Re: Wanting Meyer Center experiences!! What do they do??

[Guest guest]

I had no idea the waiting list was that long!! You have waited three

months just to get an appointment then the actual date could be

months after that. So far as I understand they don't do medical

testing. That is so discouraging. Honestly if I wait that long to do

anything I fear he could get worst. He is on the GFCF diet with

supplements. That has helped alot but I need to test for viruses! I

am nervous to mention Valtrex to my son's pediatrition because I

don't want him to think I am using my son as a guinea pig. And if he

does do a viral panel I don't think he would give Valtrex because I

don't believe he has prescribed it before. Like when I asked about

B12 shots he said " they don't do that there. " Not sure what I am to

do. Not sure where to do the IGG blood draw either because Quest

Diagnostics told me today that they don't draw blood for other labs.

I feel stuck!! I know Dr. Jepson is the answer but even that would be

months away!

Janice

>

> I just want to let you know that appointments are a ways out for

the Meyer Center. I mailed the packet to them in Sept. 2007 and have

yet to receive a call for an appt. I was told that someone should be

contacting me by month end (Dec. 07) to set up appt.

>

> Janice wrote: I am curious as to what

do they do at the Meyer center? See I

> currently can't afford a DAN doctor so I have been trying to get as

> many biomedical type testings done through insurance with regular a

> pediatrition. My next step is a IGG food panel through Great

Plains --

> -I am paying out of pocket for that. I am probably going to start

> seeing Dr. Jepson because of the good reviews. When I asked the

> regular pediatrition for diflucan and why I wanted to try, he gave

us

> some. It was at low strength but at least he was trying to help me.

> But when I asked about a referral to an infectious disease doctor,

he

> said he doesn't know any and sent a referral to the Meyer Center. I

> want to get a virus panel done on my son. On a another board, I

keep

> getting told my son sounds like a viral kid. I would love to try

> Valtex and see it is helps like it does many other children. Will

the

> Meyer center do that kind of testing?? What kind of testing do they

> do?? I am not sure how long the waiting list is yet. I am waiting

to

> receive a packet in the mail the I have to send it back to get an

> appointment. My son is four and goes half school day in Spring

I.S.D.

> He seen a neurologist at Texas Children's Blue Bird clinic in June

> and they did a MRI and genetic testing and he tested back as fine

on

> MRI and no match to genetic autism. Then they said " unless you want

a

> prescribtion drug for his behavior there is nothing else we can do

> for you. " I am suppose to go back in January to see if I change my

> mind about the drug issue. I still don't think my son needs to be

> medicated! Sorry for the post being long. I am curious what the

> Meyer clinic has to offer and what kind of testing do they do???

>

> Any experiences I would love to read about!!

>

> Thank you, Janice

>

>

>

>

>

>

>

[Guest guest]

>

> I can put money on the Meyer center not offering any bio-medical

> intervention, not even dietary intervention such as the GFCF diet.

I think

> they are in the same boat as the blue bird clinic which is testing

(MRI,

> EEG, fragile x, genetic testing,..etc), SSRI drugs, and maybe

referral to

> speech, OT, and behavioral therapy. That is the extent offered by

> mainstream medicine when it comes to Autism.

>

> We have not been there since my son was first diagnosed so I don't

know if

> things changed or not.

>

> You have a better chance working with your pediatrician. Maybe,

you can get Meyer center does do a metal screening test inc. test for

mercury

> him Jepson's book

> http://www.thoughtfulhouse.org/pr/jepson_book.htm

>

>

> Wanting Meyer Center experiences!!

What do

> they do??

>

>

> >I am curious as to what do they do at the Meyer center? See I

> > currently can't afford a DAN doctor so I have been trying to get

as

> > many biomedical type testings done through insurance with regular

a

> > pediatrition. My next step is a IGG food panel through Great

Plains --

> > -I am paying out of pocket for that. I am probably going to start

> > seeing Dr. Jepson because of the good reviews. When I asked the

> > regular pediatrition for diflucan and why I wanted to try, he

gave us

> > some. It was at low strength but at least he was trying to help

me.

> > But when I asked about a referral to an infectious disease

doctor, he

> > said he doesn't know any and sent a referral to the Meyer Center.

I

> > want to get a virus panel done on my son. On a another board, I

keep

> > getting told my son sounds like a viral kid. I would love to try

> > Valtex and see it is helps like it does many other children. Will

the

> > Meyer center do that kind of testing?? What kind of testing do

they

> > do?? I am not sure how long the waiting list is yet. I am waiting

to

> > receive a packet in the mail the I have to send it back to get an

> > appointment. My son is four and goes half school day in Spring

I.S.D.

> > He seen a neurologist at Texas Children's Blue Bird clinic in June

> > and they did a MRI and genetic testing and he tested back as fine

on

> > MRI and no match to genetic autism. Then they said " unless you

want a

> > prescribtion drug for his behavior there is nothing else we can do

> > for you. " I am suppose to go back in January to see if I change my

> > mind about the drug issue. I still don't think my son needs to be

> > medicated! Sorry for the post being long. I am curious what the

> > Meyer clinic has to offer and what kind of testing do they do???

> >

> > Any experiences I would love to read about!!

> >

> > Thank you, Janice

> >

> >

> >

> > Texas Autism Advocacy

> > www.TexasAutismAdvocacy.org

> >

> > Texas Disability Network

> > Calendar of Events

> > www.TexasAutismAdvocacy.org

> >