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Putting Dad on SEROQUEL, advice needed

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Larean,

My dad has been on Seroquel for several years, and it has been a lifesaver

for us. It has really settled him down and given him some peace. He is on a

low dosage - 25 mg. twice a day. Not all LBD patients respond to it so well,

but I would highly recommend trying it to see how your dad responds. My dad

has not had any trouble with it at all. If your dad responds to it well also,

you will both be glad he tried it.

Let us know how things go.

Big hugs,

Piper

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Hi all,

Well, in the past two weeks the hallucinations have really stepped

up, and my Dad has fallen twice running from invisible people,

second time he landed on his head and really hurt himself. The NH

reports that the hallucinations have been so bad he is in a constant

agitated state, worried about people after him. The psychiatrist at

the NH wants to put him on Seroquel, a neuroleptic. Like most of

you, I've heard that LBD patients have a terrible senstivity to

neuroleptics, so I haven't given them the go ahead as of yet to give

him this medication. We are trying to arrange a neurologist consult

as quickly as possible, I'm hoping the neurologist will be able to

offer an alternative solution as to what medicine he can be given.

What are your thoughts on this? Does anyone have their loved one on

a medicine for hallucinations, and if so, what? Please help!

-Larean

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Hi Larean,

I, too, agonised when it came time to put mom on Seroquel but I have to say

that it has improved her quality of life markedly. The trick to Seroquel is

to go low and slow. Mom's first script was too much for her and she either

slept 20 hours a day or she had increased anxiety. I tinkered with this med

and now mom is on 1/2 pill in the morning and 1/2 pill in the evening. Of

course, mom still hallucinations but they aren't the scarry ones anymore and

sometimes they are down right hillarious.

All the best to you and your mom.

Courage

Putting Dad on SEROQUEL, advice needed

>Hi all,

>

>Well, in the past two weeks the hallucinations have really stepped

>up, and my Dad has fallen twice running from invisible people,

>second time he landed on his head and really hurt himself. The NH

>reports that the hallucinations have been so bad he is in a constant

>agitated state, worried about people after him. The psychiatrist at

>the NH wants to put him on Seroquel, a neuroleptic. Like most of

>you, I've heard that LBD patients have a terrible senstivity to

>neuroleptics, so I haven't given them the go ahead as of yet to give

>him this medication. We are trying to arrange a neurologist consult

>as quickly as possible, I'm hoping the neurologist will be able to

>offer an alternative solution as to what medicine he can be given.

>What are your thoughts on this? Does anyone have their loved one on

>a medicine for hallucinations, and if so, what? Please help!

>

>-Larean

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

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Larean,

My father has done well on Abilify, it is a newer drug. Good luck.

Donna L

> Hi all,

>

> Well, in the past two weeks the hallucinations have really stepped

> up, and my Dad has fallen twice running from invisible people,

> second time he landed on his head and really hurt himself. The NH

> reports that the hallucinations have been so bad he is in a

constant

> agitated state, worried about people after him. The psychiatrist

at

> the NH wants to put him on Seroquel, a neuroleptic. Like most of

> you, I've heard that LBD patients have a terrible senstivity to

> neuroleptics, so I haven't given them the go ahead as of yet to

give

> him this medication. We are trying to arrange a neurologist

consult

> as quickly as possible, I'm hoping the neurologist will be able to

> offer an alternative solution as to what medicine he can be given.

> What are your thoughts on this? Does anyone have their loved one

on

> a medicine for hallucinations, and if so, what? Please help!

>

> -Larean

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Hi Larean:

My dad was diagnosed earlier this year with LBD, and has been on

Seroquel almost since the beginning. It has been great for him - he's

not nearly so agitated or confused, and while he still has the

hallucinations, they don't trouble him so much. He takes 25 mg a day

I think, at bedtime. He's also on Reminyl (apparently an AD drug),

which also seems to be helping.

I think it's worth a try. If he doesn't react well to it, change the

dosages a bit and see if that helps. This drug could mean a big

improvement for your dad.

Hang in there...

KD

> Hi all,

>

> Well, in the past two weeks the hallucinations have really stepped

> up, and my Dad has fallen twice running from invisible people,

> second time he landed on his head and really hurt himself. The NH

> reports that the hallucinations have been so bad he is in a

constant

> agitated state, worried about people after him. The psychiatrist

at

> the NH wants to put him on Seroquel, a neuroleptic. Like most of

> you, I've heard that LBD patients have a terrible senstivity to

> neuroleptics, so I haven't given them the go ahead as of yet to

give

> him this medication. We are trying to arrange a neurologist

consult

> as quickly as possible, I'm hoping the neurologist will be able to

> offer an alternative solution as to what medicine he can be given.

> What are your thoughts on this? Does anyone have their loved one on

> a medicine for hallucinations, and if so, what? Please help!

>

> -Larean

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