Re: NOT TODAY

[Guest guest]

Dear ,

It's nice to know you. Welcome to this support group! The people here are very

kind and "unique." Many fight the "Stills dragon" every day, and some have fought

for many years, and now feel better due to the right combination of meds, or maybe

the "dragon" got sort of tired and has let up. (such as in my case) I have had the

disease since 1971, with a couple of sweet remissions...but, no *real* remission

since 1979. However, my rhuemy feels that at this time my health problems are

due to destruction left behind by the "dragon." I had no diagnosis for (about) 16

years. Now most are diagnosed much sooner, and put on meds that help to stop

destruction and maybe even the disease itself.

Hoping the nose bleeding thingy has now quit. I have had many nosebleeds in the

beginning of this disease. They would come on with no warning,and sometimes

they were difficult to get under control. Once I even had to go to the hospital and

have my nose "packed." They made me stay all night, and it was awful..because

I had to sit up all night. That was one very long night!

Thank you for the kind words you wrote for me just before your "not feeling so good"

e-mail.

You mentioned how "every body wants you to do something for them.." Most people

just don't "get it." I mean they just don't understand how yukky we really do feel...maybe

we "look" okay...but, we sure don't feel "okay" and that's where some of the problems

come in where others don't understand how we can feel as sick as we try to tell them

we are.

Where do you Live ? It's possible that someone in this group lives in your area

and will know of a good doc to suggest for you.

How are you today?

From Wisconsin,

Tricia

-- NOT TODAY

Hello everyone,In case some of you do not know of me ,My name is . I've been having one of those days, you know the ones where you can't seem to hear,think,walk or talk staight! i'm very tired today and it seems that every body wants me to do something for them. under any other circumstance i'm sure I would, just not today.I woke up dizzy and really warm nose bleeds from sitting up or sittinng down,just not sure what could be going on. so I called my doctor and what of course he is on vacation, darn it he's always on vacation.HELP I need a new doc somewhere close ,anybody i'm open for any suggestions. thanxs luv you all lots rose

[Guest guest]

We live in Tigard and go to OHSU. n is 15 and see the ped rheumy at OHSU. (n,15, still's)

NOT TODAY

Hello everyone,In case some of you do not know of me ,My name is . I've been having one of those days, you know the ones where you can't seem to hear,think,walk or talk staight! i'm very tired today and it seems that every body wants me to do something for them. under any other circumstance i'm sure I would, just not today.I woke up dizzy and really warm nose bleeds from sitting up or sittinng down,just not sure what could be going on. so I called my doctor and what of course he is on vacation, darn it he's always on vacation.HELP I need a new doc somewhere close ,anybody i'm open for any suggestions. thanxs luv you all lots rose

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

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[Guest guest]

We live in Tigard and go to OHSU. n is 15 and see the ped rheumy at OHSU. (n,15, still's)

NOT TODAY

Hello everyone,In case some of you do not know of me ,My name is . I've been having one of those days, you know the ones where you can't seem to hear,think,walk or talk staight! i'm very tired today and it seems that every body wants me to do something for them. under any other circumstance i'm sure I would, just not today.I woke up dizzy and really warm nose bleeds from sitting up or sittinng down,just not sure what could be going on. so I called my doctor and what of course he is on vacation, darn it he's always on vacation.HELP I need a new doc somewhere close ,anybody i'm open for any suggestions. thanxs luv you all lots rose

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

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