RE: [SPAM]Re: Re: Wanting Meyer Center experiences!!

[Guest guest]

The doctor that I initially saw at the Meyer Center 6 years ago tried to

dissuade me from

Keeping my son in an ABA program in addition to warning me against vitamins

etc.

What a joke. Finally, after sending THEM the research, I hear a few of the

Doctors are recommending ABA treatment.

I only took my child there to get the diagnosis so that I could get insurance

coverage-

NEVER to get any real advice on anything regarding beneficial treatment for my

son.

Basically the problem with Texas Children’s has always been Ralph an—the

President of Texas Children’s. He’s a

Very old fashioned, backward looking neurologist and has essentially driven away

Any doctors with innovative ideas or new ways at looking at/treating childhood

Disorders. He has allowed his wife Judith waaaaaaaaay too much free reign.

Together

They pretty much ensure that TCH will not be a site for any kind of designated

Center of Excellence. Sad really.

I my personal experiences with Texas Children’s—both from when my son was in

Neonatal care, follow ups, speech services at satellite clinics, and getting

autism Dx. . . .

I have never had an experience that I would rate above a “Dâ€. Right now

Texas

Children’s is a diagnostic mill that is a part of the problem and not a part

of the solution.

To my knowledge, despite an announcement with a big flourish, the Autism

Treatment

Network site is that in name only. I have not heard any call for research

subjects for

Any kind of research—and they were supposed to be conducting research on

Sleep disorders in children—at least that’s what they claimed two years ago.

I

Don’t know how they plan to do it with just a psychiatrist and a geneticist on

board.

It borders on ridiculous really. How sad for the children in this area.

S.

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of kgreeceman@...

Sent: Friday, December 14, 2007 5:28 PM

To: Texas-Autism-Advocacy

Subject: [sPAM]Re: Re: Wanting Meyer Center

experiences!!

When my son was diagnosed at the Meyer Center for Developmental

Pediatrics/Texas Children's Hospital 4 years ago Dr. Madduri and Dr. s both

" warned "

me that I would be told by other people that my son probably suffers from

Celiac Disease, that he would need to take mega doses of vitamins and have

mercury poisoning and told me not to buy into it.