Re: Soliciting Progress Reports from CFS Patients on LDN/Zuzu

July 13, 2005

> -hi,

> i have moderately severe CFS with autoimmune problems, neurally

> mediated hypotension, white matter disease of the brain with 33 point

> IQ drop, severe fatigue and very little endurance. severe neuro-

> cognitive problems. i will be starting 3 mg. LDN from Irmat

> pharmacy in a few days and i can hardly wait! i will let u know any

> results i get from it. i tend to stay up most of the nite because i

> feel better at that time, my thinking is the sharpest then. with very

> little pain. . now i know that most of the endorphins for the day

> are released between 2am-4am according to www.low dose naltrexone.org

> this backs up my personal experiences. im trying to decide the best

> time to take it, from within the 9pm-3am window. they say to take it

> before going to sleep but since i ususlly get to sleep at 4 am, it

> will have to be the latest at 3am. then i read that it can cause

> sleep problems, insomnia, which is a big proplem for me. 1 of the

> people replying to this questions says she takes it hours before

> going to sleep, so i might try that. take care, zuzu

>

==========

Take your dose at 9pm or 10pm. You do not have to go to bed when you take your

LDN dose. You may find that within 6 months use of LDN your sleep problems are

resolved. I have MS and suffered severe insomnia for years. Now after being on

4.5mg LDN for 2 years I sometimes struggle to stay awake till 10pm. I always

feel rested on LDN. Most people with CFS have to use the full strength LDN dose

of 4.5mg to get results but go ahead and start with the 3.0mg and try to build

up to 4.5mg. Best of luck.

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