Re: thinging about taking LDN

[Guest guest]

Hallo !

LDN is not a medication against symptoms but it stopps progression and so in

some cases symptoms may improve.I take LDN for about 1

year,fatigue,pain,bladder have improved.I you get worse fast you are chronic

rogressiv now.No interferon can help you,therefore your only chance is to

try

LDN,you can get a perscripton from your doctor and order it from a pharmacy.

Good Luck

Dr.Fuhrmann Manfred

http://naltrexoneforum.thit.de

[low dose naltrexone] thinging about taking LDN

> Hello. I'm brand new here. I'm 49 and have had MS for

> 16 years and now getting worse fast. Been on Copaxone

> for 5 years and don't see any improvement.

> Can I get this LDN from my Doctor? Exactly what

> symptoms of MS does it help? What side effects? Would

> love to hear some good success stories. Thanks.

>

>

>

>

>

>

[Guest guest]

http://www.larrygc.com/mystory is my story.

[low dose naltrexone] thinging about taking LDN

Hello. I'm brand new here. I'm 49 and have had MS for16 years and now getting worse fast. Been on Copaxonefor 5 years and don't see any improvement.Can I get this LDN from my Doctor? Exactly whatsymptoms of MS does it help? What side effects? Wouldlove to hear some good success stories. Thanks.

[Guest guest]

> Hello. I'm brand new here. I'm 49 and have had MS for

> 16 years and now getting worse fast. Been on Copaxone

> for 5 years and don't see any improvement.

> Can I get this LDN from my Doctor? Exactly what

> symptoms of MS does it help? What side effects? Would

> love to hear some good success stories. Thanks.

>

=======

,

LDN's main purpose is to halt disease progression, not improve symptoms. If one

does happen to get symptom improvement while on LDN then that is an added plus.

Go to the LDN website and read it thoroughly...including the Further Q & A

page...there's lots of info there on that page. Read the section What Others

Are Saying About LDN. That section is an accumulation of posts made here on

this forum.

LDN website

http://www.low dose naltrexone.org

[Guest guest]

I have been diagnosed with MS for over 2 years I think stress brought it on (stress does mess up your body)

I am on Neiper protocol calcium EAP, I take Sphingolin, and I just started LDN.

Friends of mine who are taking the Orthodox way are not doing well, they were good in there 30's and now in there 50's are doing bad, is everyone like this I know MS is different for everyone can you live a long quality life?

What about certain herbs?

Thank you

lkilcollin@aol

[Guest guest]

DO YOU MEAN YOUR DOING THE IV PUSH 3 TIMES A WEEK WITH CALCIUM EAP? I AM TAKING LDN AND DOING IV CALCIUM EAP BUT I ONLY DO THE SHOTS ONCE A MONTH WHEN I NEED A BOAST. I DID THEM 3 TIMES A WEEK FOR FOUR YEARS AND THEN JUST TAPERED OFF SLOWLY WHILE REMAINING ON THE ORAL IT WORKED SO WELL. YOU SHOULD DO REALLY WELL AS THEY BOTH WORK TOGETHER. TURMERIC OR CURCUMIN IS PROBABLY THE HERB THAT HAS SHOWN THE MOST PROMISE FOR MS. I WOULDN'T GO ADDING ALOT OF HERBS WITH WHAT YOU ARE TAKING BECAUSE DR. NEIPER SAID TIO BE CAREFUL OF THE INTERACTION. HOWEVER, RESEARCHING CERTAIN HERBS AND TRYING THEM WITH CAUTION SHOULD DO YOU NO HARM . cURCUMIN IS SOMETHING I USE NOW AND I LIKE IT. THE SPHINGOLIN IS ALSO AN EXCELLENT PRODUCT YOU ARE USING. I WOULD ADD SOME GOOD ENZYMES AND KRILL OIL TO YOUR REGIMEN IF YOU HAVEN'T ALREADY. BLESSINGS, KATHY

Re: [low dose naltrexone] thinging about taking LDN

I have been diagnosed with MS for over 2 years I think stress brought it on (stress does mess up your body)

I am on Neiper protocol calcium EAP, I take Sphingolin, and I just started LDN.

Friends of mine who are taking the Orthodox way are not doing well, they were good in there 30's and now in there 50's are doing bad, is everyone like this I know MS is different for everyone can you live a long quality life?

What about certain herbs?

Thank you

lkilcollin@aol

[Guest guest]

My wife, who is RR, experienced drastic reduction in headache frequency

and intensity. She had had a debilitating headache non stop for 8

months. Also greatly improved bladder and bowel function, balance,

cognitive abilities, especially memory. Her energy and stamina are much

better. Sleep is better quality. The biggest change has been in skin

sensation. The bottoms of her feet were dead numb since the first

exacerbation in 1996. After 13 months of LDN, she now can feel her feet

and can even feel texture almost as well as pre MS. She curses me

(jokingly) every time she walks on gravel without shoes. I pushed her

for and her neurologist for 3 years to try LDN. She used to walk bare

foot on gravel and feel nothing, now she has to limp across it due to

the pain, which is fantastic. Also, the last 2 consecutive MRIs have

shown reduction in size of all lesions.

fm2 wrote:

> Hallo !

> LDN is not a medication against symptoms but it stopps progression and

> so in

> some cases symptoms may improve.I take LDN for about 1

> year,fatigue,pain,bladder have improved.I you get worse fast you are

> chronic

> rogressiv now.No interferon can help you,therefore your only chance is to

> try

> LDN,you can get a perscripton from your doctor and order it from a

> pharmacy.

> Good Luck

> Dr.Fuhrmann Manfred

> http://naltrexoneforum.thit.de

>

> [low dose naltrexone] thinging about taking LDN

>

>

> > Hello. I'm brand new here. I'm 49 and have had MS for

> > 16 years and now getting worse fast. Been on Copaxone

> > for 5 years and don't see any improvement.

> > Can I get this LDN from my Doctor? Exactly what

> > symptoms of MS does it help? What side effects? Would

> > love to hear some good success stories. Thanks.

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Wes!

I know how she feels...two and a half years prior to being dx'd with rrms,

I had severe migraines...then 22 months on one of the CRAB meds, still

had the migraines...Dec11th, 2003, took my first dose of ldn, next day...

after a half hour of trying to figure out what was different, I finally came

to the conclusion...NO MORE HEADACHE!!! That was just one of the many

things that 'seemed' to be either gone, or lessened to such a small degree

that most things are now easily tolerated. Best of luck to your wife and

keep us posted on how she's doing.

Have a Great Day everyone!

Jim(rrms) now...back to my cave :-)

Re: [low dose naltrexone] thinging about taking LDN

My wife, who is RR, experienced drastic reduction in headache frequency and intensity. She had had a debilitating headache non stop for 8 months.

[Guest guest]

Wesley-

Thanks for posting this. It is great to hear. I am new to LDN, and hearing your wife's story gives me such hope for myself and my loved ones who are also on LDN.

Take care,

AmyWesley wrote:

My wife, who is RR, experienced drastic reduction in headache frequency and intensity. She had had a debilitating headache non stop for 8 months. Also greatly improved bladder and bowel function, balance, cognitive abilities, especially memory. Her energy and stamina are much better. Sleep is better quality. The biggest change has been in skin sensation. The bottoms of her feet were dead numb since the first exacerbation in 1996. After 13 months of LDN, she now can feel her feet and can even feel texture almost as well as pre MS. She curses me (jokingly) every time she walks on gravel without shoes. I pushed her for and her neurologist for 3 years to try LDN. She used to walk bare foot on gravel and feel nothing, now she has to limp across it due to the pain, which is

fantastic. Also, the last 2 consecutive MRIs have shown reduction in size of all lesions.__________________________________________________

[Guest guest]

that is wonderful news. kathy

[low dose naltrexone] thinging about taking LDN>>> > Hello. I'm brand new here. I'm 49 and have had MS for> > 16 years and now getting worse fast. Been on Copaxone> > for 5 years and don't see any improvement.> > Can I get this LDN from my Doctor? Exactly what> > symptoms of MS does it help? What side effects? Would> > love to hear some good success stories. Thanks.> > > >> >> >> >> >

[Guest guest]

> My wife, who is RR, experienced drastic reduction in headache frequency

> and intensity. She had had a debilitating headache non stop for 8

> months. Also greatly improved bladder and bowel function, balance,

> cognitive abilities, especially memory. Her energy and stamina are much

> better. Sleep is better quality. The biggest change has been in skin

> sensation. The bottoms of her feet were dead numb since the first

> exacerbation in 1996. After 13 months of LDN, she now can feel her feet

> and can even feel texture almost as well as pre MS. She curses me

> (jokingly) every time she walks on gravel without shoes. I pushed her

> for and her neurologist for 3 years to try LDN. She used to walk bare

> foot on gravel and feel nothing, now she has to limp across it due to

> the pain, which is fantastic. Also, the last 2 consecutive MRIs have

> shown reduction in size of all lesions.

>

=========

I also got reduction of migraines on LDN. I was having migraines weekly for

about 2 years straight. Now I only have a migraine the week before my menses

cycle but I can keep that migraine away if I remember to take Ibuprofen the

entire week before my menses, my gyno told me to try the Ibuprofen. So far the

Ibuprofen the week before menses is the ONLY thing that will keep that migraine

away. Once the migraine has started absolutely no medication touches it.

[Guest guest]

> > > My wife, who is RR, experienced drastic reduction in headache frequency

> > > and intensity. She had had a debilitating headache non stop for 8

> > > months. Also greatly improved bladder and bowel function, balance,

> > > cognitive abilities, especially memory. Her energy and stamina are

> > much

> > > better. Sleep is better quality. The biggest change has been in skin

> > > sensation. The bottoms of her feet were dead numb since the first

> > > exacerbation in 1996. After 13 months of LDN, she now can feel her

> > feet

> > > and can even feel texture almost as well as pre MS. She curses me

> > > (jokingly) every time she walks on gravel without shoes. I pushed her

> > > for and her neurologist for 3 years to try LDN. She used to walk bare

> > > foot on gravel and feel nothing, now she has to limp across it due to

> > > the pain, which is fantastic. Also, the last 2 consecutive MRIs have

> > > shown reduction in size of all lesions.

> > >

> > =========

> >

> > I also got reduction of migraines on LDN. I was having migraines

> > weekly for about 2 years straight. Now I only have a migraine the

> > week before my menses cycle but I can keep that migraine away if I

> > remember to take Ibuprofen the entire week before my menses, my gyno

> > told me to try the Ibuprofen. So far the Ibuprofen the week before

> > menses is the ONLY thing that will keep that migraine away. Once the

> > migraine has started absolutely no medication touches it.

> >

> >

>

> has the same problem pre and during. For those particular

> headaches, she's found Excedrin, or generic, works better than anything

> else.

>

==========

I've tried Excedrine, Excedrine Migraine and Excedrine Tension Headache and

Midol and nothing touches the migraine once it starts. And it never fails, the

menstrual migraine is always on the left side of my head, never on the right

side. That menstrual migraine pounds with my every heartbeat. I hate that part

of being a woman. It's cruel and unusual punishment to have to have a menses

cycle.