new member

[Guest guest]

Wow. I never hear any mention Moline, Ilinois. Are you from that area?

Sara

Re: new member

Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often? I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work. It has been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall. Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut.

Sucker-punch spam with award-winning protection.Try the free Yahoo! Mail Beta.

[Guest guest]

The time is not the issue of going to bed. It is the fact that he is screaming his head off and we live in an apt. He usually is up at 7. We have techs at night but the issue remains that when everyone else is gone, he starts yelling and screaming, will not listen, etc. Letting off a little steam is fine but last night he was up all night being loud and screaming constantly.

Do not have the money for ABA. I think he did better on Risperidol and I am hoping to get him into the hospital tonight because he is definitely out of control.

Lana

Re: new member

Isn't 10:00 a pretty normal time for a teenager to go to sleep? What time does he wake up in the morning? Karac was on Zyprexia for a while, but he gained 30 lbs in a matter of weeks and seemed to have lost all of his personality. I do think it stopped all aggression, and as I recall, your son is very slender. Do you have any help with your sons? Have you done ABA? I think you said your son is good everywhere but home. Well, we all need to be able to let off steam somewhere. Maybe home is the only safe place to do that. Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

The fish are biting.

Get more visitors on your site using Yahoo! Search Marketing.

[Guest guest]

Wow, Lana, that's rough; we had about a week of that when Karac was about nine, and we put him in the hospital for about a week or so. He was put on Resperidol at the hospital. It calmed him down, but he put on so much weight that he was taken off and put on Geodon, over my protest. The Geodon was too high a dosage and he developed Tardis dyskenia. That was a year of withdrawal hell. Both of my arms are so scarred that I have to wear long sleaves. When he was 12 he was put on .1 Clonidine and .25 Zanax at night to sleep. That worked great for about a year, but it caused Karac problems with constipation and difficulty urinating; so he began to spit it out and refused to take any meds. That was about a year ago and he has been off of all meds since and is doing great. No screaming, no pinching, no biting, and he sleeps like a baby. I tell you all this just to let you know there is light at the end of the tunnel. Hang in there.

Yesterday I was so proud of Karac; he won the gold medal for parallel bars at gymnastic special olympics, and about five other medals for second and third place. The thing that thrilled me the most was that he was so pleased every time they called his name and he walked to the steps and took his place without any assistance. It was a four hour ordeal and Karac was able to tolerate all the waiting time between events without a meltdown. It made me cry. Pat K ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

What have you tried aside from medication? The IJBCT has a good

article:

Behavioral Approaches to the Treatment of Sleep Problems in Children

with Developmental Disorders: What is the State of the Art

(I believe it starts on page 9 of the Pdf file)

http://www.behavior-analyst-today.com/IJBCT-VOL-1/IJBCT-1-3.pdf

~Conny

>

> The time is not the issue of going to bed. It is the fact that he

is screaming his head off and we live in an apt. He usually is up at

7. We have techs at night but the issue remains that when everyone

else is gone, he starts yelling and screaming, will not listen, etc.

Letting off a little steam is fine but last night he was up all

night being loud and screaming constantly.

>

> Do not have the money for ABA. I think he did better on Risperidol

and I am hoping to get him into the hospital tonight because he is

definitely out of control.

>

> Lana

>

>

> Re: new member

>

> Isn't 10:00 a pretty normal time for a teenager to go to sleep?

What time does he wake up in the morning? Karac was on Zyprexia for

a while, but he gained 30 lbs in a matter of weeks and seemed to

have lost all of his personality. I do think it stopped all

aggression, and as I recall, your son is very slender.

>

> Do you have any help with your sons? Have you done ABA? I think

you said your son is good everywhere but home. Well, we all need to

be able to let off steam somewhere. Maybe home is the only safe

place to do that. Pat K

>

>

> ************ ********* ********* ********

> AOL now offers free email to everyone. Find out more about what's

free from AOL at http://www.aol. com.

>

>

>

>

>

_____________________________________________________________________

_______________

> No need to miss a message. Get email on-the-go

> with Yahoo! Mail for Mobile. Get started.

> http://mobile.yahoo.com/mail

>

[Guest guest]

Lana,

If you don't mind me asking what state do you live in? BC here in AR there is a free ABA program called Cir/Cuit that does ABA therapy. Have you tried HIPPO therapy (horseback riding therapy)? Many insurances including medicaid pays for it you just have to ask. I think we forget that medicaid can do a lot we just have to push them too! I'm sorry that you are having so many problems. My son will be 4 in may so I don't know you're pain and hopefully won't. I do know that he's up all night and again the risperdal combined with the melatonin has worked wonders. Also, tenex is another good medicine that's been around for decades.

alena Re: new member> > Isn't 10:00 a pretty normal time for a teenager to go to sleep? > What time does he wake up in the morning? Karac was on Zyprexia > for a while, but he gained 30 lbs in a matter of weeks and > seemed to have lost all of his personality. I do think it > stopped all aggression, and as I recall, your son is very > slender. > > Do you have any help with your sons? Have you done ABA? I > think you said your son is good everywhere but home. Well, we > all need to be able to let off steam somewhere. Maybe home is > the only safe place to do that. Pat K> > > ************ ********* ********* ********> AOL now offers free email to everyone. Find out more about > what's free from AOL at http://www.aol. com. > > > > > ____________________________________________________________________________________> No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started.> http://mobile.yahoo.com/mail

[Guest guest]

No, I live in a suburb of Chicago but I drove the 2 1/2 hours west. It was totally worth it! Kirby was there, Cave MD and Neubrander, MD, etc. sara wrote: Wow. I never hear any mention Moline, Ilinois. Are you from that area? Sara -----

Original Message ----- From: Marie Ventura To: AutismBehaviorProblems Sent: Sunday, March 11, 2007 3:34 PM Subject: Re: new member Have you looked into digestive enzymes at all? I just returned from a Biomed conference in the Quad Cities (Moline, IL) and heard a talk by DeFelice who has written two books on Autism & Enzymes and has two children on the spectrum. Pretty soon with all the eliminations our kids can be on a 'food free' diet but she felt with the enzymes that children are able to

tolerate much more food and it actually 'heals' the gut rather than just avoiding the triggering of the autoimmune response with the gluten, casein, etc. MarieLana Waalkes <tunick42004> wrote: My 14 year old is definitely verbal. He screams a lot at night and destroys stuff. He slammed the bathroom door on my husband's foot and the door broke. Luckily, my husband fixed it. He is on a special diet, can only drink soy milk and water and cannot have any products with lactose and fructose. I think part of this is adolescence but it is all so very difficult. My other autistic son who is nonverbal is a pleasure most of

the time. Thank you all for all your support. Lana Re: new member Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior

problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often? I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work. It has

been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall. Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com. Don't get

soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut. Sucker-punch spam with award-winning protection.Try the free Yahoo! Mail Beta.

Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends.

[Guest guest]

Thank you for your input. I live in MD and I am not sure if he can get ABA if he is 14 years old. I should try the Melatonin if I get a chance to go out and get it. Thanks to everyone.

Re: new member> > Isn't 10:00 a pretty normal time for a teenager to go to sleep? > What time does he wake up in the morning? Karac was on Zyprexia > for a while, but he gained 30 lbs in a matter of weeks and > seemed to have lost all of his personality. I do think it > stopped all aggression, and as I recall, your son is very > slender. > > Do you have any help with your sons? Have you done ABA? I > think you said your son is good everywhere but home. Well, we > all need to be able to let off steam somewhere. Maybe home is > the only safe place to do that. Pat K> > > ************ ********* ********* ********> AOL now offers free email to everyone. Find out more about > what's free from AOL at http://www.aol. com. > > > > >

____________ _________ _________ _________ _________ _________ _________ _________ _________> No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started.> http://mobile. yahoo.com/ mail

8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut.

[Guest guest]

Not much since all his bad behavior is at home. I think we have tried putting him in time out and taking away things he does not like. He is now 14, 135 pounds, much taller and heavier than myself.

Lana

Re: new member> > Isn't 10:00 a pretty normal time for a teenager to go to sleep? What time does he wake up in the morning? Karac was on Zyprexia for a while, but he gained 30 lbs in a matter of weeks and seemed to have lost all of his personality. I do think it stopped all aggression, and as I recall, your son is very slender.

> > Do you have any help with your sons? Have you done ABA? I think you said your son is good everywhere but home. Well, we all need to be able to let off steam somewhere. Maybe home is the only safe place to do that. Pat K> > > ************ ********* ********* ********> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com. > > > > > ____________ _________ _________ _________ _________ _________ _____________ ___> No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started.> http://mobile. yahoo.com/ mail>

Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users.

[Guest guest]

Here in AR they are eligible until age of 24 years old and sometimes after that if you can get a lawyer so it's at least somethign worth looking into. I know we all have so much on our plates I just wish you the best of luck. The melatonin is at the pharmacy aisle at wal-mart just go to the herbal sections while you get groceries. alena Re: new member> > > > Isn't 10:00 a pretty normal time for a teenager to go to > sleep? > > What time does he wake up in the morning? Karac was on > Zyprexia > > for a while, but he gained 30 lbs in a matter of weeks and > > seemed to have lost all of his personality. I do think it > > stopped all aggression, and as I recall, your son is very > > slender. > > > > Do you have any help with your sons? Have you done ABA? I > > think you said your son is good everywhere but home. Well, we > > all need to be able to let off steam somewhere. Maybe home is > > the only safe place to do that. Pat K> > > > > > ************ ********* ********* ********> > AOL now offers free email to everyone. Find out more about > > what's free from AOL at http://www.aol. com. > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > No need to miss a message. Get email on-the-go > > with Yahoo! Mail for Mobile. Get started.> > http://mobile. yahoo.com/ mail > > > > > ____________________________________________________________________________________> Don't pick lemons.> See all the new 2007 cars at Yahoo! Autos.> http://autos.yahoo.com/new_cars.html

[Guest guest]

My son takes the digestive enzymes and the methylcobalamine shots the Neubrander helped develop with Dr. Jill . However, we did the digestive enzymes before the autism diagnosis bc my husband is a pro-body builder with the NPC so we both use them to increase our dietary intake and tolerance of food most people hate! I haven't had pizza in 3 years now!

alena Re: new member> > Welcome, Lana, is your 14 year old verbal or nonverbal? > What kind of behavior problem has he been having? When did it > start? Is he on any meds? What have you tried that hasn't > helped? Where is the behavior happening and how often? > > I have taken care of my 14 year old autistic grandson for 12 > years, and he has had bouts of behavior problems--pulling hair, > pinching, biting etc. Many times it was because he was hurting; > sometimes it was a means of comunicating that he had sensory > overload or he didn't want to do something. You have probably > been through all of this. The things that worked for me were a > blanket, music, water, or a comfort food. I kept these things > in my car, and I always kept Starburst in my pocket. I kept his > CD player in my purse to pull out when needed. I also kept a > half of Clonidine crushed in my purse to put in his water at a > moments notice. I found that the crushed Clonidine would calm > him within 20 minutes when the other things didn't work. > > It has been almost a year since his last meltdown, and I'm not > sure why. One reason may be that he feels better since he > stopped all meds. Another thing may be that he is happier. I > have been taking him to gymnastics twice a week, to the rec > twice a week, and equest twice a week. I also hired a 22 year > old recent college grad to come on the weekend and be a > companion. They ride bikes, shoot baskets, play pin ball etc. > go out to eat or to the mall. > > Sorry this is so long, and it probably doesn't apply to your > situation at all because all of these kids are so different, but > I'm sure you will find what works for you. blessings, Pat K> > > ************ ********* ********* ********> AOL now offers free email to everyone. Find out more about > what's free from AOL at http://www.aol. com. > > > > > > > > ---------------------------------> Don't get soaked. Take a quick peek at the forecast > with theYahoo! Search weather shortcut. > > > > > ---------------------------------> Sucker-punch spam with award-winning protection.> Try the free Yahoo! Mail Beta. > > > > > > > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.

[Guest guest]

Yes it is and here it is my birthday and he is screaming his head off and just being awful wiht my other son. I take Xanax 0.5 myself. I should try him on 0.25, right? I wish Robbie would be ok off meds but he is not doing great now. Thanks for your input. Cannot see the light but hope to eventually!!!

Lana

Re: new member

Wow, Lana, that's rough; we had about a week of that when Karac was about nine, and we put him in the hospital for about a week or so. He was put on Resperidol at the hospital. It calmed him down, but he put on so much weight that he was taken off and put on Geodon, over my protest. The Geodon was too high a dosage and he developed Tardis dyskenia. That was a year of withdrawal hell. Both of my arms are so scarred that I have to wear long sleaves. When he was 12 he was put on .1 Clonidine and .25 Zanax at night to sleep. That worked great for about a year, but it caused Karac problems with constipation and difficulty urinating; so he began to spit it out and refused to take any meds. That was about a year ago and he has been off of all meds since and is doing great. No screaming, no pinching, no biting, and he sleeps like a baby. I tell you all this

just to let you know there is light at the end of the tunnel. Hang in there. Yesterday I was so proud of Karac; he won the gold medal for parallel bars at gymnastic special olympics, and about five other medals for second and third place. The thing that thrilled me the most was that he was so pleased every time they called his name and he walked to the steps and took his place without any assistance. It was a four hour ordeal and Karac was able to tolerate all the waiting time between events without a meltdown. It made me cry. Pat K ************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Get your own web address. Have a HUGE year through Yahoo! Small Business.

[Guest guest]

This is something I need to look into, Marie. That is great

that your insurance covers the therapy!

~*~Billie~*~

On Sun Mar 11 12:26 , Marie Ventura sent:

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> What really helped our 9yo Asperger/ADHD/SID son was LISTENING

THERAPY! Unbelievable

to see the improvement with the sound sensitivity. We did it privately through

an outside OT,

although if our insurance didn't cover it we would have tried to get the school

to fund it,

because it directly impacts him educationally. We bought special headphones and

would rent the

CD's through the OT, and he would listen to them 2x/day for about 20 min each.

  He went through

the 12 week program and improved so much that he wasn't wearing headphones at

school anymore, was

staying in the gym in PE and the lunchroom more - but when he ended it, the

school started

noticing a regression so we will need to get him on it again.   HTH. Marie

>

>Billie wrote: Hi Lana,

>Ny name is Billie and I live in Kansas with

>my husband and 4 boys. My youngest is 7 and has

>Sensory Integration Dysfunction. He, too, was

>having problems with his behaviour....mostly in

>school. After researching SID, I came to

>the realization that his angry outbursts were

>do to his Sensory problems. He would throw his

>lunch across the cafeteria because the noise of

>all the children talking at the same time upset

>him. Same reason he threw fits in PE and Music.

>Too much noise input. Another thing he would

>have meltdowns over was when he couldn't

>understand how to do certain school work. If he

>thought he was

> going to do it wrong, he would

>get frustrated before he even began.

>He is now taking Adderal and Zoloft and his

>resource teacher has changed his plan at

>school to make sure he gets more understanding

>of his sensory problems. If he starts to have

>a meltdown in class, they ask him if he would

>like to leave the room and go for a walk or

>go to a quite room and do another activity. He is

>to have only positive reinforcement......anything

>negative will send him into a tailspin. So they

>have to be creative when telling him that what

>he is doing is somthing he cannot be doing. Words

>like NO and DON'T make him angry.

>You didn't mention what your son's out of control

>behaviours were, but what I did was get on the

>internet and typed in key words in Google and

>came up with lots of books on the subject.

>The one I am currently reading is The Sensory

>Sensitive Child. Practical Solutions for Out-

>of-Bounds

> Behavior.

>Members of this group are also great about giving

>advice and referring you to books they have

>read.

>

>~*~Billie~*~

>

>On Fri Mar 9 19:56 , 'tunick42004' sent:

>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> I just began in your group and wanted to introduce myself. My name is

>>

>>Lana. I live with my husband, two children (autistic, one verbal and

>>

>>one nonverbal), and 4 cats.

>>

>>

>>

>>Am having a great deal of difficulty with my verbal 14 year old. He is

>>

>>having out of control behaviors and am trying very hard to manage him.

>>

>>

>>

>>Lana

>>

>>

>>

>>

>>

>>

>>

>>

>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>

>

>

>

>Expecting? Get great news right away with email Auto-Check.

>Try the Yahoo! Mail Beta.

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Lana, honey, I understand why you take Zanax; bless your heart. My heart goes out to you and your son. Surely the hospital will help. Let me know how things go. I'll have you and yours on my heart.

I live in Dallas, Texas. Doen't my Texas twang come through? smile. Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

After 12 long hours in the ER, he is in the hospital and has slept all night. Thank goodness. He had not slept in days. I just want him better and stabilized on his medications.

What is it like in Dallas?

Lana

Re: new member

Lana, honey, I understand why you take Zanax; bless your heart. My heart goes out to you and your son. Surely the hospital will help. Let me know how things go. I'll have you and yours on my heart. I live in Dallas, Texas. Doen't my Texas twang come through? smile. Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Get your own web address. Have a HUGE year through Yahoo! Small Business.

[Guest guest]

Lana, I know you are relieved and I am relieved for both of you. How did they get him to sleep?

It is like Spring in Dallas; the weather today was 79. The Ornamental Pear trees are in full bloom every where; they are so beutiful. Karac and I spent most of the day riding our bikes and going to the park. Where do you live and what is it like there? Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

How long will he be in the hospital? What kind of sleeping medicine are they giving him? Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

I was the most proud Grandmother there. I'm sure I was obnoxious, but I wanted him to know how proud of him I was and so was his Aunt Kim.

I have been taking Karac to gymnastics for several years. When I first took him he was uncontrolable and the manager of the gym wasn't sure that he would allow him to have lessons there, but I hired an LPT young woman to work with him who was excellent and liked the challenge. Recently the manager wrote a paper for a psy. class about Karac and the benefit of gymnastics for autism. Today Karac loves gymnastics; he is totally compliant, and has gotten really good at observational learning.

Thanks for asking; it makes me feel good to brag on Karac. Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

I am not sure how they got him to sleep but he did not sleep until 11:30 last night even in the hospital and that is not good. He was up probably at 7. That sounds like good sleep but after sleeping nothing for a few days, it is not. He does get medicine at night but it does not put him to sleep much anymore.

Spring, wow!! It is raining hard here. It has been pretty mild but you never know about March. It can go out like a lion as they say!!!

Lana

Re: new member

Lana, I know you are relieved and I am relieved for both of you. How did they get him to sleep? It is like Spring in Dallas; the weather today was 79. The Ornamental Pear trees are in full bloom every where; they are so beutiful. Karac and I spent most of the day riding our bikes and going to the park. Where do you live and what is it like there? Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

Congratulations to Karac, Pat! I bet you were the most proud grandmother there How long has Karac been doing gymnastics? Aprilpkuenstler@... wrote: Wow, Lana, that's rough; we had about a week of that when Karac was about nine, and we put him in the hospital for about a week or so. He was put on Resperidol at the hospital. It calmed him down, but he put on so much

weight that he was taken off and put on Geodon, over my protest. The Geodon was too high a dosage and he developed Tardis dyskenia. That was a year of withdrawal hell. Both of my arms are so scarred that I have to wear long sleaves. When he was 12 he was put on .1 Clonidine and .25 Zanax at night to sleep. That worked great for about a year, but it caused Karac problems with constipation and difficulty urinating; so he began to spit it out and refused to take any meds. That was about a year ago and he has been off of all meds since and is doing great. No screaming, no pinching, no biting, and he sleeps like a baby. I tell you all this just to let you know there is light at the end of the tunnel. Hang in there. Yesterday I was so proud of Karac; he won the gold medal for parallel bars at gymnastic special olympics, and about five other medals for second and third place. The thing that thrilled me the most was that he

was so pleased every time they called his name and he walked to the steps and took his place without any assistance. It was a four hour ordeal and Karac was able to tolerate all the waiting time between events without a meltdown. It made me cry. Pat K **************************************AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Happy Belated Birthday Lana!!

~*~Billie~*~

On Tue Mar 13 14:06 , Lana Waalkes sent:

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Yes it is and here it is my birthday and he is screaming his head

off and just being

awful wiht my other son. I take Xanax 0.5 myself. I should try him on 0.25,

right? I wish Robbie

would be ok off meds but he is not doing great now. Thanks for your input.

Cannot see the light

but hope to eventually!!!

> 

>Lana

>

>

> Re: new member

>

>

>

>Wow, Lana, that's rough; we had about a week of that when Karac was about nine,

and we put him in

the hospital for about a week or so.  He was put on Resperidol at the hospital.

 It calmed him

down, but he put on so much weight that he was taken off and put on Geodon, over

my protest.  The

Geodon was too high a dosage and he developed Tardis dyskenia. That was a year

of withdrawal

hell.  Both of my arms are so scarred that I have to wear long sleaves. When he

was 12 he was put

on .1 Clonidine and .25 Zanax at night to sleep.  That worked great for about a

year, but it

caused Karac problems with constipation and difficulty urinating; so he began to

spit it out and

refused to take any meds.  That was about a year ago and he has been off of all

meds since and is

doing great.  No screaming, no pinching, no biting, and he sleeps like a baby.

 I tell you all thi

> s

> just to let you know there is light at the end of the tunnel.  Hang in there.

>

>Yesterday I was so proud of Karac; he won the gold medal for parallel bars at

gymnastic special

olympics, and about five other medals for second and third place.  The thing

that thrilled me the

most was that he was so pleased every time they called his name and he walked to

the steps and

took his place without any assistance. It was a four hour ordeal and Karac was

able to tolerate

all the waiting time between events without a meltdown.  It made me cry. Pat K

 

>

>

>************ ********* ********* ********

>AOL now offers free email to everyone. Find out more about what's free from AOL

at

http://www.aol. com.

>

>

>

>

>

> Get your own web address.

> Have a HUGE year through Yahoo! Small Business.

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Started him on Clonidine and now the insurance will not pay past today. I have to bring him home today and he is not even stable.

Re: new member

How long will he be in the hospital? What kind of sleeping medicine are they giving him? Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

[Guest guest]

Thank you so much.

Re: new member>>>>Wow, Lana, that's rough; we had about a week of that when Karac was about nine, and we put him in the hospital for about a week or so. Â He was put on Resperidol at the hospital. Â It calmed him down, but he put on so much weight that he was taken off and put on Geodon, over my protest. Â The Geodon was too high a dosage and he developed Tardis dyskenia. That was a year of withdrawal hell. Â Both of my arms are so scarred that I have to wear long sleaves. When he was 12 he was put on .1 Clonidine and .25 Zanax at night to sleep. Â That worked great for about a year, but it caused Karac problems with constipation and difficulty urinating; so he began to spit it out and

refused to take any meds. Â That was about a year ago and he has been off of all meds since and is doing great. Â No screaming, no pinching, no biting, and he sleeps like a baby. Â I tell you all thi> s> just to let you know there is light at the end of the tunnel. Â Hang in there. >>Yesterday I was so proud of Karac; he won the gold medal for parallel bars at gymnastic special olympics, and about five other medals for second and third place. Â The thing that thrilled me the most was that he was so pleased every time they called his name and he walked to the steps and took his place without any assistance. It was a four hour ordeal and Karac was able to tolerate all the waiting time between events without a meltdown. Â It made me cry. Pat K Â >>>*********** * ********* ********* ********>AOL now offers free email to everyone. Find out more about what's

free from AOL at http://www.aol. com. >>>>>> Get your own web address.> Have a HUGE year through Yahoo! Small Business.> >> > >>>>>>>>>

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

[Guest guest]

We have had good results with Clonidine. I still will give Karac a Clonidine sometimes before a situation that I think will be stressful for him. How much did they prescribe? Thankfully they didn't put him on an antipsychotic. Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Lana,

Your doctor should contact the insurance agency and inform them that he is not stable. They may be able to do a prior authorization or override until he is stabilized.

Good luck!

Heidi

--------- Re: new member

How long will he be in the hospital? What kind of sleeping medicine are they giving him? Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

[Guest guest]

April, Karac couldn't have made it in a group. He has to have a one on one, and that one on one person has to be good with special needs kids. Karac loves gymnastics and his teacher. Blessings, Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.