Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi, Sue, Just wanted to say a quick welcome to the group. As many of us will say, we are glad you found us, but sorry you need to be here. The hallucinations you speak of with your mom are usually one of the hallmarks of LBD. I find them to be one of the most frustrating things to deal with. I am the primary caregiver for my 75 year old dad who lives at home. He was diagnosed in 2000 and is fairly far along his LBD journey. Please let us know how things are going when you have time. and again, welcome. Big hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Gene and Sue wrote:Hi, I am the 52 y/o daughter of my Mom whom I believe has LBD. She is in a care home and is nearing end stage I think. I have read about LBD and I believe that she is a victim of this disease. What seems different from other dementia victims is her pervasive hallucinations. She had a strong exacerbation follwing AAA sugery over a year ago. She has not been formally diagnosed even though she was seen by a neurologist following surgery. I am interested in reading about the particualr issues facing LBD caregivers as opposed to caring for any other dementia sufferer. I will check in here and there to see what issues are being discussed. Thanks, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Sue, Welcome to the group. You won't find a better bunch of people anywhere else in the world! Courage Join >Hi, > I am the 52 y/o daughter of my Mom whom I believe has LBD. She is in a care home and is nearing end stage I think. I have read about LBD and I believe that she is a victim of this disease. What seems different from other dementia victims is her pervasive hallucinations. She had a strong exacerbation follwing AAA sugery over a year ago. She has not been formally diagnosed even though she was seen by a neurologist following surgery. I am interested in reading about the particualr issues facing LBD caregivers as opposed to caring for any other dementia sufferer. I will check in here and there to see what issues are being discussed. >Thanks, Sue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Hi Sue, It is my understanding that LBD is not diagnosed because many doctors are not aware of how it differs from Alzheimers. My mother use to have hallucinations but she was never frightened of them. They were just part of her life. M > >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Join >Date: Wed, 2 Jun 2004 11:26:10 -0700 (PDT) >MIME-Version: 1.0 >X-Sender: sqftfarm@... >Received: from n29.grp.scd.yahoo.com ([66.218.66.85]) by >mc9-f14.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Wed, 2 Jun 2004 >12:17:40 -0700 >Received: from [66.218.66.29] by n29.grp.scd.yahoo.com with NNFMP; 02 Jun >2004 18:26:13 -0000 >Received: (qmail 65206 invoked from network); 2 Jun 2004 18:26:12 -0000 >Received: from unknown (66.218.66.218) by m23.grp.scd.yahoo.com with QMQP; >2 Jun 2004 18:26:12 -0000 >Received: from unknown (HELO web81106.mail.yahoo.com) (206.190.37.165) by >mta3.grp.scd.yahoo.com with SMTP; 2 Jun 2004 18:26:12 -0000 >Received: from [67.127.191.190] by web81106.mail.yahoo.com via HTTP; Wed, >02 Jun 2004 11:26:10 PDT >X-Message-Info: JGTYoYF78jGntY9rDJJcWhO48E2Rr6ho >X-eGroups-Return: >sentto-2141318-30410-1086200772-cat86443=hotmail.com@... >X-Apparently-To: LBDcaregiversegroups >Message-ID: >X-eGroups-Remote-IP: 206.190.37.165 >X-Yahoo-Profile: sqftfarm >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-30410-1086200772-cat86443=hotmail.com@... >X-OriginalArrivalTime: 02 Jun 2004 19:17:41.0004 (UTC) >FILETIME=[4621D4C0:01C448D6] > >Hi, > I am the 52 y/o daughter of my Mom whom I believe has LBD. She is in a >care home and is nearing end stage I think. I have read about LBD and I >believe that she is a victim of this disease. What seems different from >other dementia victims is her pervasive hallucinations. She had a strong >exacerbation follwing AAA sugery over a year ago. She has not been >formally diagnosed even though she was seen by a neurologist following >surgery. I am interested in reading about the particualr issues facing LBD >caregivers as opposed to caring for any other dementia sufferer. I will >check in here and there to see what issues are being discussed. >Thanks, Sue > > > > Quote Link to comment Share on other sites More sharing options...
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