MRI question and possible MS progression while on LDN question

July 14, 2005

Just thought I'd pipe in with regards to the question that was posed about

why a lot of us are not coming forward with MRI information. I for one, do

not even see a neurologist anymore let alone have MRI's done. If I were to

have an MRI done, it would cost me $1,000 our of pocket to find out what?

That I'm doing ok? My last one cost me that much and was botched as far as

comparisons go anyway. The neuro that I was seeing then proceeds to tell me

that he doesn't even go by MRI for his evaluations but rather that he goes

by the symptoms that his patients are experiencing so I vowed at that point

to not have another one done until I felt the need. That was over 3 years

ago and I have not felt the need to spend another $1,000.00 for one. There

are other members of this group that have gotten them done but I'm hoping to

never have to go that route again soooooooooooooo.

As far as the posts that are questioning whether the LDN is working, it

would really be helpful if you would include which compounder you are using

along with what filler if known. Also what adjustments were made, such as

time taken or dose adjustments? I'm sure that you would get some ideas of

things to try. I'm wondering Jon, if you have given any thought to trying a

liquid version of the LDN or if your wife has been taking anything like

perhaps steroids??? JoyceF

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