Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 I was diagnosed with MS in March of 2001. Thankfully symptoms have been mild and stable and limited to varying degrees of numbness in my hands. I had no new symptoms until January 2005. Since January, the numbness in my hands has increased and I've experienced slight numbness in my feet. About five weeks ago I had an episode of optic neuritis in my right eye. I had a steroid treatment and the vision is better, but not 100%. I started Copaxone a few weeks ago. I read Bradley's book about LDN book and am amazed and hopeful as well as a bit skeptical. I would like to present information on LDN to my neurologist and suggest this as a treatment option, but I need to be prepared with lots of solid information. My neurologist is very traditional and without clinical trial evidence, he might be hard to convince. I have all the info from low dose naltrexone.org. I am interested in e-mailing or speaking directly to people with MS who are currently taking LDN to find out their experience. Is anyone with mild RRMS symptoms currently taking LDN? What is your experience? I would like to know how people have gotten scripts for LDN. From Dr. Bihari? From your neurologist? Has anyone had endorphin level tests before or during their time on LDN? Has anyone on LDN been tested to monitor their liver function? Is anyone experiencing side effects major or minor? Unfortunately I found out about the LDN conference last week, so I missed it. I was wondering if there is documentation available from any of the speakers. If you couid contact me directly, that would be great. -Pete Quote Link to comment Share on other sites More sharing options...
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