Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 Tanda If you are not satisified with the doctors, trust yourself. Go to Cranial Tech and get an evaluation -- they are the experts. This is what I will be doing next week. Unfortunately we have been going around in circles since baby was two months old and he is now nine months. Try to give you baby tummy time. Just laying baby on your lap a little now and then will strengthen her torso. This is what is needed for the strength to sit up. Unfortunately the American Academy of Pediatrics not only failed to tell us about plagio, but they also failed to tell us that the " milestones " occur later with back/side sleeping because the torso does not get the exercise it would with tummy sleeping. I think that you will find that physically she is not so late. My first baby who is now 15 years old was put to sleep on his tummy. He was sitting up at 4 months old! My baby now nine months old only started sitting up around six or seven months and he has yet to " master " it. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Hi Tanda! Great to hear from you and I'm sorry we missed each other too. I'm also sorry to hear that it was a tough trip. You know, Maddie pretty much sobbed throughout the entire casting. The bath didn't even calm her down and she loves baths. It must have been so hard on little Kaia to travel that distance, then to have someone put a sock over her face! That's just not fun! I agree with you that flying is the way to go. Now if we could only get insurance to cover that expense! (Of course, we're still waiting to hear if they'll even cover the band itself!) We are headed back up to Phoenix tomorrow for an adjustment and general check up. I'll let you know when we are scheduled to be up there and perhaps one of these times we'll finally meet. As for decorating the band...I have a friend named Maggie, otherwise known as Martha . She's very crafty and can paint like Picasso. I asked her to do an underwater scene (ocean life) on Maddie's band. She just finished today and it looks amazing! It's so colorful and detailed. I'll have to figure out how to put pictures in the files section so you can look at it. I don't have a scanner (I know, I know. Get with it, ) otherwise I would just load it into mail. I followed the decorating advice given here on the list as far as paint and acrylic varnish. Thanks everyone for the great advice! Have fun decorating, Tanda. Talk to you soon, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Fortunately, we only have to travel about 100 miles, but for those of you who are traveling long distances this might be something to check into. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 "I agree with you that flying is the way to go. Now if we could only get insurance to cover that expense! (Of course, we're still waiting to hear if they'll even cover the band itself!)" Have any of you checked into whether discounts are available for trips taken for medical reasons? Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: Sar617mc@... Plagiocephalyegroups Sent: Sunday, May 14, 2000 10:02 PM Subject: Re: To Hi Tanda!Great to hear from you and I'm sorry we missed each other too. I'm also sorry to hear that it was a tough trip. You know, Maddie pretty much sobbed throughout the entire casting. The bath didn't even calm her down and she loves baths. It must have been so hard on little Kaia to travel that distance, then to have someone put a sock over her face! That's just not fun! I agree with you that flying is the way to go. Now if we could only get insurance to cover that expense! (Of course, we're still waiting to hear if they'll even cover the band itself!)We are headed back up to Phoenix tomorrow for an adjustment and general check up. I'll let you know when we are scheduled to be up there and perhaps one of these times we'll finally meet.As for decorating the band...I have a friend named Maggie, otherwise known as Martha . She's very crafty and can paint like Picasso. I asked her to do an underwater scene (ocean life) on Maddie's band. She just finished today and it looks amazing! It's so colorful and detailed. I'll have to figure out how to put pictures in the files section so you can look at it. I don't have a scanner (I know, I know. Get with it, ) otherwise I would just load it into mail. I followed the decorating advice given here on the list as far as paint and acrylic varnish. Thanks everyone for the great advice! Have fun decorating, Tanda. Talk to you soon, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 In a message dated 5/14/00 8:03:14 PM Pacific Daylight Time, Sar617mc@... writes: << Now if we could only get insurance to cover that expense! >> To all of you....would any of these expenses be deducted on taxes???!!!! I have yet to ask an accountant. Belinda (Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2000 Report Share Posted May 16, 2000 Thanks ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2000 Report Share Posted May 16, 2000 Hi there, Belinda! I missed you guys too, by the way :) And to answer your question, YES! Medical expenses (mileage, meals, copays, tolls, airfare, hotel costs) are a deductible expense in taxes. I posted some info a while back on this subject....I'll hunt it down and repost it, ok? Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: bgles2@... Plagiocephalyegroups Sent: Monday, May 15, 2000 9:16 PM Subject: Re: To In a message dated 5/14/00 8:03:14 PM Pacific Daylight Time, Sar617mc@... writes:<< Now if we could only get insurance to cover that expense! >>To all of you....would any of these expenses be deducted on taxes???!!!! I have yet to ask an accountant. Belinda (Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 - Did you see Dottie (the nurse) for exercises re: your son's tort? We saw her the first time we went and she really wasn't able to examine Tyler because he had fallen asleep on me. But I was just curious, what exercises did she recommend? She was the one who recommended placing Tyler to sleep on his stomach. I'm grateful for that suggestion, because it did help out somewhat. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Jen, We did see Dottie. She recommended that we give him plenty of tummy time....the exersaucer...having him lay over a boppy pillow so he would have to lift his head...holding his shoulder and moving his head to each side....and pulling him up by his arms. At the time he was still to young to sleep on his stomach, but he does. After talking to her my husband and I were a little confused. The doctor told us that the measurements warranted a helmet and she told us that her neice had the same problem but went away with repositioning. We weren't sure whose advice to take so we went with the repositioning for 5 weeks. We will find out Friday if it helped...If not we will have to do the DOC band. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Hi - I just recently joined the e-group and have a few questions! How old is your baby? Our son is 7 months now - we noticed his head was flat in the back at about 3 months, and at 4 mos we had a CT scan done. Our ped said we should try repositioning but that we should just wait it out since there was no problem with his brain. It's been bothering me since - we saw some slight improvement but I think it has really levelled off. I tried to make an appt with a pediatric neuro. today, but he can't get in until Aug at which point he'll be 9 months. Is that too late for him to get a band or helmet? Thanks for your help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 My son is now almost 5 months. We noticed the flattening at 2 weeks. At 3 1/2 months our ped recommended us to a pediatric plastic surgeon. We never had a CT scan done, but he was diagnosed with plagio and tort. We have done repostioning and it has seemed to help a little but it is still flat. We go back this Friday to find out. As far as the time limit for the band or helmet, I'm not exactly sure. There is a web site -Cranialtech.com - that might help you about questions re: the band. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 In a message dated 6/8/00 7:42:18 AM Pacific Daylight Time, chriseames@... writes: << I tried to make an appt with a pediatric neuro. today, but he can't get in until Aug at which point he'll be 9 months. Is that too late for him to get a band or helmet? Thanks for your help! >> Hi, I thought I'd chime in here...first if the CT scan showed the sutures line open, there probably isn't a need for the neuro to be the one to prescribe a helmet or band. It would be good to see one, but don't let that slow down you starting this therapy. August is a long time to wait (in " Mom " time that is:)!). Yes, you could start either at 9 months, but if you want to a band or helmet, then early is better for both. Your ped should be able to rx the band or helmet. Is there another neuro you can get in with? Just my two cents! Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 > but he can't get in until Aug at which point he'll be 9 months. Is that too late for him to get a band or helmet? Hi--my son is 9 1/2 mos. and just got his band a week ago--it's not too late! Wendi ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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