Re: LDN Trials-Publicity?

[Guest guest]

I have wondered and been concerned on why LDN has not made it into the

mainstream media. I have put together letters and website articles on

LDN and sent them off to the Boston Globe " Science Staff " . This in

response to articles they've run on MS, Alzheimer's and Tysabri

failure. They've shown no interest. I have talked to people about LDN

and get blank stares. I have to admit that I still have my own doubts

on LDN (I have now been on it for 1 yr for PD. PD is such a slow

progressor, I won't know for years if LDN works) but I'm hopeful. I

think the suggestion that LDNers bombard people like Bill Gates with

the LDN story is a good idea.

On my previous post, if naltrexone is FDA approved for manufacture,

where is the regulation that says drug companies cannot produce it at

any dosage level like 4.5 mg? With compounding, how do you know the

pharmacist is not having a good day or is paying attention to his job

or has the proper equipment?

> I know that every one is discusssing how we could get a trial done for

> LDN. It seems that the biggest potential would be in the AIDS arena.

>

> Don't get me wrong I would like the trial for MS but AIDS is a bigger

> seller. (I have MS before anybody takes offense) I just read a article

> in the Chicago Tribune about Bill and Melinda Gates and all the money

> that they are distributing for trials and research for a multitude of

> diffenent things. Has anybody thought to write and get a grant for a

> trial for MS. I know there is the trail in Africa for AIDS. Maybe

> someone who has access to Dr. Bihari could write a grant from the

> Gates Foundation. Also I am assuming that if you have kids or

> grandkids that you know the author JK Rowlings of the Harry Potter

> books. She is also one of the wealthiest people in England. Her

> mother died of MS when she was in her twentys. Two very influential

> people as it comes to money and Rowling has a personal

> interest. I am sure she has the same fears for herself and children

> coming down with MS. Only an idea!

[Guest guest]

mistakes happen all the time whether it is a regular pharmacist or a compounder. However, you probably have a better chance getting hit by a car or being in a plane crash, then getting a bad batch of LDN. Of course I'm talking about using someone reputable, like Skip. As far as the blank stares go, I think that is a good sign. In my 10 year journey with ms, the things that have helped me the most, were the ones I spoke about and people responded to me like I had 3 heads!!!!!!!!!!!! Can any one out there say AMEN!!!!!!!!!

[low dose naltrexone] Re: LDN Trials-Publicity?

I have wondered and been concerned on why LDN has not made it into themainstream media. I have put together letters and website articles onLDN and sent them off to the Boston Globe "Science Staff". This inresponse to articles they've run on MS, Alzheimer's and Tysabrifailure. They've shown no interest. I have talked to people about LDNand get blank stares. I have to admit that I still have my own doubtson LDN (I have now been on it for 1 yr for PD. PD is such a slowprogressor, I won't know for years if LDN works) but I'm hopeful. Ithink the suggestion that LDNers bombard people like Bill Gates withthe LDN story is a good idea.On my previous post, if naltrexone is FDA approved for manufacture,where is the regulation that says drug companies cannot produce it atany dosage level like 4.5 mg? With compounding, how do you know thepharmacist is not having a good day or is paying attention to his jobor has the proper equipment?> I know that every one is discusssing how we could get a trial done for > LDN. It seems that the biggest potential would be in the AIDS arena.> > Don't get me wrong I would like the trial for MS but AIDS is a bigger > seller. (I have MS before anybody takes offense) I just read a article > in the Chicago Tribune about Bill and Melinda Gates and all the money > that they are distributing for trials and research for a multitude of > diffenent things. Has anybody thought to write and get a grant for a > trial for MS. I know there is the trail in Africa for AIDS. Maybe > someone who has access to Dr. Bihari could write a grant from the > Gates Foundation. Also I am assuming that if you have kids or > grandkids that you know the author JK Rowlings of the Harry Potter > books. She is also one of the wealthiest people in England. Her > mother died of MS when she was in her twentys. Two very influential > people as it comes to money and Rowling has a personal > interest. I am sure she has the same fears for herself and children > coming down with MS. Only an idea!