new member

[Guest guest]

You need to contact your doc and get your daughter on a therapeutic level of

medication and start using cleanser like Cetaphil instead of soap.

daughter 9 with OCD

[Guest guest]

> You need to contact your doc and get your daughter on a

therapeutic level of

> medication and start using cleanser like Cetaphil instead of

soap.

> daughter 9 with OCD

>

>

>

[Guest guest]

Hi, welcome!

I can identify with the " not wanting to talk about it " part. I have

an almost 14 y/o son, , with OCD. He's in 8th grade and was

diagnosed back at the beginning of 6th grade. He's never wanted to

talk about his OCD. I had to question/nag to get anything out of

him. Now, at the beginning, when I first noticed behaviors, he broke

down and cried about how he had to do these things to " keep something

bad from happening to him. " But basically, after that, he wouldn't

say much. I'd have to ask - " Is THAT to keep something bad from

happening to you? " or " Is that your OCD....? " and get just a nod or

yes or an " I already told you " answer. (already telling me, meaning

back at the beginning!)

And, I also felt a lot of times that he wasn't trying (complained

about that often here!) to overcome/work on his OCD behaviors. But

at one point I realized that he WAS always " fighting it " but it

wasn't where I could " see " it - it was more internal/mental. " I "

wanted to see him perhaps NOT do something or to STOP a behavior when

it began, etc. I will say that he worked on shortening the length of

some of his compulsions, how long it took him to do things, etc.

Anyway, at some point there was a noticeable difference and

improvement. And I'm happy to say that TODAY his OCD is barely

noticeable. He has said it's " still there " when I asked not long ago

if he even still had OCD thoughts/compulsions. But compared to what

we (he) went through, it seems like it's GONE! Actually, I do

still " see " some things but it's so minor now compared to back THEN!

So take hope, things will improve. It can just be a long road to

travel!

And, thinking back to some of 's behaviors and how non-OCD-

like his seemed (compared to the more typical behaviors you read

about) - I don't thinking anything is normal/typical with OCD! Funny

some of the things your brain can tell you to do!!

Do you think your daughter is up to a therapeutic dose yet in her

meds? OCD typically takes a higher dosage to treat than if treating

for just depression, and it can take 4-6+ weeks to build up a good

level of medication in your body to where you'll begin seeing

sustained improvement. Every person is different, some see

improvements sooner.

Oh, and as you also said, after 's onset in 6th grade, I could

look " back " and see the minor OCD behaviors that he had always had.

It just seemed to come on strong and stay 24 hrs/day in 6th grade,

all new OCD stuff!

> Good morning-

>

> I am a novice at this...it took me all afternoon yesterday to

figure

> out how to join the group. Yahoo probable went crazy...I think I

> sent 4 or 5 requests to join...oh well.

>

> My name is , and I have a 12-year-old daughter who has been

> diagnosed with OCD since October 2002. Retrospectively, she has

> probably had it for a year, seemingly triggered by my

> hospitalization last Christmas (with Salmonella of all things), and

> I can identify other OCD tendencies in her personality for the past

> 3 or 4 years. She primarily has germ fear, but she also

> deomonstrates scrupulosity with prayer rituals, and recently has a

> significant fear of public places...we've had to leave the church

>

[Guest guest]

Dear ,

Strangely, we seem to have had a rash of posts lately about

psychiatrists advising against CBT for kids. I don't understand that. All our

kids are anxious, all rituals make them feel better (that's why they do

them!) and not doing therapy will not help them get better. In three weeks

the meds should have started to help lower her anxiety considerably anyway.

If the therapist is experienced, she/he will know how to proceed without

flipping your daughter out. It may take a while before she can really tackle

the scary issues, but in that time she will be learning about OCD, learning

to trust the therapist, etc.

I would ignore the psychiatrist's thoughts on this one and get her

into cognitive behavioral therapy. It works!!

In the meantime you might look at Tamar Chansky's book, or Aureen

Pinto Wagner's book (both available from OCFoundation.org) about OCD in

children. I think you'll find many of your questions answered in there.

Let us know what happens!

in NV

[Guest guest]

Hi !

I'm definitely not a med expert as we haven't yet used prescribed

meds. I think perhaps you should ask the psych at your next appt if

Celexa is the right med for your daughter if you don't see any

changes in her anxiety level or if your daughter can say the same.

It can take a good 8 weeks for some medications to begin to work (as

people are so " individual " in reactions to meds) so hopefully the

Celexa might kick in more later. OR is an increase planned in

Celexa? Maybe she's not yet built up to the right dose.

How much do you help/push your kids? I can relate to the army

commander feeling! I was one for avoiding meltdowns when I could but

then we also picked the easier OCD behaviors (the least anxiety

causing) to work on. So far as homework - well, we are now going

thru that AGAIN! We went thru schoolwork problems all thru 6 and 7th

grades. 8th grade began great but we are now back to no

productivity. I scribed for all thru those last 2 grades.

Any work brought home, I wrote. Eventually, as his OCD eased up or

on days it was better, we had him begin to finish the short

assignments - fill in blank, short sentence ones, etc. NOW,

basically, to get the work done, I'm prodding him. I HAVE offered to

write it for him, he has refused. Right now can take over 2

hours to do like 8 simple math problems. So I'm having to

nag/hint/ask " what problem are you on now? " And " you're quitting at

11:00. " His temper and frustration and tears are back too. So, we

will just work on this AGAIN a little at a time. I think he wants me

near him again. And, for me, since I'm not scribing, that's no

hardship, I can maybe grab a book or find something to do. But I

will get up/down a lot, leave the room, etc. I don't want him to get

too dependent on me again I'd always felt like I was

his " touchstone, " his " calm " or whatever.

I don't guess I'm being much help to you. But I focused on getting

the schoolwork done and working on the minor OCD behaviors around the

house first. And eventually he did do more work on his own, as he

WANTED to. There were times I questioned " laziness " to him. His big

OCD thing that took the longest to get rid of was just getting on the

bed or sitting down the right way. That was actually the hardest for

him to do, get on and stay! Reading is still something he has a hard

time with, and it does help for him to hear me read it sometimes.

Gotta go, sorry I couldn't be full of answers and suggestions! But

know you are not alone in dealing with these questions and issues!!!

> Just wanted to say thanks. Even though I have not posted before,

just

> reading your messages made me feel I wasn't going crazy. I have an

8

> year old daughter who developed severe OCD symptoms in December,

but

> had had milder symptoms for the previous 6 months, and some

features

> for years. She has been on Celexa for about 6 weeks without much

[Guest guest]

I just began in your group and wanted to introduce myself. My name is

Lana. I live with my husband, two children (autistic, one verbal and

one nonverbal), and 4 cats.

Am having a great deal of difficulty with my verbal 14 year old. He is

having out of control behaviors and am trying very hard to manage him.

Lana

[Guest guest]

Hi Lana,

Ny name is Billie and I live in Kansas with

my husband and 4 boys. My youngest is 7 and has

Sensory Integration Dysfunction. He, too, was

having problems with his behaviour....mostly in

school. After researching SID, I came to

the realization that his angry outbursts were

do to his Sensory problems. He would throw his

lunch across the cafeteria because the noise of

all the children talking at the same time upset

him. Same reason he threw fits in PE and Music.

Too much noise input. Another thing he would

have meltdowns over was when he couldn't

understand how to do certain school work. If he

thought he was going to do it wrong, he would

get frustrated before he even began.

He is now taking Adderal and Zoloft and his

resource teacher has changed his plan at

school to make sure he gets more understanding

of his sensory problems. If he starts to have

a meltdown in class, they ask him if he would

like to leave the room and go for a walk or

go to a quite room and do another activity. He is

to have only positive reinforcement......anything

negative will send him into a tailspin. So they

have to be creative when telling him that what

he is doing is somthing he cannot be doing. Words

like NO and DON'T make him angry.

You didn't mention what your son's out of control

behaviours were, but what I did was get on the

internet and typed in key words in Google and

came up with lots of books on the subject.

The one I am currently reading is The Sensory

Sensitive Child. Practical Solutions for Out-

of-Bounds Behavior.

Members of this group are also great about giving

advice and referring you to books they have

read.

~*~Billie~*~

On Fri Mar 9 19:56 , 'tunick42004' sent:

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> I just began in your group and wanted to introduce myself. My name

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>Lana. I live with my husband, two children (autistic, one verbal and

>

>one nonverbal), and 4 cats.

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>

>

>Am having a great deal of difficulty with my verbal 14 year old. He is

>

>having out of control behaviors and am trying very hard to manage him.

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>Lana

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[Guest guest]

Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often?

I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work.

It has been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall.

Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Hi,

I too belong to the autism behavior list. When I saw your name I had to write to you.

My 12 yr. old grandson is autistic and we have all kinds of issues with his behavior as well.

But that isn't the reason I was writing.

I have a cousin living in Washington whose maiden name is Tunick. that is such an uncommon name. Her first name is Lina and yours is Lana. Isn't that a strange coincidence. Maybe you are related.

Getting back to my grandson, he has melt downs and of course we don't know why. He is verbal but only with words. He can't converse with anyone. He just lets his needs be verbalized. He is getting aggressive towards his sister as well.

We can talk more about the kids if you want to answer me. I wish I had answers but I don't. We just take each day at a time and hope for the best.

Let me know if you know or heard of a Lina Tunick.

Thanks.

LoisJAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Thanks for your input. Robbie screams his head off and refuses to go to bed. In fact his noise has come to the point where neighbors have complained and the property manager may move us to another apt. or we may have to ren t a house. He is very loud and does not listen to us at all. I will try that book. I have tried reinforcers for good behavior for not screaming. He is 14 and much bigger than me. He is almost 6 ft and weighs 133 punds. I am 5 ft, 3" and weigh under 100.

Feel free to email me offline. I could use the help and support of you and anyone else in this group.

Lana

Re: new member

Hi Lana, Ny name is Billie and I live in Kansas with my husband and 4 boys. My youngest is 7 and hasSensory Integration Dysfunction. He, too, was having problems with his behaviour... .mostly inschool. After researching SID, I came to the realization that his angry outbursts weredo to his Sensory problems. He would throw hislunch across the cafeteria because the noise ofall the children talking at the same time upsethim. Same reason he threw fits in PE and Music.Too much noise input. Another thing he would have meltdowns over was when he couldn't understand how to do certain school work. If hethought he was going to do it wrong, he wouldget frustrated before he even began.He is now taking Adderal and Zoloft and hisresource teacher has changed his plan atschool to make sure he gets more understandingof his sensory problems. If he starts to havea meltdown in class, they ask him if he would

like to leave the room and go for a walk orgo to a quite room and do another activity. He isto have only positive reinforcement. .....anythingnegative will send him into a tailspin. So theyhave to be creative when telling him that whathe is doing is somthing he cannot be doing. Wordslike NO and DON'T make him angry.You didn't mention what your son's out of controlbehaviours were, but what I did was get on the internet and typed in key words in Google and came up with lots of books on the subject.The one I am currently reading is The Sensory Sensitive Child. Practical Solutions for Out-of-Bounds Behavior.Members of this group are also great about givingadvice and referring you to books they haveread.~*~Billie~*~On Fri Mar 9 19:56 , 'tunick42004' <tunick42004@ yahoo.com>

sent:>>>>>>>>>>>>>> >>> > I just began in your group and wanted to introduce myself. My name is >>Lana. I live with my husband, two children (autistic, one verbal and >>one nonverbal), and 4 cats.>>>>Am having a great deal of difficulty with my verbal 14 year old. He is >>having out of control behaviors and am trying very hard to manage him.>>>>Lana>>>>> >> > >>>>>>>>>

Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta.

[Guest guest]

Billie, it has been one of the best things that I have done for Karac. karac feels like he has a friend. This young man is awesome. We had spent a couple of years trying to teach Karac how to brake on his bike. taught him in a couple of weeks. Now they can ride to the park and all around the area.

You are fortunate to live in a college town. That should be no problem for you to find a young male student. Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Hi Lana and welcome! I highly recommend the book Sleep Better!: A Guide to Improving Sleep for Children with Special Needs. It specifically handles sleep resistance like you described. My daughter 26 months with PDD-NOS would resist sleep and scream unlike anything I had seen before. I used the Bedtime Fading method and now she actually CLIMBS into bed after our bath/book routine!!! I HIGHLY recommend it. It's particularly good because there is no fighting or pushing them... hence, no screaming.

Emery 2yo PDD-NOS

Thanks for your input. Robbie screams his head off and refuses to go to bed. In fact his noise has come to the point where neighbors have complained and the property manager may move us to another apt. or we may have to ren t a house. He is very loud and does not listen to us at all. I will try that book. I have tried reinforcers for good behavior for not screaming. He is 14 and much bigger than me. He is almost 6 ft and weighs 133 punds. I am 5 ft, 3 " and weigh under 100.

Feel free to email me offline. I could use the help and support of you and anyone else in this group.

Lana--

[Guest guest]

Pat,

what a great idea about hiring a buddy for your

grandson. We live in a college town and there are

students studying to be PE teachers for spec ed

students. For part of their training, they give

swim lessons to spec ed students in our town.

My son is in this program and loves it. I think I

will follow your cue with hiring a college student

to be a " big brother " when Zack is a little older.

~*~Billie~*~

On Sat Mar 10 0:48 , pkuenstler@... sent:

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> Welcome, Lana, is your 14 year old verbal or nonverbal?  What kind

of behavior

problem has he been having?  When did it start?  Is he on any meds? What have

you tried that

hasn't helped?  Where is the behavior happening and how often?

>

>

>

>I have taken care of my 14 year old autistic grandson for 12 years, and he has

had bouts of

behavior problems--pulling hair, pinching, biting etc.  Many times it was

because he was hurting;

sometimes it was a means of comunicating that he had sensory overload or he

didn't want to do

something.  You have probably been through all of this.  The things that

worked for me were a

blanket, music, water, or a comfort food.  I kept these things in my car, and I

always kept

Starburst in my pocket.  I kept his CD player in my purse to pull out when

needed.  I also kept a

half of Clonidine crushed in my purse to put in his water at a moments notice.

 I found that the

crushed Clonidine would calm him within 20 minutes when the other things didn't

work.  

>

>

>

>It has been almost a year since his last meltdown, and I'm not sure why.  One

reason may be that

he feels better since he stopped all meds.  Another thing may be that he is

happier.  I have been

taking him to gymnastics twice a week, to the rec twice a week, and equest twice

a week. I also

hired a 22 year old recent college grad to come on the weekend and be a

companion.  They ride

bikes, shoot baskets, play pin ball etc. go out to eat or to the mall.

>

>

>

>Sorry this is so long, and it probably doesn't apply to your situation at all

because all of

these kids are so different, but I'm sure you will find what works for you.

blessings, Pat K

>

>

>**************************************

> AOL now offers free email to everyone. Find out more about what's free from

AOL at

http://www.aol.com.

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[Guest guest]

Hi Lana,

Welcome to the group. First may I ask that you keep the replies on

list vs private email so that others can benefit or add to discussion.

Second, I know your pain. I have a 13 year old son who is very

behavioral and didn't sleep through the night. We tried all sorts of

things but the one thing that's mostly working lately is melatonin.

Have you tried that? Give about 1/2 hour before bedtime and it'll

make him sleepy.

Have you done anything biomedically with him? If not there's a few

things you can do.

>

> Thanks for your input. Robbie screams his head off and refuses to

go to bed. In fact his noise has come to the point where neighbors

have complained and the property manager may move us to another apt.

or we may have to ren t a house. He is very loud and does not listen

to us at all. I will try that book. I have tried reinforcers for good

behavior for not screaming. He is 14 and much bigger than me. He

is almost 6 ft and weighs 133 punds. I am 5 ft, 3 " and weigh under

100.

>

> Feel free to email me offline. I could use the help and support of

you and anyone else in this group.

>

> Lana

>

>

> Re: new member

>

> Hi Lana,

> Ny name is Billie and I live in Kansas with

> my husband and 4 boys. My youngest is 7 and has

> Sensory Integration Dysfunction. He, too, was

> having problems with his behaviour... .mostly in

> school. After researching SID, I came to

> the realization that his angry outbursts were

> do to his Sensory problems. He would throw his

> lunch across the cafeteria because the noise of

> all the children talking at the same time upset

> him. Same reason he threw fits in PE and Music.

> Too much noise input. Another thing he would

> have meltdowns over was when he couldn't

> understand how to do certain school work. If he

> thought he was going to do it wrong, he would

> get frustrated before he even began.

> He is now taking Adderal and Zoloft and his

> resource teacher has changed his plan at

> school to make sure he gets more understanding

> of his sensory problems. If he starts to have

> a meltdown in class, they ask him if he would

> like to leave the room and go for a walk or

> go to a quite room and do another activity. He is

> to have only positive reinforcement. .....anything

> negative will send him into a tailspin. So they

> have to be creative when telling him that what

> he is doing is somthing he cannot be doing. Words

> like NO and DON'T make him angry.

> You didn't mention what your son's out of control

> behaviours were, but what I did was get on the

> internet and typed in key words in Google and

> came up with lots of books on the subject.

> The one I am currently reading is The Sensory

> Sensitive Child. Practical Solutions for Out-

> of-Bounds Behavior.

> Members of this group are also great about giving

> advice and referring you to books they have

> read.

>

> ~*~Billie~*~

>

> On Fri Mar 9 19:56 , 'tunick42004' <tunick42004@ yahoo.com> sent:

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> > I just began in your group and wanted to introduce myself. My

name is

> >

> >Lana. I live with my husband, two children (autistic, one verbal

and

> >

> >one nonverbal), and 4 cats.

> >

> >

> >

> >Am having a great deal of difficulty with my verbal 14 year old.

He is

> >

> >having out of control behaviors and am trying very hard to manage

him.

> >

> >

> >

> >Lana

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______________________________________________________________________

______________

> Looking for earth-friendly autos?

> Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

> http://autos.yahoo.com/green_center/

>

[Guest guest]

I was thinking about Melatonin. Remeron just made him more hyper. I will try that. How much Melatonin to start with?

Lana

Re: new member> > Hi Lana, > Ny name is Billie and I live in Kansas with > my husband and 4 boys. My youngest is 7 and has> Sensory Integration Dysfunction. He, too, was > having problems

with his behaviour... .mostly in> school. After researching SID, I came to > the realization that his angry outbursts were> do to his Sensory problems. He would throw his> lunch across the cafeteria because the noise of> all the children talking at the same time upset> him. Same reason he threw fits in PE and Music.> Too much noise input. Another thing he would > have meltdowns over was when he couldn't > understand how to do certain school work. If he> thought he was going to do it wrong, he would> get frustrated before he even began.> He is now taking Adderal and Zoloft and his> resource teacher has changed his plan at> school to make sure he gets more understanding> of his sensory problems. If he starts to have> a meltdown in class, they ask him if he would > like to leave the room and go for a walk or> go to a quite room and do another activity.

He is> to have only positive reinforcement. .....anything> negative will send him into a tailspin. So they> have to be creative when telling him that what> he is doing is somthing he cannot be doing. Words> like NO and DON'T make him angry.> You didn't mention what your son's out of control> behaviours were, but what I did was get on the > internet and typed in key words in Google and > came up with lots of books on the subject.> The one I am currently reading is The Sensory > Sensitive Child. Practical Solutions for Out-> of-Bounds Behavior.> Members of this group are also great about giving> advice and referring you to books they have> read.> > ~*~Billie~*~> > On Fri Mar 9 19:56 , 'tunick42004' <tunick42004@ yahoo.com> sent:> > >> >> >> >> >> >> >>

>> >> >> >> >> >> > > >> >> > > > I just began in your group and wanted to introduce myself. My name is > >> >Lana. I live with my husband, two children (autistic, one verbal and > >> >one nonverbal), and 4 cats.> >> >> >> >Am having a great deal of difficulty with my verbal 14 year old. He is > >> >having out of control behaviors and am trying very hard to manage him.> >> >> >> >Lana> >> >> >> >> > > >> > > > > >> >> >> >> >> >> >> >> >> > > > > > > ____________ _________ _________ _________

_________ _________ _____________ __> Looking for earth-friendly autos? > Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.> http://autos. yahoo.com/ green_center/>

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[Guest guest]

Thanks. I will definitely try that. The problem is that he says he is tired and then gets up a million times.

Lana

Re: new member

Hi Lana and welcome! I highly recommend the book Sleep Better!: A Guide to Improving Sleep for Children with Special Needs. It specifically handles sleep resistance like you described. My daughter 26 months with PDD-NOS would resist sleep and scream unlike anything I had seen before. I used the Bedtime Fading method and now she actually CLIMBS into bed after our bath/book routine!!! I HIGHLY recommend it. It's particularly good because there is no fighting or pushing them... hence, no screaming. Emery 2yo PDD-NOS

Thanks for your input. Robbie screams his head off and refuses to go to bed. In fact his noise has come to the point where neighbors have complained and the property manager may move us to another apt. or we may have to ren t a house. He is very loud and does not listen to us at all. I will try that book. I have tried reinforcers for good behavior for not screaming. He is 14 and much bigger than me. He is almost 6 ft and weighs 133 punds. I am 5 ft, 3" and weigh under 100.

Feel free to email me offline. I could use the help and support of you and anyone else in this group.

Lana--

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

[Guest guest]

My 14 year old is definitely verbal. He screams a lot at night and destroys stuff. He slammed the bathroom door on my husband's foot and the door broke. Luckily, my husband fixed it. He is on a special diet, can only drink soy milk and water and cannot have any products with lactose and fructose. I think part of this is adolescence but it is all so very difficult. My other autistic son who is nonverbal is a pleasure most of the time.

Thank you all for all your support.

Lana

Re: new member

Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often? I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in

his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work. It has been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall. Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.

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Is there anything in particular that provokes the behavior? How does the younger brother respond to all this? Did the behavior just start when he became 14? Have you tried any meds? Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Since being in adolescence, his behaviors have worsened. My younger son is afraid of Robbie and i have to separate the two. Nothing in particular sets him off. He screams at night a lot and is up until 10 or 11. He is on Zyprexa now but I think he was better on Risperidol. These behaviors really go way back. He is fine behaviorly with everyone else but us. He is an angel at school and with sitters but not us.

Lana

Re: new member

Is there anything in particular that provokes the behavior? How does the younger brother respond to all this? Did the behavior just start when he became 14? Have you tried any meds? Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.

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[Guest guest]

we started with 2mgs but I found the 3mg time released works best.

My son weighs about 155 lbs.

> >

> > Thanks for your input. Robbie screams his head off and refuses to

> go to bed. In fact his noise has come to the point where neighbors

> have complained and the property manager may move us to another

apt.

> or we may have to ren t a house. He is very loud and does not

listen

> to us at all. I will try that book. I have tried reinforcers for

good

> behavior for not screaming. He is 14 and much bigger than me. He

> is almost 6 ft and weighs 133 punds. I am 5 ft, 3 " and weigh under

> 100.

> >

> > Feel free to email me offline. I could use the help and support

of

> you and anyone else in this group.

> >

> > Lana

> >

> >

> > Re: new member

> >

> > Hi Lana,

> > Ny name is Billie and I live in Kansas with

> > my husband and 4 boys. My youngest is 7 and has

> > Sensory Integration Dysfunction. He, too, was

> > having problems with his behaviour... .mostly in

> > school. After researching SID, I came to

> > the realization that his angry outbursts were

> > do to his Sensory problems. He would throw his

> > lunch across the cafeteria because the noise of

> > all the children talking at the same time upset

> > him. Same reason he threw fits in PE and Music.

> > Too much noise input. Another thing he would

> > have meltdowns over was when he couldn't

> > understand how to do certain school work. If he

> > thought he was going to do it wrong, he would

> > get frustrated before he even began.

> > He is now taking Adderal and Zoloft and his

> > resource teacher has changed his plan at

> > school to make sure he gets more understanding

> > of his sensory problems. If he starts to have

> > a meltdown in class, they ask him if he would

> > like to leave the room and go for a walk or

> > go to a quite room and do another activity. He is

> > to have only positive reinforcement. .....anything

> > negative will send him into a tailspin. So they

> > have to be creative when telling him that what

> > he is doing is somthing he cannot be doing. Words

> > like NO and DON'T make him angry.

> > You didn't mention what your son's out of control

> > behaviours were, but what I did was get on the

> > internet and typed in key words in Google and

> > came up with lots of books on the subject.

> > The one I am currently reading is The Sensory

> > Sensitive Child. Practical Solutions for Out-

> > of-Bounds Behavior.

> > Members of this group are also great about giving

> > advice and referring you to books they have

> > read.

> >

> > ~*~Billie~*~

> >

> > On Fri Mar 9 19:56 , 'tunick42004' <tunick42004@ yahoo.com> sent:

> >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > I just began in your group and wanted to introduce myself. My

> name is

> > >

> > >Lana. I live with my husband, two children (autistic, one verbal

> and

> > >

> > >one nonverbal), and 4 cats.

> > >

> > >

> > >

> > >Am having a great deal of difficulty with my verbal 14 year old.

> He is

> > >

> > >having out of control behaviors and am trying very hard to

manage

> him.

> > >

> > >

> > >

> > >Lana

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> ____________ __

> > Looking for earth-friendly autos?

> > Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

> > http://autos. yahoo.com/ green_center/

> >

>

>

>

>

>

>

>

______________________________________________________________________

______________

> Don't pick lemons.

> See all the new 2007 cars at Yahoo! Autos.

> http://autos.yahoo.com/new_cars.html

>

[Guest guest]

Thanks for the information. I will try that.

Re: new member> > > > Hi Lana, > > Ny name is Billie and I live in Kansas with > > my husband and 4 boys. My youngest is 7 and has> > Sensory Integration Dysfunction. He, too, was > > having problems with his behaviour... .mostly in> > school. After researching SID, I came to > > the realization

that his angry outbursts were> > do to his Sensory problems. He would throw his> > lunch across the cafeteria because the noise of> > all the children talking at the same time upset> > him. Same reason he threw fits in PE and Music.> > Too much noise input. Another thing he would > > have meltdowns over was when he couldn't > > understand how to do certain school work. If he> > thought he was going to do it wrong, he would> > get frustrated before he even began.> > He is now taking Adderal and Zoloft and his> > resource teacher has changed his plan at> > school to make sure he gets more understanding> > of his sensory problems. If he starts to have> > a meltdown in class, they ask him if he would > > like to leave the room and go for a walk or> > go to a quite room and do another activity. He is> > to have

only positive reinforcement. .....anything> > negative will send him into a tailspin. So they> > have to be creative when telling him that what> > he is doing is somthing he cannot be doing. Words> > like NO and DON'T make him angry.> > You didn't mention what your son's out of control> > behaviours were, but what I did was get on the > > internet and typed in key words in Google and > > came up with lots of books on the subject.> > The one I am currently reading is The Sensory > > Sensitive Child. Practical Solutions for Out-> > of-Bounds Behavior.> > Members of this group are also great about giving> > advice and referring you to books they have> > read.> > > > ~*~Billie~*~> > > > On Fri Mar 9 19:56 , 'tunick42004' <tunick42004@ yahoo.com> sent:> > > > >>

> >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > > > >> > >> > > > > > I just began in your group and wanted to introduce myself. My > name is > > >> > >Lana. I live with my husband, two children (autistic, one verbal > and > > >> > >one nonverbal), and 4 cats.> > >> > >> > >> > >Am having a great deal of difficulty with my verbal 14 year old. > He is > > >> > >having out of control behaviors and am trying very hard to manage > him.> > >> > >> > >> > >Lana> > >> > >> > >> > >>

> > > > >> > > > > > > > >> > >> > >> > >> > >> > >> > >> > >> > >> > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> ____________ __> > Looking for earth-friendly autos? > > Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.> > http://autos. yahoo.com/ green_center/> >> > > > > > > ____________ _________ _________ _________ _________ _________ _____________ __> Don't pick lemons.> See all the new 2007 cars at Yahoo! Autos.> http://autos. yahoo.com/ new_cars. html>

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

[Guest guest]

What really helped our 9yo Asperger/ADHD/SID son was LISTENING THERAPY! Unbelievable to see the improvement with the sound sensitivity. We did it privately through an outside OT, although if our insurance didn't cover it we would have tried to get the school to fund it, because it directly impacts him educationally. We bought special headphones and would rent the CD's through the OT, and he would listen to them 2x/day for about 20 min each. He went through the 12 week program and improved so much that he wasn't wearing headphones at school anymore, was staying in the gym in PE and the lunchroom more - but when he ended it, the school started noticing a regression so we will need to get him on it again. HTH. MarieBillie wrote: Hi Lana, Ny name is Billie and I live in Kansas with my husband and 4 boys. My youngest is 7 and hasSensory Integration Dysfunction. He, too, was having problems with his behaviour....mostly inschool. After researching SID, I came to the realization that his angry outbursts weredo to his Sensory problems. He would throw hislunch across the cafeteria because the noise ofall the children talking at the same time upsethim. Same reason he threw fits in PE and Music.Too much noise input. Another thing he would have meltdowns over was when he couldn't understand how to do certain school work. If hethought he was

going to do it wrong, he wouldget frustrated before he even began.He is now taking Adderal and Zoloft and hisresource teacher has changed his plan atschool to make sure he gets more understandingof his sensory problems. If he starts to havea meltdown in class, they ask him if he would like to leave the room and go for a walk orgo to a quite room and do another activity. He isto have only positive reinforcement......anythingnegative will send him into a tailspin. So theyhave to be creative when telling him that whathe is doing is somthing he cannot be doing. Wordslike NO and DON'T make him angry.You didn't mention what your son's out of controlbehaviours were, but what I did was get on the internet and typed in key words in Google and came up with lots of books on the subject.The one I am currently reading is The Sensory Sensitive Child. Practical Solutions for Out-of-Bounds

Behavior.Members of this group are also great about givingadvice and referring you to books they haveread.~*~Billie~*~On Fri Mar 9 19:56 , 'tunick42004' <tunick42004> sent:>>>>>>>>>>>>>> >>> > I just began in your group and wanted to introduce myself. My name is >>Lana. I live with my husband, two children (autistic, one verbal and >>one nonverbal), and 4 cats.>>>>Am having a great deal of difficulty with my verbal 14 year old. He is >>having out of control behaviors and am trying very hard to manage him.>>>>Lana>>>>> >> >

>>>>>>>>>

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[Guest guest]

Have you looked into digestive enzymes at all? I just returned from a Biomed conference in the Quad Cities (Moline, IL) and heard a talk by DeFelice who has written two books on Autism & Enzymes and has two children on the spectrum. Pretty soon with all the eliminations our kids can be on a 'food free' diet but she felt with the enzymes that children are able to tolerate much more food and it actually 'heals' the gut rather than just avoiding the triggering of the autoimmune response with the gluten, casein, etc. MarieLana Waalkes wrote: My 14 year old is definitely verbal. He screams a lot at night and destroys stuff. He slammed the bathroom door on my husband's foot and the door broke. Luckily, my husband fixed it. He is on a special diet, can only drink soy milk and water and cannot have any products with lactose and fructose. I think part of this is adolescence but it is all so very difficult. My other autistic son who is nonverbal is a pleasure most of the time. Thank you all for all your support. Lana Re: new member Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often? I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling

hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work. It has been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also

hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall. Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com. Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut.

Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta.

[Guest guest]

Isn't 10:00 a pretty normal time for a teenager to go to sleep? What time does he wake up in the morning? Karac was on Zyprexia for a while, but he gained 30 lbs in a matter of weeks and seemed to have lost all of his personality. I do think it stopped all aggression, and as I recall, your son is very slender.

Do you have any help with your sons? Have you done ABA? I think you said your son is good everywhere but home. Well, we all need to be able to let off steam somewhere. Maybe home is the only safe place to do that. Pat K************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

The problem is that my son has no large intestine and has to take heavy duty antibiotics to fight the overgrowth of the bacteria in the small intestine. However, I may look into that anyway.

Re: new member

Welcome, Lana, is your 14 year old verbal or nonverbal? What kind of behavior problem has he been having? When did it start? Is he on any meds? What have you tried that hasn't helped? Where is the behavior happening and how often? I have taken care of my 14 year old autistic grandson for 12 years, and he has had bouts of behavior problems--pulling hair, pinching, biting etc. Many times it was because he was hurting; sometimes it was a means of comunicating that he had sensory overload or he didn't want to do something. You have probably been through all of this. The things that worked for me were a blanket, music, water, or a comfort food. I kept these things in my car, and I always kept Starburst in my pocket. I kept his CD player in my purse to pull out when needed. I also kept a half of Clonidine crushed in my purse to put in

his water at a moments notice. I found that the crushed Clonidine would calm him within 20 minutes when the other things didn't work. It has been almost a year since his last meltdown, and I'm not sure why. One reason may be that he feels better since he stopped all meds. Another thing may be that he is happier. I have been taking him to gymnastics twice a week, to the rec twice a week, and equest twice a week. I also hired a 22 year old recent college grad to come on the weekend and be a companion. They ride bikes, shoot baskets, play pin ball etc. go out to eat or to the mall. Sorry this is so long, and it probably doesn't apply to your situation at all because all of these kids are so different, but I'm sure you will find what works for you. blessings, Pat K************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.

com.

Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut.

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