Re: another diagnosis/Cindy

[Guest guest]

Hi ,

I am sorry to hear of your husband's dementia at such

an early age.

We just read an article that was done on jobs that

contribute to early onset of dementia. One was

dentistry and clergy and one or two more. Does your

husband fit into this category? I will send you the

article at your personal e-mail address.

My husband also has LBD. One of the things with LBD is

that besides the dementia they have a Parkinsonism,

not a true Parkinsons, but mostly in their gait. Also,

different from AD is that although they have confusion

a lot, they are aware of almost everything surrounding

them. They have periods of lucidity and it can be

misleading to believe that they are ok, it is very

frustrating. Yahoo also has a caringspouses support

group. go to: http://www.lewybodydementia.org and in

the left margine click on groups and then you will

find the caringspouses group to join. I go between

both groups, but I have found that the caregivers

group is most comfortable for me.

You will find a lot of support and answers on both

support groups. I am glad that you found us.

Welcome!.................Jan Colello

--- wrote:

> Hi - I just joined this forum. I am here because my

> 59 year old

> husband's PET scan now indicates LBD and AD. I

> haven't had the

> official dx yet, but . . .

>

> Initially, Nov. 2004 he was diagnosed with

> behavioral dysexecutive

> syndrome, progressed to frontal lobe degeneration

> (FTD)May '05, and of

> course now, LBD and AD. I guess it really don't

> matter what they call

> it since it all ends up the same, it's just

> sprinkled with a few extra

> behaviors.

>

> The only thing new I am reading on this particular

> presentation, and

> my research is just starting so . . . is the problem

> with falling.

> That is a concern since he is on coumadin therapy,

> and his legs do drag.

>

> I just wanted to introduce myself and go through the

> archives, a lot

> of my questions will probably be answered there. I

> figure if I am

> going to read your archives I should at least let

> you know I am here. ;-)

>

>

>

>

>

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