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Hello, my husband and I are the primary caregivers for my

grandmother. She has had 2 strokes within the past six months. From

everything I've read about various forms of dementia I am lead to

believe she may have LBD. Mainly the hallucinations which are an

almost daily thing right now. Thankfully, they are not frightening

for her at this time. Her doctor has her on Namenda which did seem to

help for a bit and this week he added Exelon as well. I just hope

these meds help her. I know she will never be her old self again

completely but I do hope that the good days will be more frequent.

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Hi! Just wanted to say welcome to the group. I am so sorry about your

grandmother. If your grandmother responds well to her medication, you probably

can

hope for some better days. It is just so hard to know because each LBD

patient responds so differently to various medications. I am the primary

caregiver

for my father. His hallucinations have been helped with medication.

However, some days are good, some days aren't.

Is your grandmother recovering from the strokes? She may have more symptoms

because of the strokes, not just LBD. Let us know how things are going for

you when you have time. Glad you found us!

Hugs,

Piper

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Honestly, we never knew she had the strokes until the neurologist

told us. Looking back I can see that she was showing symptoms of a

stroke but we just didn't realize that's what it was. The night she

had the most recent stroke she did go to the emergency room where a

CT was done but the doctor refused to do the MRI that we asked for.

Really, we are lucky as she hasn't had any paralisis from the strokes

no physical symptoms at all really only mental issues.

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Welcome tho the group.

So sorry to here of your grandmother.

This is the place to be to ask questions and find answers or just vent when you

need to.

Hugs-

Sharon

My introduction

Hello, my husband and I are the primary caregivers for my

grandmother. She has had 2 strokes within the past six months. From

everything I've read about various forms of dementia I am lead to

believe she may have LBD. Mainly the hallucinations which are an

almost daily thing right now. Thankfully, they are not frightening

for her at this time. Her doctor has her on Namenda which did seem to

help for a bit and this week he added Exelon as well. I just hope

these meds help her. I know she will never be her old self again

completely but I do hope that the good days will be more frequent.

Welcome to LBDcaregivers.

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Hello and welcome to the group. I, too, am hoping that the meds will help

your grandmother. This is a most wonderful bunch of people to be connected

to.

Courage

My introduction

>Hello, my husband and I are the primary caregivers for my

>grandmother. She has had 2 strokes within the past six months. From

>everything I've read about various forms of dementia I am lead to

>believe she may have LBD. Mainly the hallucinations which are an

>almost daily thing right now. Thankfully, they are not frightening

>for her at this time. Her doctor has her on Namenda which did seem to

>help for a bit and this week he added Exelon as well. I just hope

>these meds help her. I know she will never be her old self again

>completely but I do hope that the good days will be more frequent.

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

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