Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 One of the responses to CFS: Do you have a naturopath or a chiropractor in your area that practices kinesiology? If so, you need to be tested for fungus and molds. You also need to be tested for amino acids as when these are out of balance, CFS is a common thing. It is treatable, but allopathic medicine practitioners are poorly equipped and/or do not care to deal with it. What are you doing for your Lyme and MS? Part of what controls these is also part of what will deal with CFS. If you want to invest in a phone call, give Tom Lahey a call. 949 492-6642 Tom is a chemist who has worked with MS for a number of years. He also treats lyme. I deal only with terminal cancer, but run into these other items all the time. Their offices are in San Clemente, California, 3 hours behind eastern time. Bruce Guilmette, Ph.D. Survive Cancer Foundation, Inc. http://www.survivecancer.net From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of cmrichards@... Sent: Friday, July 15, 2005 7:53 PM low dose naltrexone Subject: Re: [low dose naltrexone] Was CFS or Heaptitis C Discussed atLDN Conference? No, this man has never heard of CFS. He asked me what it was. I also have a family doctor, only for normal things as he doesn't have a clue. I was originally going to give him immune, mycoplasma and other oddities and his comment was he didn't want these things as he knew nothing about them. This is in Vero Beach. I had a friend who was going to an infectious disease doctor and he stopped his practice to research AIDS. My friend went to a doctor and had told him she had CFS. When she started having afternoon fevers he told her to throw away her thermometer. Less than a month later she was dying from Non hodgkins lymphoma. The man never took her seriously, like many doctors concerning CFS. Most write it in their notes and never mention it again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 I know this wonderful alternative doctor in Sebastian!!! Isn't that close to you? He is so informed and caring . I can call my dentist and find out his name if you are interested. I went to him years ago for a chelation consult. Kathy Re: [low dose naltrexone] Was CFS or Heaptitis C Discussed atLDN Conference? No, this man has never heard of CFS. He asked me what it was.I also have a family doctor, only for normal things as he doesn't have aclue. I was originally going to give him immune, mycoplasma and otheroddities and his comment was he didn't want these things as he knewnothing about them. This is in Vero Beach.I had a friend who was going to an infectious disease doctor and hestopped his practice to research AIDS. My friend went to a doctor andhad told him she had CFS. When she started having afternoon fevers hetold her to throw away her thermometer. Less than a month later she wasdying from Non hodgkins lymphoma. The man never took her seriously,like many doctors concerning CFS. Most write it in their notes andnever mention it again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Bruce, I do have mold problems. Last years hurricanes to care of my carpets so will replace with tile. I also had food sensitivites to 43 of 90 tested. I ran a search on food sensitivities and MS and found a group there. Most were the normal things milk poducts, eggs, grains but beans were a surprise to me. I show sensitivities to beans including green beans. Also all grains except oatmeal, even rice and soy. Of course if the immune syster is depressed cancer can be a problem. Mother died of breast cancer and dad of lung cancer. My father was an alcholic. I met a friend in FL. from NC through a support group and she has a CFS diagnoses. Her mother died of breast cancer, her father of lung cancer and he was also an alcholic. She recently was diagnosed with Mycobacteium Avium Complex. I mentioned another friend with CFS diagnoses who died of Non hodgkins lymphoma in another post. CFS is inteesting as most of the research is done by the little people as opposed to big business. One researcher Kenny DeMehlier applied for a patent on beta lactase antibiotics for all autoimmune disorders. They supposedly work on inflamation. Saw a recent study on minocycline with samo on inflamation, an earlier one on doxy. Kenny DeMehlier and his testing of an antiviral pathway says MS and CFS are somehow on the far ends of the spectrum. I am not a medical person, just a parrot. FYI When I went to an infectious disease doc. & he would do testing, but without extensive travel cannot get anything other than normal done anymore. ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 You may be speaking of Dr. Ahner, pronounced like honor. He has treated CFS and believes in it but no one I know has gotten well or that much better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 " Dr Kenny DeMehlier and his testing ofan antiviral pathway says MS and CFS are somehow on the far ends of the spectrum " He has publicly said that CFS and MS, for which he has a patent are basically 2 diseases that are on the oppoisite sides of the spectrum due to a low molecular weight antiviral product called RnaseL which has been implicated in CFS, and for which the drug Ampligen in its final approval phase for CFS, treats. How different outcomes ouccur between MS and CFS is unknown though there are some important overlaps especially EBV, and HHV6 or CMV which will probably somehow in the future be implicated in both and other diseases. > Bruce, > I do have mold problems. Last years hurricanes to care of my carpets so > will replace with tile. I also had food sensitivites to 43 of 90 > tested. I ran a search on food sensitivities and MS and found a group > there. Most were the normal things milk poducts, eggs, grains but beans > were a surprise to me. I show sensitivities to beans including green > beans. > Also all grains except oatmeal, even rice and soy. > > Of course if the immune syster is depressed cancer can be a problem. > Mother died of breast cancer and dad of lung cancer. My father was an > alcholic. I met a friend in FL. from NC through a support group and she > has a CFS diagnoses. Her mother died of breast cancer, her father of > lung cancer and he was also an alcholic. She recently was diagnosed > with Mycobacteium Avium Complex. I mentioned another friend with CFS > diagnoses who died of Non hodgkins lymphoma in another post. > > CFS is inteesting as most of the research is done by the little people > as opposed to big business. One researcher Kenny DeMehlier applied for > a patent on beta lactase antibiotics for all autoimmune disorders. They > supposedly > work on inflamation. Saw a recent study on minocycline with samo on > inflamation, an earlier one on doxy. Kenny DeMehlier and his testing of > an antiviral pathway says MS and CFS are somehow on the far ends of the > spectrum. I am not a medical person, just a parrot. FYI > > When I went to an infectious disease doc. & he would do testing, but > without extensive travel cannot get anything other than normal done > anymore. > > ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Ampligen is an alpha interferon inducer. It has been found to down regulate the 2-5A R-Nase L antiviral pathway but I believe it upregulates or somehow effects the PKR pathway which is bad for CFS. Of course the company making Ampligen (Hemispherix Biopharm-something like that) does not reveal that fact. Ampligen was also being tested on Hepatitis C. Quote Link to comment Share on other sites More sharing options...
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