New here, about to start LDN

July 13, 2005

Hi,

I've been lurking for a while, and reading all of your posts. I was

dx'd with RRMS in Jan 05, and started Copaxone in March. But I keep

getting new sensory symptoms, a new one every month. They last, at

the most, a day or two, then go away. I'm still doing great, and

feel in some ways that I am getting better. I lost the ability to

run in Dec. 04 and my vision was disrupted in Nov 04 (shimmers,

severe light sensitivity). Now I can run again and my vision has

greatly improved. But the sensory symptoms don't seem to be letting

up. My concern with this is that I am progressing and unaware of

it. So based on all of my research, I decided to go on LDN with the

hope of halting any progression while I am still doing really well.

I ordered my Rx from Skip's and it should be here tomorrow or

Friday.

But I am concerned: Most people on this site, and others, seem to

feel they have stopped progression and some even feel better on

LDN. But a few feel they have worsened, and I guess I'm nervous

about that. Do you feel that MS worsening on LDN is a rare oddity?

Any info would be greatly appreciated.

Thanks for a great forum here; it has been invaluable to me.

Take care,

Amy

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