Re: Update/give her this

[Guest guest]

> > > > Hello everyone, I am now at week 6 of using LDN 4.5, my

CFS

> > has

> > > > nearly vanished, and is no longer a major difference in my

life,

> > > > which is a big plus for me. As well as my fibro is much

less

> > > > noticable, and joint pain much improved. As well as the

major

> > hair

> > > > loss I had going on has stopped, and sores from the sun

healed.

> > I

> > > > feel LDN has either slowed, halted my progression as well as

> > helped

> > > > my bad flare go away. I have Lupus SlE, and kidney

involvement,

> > no

> > > > more kidney problems at all now. I am also taking many

> > supplements

> > > > as well as glyconutrients(homemade version). But I want to

> > thank

> > > > you all for this wonderful site and all the information

provided

> > > > here. I am doing the Liquid LDN, and have also on a few

> > ocassions

> > > > tried it during the morning, felt like drinking a bottle of

Jolt

> > if

> > > > you know what I mean. Very increased energy on those days.

> > > >

> > > > Thank you again, and I would love to hear from other Lupies

> > that

> > > > are using LDN and what they have experienced.

> > > >

> > > > Sincerely,

> > > >

> > > > Betty

> > > ========

> > >

> Betty,

>

> Carla has Lupus SLE and it is very bad...liver problems and all.

She has no access to the internet...teenage girl at home so she

refuses to have the internet. Carla knows how well I have done on

LDN for my MS but she is so afraid of hurting her relationship with

her Rheumatologist(he refused her the trial of LDN) by going behind

his back and getting LDN. Some doctors have their patients

brainwashed that the patient cannot survive without that doctor's

advice.

>

> I will copy all your info and snail mail it to Carla.

>

>

print this out and give this to her ,

My mother of 85 now has just been dx with severe kidney failure and

will not live this year. We would never have known had she not had

what we thought was heat exhaustion, they sent her to a nephrologist

who said it had been going on for at least twenty years. She

changed GPs and signed the release to have medical records forwarded

and the nephro and new GP only recieved 2 lab reports. So we then

went to the old gp office and paid for coppies, and were only given

lab reports also, but from looking at them, she had only half kidney

function in 1995, we are suing her doctor for malpractice now also

for severe neglegence. All doctors are not the same. I know with

SLE myself I was going down hill quickly. But with all the help

from the internet, I learned to take control and responsability for

my own life. She need to read as much as she can. And maybe find a

new doctor willing and open minded to her condition. As well as an

apt with a dietician is a good idea.

If it means getting better behind the docs back, I would be all for

it. I remember the old saying, " Nothing ventured, nothing gained "

I will put her in my prayers,

Sincerely,

Betty