Hello

July 9, 2001

Cairo,

Welcome to the group!!!! Hopefully you will get to the point where you crave

challenging moves that take practice. They keep it interesting.

Hope to hear more from you!

a

>

> Hi everyone,

>

> I am quite new to Tae Bo and am very pleased to have come across this

> group for support and inspiration. I live in London, England and

> first

> learned of Tae Bo from a commercial. Since then I have read about it

> in various fitness magazines where celebrities are highly

> recommending

> it. I have four of the videos (Tae Bo instructional, Tae Bo 1, Tae Bo

> 2, and Tae Bo 3)and am planning to start working out with them this

> week. I did the Tae Bo instructional tape earlier this year but gave

> myself a hard time for not knowing the moves and decided to quit.

> Watched the tapes again last month and realised I could do this,

> there

> was no need to quit. All I needed to do was believe in myself, know I

> could do it and not worry about how silly I may have felt by not

> doing

> the moves properly the first time. Tae Bo isn't widely known in the

> UK

> yet but I have a feeling it wont be long before it catches on.

>

> Cairo

>

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November 3, 2004

>

..............> 6 - How long ago did you first learn about BPD.-About

a month or so

> ago. My cousin who can't stand her at all, threw out the words

> Borderline Personality Disorder and I found SWOE at the library.

> Then went back to my childhood counselor and she spilled the beans

> and told me flat out what it is and plans to help me set

boundaries,

> validate things as yep her illness struck again and supporting me.

> I was also reminded that I always knew there was soemthign

> drastically wrong with her, just didnt' know what exactly it was.

>

> *Thanks for the list it's been a great help for validation and

> support that I'm not alone and I'm not nuts to have to get away

from

> her. I admire those on this list who still include nada in their

> life! For some reason atleast where I live, probably society at

> large feels that all should run in and save the ill one no matter

> the cost. Especially in my situation where they try to tell

> me " you're all she has left " my answer is guess what she did it to

> herself. I've tried and now I've got to worry about me keep me

> clean of fleas and find healthy relationships!

>

> Marie

****Marie,

How wonderful for you that you have learned about this at your age.

I too, knew there was something wrong with nada - but didn't

understand that it had anything to do with mental illness.

You are correct about society's expectations. But I am glad that you

have a good response to it. Yes, nada did do it to herself, and my

criteria is - how do I respond to and treat the person who abused me

when I was a child. Society should be directing their comments to

her,and asking " How could you do that to your son/daughter? "

Take care of yourself,

Sylvia

February 9, 2005

Holly,

I'm 37yrs. I have one child who is 4. I too have extreme fatigue!!

My MD is referring me to Dr. Purvis?? (not too sure of name) in

borough who is a rheumatalogist. My Dr. said she is very smart

and that is who she would like me to see. No appt. as of yet.

This Fri. my husband and I are seeing a NaPro Technolgy dr. in

Toronto. regarding my miscarriages but we are hoping light will be

shed on this EN.

Major joint pain and swelling in my ankles, I'm not able to walk.

It is managable while on prednisone but better when I'm off my feet

-

-- In erythema_nodosum_Group , " H Hoekstra "

<jhrnjhoekstra@h...> wrote:

> ,

>

> We're neighbors! lol! I'm about a 25 minute drive to Port

Hope~! I've had

> EN since August of last year. I STILL have new spots appearing.

My Rheumy

> first Diagnosed Sarc, but has since changed it. I had an

appointment

> yesterday with him, Dr. Doris, in borough. He has reffered

me to a Dr.

> in Oshawa. He is a Dermy. Most of my joints have been

affected from

> my EN, but my knees and ankles especially. The fatigue is

INCREDIBLE!! I'm

> only 29 years old and I have 3 children, 6yrs, 5 yrs and 21 months

and I

> cannot keep up. I have been off all medication since mid December

as per my

> Rheumy. I do still take Ibuprophen daily...I am completely

exhausted. I

> feel like I've been run over by a truck! Do you have the fatigue

along with

> your EN? What doc do you go to?

>

> ttyl

> Holly

>

> >From: " bmacgoo " <bmacgoo@y...>

> >Reply-To: erythema_nodosum_Group

> >To: erythema_nodosum_Group

> >Subject: Location Hello Neighbour!

> >Date: Wed, 09 Feb 2005 14:32:21 -0000

> >

> >Hi Holly,

> >

> >Well, we don't live to far away. I'm north of Port Hope on Hwy

28!

> >

> >I just developed EN in Jan. As of now I still have it and it's

only

> >being controled while I'm on prednisone.

> >

> >--

> >

> >- In erythema_nodosum_Group , " H Hoekstra "

> ><jhrnjhoekstra@h...> wrote:

> > > ,

> > >

> > > Noticed you live here in Ontario too? Where are you located?

> >I've had EN

> > > for 8 months and I too live in Ontario. I'm not far from

> >Cobourg....about 2

> > > hours east of Toronto......I was just curious.

> > >

> > > Holly

> > >

> > > >From: " bmacgoo " <bmacgoo@y...>

> > > >Reply-To: erythema_nodosum_Group

> > > >To: erythema_nodosum_Group

> > > >Subject: Thank You for Support Re:

Pain

> > > >Date: Sun, 06 Feb 2005 23:14:51 -0000

> > > >

> > > >Hello,

> > > >

> > > >It's Sunday night, 6pm... I slept for 4 hours while my

husband and

> > > >daughter enjoyed the snow!! I was able to get out with her

for an

> > > >hour. I feel like I'm cheating her and my self. Yes, woes me

and

> >I

> > > >don't have a life threatening illness!!

> > > >

> > > >If someone would say in 2 weeks to 1 month you'll be ok...I

could

> > > >deal with that because I can see an end.

> > > >

> > > >, I have not found support hose named tuck in

Ontario. I'm

> > > >using Jobst, knee highs are $55.00 Tomorrow I'm going to

purchase

> > > >full ones.

> > > >

> > > >I was on 40mg of prednisone and have been weaned of it as of

last

> > > >Wed. I do not drink when I'm taking meds. And haven't been

as of

> > > >lately because my husband and I are wanting more children.

Today

> >I

> > > >took asprin 2x 375mg morning and afternoon. No effect.

After

> > > >supper I took 1 Voltram that my Dr. rx when she first

diagnoised

> > > >that I had a foot infection!!! This med is for swelling and

pain,

> > > >I'll see if it works.

> > > >

> > > >I still have sever joint pain, tightness, like I cann't walk.

I'll

> > > >see how I am on Monday at work.

> > > >

> > > >This Friday I'm seeing a NaPro Technology Dr. that deals with

> >womens

> > > >health and I'm hoping she'll have some answers for me about

EN.

> >My

> > > >appointment was initial sch. with her regarding my

misscarriages.

> >I

> > > >have painful menstral cycle and bad PMS. But NaPro is for

overall

> > > >health and well being.

> > > >

> > > >I'll let everyone know if there is any light or suggest she

may

> >have

> > > >regarding EN.

> > > >

> > > >Thank you everyone for listening, it truly is comforting.

> > > >

> > >

_________________________________________________________________

> > > Don't just Search. Find!

> >http://search.sympatico.msn.ca/default.aspx The new

> > > MSN Search! Check it out!

> >

>

> _________________________________________________________________

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rket_MSNIS_Taglines

> Start enjoying all the benefits of MSN® Premium right now and

get the

> first two months FREE*.

February 9, 2005

along with your fatigue do you have any other symptoms like upset GI

system??

----

Thank You for Support Re: Pain> >

> >Date: Sun, 06 Feb 2005 23:14:51 -0000> > >

>> > > >> > > >Hello,> > >

>> > > >It's Sunday night, 6pm... I slept for 4 hours

while my husband and> > > >daughter enjoyed the

snow!! I was able to get out with her for an> > >

>hour. I feel like I'm cheating her and my self. Yes, woes me

and> >I> > > >don't have a life threatening

illness!!> > > >> > > >If someone would say

in 2 weeks to 1 month you'll be ok....I could> > > >deal

with that because I can see an end.> > > >> > >

>, I have not found support hose named tuck in Ontario.

I'm> > > >using Jobst, knee highs are $55.00 Tomorrow

I'm going to purchase> > > >full ones.> > >

>> > > >I was on 40mg of prednisone and have been weaned

of it as of last> > > >Wed. I do not drink when

I'm taking meds. And haven't been as of> > >

>lately because my husband and I are wanting more children.

Today> >I> > > >took asprin 2x 375mg

morning and afternoon. No effect. After> > >

>supper I took 1 Voltram that my Dr. rx when she first

diagnoised> > > >that I had a foot infection!!!

This med is for swelling and pain,> > > >I'll see if it

works.> > > >> > > >I still have sever joint

pain, tightness, like I cann't walk. I'll> > > >see how

I am on Monday at work.> > > >> > > >This

Friday I'm seeing a NaPro Technology Dr. that deals with>

>womens> > > >health and I'm hoping she'll have some

answers for me about EN.> >My> > >

>appointment was initial sch. with her regarding my

misscarriages.> >I> > > >have painful menstral

cycle and bad PMS. But NaPro is for overall> > >

>health and well being.> > > >> > > >I'll

let everyone know if there is any light or suggest she may>

>have> > > >regarding EN.> > > >>

> > >Thank you everyone for listening, it truly is

comforting..> > > >> > > >>

> > >> > > >> > > >> >

>> > >

_________________________________________________________________>

> > Don't just Search. Find!> >http://search.sympatico.msn.ca/default.aspx

The new> > > MSN Search! Check it out!> >>

>> >> >

_________________________________________________________________>

Scan and help eliminate destructive viruses from your inbound and

outbound > e-mail and attachments. > http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Market_MSNIS_Taglines

> Start enjoying all the benefits of MSN® Premium right

now and get the > first two months

FREE*.

February 10, 2005

Oh ,

You're soooooooo lucky to get into Dr Jane Purvis!!! She is the best! I've

heard so much good talk about her. She is very smart! She sees a lot of

Lupus patients too. She is in the Medical Center on Charlotte St in PTBO.

I'm sorry to hear that you're not able to walk. My EN hasn't returned to

the unambliatory state - Thank goodness.

Hope you're able to get some answers at your appt on Friday.

TTYL

Holly

>

>Reply-To: erythema_nodosum_Group

>To: erythema_nodosum_Group

>Subject: Re: Hello

>Date: Wed, 09 Feb 2005 21:13:54 -0000

>

>Holly,

>

>I'm 37yrs. I have one child who is 4. I too have extreme fatigue!!

>

>My MD is referring me to Dr. Purvis?? (not too sure of name) in

>borough who is a rheumatalogist. My Dr. said she is very smart

>and that is who she would like me to see. No appt. as of yet.

>

>This Fri. my husband and I are seeing a NaPro Technolgy dr. in

>Toronto. regarding my miscarriages but we are hoping light will be

>shed on this EN.

>

>Major joint pain and swelling in my ankles, I'm not able to walk.

>It is managable while on prednisone but better when I'm off my feet

>

>-

>

>-- In erythema_nodosum_Group , " H Hoekstra "

><jhrnjhoekstra@h...> wrote:

> > ,

> >

> > We're neighbors! lol! I'm about a 25 minute drive to Port

>Hope~! I've had

> > EN since August of last year. I STILL have new spots appearing.

>My Rheumy

> > first Diagnosed Sarc, but has since changed it. I had an

>appointment

> > yesterday with him, Dr. Doris, in borough. He has reffered

>me to a Dr.

> > in Oshawa. He is a Dermy. Most of my joints have been

>affected from

> > my EN, but my knees and ankles especially. The fatigue is

>INCREDIBLE!! I'm

> > only 29 years old and I have 3 children, 6yrs, 5 yrs and 21 months

>and I

> > cannot keep up. I have been off all medication since mid December

>as per my

> > Rheumy. I do still take Ibuprophen daily...I am completely

>exhausted. I

> > feel like I've been run over by a truck! Do you have the fatigue

>along with

> > your EN? What doc do you go to?

> >

> > ttyl

> > Holly

> >

> > >From: " bmacgoo " <bmacgoo@y...>

> > >Reply-To: erythema_nodosum_Group

> > >To: erythema_nodosum_Group

> > >Subject: Location Hello Neighbour!

> > >Date: Wed, 09 Feb 2005 14:32:21 -0000

> > >

> > >Hi Holly,

> > >

> > >Well, we don't live to far away. I'm north of Port Hope on Hwy

>28!

> > >

> > >I just developed EN in Jan. As of now I still have it and it's

>only

> > >being controled while I'm on prednisone.

> > >

> > >--

> > >

> > >- In erythema_nodosum_Group , " H Hoekstra "

> > ><jhrnjhoekstra@h...> wrote:

> > > > ,

> > > >

> > > > Noticed you live here in Ontario too? Where are you located?

> > >I've had EN

> > > > for 8 months and I too live in Ontario. I'm not far from

> > >Cobourg....about 2

> > > > hours east of Toronto......I was just curious.

> > > >

> > > > Holly

> > > >

> > > > >From: " bmacgoo " <bmacgoo@y...>

> > > > >Reply-To: erythema_nodosum_Group

> > > > >To: erythema_nodosum_Group

> > > > >Subject: Thank You for Support Re:

>Pain

> > > > >Date: Sun, 06 Feb 2005 23:14:51 -0000

> > > > >

> > > > >Hello,

> > > > >

> > > > >It's Sunday night, 6pm... I slept for 4 hours while my

>husband and

> > > > >daughter enjoyed the snow!! I was able to get out with her

>for an

> > > > >hour. I feel like I'm cheating her and my self. Yes, woes me

>and

> > >I

> > > > >don't have a life threatening illness!!

> > > > >

> > > > >If someone would say in 2 weeks to 1 month you'll be ok...I

>could

> > > > >deal with that because I can see an end.

> > > > >

> > > > >, I have not found support hose named tuck in

>Ontario. I'm

> > > > >using Jobst, knee highs are $55.00 Tomorrow I'm going to

>purchase

> > > > >full ones.

> > > > >

> > > > >I was on 40mg of prednisone and have been weaned of it as of

>last

> > > > >Wed. I do not drink when I'm taking meds. And haven't been

>as of

> > > > >lately because my husband and I are wanting more children.

>Today

> > >I

> > > > >took asprin 2x 375mg morning and afternoon. No effect.

>After

> > > > >supper I took 1 Voltram that my Dr. rx when she first

>diagnoised

> > > > >that I had a foot infection!!! This med is for swelling and

>pain,

> > > > >I'll see if it works.

> > > > >

> > > > >I still have sever joint pain, tightness, like I cann't walk.

>I'll

> > > > >see how I am on Monday at work.

> > > > >

> > > > >This Friday I'm seeing a NaPro Technology Dr. that deals with

> > >womens

> > > > >health and I'm hoping she'll have some answers for me about

>EN.

> > >My

> > > > >appointment was initial sch. with her regarding my

>misscarriages.

> > >I

> > > > >have painful menstral cycle and bad PMS. But NaPro is for

>overall

> > > > >health and well being.

> > > > >

> > > > >I'll let everyone know if there is any light or suggest she

>may

> > >have

> > > > >regarding EN.

> > > > >

> > > > >Thank you everyone for listening, it truly is comforting.

> > > > >

> > > >

>_________________________________________________________________

> > > > Don't just Search. Find!

> > >http://search.sympatico.msn.ca/default.aspx The new

> > > > MSN Search! Check it out!

> > >

> >

> > _________________________________________________________________

> > Scan and help eliminate destructive viruses from your inbound and

>outbound

> > e-mail and attachments.

> > http://join.msn.com/?pgmarket=en-

>ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Ma

>rket_MSNIS_Taglines

> > Start enjoying all the benefits of MSN® Premium right now and

>get the

> > first two months FREE*.

>

_________________________________________________________________

Don't just Search. Find! http://search.sympatico.msn.ca/default.aspx The new

MSN Search! Check it out!

February 10, 2005

Ian,

I'd have to say, " yes " to the upset GI. It seems to come and go though.

The fatigue I feel is incrediable and seems to be constant.

Holly

>

>Reply-To: erythema_nodosum_Group

>To: erythema_nodosum_Group

>Subject: Re: Re: Hello

>Date: Thu, 10 Feb 2005 9:28:26 +1100

>

_________________________________________________________________

Take charge with a pop-up guard built on patented Microsoft® SmartScreen

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Start enjoying all the benefits of MSN® Premium right now and get the

first two months FREE*.

along with your fatigue do you have any other symptoms like upset GI

system??

----

Thank You for Support Re: Pain> >

> >Date: Sun, 06 Feb 2005 23:14:51 -0000> > >

>> > > >> > > >Hello,> > >

>> > > >It's Sunday night, 6pm... I slept for 4 hours

while my husband and> > > >daughter enjoyed the

snow!! I was able to get out with her for an> > >

>hour. I feel like I'm cheating her and my self. Yes, woes me

and> >I> > > >don't have a life threatening

illness!!> > > >> > > >If someone would say

in 2 weeks to 1 month you'll be ok....I could> > > >deal

with that because I can see an end.> > > >> > >

>, I have not found support hose named tuck in Ontario.

I'm> > > >using Jobst, knee highs are $55.00 Tomorrow

I'm going to purchase> > > >full ones.> > >

>> > > >I was on 40mg of prednisone and have been weaned

of it as of last> > > >Wed. I do not drink when

I'm taking meds. And haven't been as of> > >

>lately because my husband and I are wanting more children.

Today> >I> > > >took asprin 2x 375mg

morning and afternoon. No effect. After> > >

>supper I took 1 Voltram that my Dr. rx when she first

diagnoised> > > >that I had a foot infection!!!

This med is for swelling and pain,> > > >I'll see if it

works.> > > >> > > >I still have sever joint

pain, tightness, like I cann't walk. I'll> > > >see how

I am on Monday at work.> > > >> > > >This

Friday I'm seeing a NaPro Technology Dr. that deals with>

>womens> > > >health and I'm hoping she'll have some

answers for me about EN.> >My> > >

>appointment was initial sch. with her regarding my

misscarriages.> >I> > > >have painful menstral

cycle and bad PMS. But NaPro is for overall> > >

>health and well being.> > > >> > > >I'll

let everyone know if there is any light or suggest she may>

>have> > > >regarding EN.> > > >>

> > >Thank you everyone for listening, it truly is

comforting..> > > >> > > >>

> > >> > > >> > > >> >

>> > >

_________________________________________________________________>

> > Don't just Search. Find!> >http://search.sympatico.msn.ca/default.aspx

The new> > > MSN Search! Check it out!> >>

>> >> >

_________________________________________________________________>

Scan and help eliminate destructive viruses from your inbound and

outbound > e-mail and attachments. > http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Market_MSNIS_Taglines

> Start enjoying all the benefits of MSN® Premium right

now and get the > first two months

FREE*.

February 10, 2005

Have any doctors tested you for any kind of bugs. Have you had your

feaces tested. Just curious.Cheers Ian

---- Re:

Re: Hello>Date: Thu, 10 Feb 2005 9:28:26

+1100>_________________________________________________________________Take

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February 10, 2005

Ian,

No. To my knowledge, my doc's have never tested for any.

Holly

>

>Reply-To: erythema_nodosum_Group

>To: erythema_nodosum_Group

>Subject: Re: Re: Hello

>Date: Fri, 11 Feb 2005 9:58:18 +1100

>

_________________________________________________________________

Powerful Parental Controls Let your child discover the best the Internet has

to offer.

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first two months FREE*.

Have any doctors tested you for any kind of bugs. Have you had your

feaces tested. Just curious.Cheers Ian

---- Re:

Re: Hello>Date: Thu, 10 Feb 2005 9:28:26

+1100>_________________________________________________________________Take

charge with a pop-up guard built on patented Microsoft® SmartScreen

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February 10, 2005

I would suggest to you to ask him to, my Panniculitis started at the same

time at smear test was done and they found a stomach bug. Which at first

noone considered it may have had a correlation.

at had similar symptoms of bad malaise and no energy.

It can't hurt to see if this is true in your case.

Cheers Ian

________________________________________________

Message

sent using Dodo Internet Webmail Server

April 27, 2005

Good to hear from you Patti and to hear that things are 'steady'.

Your so courageous to write on this site, first hand information such as you can

give is invaluable. My sister is 54 so I am so sad that you are struck with

this disease so young, there's never a good age of course but 56 seems quite

cruel.

However you have courage and faith, and you have that most important of things -

a family to support you, encourage you, and keep you going. I'm sure anything

you can tell us first hand about the disease will be so important to others and

I hope for you it's useful to be able to come right out and talk and tell us how

it is.

Thinking about you often & sending hugs & good wishes to a very brave lady.

Kathleen - Scotland.

Hello

I thought I would drop in and say hello. I am about the same.

Ocassionally forget how to do something like unbuckle a buckle or

something, but that is not real frequent. Some days are better than

others. I get irritated really easy and it seems it is over little

things. Also I am getting more paranoid about things. It is a rare day

that I can write poetry. I just can't seem to get calm enough to do it.

For those of you that are new I have LBD. I will be 56 in May and I

have trouble accepting the diagnosis, but the indications are there. I

willl go back to my Neuro in May and hope to get the results of the

most recent MRI's. I have great admiration for those of you who have to

deal with a family member who has this horrid disease. It takes alot of

strength to deal with it and I have told my children this. I have

gotten most things squared away wiith them and they know what to expect

or I think they do. I don't think there is ever a way to be totally

prepared for this at least that was my experience with my mother.

God bless you all....Hugs...Patti

Welcome to LBDcaregivers.

------------------------------------------------------------------------------

April 27, 2005

Thank you Patti,

for keeping us updated. I've been thinking and worrying about you,

even though we've never met! I think you're very brave and kind to

allow us such a precious peek into the world where our loved ones

live. It helps me a lot, and hopefully may help me help my mother even

better too.

I hope the knowledge that you've touched hearts even as far away as

Norway will make your day a little brighter.

Nils

--

(My mother's story: 38024, 38098, 38143, to be cont.)

May 20, 2005

Dear ,

Thanks for sending in the detailed info. I added it to your " Case

History " in our Files section.

I do indeed feel that the accident is related to the EN.First of all

there was the stress of it, and we have many members who feel that

stress tends to bring out EN. Then the meds you were on might have

been triggers. Naproxen is on the list of triggers, as are many

antibiotics. The rod may have caused an allergic reaction too.

You are right in that we all are different. Some will have long

remissions, and others not. Some will have horrible joint pains,

others don't. I too get EN in only my left leg, and I think it looks

worse than it feels. I have quick remissions without having ever used

meds.

One cosmetic tip I can offer is to wear stockings if the discoloration

is your only concern about wearing skirts. I like to wear white

stockings which tends to hide the redish cast that my left leg has

even when lumps are not present. I use a TEDS anti-embolism stocking

on my left leg, and I even wear it with shorts. For some reason people

are even nicer to me when I wear that odd " fashion statement " . At this

point, fashion is a non issue and function is more important to me.

Honestly, I doubt anyone but you (and your son) is looking at your

legs. I'm sure you are beautiful in spite of a few leg bruises.

Love,

May 20, 2005