Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 abby you wrote such a beuatiful letter, i have been part ofthis group since may/june 2004, and you are right it is family, so exciting and reaassuring to talk by post to people who really do understand what is going on . glad to hear taht the family is doing well and that the you are accepting the challenge of special education, i know that i the most trying class there is but can also be the most rewarding when you see the joy and the pleasure when they finally understand the concept. such a genuine joy they have ad share. i pray your dads mri with the brain tumor and scar tissue comes out well, and that also he doesnt have lbd. good luck and take care, sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Abby, How lovely to hear from you! Sounds like things are OK with you and yours. I wish you the very best! Keep us posted on what the neuro says about your Dad. He is in my thoughts. Peace, Lynn > > Hello gang; > > I have been away for some time but I haven't forgotten all of you and > how amazing you were to me just about a year ago when my father was > first d/x with LBD after his removal of a brain tumor. > > Firstly, let me say, thank you Janet and Sandie for the lovely e- > mails. I actually just found them yesterday but my house is in a > shambles because we're in the midst of having it painted so I > couldn't reply to you personally. It warmed the very depths of my > heart to hear you had been thinking of me. Honest and truly, you > don't know what that means to me. > > Sandie, I am going to send you a special e-mail really soon so that > we can catch up and you can give me the juicy details about all the > good things that are happening in your life. 's coming and > the distant wedding bells that I hear are coming along with him, have > me rejoicing right along with you. How happy am I for you both my > dear, dear friends!!! Happiness amidst all of this - who'd have > thunk that could happen???? > > My father is doing well and, as I said in my last post to you in > early September, hasn't manifested any cognitive confusion since mid- > May. As a matter of fact, the doctors at his nh now believe there is > a good chance he doesn't have LBD or Parkinsons. I have my > reservations however. While I'm willing to admit that perhaps when > they d/x my dad he was still suffering from the affects of his brain > surgery, I don't believe he has nothing other than bad arthritis and > that his physical stumbling has to do with scar tissue that is left > from his two brain surgeries. He goes in for another MRI tomorrow > and we're hoping against hope that he doesn't have another brain > tumor. If all goes well, we may even bring him home. He's now > spending every weekend at home and his nights are a bit more restful > but I think that if he does come home, we'll need help for he and my > mom who won't be able to tend to him herself. > > So, in a nutshell, we're waiting. He gets his results on Dec. 16th > and then we're going back to the neurologist to see if he believes my > dad doesn't in fact have LBD. If he doesn't, he should be taken off > the Aricept. > > I truly don't know what to think. I'm just waiting. It seems that > ever since this illness has entered my life, like all the rest of us, > I've been waiting to see what happens next. > > Insofar as my family and work is concerned, that's all fine. My boys > are loving school and my husband goes into to get his stomach scoped > to see if they can find any reason as to why he gets such bad stomach > upsets at times. We've been waiting for this procedure to get done > since September which only shows that the health care system here in > Canada is just about as pathetic as it is anywhere else in this world. > Work for me is fine too. I don't have the marking I did last year > when I was teaching English and brought home a pile of essays home > with me nearly every night, but I do teach Special Education students > who are either very weak or have behavioral issues like I've never > had to deal with before in my professional career. It's no wonder > really that they are so negative about school. I'm trying to stay > positive and focused. > > Well, that's about it. I haven't forgotten about you - I've just > been " away " for a while. > > Regardless, coming back here is like coming back home and it is nice > to talk to you again. I'll try to post from time to time but feel as > if I'm almost no longer able to since it turns out my dad may not > have LBD. Nevertheless, you all mean so much to me that I did want > to drop by and let you know what you mean to me. > > To all the newbies - welcome. Everyone here becomes a friend and you > come to care for them and their LOs in a way that's hard to explain > to people who aren't on this site. I'm sure you're already well on > your way to loving the heck out of this site. > > Love to all of you. Please know you still are in my prayers - honest- > and that I appreciate the place you have in my life and the support > you've given me throughout this year. > > Much love and big hugs, > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Hi Abby Welcome back. My prayer for you and your Dad is that he doesn't have another brain tumor or LBD. Wouldn't that be a wonderful Xmas present? Put you both in my prayers, Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Sharon; Thanks for the reply back. Of course I remember you and count you in as one of the friends I've made on this site. Thanks for the warm thoughts about both my career and, especially, my dad. As I mentioned, I'm hesitant to agree with all about my dad not having LBD. It would be a wonderful thing but I can't seem to get past all the really horrible symptoms he had up until May. I also find my dad is anxious when he's out of the nh - or actually that he's anxious to get back to the nh once Sunday night comes around. As much as he says he wants to come home, I can see that he now feels most comfortable at the nh. Thanks again for the lovely reply, Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Hello Lynn: Thanks for the warm welcome back and for the prayers on behalf of my father. He needs them just as much now as he did before. I don't know how I'll live through another surgery for him so I hope his brain tumor remains at bay. Love to you, Abby Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.