Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Oh, dear! Here's a hug to let you know you're not alone -- the neuroleptic/antipsychotic meds do tend to mess with most LBD'rs. Not all, as I've seen here, but it's sure been the case with my dad. the Trazodone at 50 or 100 mg lets him sleep -- and may have some anti-depressant action too. I hope you're able to get some rest before you crash too. Maybe your dad will realize he needs to give you a break or you won't be able to keep going like this long term. I hope you have time to make a few friends there too, if you can't find a support group especially. and we're here for you --- gayle Granberg wrote: Well, night 1 on the Seroquel 1/2 tab was marvelous. Mom slept all night long and woke up happy and more herself. Today was pretty uneventful, which was good. This evening at bedtime she asked me to give her my mom's name and address so she could send her a note telling her what a wonderful daughter I am. Dad told her that was a very nice thing to say. She had her second dose of Seroquel at bedtime. She might have snoozed for the first hour, but she's on a roll now and won't stop talking. I went in a few minutes ago as I heard her beating on the bed over the monitor. I asked what she was doing and she was beating the cake batter. If God brings you to it, He will bring you through it. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Liz, I'm concerned about the sleep you're not getting. Please take care of yourself and don't be like me who drove herself into the ground. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Hi Courage, Thank you so much for your concern. I, too, am concerned and see myself trying to do more than I'm able. I had a long talk with my brother yesterday and he's promised to start calling me daily to give me somewhere to truly vent and feel like my family is supporting me. Also he's going to come out more often so we can go out for coffee and do some of that early grieving together. My dad doesn't do emotion, so whenever I get emotional he makes cracks about it and so I find myself hiding it from him taking on an old bad habit of stuffing. I know that's part of why I'm feeling the way I am right now. I turned off the baby monitor last night when I went to bed and slept. Ken (big bro) asked if I hear Mom without it and I said yes, so he said, then turn it off and let the sleep-talking pass and if it's a big emergency you'll hear it anyway. It took a while to get to sleep, but once I did I stayed asleep until 9:30 this morning and Mom woke up on her own at 9:50. Later this month I'm taking part in a statewide ritual competition for Eastern Star and will be going to Lemoore (near Fresno, CA), which is about 3 hours from home. My brother said I'm to plan to go for the whole weekend and just get away. It'll be my first overnight away since April when I flew back to see my grandkids in Kansas. It's amazing how I think I'm taking care of myself and yet it just creeps up on me and slams me up against the wall every now and then. Plus, it doesn't help being almost completely powerless in the care of my mom as far as having any authority to call doctors or specialists. Dad has complete control--no DPOA, no co-signatures on banks, no one else allowed " in. " He doesn't believe in specialists and trusts their doctor who knows nothing about LBD. It's incredibly frustrating, and I'm still trying to figure out my old 12-step powerlessness and adapt it to this situation. I'm getting a few YM id's so I can chat when I'm up late and appreciate everyone and all of the posts here. It's so very good to know I'm not alone when it feels so much like it sometimes. Hugs, Liz in Calif. > Liz, I'm concerned about the sleep you're not getting. Please take care > of yourself and don't be like me who drove herself into the ground. > Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 liz you MUST take care of yourself, i thought i was ok, taking care of my self and my own medical issues, but i wound up in the hospital for 5 weeks due to double kidney infection, and blocked intestine adn then a minor staff infection. so please take care of yourself, hugs, sharon m Date: 2005/09/12 Mon PM 11:36:35 EDT To: LBDcaregivers Subject: Re: late night crazies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 My brother told me last night I need to get to the doctor. Funny thing is I just went in for my annual PAP, mammo, physical, bloodwork about a month ago and everything came out okay except I'm mildly anemic--taking iron pills now. Then I found out that this marvelous insurance plan that I'm paying into has enough exclusions to know out nearly everything! It's close to a scam and really pissing me off right now. Apparently I have a " pre-existing condition " that doesn't allow them to pay for my annual check-up. Am I getting slammed for being a woman and needing to be checked out once a year?!? Geez... If it's not Mom, it's Dad and now it's the f*%@#ng insurance company! Sorry everyone, but it's all becoming too much at once. No wonder Mom's crazies are driving me crazy! My life is a circus with a twisted emcee!!! Hugs, Liz in Calif. > liz > you MUST take care of yourself, i thought i was ok, taking care of my self and my own medical issues, but i wound up in the hospital for 5 weeks due to double kidney infection, and blocked intestine adn then a minor staff infection. so please take care of yourself, hugs, sharon m > From: gaat <gaat@v...> > Date: 2005/09/12 Mon PM 11:36:35 EDT > To: LBDcaregivers > Subject: Re: late night crazies > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Granberg wrote: My life is a circus with a twisted emcee!!! And all three rings are going at the same time! Hang in there . Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 Liz, I don't have any words of advice and certainly not any solutions. Just wanted to let you know you are in my thoughts and prayers. I am up all hours of the night also. I hope to get YM set up and contact you. When I do, I'll let you know. Margee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 What is the pre-existing condition? Having a uterus????? Don't accept their denial too quickly. THat is probably what they are counting on. FIGHT! Blessings, Lori > > liz > > you MUST take care of yourself, i thought i was ok, taking care of > my self and my own medical issues, but i wound up in the hospital for > 5 weeks due to double kidney infection, and blocked intestine adn then > a minor staff infection. so please take care of yourself, hugs, sharon m > > From: gaat <gaat@v...> > > Date: 2005/09/12 Mon PM 11:36:35 EDT > > To: LBDcaregivers > > Subject: Re: late night crazies > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 liz you fight the insurance cmpany with everybit of strength you have, the more you fight the better chance on winning you have. sharon m Date: 2005/09/14 Wed AM 12:20:21 EDT To: LBDcaregivers Subject: Re: late night crazies a smile a day, keeps the meanies away!!!! Quote Link to comment Share on other sites More sharing options...
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