Re: What LDN actually does

[Guest guest]

All that LDN is supposed to do is Help Orchestrate Your Immune System.

If you have MS, you may notice some great changes as your immune system tries to normalize and work on some issues that it couldn't work on.

LDN for me also helped my SBO (spina bifida occulta, you're born with it), and shocked a podiatrist when I got a staph infection that reversed and retreated after two doses of levaquin (antibiotic).

Once you start taking LDN, your 'results' are based upon how your body is now, and what it can 'do' once it starts orchestrating properly.

JMHO of course

As for MRI's, I had one 1/03 on an Open machine, 3 months before starting LDN, and another 8/04, on a closed machine. The MRI was virtually identical except for one 7mm lesion not seen on the Open machine. So now I have a baseline closed, to compare to, I just don't know when I'll be able to get a follow up MRI.

[low dose naltrexone] What LDN actually does

To the group:

Unless I am mistaken, all that LDN is really supposed to do is stop the progression of MS, and perhaps reverse the last two or three months of new symptoms. Expecting great reductions in old symptoms may be expecting too much - a matter of good fortune, rather than anything else.

So even if you are not experiencing symptom relief, keeping up the LDN is still probably a good idea. We need more info re: MRIs taken before and after taking LDN. If we can generate a number of actual case histories where this has been true, this would seem to be pretty good proof that there is an actual cause/effect relationship, and not just coincidence.

I would therefore be interested in hearing from anyone who has had the before/after MRI experience.

TIA

Tom from Edmonton

_____________________________________________________________________ FREE Emoticons for your email! Click Here!

[Guest guest]

Hi all.

I have read the following story about some results from the Campath-1H

trials:

http://www.thisisms.com/modules.php?name=News & file=article & sid=234 & mode= & order=0\

& thold=0

I did believe that MS was not just yet another autoimmune disease but

something more complex. After these results, I am completely sure that

I was (nearly) right.

I have MS and I am on LDN for about 2 and a half months now and I feel

great on it. Some permanent symptoms that I had proved to be not so

permanent, after all. I still have them but they keep coming and

going, after starting LDN.

> All that LDN is supposed to do is Help Orchestrate Your Immune System.

And here come the big questions.

If LDN orchestrates the immune system, why does it still work for

people with SPMS which is not inflammatory and perhaps the immune

system has nothing to do with it?

How sure can we be that LDN just orchestrates the immune system and

nothing more?

I think that the oxidative stress prevention has much more to do than

immune system orchestration, at least for progressive MS.

And, again, if the immune system has nothing to do with the later

stages of MS, why Novantrone is supposed to work? If it doesn't, why

has it been approved for use in SPMS?

All research is focused on inflammatory MS. Nobody cares about

neurodegenerative MS. Much research is needed to find out if and how

naltrexone prevents axonal degeneration.

Sorry for the off topic nature of this post, but I think it is not

completely off topic. I would be grateful if some specialist could

answer these questions, because I doubt I have understood how LDN

works, at least in MS. I am sure it does work, though.

Thanks,

Stavros

[Guest guest]

Hi Tom.

As I have posted before, I DID have MRI's done for 3 yrs before LDN. I had 4 prominent lesions that basically stayed the same for those 3 years. After being on LDN for almost a year, I had another done. Results: 3 of the lesions are gone,

leaving the one remaing, smaller in size.. My Neuro told me that my lesions were "Healing themselves" and he said quietly, (like someone would hear him agreeing that the LDN is working in my favor) "Don't EVER stop what you are doing".

Carol

"LDN. . . Until There's A Cure"

[Guest guest]

Hi Carol,

Great news...keep on keeping on.

Regards,

Tom

Re: [low dose naltrexone] What LDN actually does

Hi Tom.

As I have posted before, I DID have MRI's done for 3 yrs before LDN. I had 4 prominent lesions that basically stayed the same for those 3 years. After being on LDN for almost a year, I had another done. Results: 3 of the lesions are gone,

leaving the one remaing, smaller in size.. My Neuro told me that my lesions were "Healing themselves" and he said quietly, (like someone would hear him agreeing that the LDN is working in my favor) "Don't EVER stop what you are doing".

Carol

"LDN. . . Until There's A Cure"

[Guest guest]

YOUR WIFE MIGHT ASK HER NEURO ABOUT DEVICS SYNDROME. A LARGE LESION INSTEAD

OF SPOTS MAY BE DEVICS.IT MIMICS MS BUT DIFFERENT MEDS.TAKE CARE KENT

Re: [low dose naltrexone] What LDN actually does

> Fwiw, in my wife's case, she has one lesion of significant size high in

> her spinal cord, a scary prospect. It was slowly worsening pre-LDN.

> The 2 MRIs since starting LDN have both shown a reduction in size of it

> and her brain lesions which were previously maintaining size.

>

> Tom wrote:

>

>> To the group:

>>

>> Unless I am mistaken, all that LDN is really supposed to do is stop

>> the progression of MS, and perhaps reverse the last two or three

>> months of new symptoms. Expecting great reductions in old symptoms

>> may be expecting too much - a matter of good fortune, rather than

>> anything else.

>>

>> So even if you are not experiencing symptom relief, keeping up the LDN

>> is still probably a good idea. We need more info re: MRIs taken

>> before and after taking LDN. If we can generate a number of actual

>> case histories where this has been true, this would seem to be pretty

>> good proof that there is an actual cause/effect relationship, and not

>> just coincidence.

>>

>> I would therefore be interested in hearing from anyone who has had the

>> before/after MRI experience.

>>

>> TIA

>>

>> Tom from Edmonton

>>

>>

>>

>>

>> _____________________________________________________________________

>> FREE Emoticons for your email! Click

>> Here!

>> <http://www.incredimail.com/index.asp?id=96318>

>> ------------------------------------------------------------------------

>> ! GROUPS LINKS

>>

>> * Visit your group " low dose naltrexone

>> <low dose naltrexone> " on the web.

>>

>> *

[Guest guest]

Thanks, I'll look into it.

KENT WAKEFIELD wrote:

> YOUR WIFE MIGHT ASK HER NEURO ABOUT DEVICS SYNDROME. A LARGE LESION

> INSTEAD

> OF SPOTS MAY BE DEVICS.IT MIMICS MS BUT DIFFERENT MEDS.TAKE CARE KENT

> Re: [low dose naltrexone] What LDN actually does

>

>

> > Fwiw, in my wife's case, she has one lesion of significant size high in

> > her spinal cord, a scary prospect. It was slowly worsening pre-LDN.

> > The 2 MRIs since starting LDN have both shown a reduction in size of it

> > and her brain lesions which were previously maintaining size.

> >

> > Tom wrote:

> >

> >> To the group:

> >>

> >> Unless I am mistaken, all that LDN is really supposed to do is stop

> >> the progression of MS, and perhaps reverse the last two or three

> >> months of new symptoms. Expecting great reductions in old symptoms

> >> may be expecting too much - a matter of good fortune, rather than

> >> anything else.

> >>

> >> So even if you are not experiencing symptom relief, keeping up the LDN

> >> is still probably a good idea. We need more info re: MRIs taken

> >> before and after taking LDN. If we can generate a number of actual

> >> case histories where this has been true, this would seem to be pretty

> >> good proof that there is an actual cause/effect relationship, and not

> >> just coincidence.

> >>

> >> I would therefore be interested in hearing from anyone who has had the

> >> before/after MRI experience.

> >>

> >> TIA

> >>

> >> Tom from Edmonton

> >>

> >>

> >>

> >>

> >> _____________________________________________________________________

> >> FREE Emoticons for your email! Click

> >> Here!

> >> <http://www.incredimail.com/index.asp?id=96318>

> >>

> ------------------------------------------------------------------------

> >> ! GROUPS LINKS

> >>

> >> * Visit your group " low dose naltrexone

> >> <low dose naltrexone> " on the web.

> >>

> >> *