Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Mark, Words cannot describe the ineptitude I feel each time one of our friends here tells about the death of their loved one to LBD. Please know that we are with you in prayer, send you strength, and offer you a safe haven for your grief. With loving care, > Group: > > My Dad died just before midnight, Thursday the 17th. He had lost > his ability to swallow; every breath was a struggle; death comes as > a relief -- especially for my mother who had visited the nursing > home EVERY day for four hours over the past 38 months. > > I want to thank the group for being a great support since whenever I > discovered you. I shudder at those who go through especially the > early fluctuations depending only on what most > neurologists/GPs/nursing staff know about LBD. > > I'll check in after the funeral arrangements are over; right now we > are focusing on what my Dad accomplished before 1998.... > > Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Mark, Condolence to your family and you. Now comes even more grieving. It took me a while to land on my feet after my Mom died. Hugs to you and yours. Donna R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dear Mark So very, very sorry to read about your dad's passing. Please accept my heartfelt condolences. Yes, it is a huge relief to know our beloved ones are free of the suffering - but it still hurts real bad to say goodbye. You'll be in my thoughts Sally x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dear Mark I am sorry to hear about the passing of your father. Although his pain is now over, yours will continue for awhile. My father passed away suddenly in 1987 and although it gets easier, I still miss him and wish I could talk to him about my troubles with mom and the LBD. He would understand and advise me like no other. I try to hear him sometimes but still I know that his message is to " do my best " as it always was from him. I think you did your " best " and you should be proud. I am sure your dad is. Kath My Dad's death > Group: > > My Dad died just before midnight, Thursday the 17th. He had lost > his ability to swallow; every breath was a struggle; death comes as > a relief -- especially for my mother who had visited the nursing > home EVERY day for four hours over the past 38 months. > > I want to thank the group for being a great support since whenever I > discovered you. I shudder at those who go through especially the > early fluctuations depending only on what most > neurologists/GPs/nursing staff know about LBD. > > I'll check in after the funeral arrangements are over; right now we > are focusing on what my Dad accomplished before 1998.... > > Mark > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dear Mark, I'm very sorry to hear of your loss. Someone will be here for you if you need us. Sincere condolences, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Mark, I am so sorry for your loss and am sending you and your family strength. Courage My Dad's death >Group: > >My Dad died just before midnight, Thursday the 17th. He had lost >his ability to swallow; every breath was a struggle; death comes as >a relief -- especially for my mother who had visited the nursing >home EVERY day for four hours over the past 38 months. > >I want to thank the group for being a great support since whenever I >discovered you. I shudder at those who go through especially the >early fluctuations depending only on what most >neurologists/GPs/nursing staff know about LBD. > >I'll check in after the funeral arrangements are over; right now we >are focusing on what my Dad accomplished before 1998.... > >Mark > > > > >Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 My heart goes out to you and your family ! I just lost my Dad in April - after a hospital/rehab stay that started in January . My mom and I also went there two and three times a day! (sometimes draggng my 3 and 5yo with us). Its a horrible course to follow... and the end is worse. We are torn between thinking my Dad is in a better place and wondering if we could have done something different to prevent the outcome. (Dad was given Haldol which sent him over the edge and the rehab center neglected his bed sore and PICT line both of which got infected and lead to sepsis!). Hopefully MD/Neuros and nurses will learn more about this disease and the bad effects certain meds have so in the future those won't suffer like our Dad's did. I too try to remember the things my Dad like to build and makeetc, He was always supposed to make my son a tree house ... who will teach my son about tools ? sigh... Anyway - HUGS to you and your family - we will keep you in prayer. Donna > > Group: > > My Dad died just before midnight, Thursday the 17th. He had lost > his ability to swallow; every breath was a struggle; death comes as > a relief -- especially for my mother who had visited the nursing > home EVERY day for four hours over the past 38 months. > > I want to thank the group for being a great support since whenever I > discovered you. I shudder at those who go through especially the > early fluctuations depending only on what most > neurologists/GPs/nursing staff know about LBD. > > I'll check in after the funeral arrangements are over; right now we > are focusing on what my Dad accomplished before 1998.... > > Mark > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Mark, You and your family are in my thoughts at this most difficult time. I am so sorry for your dad's stuggles. I know he is at peace now. Sending you strength and much love, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Donna, When you are able, I hope you will report your fathers treatment to the correct authorities. I'm sure you are still feeling the loss of your father deeply and I'm sending you strength. As a single mother for nineteen years I can tell you that you can teach your son about tools - I did with my son and my daughter. My son also learned about power tools in shop class...why am I going on about this. You are making a connection to what your son has lost in losing his grandfather and I hear you - sorry for rambling once again. Courage Re: My Dad's death > > > My heart goes out to you and your family ! > > I just lost my Dad in April - after a hospital/rehab stay that started > in January . My mom and I also went there two and three times a day! > (sometimes draggng my 3 and 5yo with us). > > Its a horrible course to follow... and the end is worse. We are torn > between thinking my Dad is in a better place and wondering if we could > have done something different to prevent the outcome. (Dad was given > Haldol which sent him over the edge and the rehab center neglected > his bed sore and PICT line both of which got infected and lead to sepsis!). > > Hopefully MD/Neuros and nurses will learn more about this disease and > the bad effects certain meds have so in the future those won't suffer > like our Dad's did. > > I too try to remember the things my Dad like to build and makeetc, > He was always supposed to make my son a tree house ... who will teach my > son about tools ? sigh... > > Anyway - HUGS to you and your family - we will keep you in prayer. > > Donna > > > >> >> Group: >> >> My Dad died just before midnight, Thursday the 17th. He had lost >> his ability to swallow; every breath was a struggle; death comes as >> a relief -- especially for my mother who had visited the nursing >> home EVERY day for four hours over the past 38 months. >> >> I want to thank the group for being a great support since whenever I >> discovered you. I shudder at those who go through especially the >> early fluctuations depending only on what most >> neurologists/GPs/nursing staff know about LBD. >> >> I'll check in after the funeral arrangements are over; right now we >> are focusing on what my Dad accomplished before 1998.... >> >> Mark >> >> >> >> >> Welcome to LBDcaregivers. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I am sending strength and prayers to you, Mark. I know we are all heading towards this and I cannot imagine what my reaction will be. I know it will be relief that there is no more LBD but they are still our parents, and there will still be grief over your loss. As many others have said, try to concentrate on the good things he brought to your life and let all else be forgotten. Bless you, M Quote Link to comment Share on other sites More sharing options...
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