Re: Was CFS or Heaptitis C Discussed atLDNConference?

[Guest guest]

In all probability you don't have all three. Sheramata is suppose to be well qualified but I have never met him. One thing you know for sure is you need to strengthen your immune system. Get on LDN if you aren't and try to keep track of how you feel when you eat certain foods. Eggs are bad gor me. I can have one once in a while but they make the ms flair up if I am in a weakened state. Do you have distinct lesions in your CNS ? Just wondering but some people have many symptoms and no lesions or vice- versa so I think if the doctors aren't sure they just diagnose you with one of these ambiguous conditions. I don't know anything about your lifestyle but I bet if you start eating good (not extremely depriving yourself), the right supplements, exercise, LDN and try to figure out what makes you feel bad. It can be mold in a house, it can be anything. Just listen and your body will talk to you. Oh and try to get massages-they are so rejuvenating for the mind, body and spirit. Just e-mail me if you like and we will talk about supplements and lifestyle. LDN is one important piece of the puzzle but some of us have to work harder to achieve a state of wellness. It just bothers me that you feel you might have 3 different conditions and I know it is posssible but not probable. Someone probably misdiagnosed you along the way. Blessings, Kathy

Re: [low dose naltrexone] Was CFS or Heaptitis C Discussed atLDNConference?

I live in Fort Pierce but have been to Miami and got diagnoses of CFSfrom Klimas. Got MS diagnoses from Sheremata and already had a Lymediagoses and treatment. I don't get any treatment for CFS as there isno treatment. Of course it would be nice to know what I really have.

[Guest guest]

No, I don't really think I have 3 diseases but CFS is very similar to

MS. Also there is a Lyme MS. I do have punctate lesions but only one

larger one that is inactive. I just had MRI and will be seeing a neuro

in August for the comparison with previous. Sheremata based diagnoses

on clinical before looking at MRI. By he way Lyme has some type of

lesions also. I am not certain is they are all located in different

areas of the brain. I had ocular ataxia, some graphestenia problems on

one side, parapheresis, balance and gait problems. I took some

antibiotics for about 6 months and my symptoms gradually subsided. I

did have something strange in my lungs that they thought could be mild

fibrosis that disappeared when I took antibiotics. I was taking

antibiotics for intra cellular mycoplasma pneumonia.

Sheremata wanted to start me on a beta but I declined. My brain was so

bad before the antibiotics I had difficulty completing a sentence. It

has gradually improved but not back to normal.

I just heard about LDN so am checking out your site. There has also

been implications of bacteria such as chlamydia pneumonia in MS that

would respond to antibiotics.

CFS also effects the immune system, Klimas in Miami is also an expert in

that field. Most people don't take CFS seriously and her first paper

she referred to it as a form of AIDS, of course it is an acquired immune

dysfunction syndrome, but people with CFS had a hissy.

Of course most CFIDS people refer to it as myalgic encephalomyelitis.