experiment is working folks. Increased blocking day + nite...

[Guest guest]

I just read your response and feel it may be a bit overly conservative. As part of this chatgroup I thought everyone was encouraged to share their experiences. As adults we ought to be equipped to freely decide if the benefits of an "experiment" with LDN dosage outweighs the risk. While it would probably be advisable to consult first with Dr. Bihari or another healthcare provider ultimately the choice lies with a particular individual and/or his or her caregiver.

Remember LDN itself is a risk in that it hasn't been officially approved by the FDA for MS treatment. But quite a few individuals have nevertheless weighed the risk and opted to take it albeit most have first consulted with a healthcare provider before altering the dosage precribed by Dr. Bihari or another healthcare provider.kathy lintzenich <mykittypaws@...> wrote:

, I couldn't agree with you more. I've known about this for 6 years with 4.5 being the highest dosage given by Dr. Bihari. . I believe if someone wants to alter dosages, that should be a private decision and not made public to the group as a whole. Other people are influenced by what they read and some people have cognitive issues on this chatgroup. We can't afford something bad to happen and we all know you can hear 100 good things about something and one bad and in peoples minds, they always remember the episode where someone had a bad experience. They never ask or look into the fact that MAYBE the person wasn't taking the correct dosage or in the prescribed manner.

[low dose naltrexone] Re: My experiment is working folks. Increased blocking day + nite...

> I am pleased to report than my experiment seems to be very benefical > for my CFS/FM and mood, sexuality, everything.> > Basically, I take 4.5mg at night like normal, but then I take 1 extra > dose at 9AM in the morning.> > So I am taking 2 doses, one at 9PM and one at 9AM. This increases the > receptor upregulation I believe faster.> > It seems to work better than just the one 4.5 at night.==========I would call Dr. Bihari's office and ask if he's ever tried LDN in this manner. I know when the clinical trial was done for high dose naltrexone(HDN) in MS the HDN towards the end of the trial made MS patients have disease worsening.

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