help. Then we asked around and found one that came highly recommended by another parent. My son turns 18 next year, so we are looking for a good adult psychologist/psychiatrist who is good with aspies. My daughter's best friend's older brother has Aspergers and ADHD as well, so we are keeping in touch and waiting to see how his psychiatrist goes over the next year or so. If you are moving to Austin, start looking online to see what is available there. In a city that big, there should be something available. Sometimes the hardest thing to deal with is not finding professionals and services, but feeling like you're all alone and there is no way you can survive. That's where having someone to talk to who has been through it is really good. Just don't pick someone who never made a mistake and always found everything they needed without any problems, and the first thing they tried made a major improvement to their kid. They just make you feel worse. Life just isn't like that for most of us. Or if it is like that for most people, I don't want to know  Thank you so much! for your time. Just the fact you took the time to listen helps. I am wondering since I dont have doctors here to steer me through treament how I shoudl go about getting her what she needs. From: camcat10 To: autism-aspergers Sent: Tuesday, October 18, 2011 1:46 PM Subject: Re: Sometimes I lose all hope  As I read your post I remember all the nights I cried myself to sleep. Dealing with autism is a life changer - no question about that. I didn't think I could handle all the attention, time, appts, $$$ that this life requires. I mourn all the parties, school clubs, friends, etc my little girl will never have. You are not alone precious. If you make a conscious decision to be the best mother to your child possible and put all your effort into that goal, you'll be able to sleep at night. The hardest part for me was accepting that my role as a mother was my daughters biggest asset. (I had a career!). and that it is the most important role I will ever have. It is important that I will speak for her because she cannot and I will not let her be treated shabbily or 2nd best by anyone. I demand appropriate services for my child and do not let her needs go unattended. (Some of the institutions - (Schools) you deal with will try to put minimum effort & $$ into meeting (the schools min goals) without real regard for your childs learning ability, needs or success.) My husband and I are united in our effort to get the best treatment for our daughter. It has actually bound us tighter. We do not agree on much else but U both have to be committed to your children and you can work everything else out. And on those days, when you can't stand to deal with one more thing, just know that at night you will close your eyes, and when you open them you will have a fresh opportunity. Just make it to the end of the day... Sending lots of love your way! Cammy http://stores.ebay.com/Cammys-Clothing-Treasures > > > > OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please someone respond. > > > No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1831 / Virus Database: 2092/4560 - Release Date: 10/18/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 Hang in there. We all know it is hard. Take one day at a time and choose your battles. > > Â > >OK i try to handle all this with my daughter; however somedays are better than others. I just wish she could tell me what hurts her. And why she is crying. She would go to school today and I dont know what to do. She wouldnt get out of the car. I asked her teacher and nothing happened out of the normal. She is 4 and has limited speech. She doesnt understand feelings and emotions. If i ask her what hurt she will tell me one by one everything. If i ask her if her shoe hurts that hurts. I feel so lost. There is no one here to help us with her. And now the therapist are telling us our son is scoring really high on the scale and might have Autism too. I just broke down and cried today. Not that I want pity we need help. I have one month of school left till I can get a job and insurance to take them to Austin. I just need to know my husband and I are not alone. He never cries and he just came to me and cried too saying the same that he feels so lost. Please > someone respond. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 There are 20 in her class and it can get noisey. Her Aide that works with her is real good with. I found out after the fact that they had a sub teacher and I think that threw her off. And She was having stomach problems ( we found out this weekend when she finally went to the bathroom). It is hard to keep up if she is going or not when she is at school. But I should have thought of it sooner. Almost everytime she gets like this she is constipated. Hind sight is 20/20. We go to a ENT doctor this week for my son. And the speech pathologist comes over Wednesday. I just finished the papers for his second evaluation. Because the first test the BISCUIT ( i think that is what it is called) came out high. A concerned score is 21 and he scored a 28 so they are sended us 2 hours away for evalation. Thank you for you thoughts and response they mean alot to know I am not alone in this battle. To: autism-aspergers Sent: Tuesday, October 18, 2011 5:22 PMSubject: RE: Sometimes I lose all hope Hi ,I Have had days like this. I think the other night when reality hit me thatI needed to get my daughter re-evaluated I started crying. It was a verylong and hard road with my youngest son. Things however have looked up. Butsometimes my daughter won't tell me why she is crying and the guessing isthe hardest part. Just out of curiosity is her class big or small? Is itnoisy in there? My son couldn't handle the class size and the noise. He wasfull of anxiety and I saw this more in a full day then I did in a half day. Stacie-----Original Message-----From: autism-aspergers [mailto:autism-aspergers ] On Behalf Of amandaSent: Tuesday, October 18, 2011 10:40 AMTo: autism-aspergers Subject: Sometimes I lose all hopeOK i try to handle all this with my daughter; however somedays are betterthan others. I just wish she could tell me what hurts her. And why she iscrying. She would go to school today and I dont know what to do. She wouldntget out of the car. I asked her teacher and nothing happened out of thenormal. She is 4 and has limited speech. She doesnt understand feelings andemotions. If i ask her what hurt she will tell me one by one everything. Ifi ask her if her shoe hurts that hurts. I feel so lost. There is no one hereto help us with her. And now the therapist are telling us our son is scoringreally high on the scale and might have Autism too. I just broke down andcried today. Not that I want pity we need help. I have one month of schoolleft till I can get a job and insurance to take them to Austin. I just needto know my husband and I are not alone. He never cries and he just came tome and cried too saying the same that he feels so lost. Please someonerespond.------------------------------------ Quote Link to comment Share on other sites More sharing options...
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