Re: Jan/~S~

[Guest guest]

Thank you S for being there at every turn and

bumpy road that I go through with Jim. I truly think

the Haldol given to Jim over a year ago has set all

these seizure like things off, because the first time

that he ever had one of these things was right after

they gave him Haldol and sent him home on my request.

I HATE what we and our LOs have to go through. I must

admit I have become a much stronger person through all

of these experiences. I bearly wimp out over anything

anymore. Sometimes I'm like an Iron Horse and even

amaze myself that I have the strength to catch Jim and

hold him up. I have watched nurses and caregivers

struggle with getting Jim up in position to transfer

him to the bed or chair and I do it without effort.

These are professionals that do this on a daily basis

and have trouble. I had such a hard time watching the

caregiver trying to shower Jim so awkwardly, that now

I do it myself and it's with ease and very little

effort. We have a routine and it works!

When Jim was in the hospital a few months ago and was

being released to go home all the nurses were very

busy and Jim wanted to get up and get going. I got him

off the bed and dressed into his clothes without any

help and they couldn't believe that I did it all on my

own. I guess I am used to what to do and we have a

routine. Having worked with kids with special needs

also has helped in knowing how to stand and position

myself when lifting, pulling and pushing, so I don't

ruin my back, knees or other parts of the body.

I guess we as caregivers know you just have to jump in

and do whatever has to be done. Your cooworkers and

friends were lucky to have you near by at their rescue

during their seizures.

You and are always in my thoughts and

prayers.......Hugs and Love, Jan

--- Sandie and Pearce

wrote:

> Hi Jan-

>

> I hadn't commented until now but do have to second,

> third,

> and so on, my thoughts on Jim's 'fainting'. My

> nephew

> had a febrile se izure when he was just a toddler.

> Exactly

> as you described it. Then while working at UPS one

> night

> a co-worker had a seizure. I was there to help her

> through

> it. I had always heard to 'let them be' but with

> concrete

> floors I felt it best to slightly hold her and

> prevent her from

> injury. And then, yet another time, when I was

> catering there

> was a co-worker who was very open about her

> epilepsy.

> She had a terribly long seizure while she and I were

> in

> the kitchen. Once again, the floors were tiled, the

> counter-

> tops were metal and so on. I held her for atleast

> 15 minutes

> until she started releasing her stiffness. Then we

> made

> our way to the floor. The whole process lasted well

> over

> 30 minutes and she was so very out of it for the

> rest of

> the day. She doesn't even remember the ride to the

> hospital. This is WITHOUT LBD. Everything you

> explained

> is what happened to Ann. It was scary and I went

> straight

> to those memories when I was reading what happens to

> Jim. To my knowledge, as this has happened to me,

> when one faints their body goes limp and they fall.

> Seems

> so different than what you explained about Jim.

>

> Hang in there Jan. Jim is one fortunate man to have

> you

> in his corner!

>

> Thinking of you this morning from Iowa-

> With hugs-

>

> Sandie

>

> -- Re: It's 2:30AM!

>

> Hi Jan,

>

> I wanted to agree with Donna. My son's girlfriend

> has epilepsy and what

> you discribed sounds so much like what happens to

> her - I'm not saying

> that Jim has it just that the seizures sound so

> familiar.

> I'd be tempted to get a second opinion.

> Hang in there my friend.

> Courage

>

>

>

>