Re: Question

[Guest guest]

All 'veggies' are carbs ans some you can eat more of (like saalads)

and some you can eat less of (like 1/2 potato) so you need to know on

some things what the carb contents are of certain foods to add

variety and know that you are eating correctly when making good

choices ~ use an online nutrition list like this one that has over

1000 common foods broken down into calories, proteins, carbs & fats:

http://www.ntwrks.com/~mikev/chart1a.htm

Or this USDA database of foods at: http://www.nutri-facts.com/main.asp

The problem with the palm/fist method is that in reality it doesnt

tell you WHAT you are eating and altho it may work for some people

some of the time, its really a matter of educating yourself as to the

nutritional contents of the foods you are choosing.

<<joni>>

*eat like a horse - look like a thoroughbred* ;-)

> Hey everyone,

>

> I have a question about the vegetable you get to add to two of your

> meals. When I add a salad does it have to be the size of my fist or

> can it be bigger. Does the veggie size matter???

>

> Today is actually my free day but it kinda freaks me out to not eat

> the bfl way, I am scared any progress I have made this past week

will

> be erased. Crazy I know but still its in the back of my head. I

> survived all the cardio and weight training thus far although have

> been very sore. Thanks to all the vets for your help.

>

>

[Guest guest]

I totally disagree Lana .. and we *are* allowed to disagree on this

board eh? ...I think that too many people quit in their first

challenges not from brain info overload but from grasping at straws

for info when they feel the program isnt working for them AND the

only way it is going to work for them in the shortterm & longterm is

to educate themselves in nutrition ~ knowledge IS a good thing!! If

you think that 'newbies' knowing the truth that there are only three

food groups (protein, carbs & fats)is 'too advanced' for them to

comprehend then you are first & foremost underestimating the readers

of this board & how people thirst for knowledge when handed an ideal

program like BFL!! You may be in the 'kiss' group of teaching the

principles of BFL (keeping it strictly simple) but any 'newbie'

deserves as much info that this board can supply them with

without 'sheltering' them from what you deem 'advanced' info and is

really contradictory to the main basis of this board, and that is to

educate people to the basic TRUTHs in the Body For Life program ~ BFL

is a lifestyle not a 'diet for 12 weeks' & without learning beyond

the book, the basic nutritional FACTS for #$@! sake, they are just

following a book, making it into yet another 'diet' to follow

blindly...sure I have known many people who did '12 weeks by the

book' with great results & advanced to a better fitness lifestyle,

but I know just as many if not more who did their '12 week stint'

only to gain it all back plus because they followed the book as

a 'diet' & not a lifestyle change..BFL is the key but knowledge is

the open door!

<<joni>>

*One of the great things about BFL is that I finally KNOW the real

secret. The real truth. And boy does it feel great to know I never

have to grab that supermarket tabloid & read articles about the next

best fad diet because 'the truth is out there ~ its called

BodyForLife'*

> Joni...

>

> We don't like to confuse newbies here tho. We want them to follow

the book

> to the T for at least the first challenge. Too much information is

> confusing and makes them quit, which is the exact opposite of what

we are

> trying to achieve.

>

> When we post things that are " advanced " then we usually post that

it's not

> for newbies.

>

> Your post about veggies as " carbs " is not for newbies.

> Lana

>

[Guest guest]

Just a little closed minded there arent we Lana? Since when is

knowing that there are proteins, carbs & fats considered 'advanced

nutrition'?

And btw why are you checking & posting my IP address in the previous

threadpost before this one?? If you want to know who I am you can

just email me its public in my yahoo profile you dont need to look up

my IP address..

<<joni>>

*when someone doesnt even read your post & 'dismisses' you its a

nice 'warm fuzzy' welcome isnt it?*

> Joni...

>

> Sorry.. I didn't even read all that.

>

> This is a BFL board.. and we preach bfl for the first challenge.

Then they

> can start " educating " themselves on more advanced versions of

nutrition.

> They will be successful without having to do all the math.

>

> End of discussion

> Lana

[Guest guest]

Date: Sun, 07 Apr 2002 08:25:12 -0000

Subject: Re: question

Just a little closed minded there arent we Lana? Since

when is

knowing that there are proteins, carbs & fats

considered 'advanced

nutrition'?

And btw why are you checking & posting my IP address

in the previous

threadpost before this one?? If you want to know who I

am you can

just email me its public in my yahoo profile you dont

need to look up

my IP address..

<<joni>>

*when someone doesnt even read your post & 'dismisses'

you its a

nice 'warm fuzzy' welcome isnt it?*

__________________

Unless someone brought it up already, there is some

waste of life, disapointment of a man who, for the

past few weeks, would keep joining this list just to

start trouble. An example would be joining up, saying,

" I'm having trouble sticking with the program. " People

would encourage him saying, " Don't give up, you can do

it. " He'd then reply saying stuff like, " Screw you,

don't talk to me like that. " She's probably seeing you

as the same person.

To come to the aid of lana in this discussion, there

is a LOT of info out there on foods that will confuse

the hell out of someone new to the relm of nutrition.

Like carbs for example. " Oh gee, I thought carbs made

you fat like Dr. Atkins said, but in this magazine I

read, it says you need them. Who do I believe? I don't

want to get fat again. I don't get it. " Just for a

side note I have a friend who is a friend of Dr.

Atkins and she and I both agree that he doesn't get

specific at to which carbs are good for you. Which is

another thing. There's the simple, and compound, which

are better for you? Which are best to take after a

workout. The glycemic index of the carbs still

confuses me a bit, and I've been paying attention to

nutrition for 2 years. Then there is the fats, poly,

mono, and regular saturated fats? Which are good?

Which are bad? Some of these fats actually have good

cholesterol?

It's confusing stuff like that which makes most of us

say, " Don't worry about it right now. " All someone

really needs to worry about is to make a calorie

defecit. Make sure you burn more calories than you

take in, and your weight loss can be achieved. All the

extra stuff like the specifics on types of carbs and

fats should only be addressed, in my opinion, if

you're looking to get cut down to as little as 3-5%

bodyfat, and I guarantee you 99% of the people on here

aren't interested in going down that far.

Matt

=====

I strive for the impossible, to be the best possible. - King Kamali

There is nothing I cannot accomplish, nothing that can ever be denied me! -

Norman Osborne aka The Green Goblin

__________________________________________________

[Guest guest]

Date: Sat, 06 Apr 2002 17:53:26 -0000

Subject: question

Hey everyone,

Today is actually my free day but it kinda freaks me

out to not eat

the bfl way, I am scared any progress I have made this

past week will

be erased. Crazy I know but still its in the back of

my head. I

survived all the cardio and weight training thus far

although have

been very sore. Thanks to all the vets for your help.

__________________

Blah, baby. Seriously though, don't whig about free

day, it's your reward day for eating so well. It's

purpose is to " shock the system " so it doesn't get use

to eating clean all the time because if that's all you

do, you'll plateau. YOu don't HAVE to eat crap for the

whole day. YOu can probably just eat MORE of what you

usually eat and that should work fine too.

I lost 18lbs my first challenge and ate half crap/half

supersized meals. Since you're a woman, take a look

at a lady on here sandra. I believe she said she took

FULL advantage of free day and check out her hotty hot

hot pictures. Sure you may gain a little weight on

free day but within 48 hours, it's gone again.

Matt

=====

I strive for the impossible, to be the best possible. - King Kamali

There is nothing I cannot accomplish, nothing that can ever be denied me! -

Norman Osborne aka The Green Goblin

__________________________________________________

[Guest guest]

Wow Joni! Back up girl!!! MEOW! ^..^ I DO NOT want to be part of any

sort of argument, but ive been on this board close to a year now and

have seen how things run and I think thats where Lana is coming from.

One of the main things we have been concentrating on is BFL BY THE

BOOK for the first challenge. THEN seeking out tweaks (like dietpower

or split routines, etc.)

I do, however, know what you are saying - I THINK the point you were

trying to make is that knowledge is power and that you can never have

too much information on a subject. Am I correct?? And I do agree with

you. Your response would have been perfectly acceptable to me, Lana,

Brett, Jen B or any of the " vets " here... with a note on top that its

a little more advanced than whats in the BFL book... anyone can read

it and use the info as they like, though. Do you know where Im coming

from?

Lets not get in the business of fighting on this group, i just cant

handle that. I NEED my BFL group.. you guys keep me on track when I

just dont want to be! LOL So lets agree to disagree, but understand

why things are done a certain way! Not to spite anyone, just to (like

you said) " keep it simple silly " for the first challenge, ya know??

I welcome your comments.

Amy in FL

> > Joni...

> >

> > Sorry.. I didn't even read all that.

> >

> > This is a BFL board.. and we preach bfl for the first challenge.

> Then they

> > can start " educating " themselves on more advanced versions of

> nutrition.

> > They will be successful without having to do all the math.

> >

> > End of discussion

> > Lana

[Guest guest]

I appreciate your constructive remarks and I am certainly not looking

for any arguement here I merely stated that ALL vegetables are a carb

and got my toes bitten off like I was a heretic or something for

saying so! I quite agree that people should 'do

the book' the first challenge (and I encourage people to do just that)

BUT if they ask you if they can have a 'portion' of LETTUCE and are

confused as to the fist/palm method when it comes to a carbsveggies

value, or thinks Bill made a fourth food group called 'veggies' that

you can eat as much as you want, or if they think they can ONLY eat

whats on the 'authorized'list in the book(which is one reason many

people quit too early from restricting themselves too much) then

certainly they need some food guidance and helping someone to make

good choices & to do well on their program is what its all about! I

certainly don't think that BASIC nutritional info is anywhere

near 'tweaking', it only serves to 'fill in' areas that Bill did not

address because he thought most people already knew them

I have posted regularly on the BFL Womens board & USA board for oh

about two-three years (and have been told I am a wealth of info) so I

am not your problemfoulmothed posterperson..but I did not appreciate

my IP address being included in a post! You will find that I strive

for correct info, links to back me up and encourage people to do

their very best in making BFL a lifestyle to keep themselves healthy

& fit

<<joni>>

*Building muscle is a long-term solution to being overly fat* ~ Bill

[Guest guest]

I think that some vegetables don't need to be counted since there

effect is negative. Celery is one that comes to mind, but I don't

know about lettuce.

Remember that Bill P. says to eat whatever you want on your free

day. You probably won't want to do that on every meal, but try to

relax and eat what you want for a day. Free day reminds your body

that you aren't starving it so that it doesn't try to conserve

calories on other days by slowing down your metabolism.

Andyman

> Hey everyone,

>

> I have a question about the vegetable you get to add to two of your

> meals. When I add a salad does it have to be the size of my fist or

> can it be bigger. Does the veggie size matter???

>

> Today is actually my free day but it kinda freaks me out to not eat

> the bfl way, I am scared any progress I have made this past week

will

> be erased. Crazy I know but still its in the back of my head. I

> survived all the cardio and weight training thus far although have

> been very sore. Thanks to all the vets for your help.

>

>

[Guest guest]

This still doesn't change the falsehood that all vegetables are

carbs. If we are following the BFL book, then we have an authorized

list of foods, Protein, Carbs, and Vegetables. Many vegetables are

so low in carbs that they are called vegetables for purposes of BFL

and you don't need to worry about the carbs that they contain.

For example suppose that I choose a snow peas as a vegetable. 3/4

cup of snow peas has only 7 carbs. The net effect of those carbs is

probably zero. Even if they aren't I still need to choose a carb for

my meal. That could be pasta or even one of those mini ears of corn

on the cob which contains 18 carbs. Corn contains a lot of carbs so

for purposes of BFL we can consider it a carb.

The idea is to make carbs equal to protein. If we follow the logic

that all vegetables are carbs, then if we eat a portion of a low carb

vegetable and a portion of protein, our carbs and protein will not be

nearly equal.

That is why newbies should just follow the authorized food list. You

don't actually need to count these things (at least not every day).

Andyman

> > Joni...

> >

> > We don't like to confuse newbies here tho. We want them to

follow

> the book

> > to the T for at least the first challenge. Too much information

is

> > confusing and makes them quit, which is the exact opposite of

what

> we are

> > trying to achieve.

> >

> > When we post things that are " advanced " then we usually post that

> it's not

> > for newbies.

> >

> > Your post about veggies as " carbs " is not for newbies.

> > Lana

> >

[Guest guest]

Hi ,

I hope you survived your Free Day without any panic attacks, LOL. I

am only teasing, but Andyman is right, you should relax and enjoy

your Free Day. It's a great mental break as well as physical break

from the program.

As far as veggies go, you should eat a generous portion of low-carb

veggies at least twice per day. That means that you can have a heap

of salad greens, just make certain you are not putting high-calorie

dressing on it.

I really recommend that you not try to figure out carb counts and

nutritional breakdowns during your first challenge. Keep it simple

with the fist/palm method for measuring carbs and proteins. Veggies

can be *almost* unlimited as long as you stick to the green ones.

That's a generalization, but most " unlimited veggies " are green and

ones that often count as carbs are orange (yams, pumpkin) or white

(potatoes) or yellow (summer squash, corn).

Jen B.

C7W2D1

" No excuses! "

> Hey everyone,

>

> I have a question about the vegetable you get to add to two of your

> meals. When I add a salad does it have to be the size of my fist or

> can it be bigger. Does the veggie size matter???

>

> Today is actually my free day but it kinda freaks me out to not eat

> the bfl way, I am scared any progress I have made this past week

will

> be erased. Crazy I know but still its in the back of my head. I

> survived all the cardio and weight training thus far although have

> been very sore. Thanks to all the vets for your help.

>

>

[Guest guest]

Hi Barbara, i'm and welcome to the group.

My grandad was the one with LBD and he experienced problems with Madopar(for

parkinsons), if i remember right Sally(in Kent, England) her similar problems

with her dad Colin, he was on Madopar too and had much the same problems as my

grandad.

They also both took Seroquel (Quetiapine) and this doesn't go very well with

anti-parkinson drugs either, they counter-act each other so either the

hallucinations become worse and the parkinson symptoms ease or vice-versa.

I'm sorry if this is a bit off putting, on the up side the people in this group

have a vast wealth of knowledge about LBD and we're always glad to try and help

even if it's just to come here and vent your frustrations.

Stick with us as more of the group will speak to you and hopefully give you some

advice.

.x

Question

HI,

My father has been diagnosed with Parkinson's, but our family feels that his

symptoms match Lewy Body Dementia exactly. First he had visual hallucinations,

and confusion. He has a " bent over " posture and short walking steps. He is on

Stalevo for Parkinson's. I have read that some Parkinson's medication can

actually make LBD worse. Do any of you have any experience with this medication

and LBD? I have given the doctor written reports indicating why I feel it is

LBD, but it was pretty much ignored. My poor mom is the care taker and at 67

feels like her life is over!

Any help, advice, suggestions would be appreciated so much! I live in NC

and they are retired in Arizona, so I just don't know what to do.

Thanks!

Barbara

[Guest guest]

Hi Barbara, I am so sorry to hear about your dad. I understand your

frustration at not being listened to by the doctors. It is so

annoying, and potentially harmful.

It was here that I learned about how some medications for Parkinsons

and Alzhiemers can make LBD worse. You are so right to be concerned.

All I can suggest is you stick to your guns and learn all you can to

arm yourself with info to take to the doc.

This is the best place to find what you need.

All the best, thinking of you,

.

[Guest guest]

Wow - it sure sounds like Lewy Body Disease. What area are you in?

Maybe one of us could refer you to a doctor that is familiar with

the disease. That made a huge difference for us. Our family Dr

referred us to a neurologist the minute the hallucinations started.

He did more tests and diagnosed very quickly. With that came

medications. Seroquel at a low dose initially helped with the

hallucinations. We've had to increase it several times because the

disease keeps breaking thru but it continues to make a huge

difference. At some point, the Dr introduced Sinemet very very

gradually and that helped with the physical Parkinson's symptoms.

We're at a different worse place now which I'll save for another e-

mail but we stretched it out for a year with good success and

gradual decline.

SEPJ

> HI,

> My father has been diagnosed with Parkinson's, but our family

feels that his symptoms match Lewy Body Dementia exactly. First he

had visual hallucinations, and confusion. He has a " bent over "

posture and short walking steps. He is on Stalevo for Parkinson's.

I have read that some Parkinson's medication can actually make LBD

worse. Do any of you have any experience with this medication and

LBD? I have given the doctor written reports indicating why I feel

it is LBD, but it was pretty much ignored. My poor mom is the care

taker and at 67 feels like her life is over!

> Any help, advice, suggestions would be appreciated so much! I

live in NC and they are retired in Arizona, so I just don't know

what to do.

>

> Thanks!

> Barbara

>

>

[Guest guest]

Hi Barbara,

There is some very good literature that you could download and give to your

father's doctor so that he could see in black and white that LBD may in fact

be what your father has.

Perhaps you and your siblings will want to start talking about in-home care

for you dad and relief for your mom. Also, theirs the Power of Attorney

stuff to do. You may even want to start talking about NH or LTC facilities.

I know this seems overwhelming and while LBD has a faster progression rate

you will have time enough to do these things. Give yourselves a few weeks

to digest and you'll all be ready for what's ahead.

Hold every good moment close to your heart and roll with the LBD punches.

Courage

Question

>HI,

> My father has been diagnosed with Parkinson's, but our family feels that

his symptoms match Lewy Body Dementia exactly. First he had visual

hallucinations, and confusion. He has a " bent over " posture and short

walking steps. He is on Stalevo for Parkinson's. I have read that some

Parkinson's medication can actually make LBD worse. Do any of you have any

experience with this medication and LBD? I have given the doctor written

reports indicating why I feel it is LBD, but it was pretty much ignored. My

poor mom is the care taker and at 67 feels like her life is over!

> Any help, advice, suggestions would be appreciated so much! I live in NC

and they are retired in Arizona, so I just don't know what to do.

>

>Thanks!

>Barbara

>

>

[Guest guest]

Barbara,

I am in the Phoenix area. My father passed in February. His

neurologist was familiar with LBD and his assistant was invaluable in

getting dad the services he needed. The Mayo clinic here was also

very helpful in recommending resources. If you have not done so

already, your mom should also talk with an eldercare attorney. If you

need a reference, please let me know.

If you want, I can get in touch with my dad's neuro and get a

reference for the Sun City side of town. If you want further info or

need to speak with me you can call the LBDA help line (see web site

lewybodydementia.org) and leave your number...and a message about the

Phoenix area. I will be happy to call you back...or you can email me

directly.

I wish you well....doing this long distance makes it even harder.

Best,

Lynn

> HI,

> My father has been diagnosed with Parkinson's, but our family

feels that his symptoms match Lewy Body Dementia exactly. First he

had visual hallucinations, and confusion. He has a " bent over "

posture and short walking steps. He is on Stalevo for Parkinson's.

I have read that some Parkinson's medication can actually make LBD

worse. Do any of you have any experience with this medication and

LBD? I have given the doctor written reports indicating why I feel

it is LBD, but it was pretty much ignored. My poor mom is the care

taker and at 67 feels like her life is over!

> Any help, advice, suggestions would be appreciated so much! I

live in NC and they are retired in Arizona, so I just don't know what

to do.

>

> Thanks!

> Barbara

>

>

[Guest guest]

barbara,

mayo clinic has a big hospital type complex in phoenix/scottsdale area, they

do alot of research on lbd patients, you may want ot have your mom call them

and see if she can get your father in,

sharon m florida

a smile a day keeps the meanies away!!!

[Guest guest]

Dargie

Welcome to my world. My Mom also has all nighters. They put her on

Resperdol to get rid of her people and make her sleep. Most of the time it

works but

some nights she is up all night. I believe Benadryl is a no no med. My Mom

loves hot chocolate and tea, so one or the other seems to help. She also likes

crackers which seems to help with the hunger. Also I sit on her bed and rub

her legs or hold her hand and have her close her eyes and think of good times

when she was little. They seem to have very good memories of their childhood.

I don't know if any of these will help with your Mom but hope so.

I had to get up because of my dog tonight and thought I would read my e mails

while waiting for her to do her business. I saw you post and my heart goes

out to you all.

Some of the group were talking about the excessive hunger and that they leave

snacks by their LO's bed but with your LO having diabetes that doesn't seem

like a possibility. They think it is one of the meds that causes the hunger.

Good Luck and Hugs to you and yours.

Jacqui

[Guest guest]

dargie be careful, benadryl has been one of those bad drugs for many of our

loved ones. dad takes zoloft and theat helps his depression and also sleep at

night. this may be something you need to discuss with your cdoctor, the

boomerang you are talking about is common with lbd, so you aren not alone. we

know

what you are going thru.

dad eats alot, i am not sure if it is beacuse he is hugry or just bored as he

doesnt do aythng at all i keep a basket of goodies by his bed, he doesnt

like fruit, so i keep individaul(kids lunch snack packs) of ritz bitz crackers,

chips, cookes, crackers, whatever i can find, i used to put nuts too, but he

now gets choked on nuts, so no more nuts. dad is not diabetic so i can give

him alot types of snacks so i try to keep a variety there for him, and fill it

up every othere day or so.

i hope this helps spome, hugs, sharon m

a smile a day keeps the meanies away!!!

laughter is a breath of fresh air!

[Guest guest]

Dargie asked:

Does anyone have any thoughts about something that'll knock my mother out so

she -- and we

can get some much-needed sleep at night?

******************

Well this response will be " after the fact " , so to speak, but I know many

people who have wonderful results using Melatonin. It worked for a few

times with my mom (although she does not often have problems sleeping) and

then did not. Still, I know it has worked wonders for others.

Benadryl is supposedly bad for someone with dementia, particularly if the

person is on Aricept, Exelon or Reminyl. Those are cholinergic drugs and

Benadryl is anti-cholinergic.

carol

[Guest guest]

Hello Dargie,

I was first time struck with that massive appetite last week. I hope

my memory serves me right anyway It returned to normal and has been

bouncing around a bit since that time, but nothing like it was there

for 3 days. It was almost painful I was so hungary. It was horrid. I

have for the past few years having to force myself to eat most of the

time. I could very much afford to lose weight and not gain. They tell

me here that the appetite seems to be a part of this and not to worry

about it. The more I weigh though the more uncomfortable I seem to be

so I pray that I do not gain and wish I could continue to lose, but

they talk like weight loss will be inevitable in the end. I whished I

could tell you where it comes from or even give you some insight, but

I can't unless it is medication....Hugs...Patti

> We're in the middle of another all-nighter, apparently. Does

anyone have

> any thoughts about something that'll knock my mother out so she --

and we

> -- can get some much-needed sleep at night? Most things

> boomerang. Benadryl usually works, but not tonight, apparently.

> And where the heck is this massive appetite coming from?

She's hungry ALL

> the time and it's not the diabetes as far as I can tell. Has

anyone else

> seen this happen?

> dargie

[Guest guest]

Hi Dargie, mum goes on eating binges where she doesn't feel filled up

at all. Then it goes back to normal, or she loses her apetite and has

to make herself eat. It is up and down sometimes and the best we have

found is to wait til each phase has passed and she will be eating

more normally.

As for sleeping, Serequel is good for mum, BUT, even though she says

she sleeps through the night, she will tell me that the voices keep

her up all night. We have not had any reports from the staff saying

that she has been waking up her neighbours (she is in assisted living

with 24 hour nursing care) in the night with her yelling, but you

just never know. For a fact, on the days she is really really tired,

she seems to have had a bad night before (dreams, hallucinations,

voices etc.) She will swear by hot milk to soothe her and help her

drift off.

I hope things settle down for your mum soon.

[Guest guest]

I would ask the doctor. There are meds that they can give to help them

sleep. You do have to be careful about the drugs you give them.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: Question

>Date: Sun, 12 Sep 2004 10:22:12 -0700

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>

>Dargie asked:

>

>Does anyone have any thoughts about something that'll knock my mother out

>so

>she -- and we

>can get some much-needed sleep at night?

>

>******************

>

>Well this response will be " after the fact " , so to speak, but I know many

>people who have wonderful results using Melatonin. It worked for a few

>times with my mom (although she does not often have problems sleeping) and

>then did not. Still, I know it has worked wonders for others.

>

>Benadryl is supposedly bad for someone with dementia, particularly if the

>person is on Aricept, Exelon or Reminyl. Those are cholinergic drugs and

>Benadryl is anti-cholinergic.

>

>carol

>

>

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[Guest guest]

Hi Dargie,

My mom was given Trazodone for sleep. It was helpful and we didn't

notice any side effects, except a little excess drowsiness when she

first woke up. It was (and I think still is) one of the prefered

sleep aids for LBD. I recall a couple people having posted that it

didn't work well for their LO (don't remember details), so as

everything else, use with caution.

Peggy

> We're in the middle of another all-nighter, apparently. Does

anyone have

> any thoughts about something that'll knock my mother out so she --

and we

> -- can get some much-needed sleep at night? Most things

> boomerang. Benadryl usually works, but not tonight, apparently.

> And where the heck is this massive appetite coming from? She's

hungry ALL

> the time and it's not the diabetes as far as I can tell. Has anyone

else

> seen this happen?

> dargie

[Guest guest]

Thanks, Peggy. I'll check the old messages and see if I can't

find the one you remember. I tried melatonin last night and it seemed to

work until about 5 or so, when my dad said she woke up and started talking,

but then he's not reliable either. He'll tell me she's been awake for

hours when it's been twenty minutes. I do know they were both sound asleep

when I got up this morning at 9.

d.

At 11:04 AM 9/18/2004, you wrote:

>Hi Dargie,

>

>My mom was given Trazodone for sleep. It was helpful and we didn't

>notice any side effects, except a little excess drowsiness when she

>first woke up. It was (and I think still is) one of the prefered

>sleep aids for LBD. I recall a couple people having posted that it

>didn't work well for their LO (don't remember details), so as

>everything else, use with caution.

>

>Peggy

>

>

>

>

> > We're in the middle of another all-nighter, apparently. Does

>anyone have

> > any thoughts about something that'll knock my mother out so she --

>and we

> > -- can get some much-needed sleep at night? Most things

> > boomerang. Benadryl usually works, but not tonight, apparently.

> > And where the heck is this massive appetite coming from? She's

>hungry ALL

> > the time and it's not the diabetes as far as I can tell. Has anyone

>else

> > seen this happen?

> > dargie

>

>

>

>Welcome to LBDcaregivers.

>

>

>

>

>

[Guest guest]

Hi Deb,

Thanks, I am slowly healing. I wouldn't be so bad if it weren't for

the muscle spasms that are taking a lot out of me.

Marcy had all her shots. I remember when she was around 6 weeks old

how she would look at me and smile and laugh. I don't know if it had

anything to do with the shots or not but as she got older those things

seemed to stop. 20 years ago there was no internet, there was nothing

really. Even the doctors didn't seem to know much about autism.

Marcy was a very good baby, she had an 8 hour sleeping period right

from the start and by the time she was 3 weeks old she was sleeping

through the night. She would always scream whenever you would put her

down to sleep but once she fell asleep she would rarely wake up crying.

I would try walking with her or rocking with her but unless you held

her a certain way or walked a certain way she would always cry.

As she got older wherever you put her she would stay, so unlike my

second child, who was ADHD. She never tried to climb out of her

crib, whereas was jumping out of it before he turned a year.

Marcy was a late walker. She would never do anything unless she could

do it perfect. She would cruise along holding onto the furniture for a

long time, finally she let go and just started to walk. The same thing

went for potty training. She wore her diaper until she was almost 5.

Then she took it off and she never had an accident. I remember her

saying " Don't need. " and that was the end of diapers for her.

Was Allie overly cautious? Marcy was, she never had a skinned knee.

Marcy was also very sensitive to sounds and she still is. She hates

when the phone suddenly rings or the door bell rings.

I am so glad that people are more informed about autism today and they

are identifying it sooner, which helps so much. Back when Marcy was

first diagnosed her doctors only knew autism in the most severe form.

It was very difficult trying to get them to do anything.

I am so glad that despite the lack of all the info back when Marcy was

growing up that she has come so far. She really is remarkable.

Robin

>

> Robin, so sorry about your surgery. I hope you make a speedy recovery.

>

> I scanned the word autism for the first time at 10 mos, after Allie

> regressed from a hep B shot. But she was too young for anything to

> meet at that time, in 2000 there still wasn't a lot about infants with

> autism. Allie was an affectionate baby with certain people. Her big

> sister, me, her Uncle Mack, and her Great Granny . Everyone

> else she didn't seem to care for. She was a good baby. Not unusually

> good for my babies as her big sister was about the best baby a person

> could ever want. She also had appropriate babble until 9 mos, had 3

> different babbles " baba " for breast/bottle, " tata " for ticklebug a

> game we played, and " dada " for her Daddy. She pulled up about 2 wks

> before her regression.

>

> She was more quiet and a little later reaching milestones than big

> sis, but still within normal ranges. I didn't feel her moving near as

> much as big sister. But, big sis's cord was wrapped around her neck

> twice at birth, I wonder now if perhaps all her moving was because she

> was tangled. Big sis is perfectly normal.

>

> My youngest, Dinah, her development was almost identical to Allie,

> except Dinah was a very fussy baby. Very head strong. The slightest

> language delay. Sometimes I wonder if Dinah may be a tad shadow

> syndrome. She never got any shots, I have always wondered if they

> share the same underlying thing but Dinah didn't get autism because of

> my refusing to immunize her. I still worry if she got a shot even at

> age 6 it would do something to her. I can't really explain it, it's a

> fear that I cannot shake. Now my oldest, she had a MMR reaction, but

> got over it fine. I am thinking about getting her a rubella though. I

> haven't figured out what to do.

>

> Back to Allie, after her regression she became what people describe --

> too good. Would lay on her back all day & not complain. Would sit &

> play with those little ring toss things for hours. I constantly would

> ask her MDO teachers if they thought something was wrong. They were so

> happy that she was no bother they thought I was nuts. Teachers must

> like trouble-free kids!

>

> We had her diagnosis at 23 months old of autism spectrum disorder.

>

> Debi

>

> -

>