Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Coyote: Thanks for dropping in and giving your update. You asked about 'cold hands'. My dad's hands were cold a lot, more times than not. His nail beds would turn bluish often as well. I do know that dad, my brother, and myself have poor circulation in our hands - it is nothing to have my nail beds turn blue, but it doesn't happen all the time. Dad's were discolored more times than not. I remember those silent visits as well. My dad did get to the point where he cried during most of my visits. I could get him to laugh at times, yet mostly he cried. The silence and the crying were such tough visits. Often I didn't really want to go see my dad, but still did, then didn't want to leave him when I was there. It is a terribly confusing and horrible disease. I did, however, get to spend some quality time with my dad, probably more time with him had he remained healthy. I am grateful for that. Post again, soon, as time permits- Hugs- Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Coyote: Gosh it's good to see your name back on here. I know Courage was wondering about you too. She'll be happy to see you found your way back to us. I suppose it's good that your dad hasn't declined any further but I know how you struggled with putting him in the nh in the first place. I know just what you mean about word retrieval - I noticed that in my dad a lot pre-surgery but he appears to be better now. Is your dad still getting around OK? I thought I inferred from your post that he was. My own father's physical symptoms have taken a nose dive but cognitively he's pretty stable. He's most confused at night but pretty astute during the day. Every so often, he's so astute I think to myself that maybe, just maybe, he doesn't have LBD but then, low and behold, WHAM!, his LBDness hits us square in the chops. I've missed you and am so glad you're back. I'm finishing up my semester at school so I'm not on here as much but I do delight in meeting up with old friends (and my news ones too) when I do come here. Good to have you back, Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Coyote, so glad to see your post. I haven't been on for a bit myself but I've been wondering about you and your dad. If your worried about the rashes your dad has you should feel free to check him all over his body. Maybe even ask how often your dad gets bathed. Maybe the laundry soap is causing it? Just thinking out loud. Courage Touching Base... >Just wanted to touch base with you all and let you know things are >still going ok, or as OK as they can be with LBD in the picture. My >Dad has now been in the NH for 3 months and I really havent noticed >a lot of decline. He is still mobile. He looks dazed (like asleep >with eyes open) all the time, and says really strange things that >make no sense: " I think they are all gonna kill themselves! " " who's >gonna kill themselves? " " I dunno. Me, I guess. " He can still try to >talk to us, but his language skills (word retrieval)are going >rapidly--like yesterday " do i have stubble on my orange? " (face) >and " are you still driving your japan? " (Toyota?LOL!). He doesnt >know who I am to him, or my name, but he knows that he knows me and >his face lights up when he sees me. Visits are very hard. Many LONG >silences...and when there isnt silence what he says totally confuses >me. I have noticed that his hands feel very cold all the time now. >Has anyone else noticed that? And he constantly scratches. I noticed >some big sores on his forearms but they seem to have healed up, but >I still wonder if he has anything in places I CANT SEE. I hear so >many horror stories about skin sores/infections....I just worry. >Well, I just wanted to quickly post to let you all know I'm still >around. My computer has been in the shop for a while after a major >crash cleared EVERYTHING from my hard drive. Took me awhile to >figure out how to find my way back here.... >Hope everyone is well. >Hugs, Coyote > > > > >Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Coyote, You are intitled to see your Dad's records that they make all day at the NH. You may need to flll out some paper work. But you can know everything the aides and or nurses find on your Dad's skin. You do not have to wonder. Check out the Patient Bill of rights you should have been given. Everything they are aware of, they are to write down. And because he needs someone to talk for him, you are entitled to see his daily records. Donna R Quote Link to comment Share on other sites More sharing options...
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