Re: New Member

[Guest guest]

Welcome Myrna ==

I " diagnosed " my dad after reading experiences on the

lewybodyjournal.com website. Rather than reading the main journal --

which is very long and in depth, I recommend reading the " other "

stories. They are shorter and give you a variety of peoples

experiences w/ their loved ones. I saw my Dad and our family over

and over and over again in those stories. It was so helpful to

finally understand what was going on.

Blessings,

Lori

> Welcome Myrna,

>

> If you go to the LBD page to get to caring spouses group, do stop

and read lots of the links and things. You can also go back and

read old messages if you go to the Yahoo site.

>

> Sorry you have to be here. You can request a brochure and also

read the news letter (1-3) and get some good insight. I do believe

if you find an appropiate Nero, you should be able to get a proper

diagnosis. The brochure will help you decide also and help you to

determine what is going on. As you will read from the experience of

many here, been there, done that. It will help you anticipate what

is coming and what you might be able to avoid.

>

> Keep reading and let us know you are there and what is happening.

Someone else has always been where you are.

>

> Let people know where you are located so you might find others who

are in your area and can be a real support. We are having our first

caregivers meeting in Florida in Sepember and I am sure Carol will

be updating everyone soon again. We are hoping to have more support

groups going in the near future.

>

> Donna R

>

> New Member

[Guest guest]

Welcome to the group Martha. Dr. Keshishian is the greatest and without him I

would not be walking around today. You are in good hands with Dr. Keshishian. My

prayer to you for a successful surgery and speedy recovery.

Sheryl

>

> Hello,

> I will be receiving a DS by Dr. Keshishian on August 29! I am so humbled and

> grateful. I am 5'8 " and 300 Lbs. I have no co-morbidities....yet but several

> family members do. It is just a matter of time without having the surgery.

> I will be a 1st time grandmother in October, and we have a 12 year old and 7

> year old at home (3 kids total).

>

> I know I'll need support from my fellow DS'rs. I'm glad to be able to come

here

> and learn!

> Move over on the losers bench.

> Martha

>