Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Hi Folks, As many of you know, I have written three books about ms. During the past four years I have been sending these books to anyone that asks and cannot afford to pay for them. Last year I was asked by a number of ms'er's to write a book about the things that we don't talk about regarding ms. At that time I was assured that many of you would "buy " this particular book. Well that has not happened and I am in a bit of a jam...in that all of these books have been published at and sent at my own expense. I still send any of these books to anyone that cannot afford to pay for them. I am a little perplexed because the books have received great reviews from "MS-FOCUS", "The Cape Cod Times" and several others. They can be reviewed on my website www.copingandprevailing.com or Amazon.com Still, I have only sold about 30 of the new book...but have given out over 300. It is expensive and I could use a little help. I am sorry and surely hope no one is offended. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 HI Tom, I am pretty new to these boards. But, I did look at your site and read reviews of your books. I think your site is very informative and will be trying to order your books as well as " up a creek with a paddle" soon. I can't imagine the expense of trying to publish and send those books at your own expense. I have read many of your post and they always seem to have good info/advise. Just wanted to say a quick thanks for all that you have done for people with MS. I know that doesn't put money in the bank and lord know we all need that, but hope the sentiment helps in some small way. Les -----Original Message-----From: tom bayuk [mailto:tbayuk@...]Sent: Friday, July 15, 2005 12:30 PMpoohbear6246@...Subject: Re: [low dose naltrexone] perplexed Hi Marie, All is well here in Florida but my heart will always be in New England. The book problem on the website has been resolved...thanks. Hope all is well with you. Love, Tom [low dose naltrexone] perplexed Hi Folks, As many of you know, I have written three books about ms. During the past four years I have been sending these books to anyone that asks and cannot afford to pay for them. Last year I was asked by a number of ms'er's to write a book about the things that we don't talk about regarding ms. At that time I was assured that many of you would "buy " this particular book. Well that has not happened and I am in a bit of a jam...in that all of these books have been published at and sent at my own expense. I still send any of these books to anyone that cannot afford to pay for them. I am a little perplexed because the books have received great reviews from "MS-FOCUS", "The Cape Cod Times" and several others. They can be reviewed on my website www.copingandprevailing.com or Amazon.com Still, I have only sold about 30 of the new book...but have given out over 300. It is expensive and I could use a little help. I am sorry and surely hope no one is offended. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Hi Les, Yes the sentiments help a lot. I didn't write any of the books to make money but did hope to recover the expense. When I was diagnosed back in 1984 I went through several years of needless fear. I wrote the books to help those diagnosed with MS that they could still live very happy, active and productive lives. Thank you and regards, Tom [low dose naltrexone] perplexed Hi Folks, As many of you know, I have written three books about ms. During the past four years I have been sending these books to anyone that asks and cannot afford to pay for them. Last year I was asked by a number of ms'er's to write a book about the things that we don't talk about regarding ms. At that time I was assured that many of you would "buy " this particular book. Well that has not happened and I am in a bit of a jam...in that all of these books have been published at and sent at my own expense. I still send any of these books to anyone that cannot afford to pay for them. I am a little perplexed because the books have received great reviews from "MS-FOCUS", "The Cape Cod Times" and several others. They can be reviewed on my website www.copingandprevailing.com or Amazon.com Still, I have only sold about 30 of the new book...but have given out over 300. It is expensive and I could use a little help. I am sorry and surely hope no one is offended. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Try this website: OlderPlag/ Molly -----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Donna MarucciSent: 1 November 2006 12:13 PMPlagiocephaly Subject: Perplexed We are completely perplexed. There are not concrete studies that say for certain that mild plagiocephaly is anything other than cosmetic. My granddaughter's head is flat in the back. I went to the website that is for those who did not have a helmet, there are 20 members since 2001 and no recent mail so this seems to be a dead discussion. When does it become important to wear a helmet, at what point? How do we know? Sorry, I am frustrated from reading and finding nothing to support whether to get the helmet or not get the helmet. Thank you for listening. Donna Pgh, PA Quote Link to comment Share on other sites More sharing options...
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