Re: Question

[Guest guest]

we were suspicious with hannah at around 3, we could see she was quiet, but we

didnt take much notice of that, she smiled alot, and loved cuddles, didn't crawl

though, slid on her bum, not that this means anything i dont think. when she

went to pre-school, thats when we really began to notice as she would hide in

cupboards away from other kids, and didnt like change in routine.............we

wouldnt accept she was autistic at first, and i think it took me a good 2 years

to accept it.

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: robindeutsch@...

Date: Thu, 19 Feb 2009 04:01:35 +0000

Subject: Question

When did you first know that your child was autistic? I knew Marcy was

autistic by the time she was around a year old. This was 20 years ago

when not much was known about autism. With Marcy she would stiffen

when cuddled, she wouldn't make eye contact, she was always late

reaching the normal milestones and any change would cause her to

scream and scream. Of course the doctors thought I was crazy when I

first mentioned it. It wasn't until Marcy's pre-school teacher wrote a

letter to our doctor concerned about Marcy's development. (She was

kicked out of 4 other pre-schools and we were very lucky to have found

a pre-school teacher who once taught in special ed classes)

Marcy was first diagnosed when she was 5 and she was diagnosed as

moderate high functioning autism.

Sorry I have been away from the boards for over a week. I just had

back surgery and I was laid up for awhile. We had a caregiver taking

care of Marcy while I was in the hospital.

I was also going to ask if any of you have a child that is also

suffering from another mental health disorder such as bipolar or

schizophrenia besides their autism? If you do, do the medicines work

like they should?

Marcy also has schizoeffective disorder and the meds don't work as

well as they should. She develops all the bad side effects or they

work for a short time and then they just stop working.

Robin

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[Guest guest]

I to noted that all of the children were of different in different

ways from other kids early on but did not know it was from autism at

the time. Isaiah was of a screamer baby for the first 8-9 months and

then went to being of a very passive sort of child unless he was

being of dropped off to a nursery class for church or some strange

place and then he screamed and clinged much so to my clothings and

body refusing to go into any place and be of left there. he was in

early intervention and preschool settings for delays and suspect of

autism by the team there but even still had no clue to it and never

investigated it because did not know of how. He seemed of normal to

me but the family history of me is of so full of spectrum issues not

just with immediate family people but even of my own cousins and

such. so this odd development seemed normal to me. But he was of the

first to have of suspect of it, even in the early intervention he

never spoke even though he could, he did not engage and not had any

eye contact and if one moved to hims space he moved out of the

space.....

My oldest child seemed just extra smart much like if her daughter.

never suspected of anythings with her except she struggled to make

and maintain of friends because she was of bossy ( but later I to

understood she needed control of how things should go because of her

aspergers issues and could not handle it well if others led of the

play because then she was of lost of how to connect) she was of very

hyper at times and a bouncy chatty sort of child. she always strugges

with internal and external disorganizations. so she was of only

suspected of spectrum issues by me around of the age of 10 or

so....it was once the younger siblings were of dx and had of then

access to a computer and learned of the autism that I to knew but did

not pursue of a official dx of her until she began of to struggle in

the middle school and she was under sped then, but in high school we

finally took of her to a speicalist to get of teh opinion of the

psychiatrist and he did dx of her aspergers, adhd and anxiety,

depression and OCD.

My mikey was of different much so and very much a challenge from me

from age of 3 weeks, He was of stiff and screamed non stop, he would

not nurse or take a bottle or eat of baby food, hated any sort of

touch except to lay skin to skin no fabrics or clothing touching of

hims body , he had of that loud scream cry that indicates of pain,

many told of me this. He had of failure to thrive and such and was of

going to much much medical places to find the cause of the odd

language and behaviors and failure to thrive, the profound diarhea

and the huge weight loss which dropped of him off the charts not

gradually but a huge straight drop. No one was of giving us answers

until he was of almost age of 4 when we seen of a developmental

pediatrician. he was the one who mentioned of him being of PDD. it

was of a long battle for us to get of the offical dx for him because

of the lack of knowings in our areas and not much experiences and

exposures to aspergers at that time it was of 1994-5 ish.

Missy was of born with much much issues and was of not expected of to

survive the first 24 hours after of her birth but she did survive

and , I to noted things much early one with her but felt of it to be

of due to birth complications and she was of in early intervention

from age of around 8-10 weeks of age on until preschool years. she

was of then officially dx of autism at the age of 20-22 months of

age. But i to suspected of something being of much different about

her from age of 3 months on...

so yeas knew things were of different but similar to me and so felt

it normal for me but it was when I to observed other kids that caused

me to see this huge difference and much people pointed out things to

me and I to be of just be of polite and listened but did not worry

over their words because I to be of know was of different all of life

and so felt the kids were of different because of me being so

different.. but it was because of them that the true dx of self came

after years and much years of wrong dx of me.

sondra