Re: Peripheral Neuropathy and LDN

[Guest guest]

My husband, who has Parkinson's, has pain in his right hand and arm that

seems to match the descriptions of neuropathy. He has been on LDN since

the end of March and it has done nothing for his arm, but has helped in

many other ways. Sinemet, a Parkinson's medication, has not helped his

arm either. His neurologist was sure it was carpal tunnel, even though

nerve conduction testing was negative, so he gave Rick a shot of

cortisone in the wrist, but that provided no relief either. At least that

definitively ruled out carpal tunnel.

Kathie

On Thu, 14 Jul 2005 17:43:18 -0000 " carol_bellon " <cbellon@...>

writes:

>

> My dad has peripheral neuropathy which may be due to an auto immune

>

> problem. He is interested in trying LDN. Questions: 1. Has

> anyone

> with neuropathy taken LDN? 2. If yes, did it help? 3. Does anyone

>

> know of a doctor in Austin, TX who prescribes LDN for auto immune

> conditions or otherwise?

>

> Thanks,

> Carol

>

>

>

>

>

>

[Guest guest]

Hi Carol,

I have been taking 4.5mg of LDN for multi focal motorneuropathy of

the right hand and arm since 7th April 2005.

My GP went along with my request as, quote, " it cannot hurt you. "

My neuro was dismissive so is unaware of my trial.

Unfortunately I have to report that to date I have NOT had any benefit.

I intend continueing with the LDN for 6 months and then review the

situation.

I have been having treatment with IVIG on a two weekly basis which has

contained my situation.

I have had the problem since August 1999.

Being in Australia I unable to help wth the prescribing doctor.

Good luck! with best wishes Tony.

> From: " carol_bellon " <cbellon@...>

> Reply-low dose naltrexone

> Date: Thu, 14 Jul 2005 17:43:18 -0000

> low dose naltrexone

> Subject: [low dose naltrexone] Peripheral Neuropathy and LDN

>

>

> My dad has peripheral neuropathy which may be due to an auto immune

> problem. He is interested in trying LDN. Questions: 1. Has anyone

> with neuropathy taken LDN? 2. If yes, did it help? 3. Does anyone

> know of a doctor in Austin, TX who prescribes LDN for auto immune

> conditions or otherwise?

>

> Thanks,

> Carol

>

>

>

>

>

>

[Guest guest]

,

What is IVIG treatment?

Kathie

On Fri, 15 Jul 2005 08:27:04 +1000 Randall

<joe_cool@...> writes:

> Hi Carol,

> I have been taking 4.5mg of LDN for multi focal motorneuropathy of

> the right hand and arm since 7th April 2005.

>> I have been having treatment with IVIG on a two weekly basis which

> has

> contained my situation.

[Guest guest]

Kathie,

Have you had the chance to try DL-Phenylalanine yet? It says it is good for

pain and for depression. I can't say if it helps with the pain as has

not been in pain. But is sure helps with depression. So I am hoping that it

is effective for pain as well. Please let me know if he has already tried

it, or what the results are if he decides to try it.

Thanks

Aletha

Re: [low dose naltrexone] Peripheral Neuropathy and LDN

> My husband, who has Parkinson's, has pain in his right hand and arm that

> seems to match the descriptions of neuropathy. He has been on LDN since

> the end of March and it has done nothing for his arm, but has helped in

> many other ways. Sinemet, a Parkinson's medication, has not helped his

> arm either. His neurologist was sure it was carpal tunnel, even though

> nerve conduction testing was negative, so he gave Rick a shot of

> cortisone in the wrist, but that provided no relief either. At least that

> definitively ruled out carpal tunnel.

>

> Kathie

>

>

> On Thu, 14 Jul 2005 17:43:18 -0000 " carol_bellon " <cbellon@...>

> writes:

>>

>> My dad has peripheral neuropathy which may be due to an auto immune

>>

>> problem. He is interested in trying LDN. Questions: 1. Has

>> anyone

>> with neuropathy taken LDN? 2. If yes, did it help? 3. Does anyone

>>

>> know of a doctor in Austin, TX who prescribes LDN for auto immune

>> conditions or otherwise?

>>

>> Thanks,

>> Carol

>>

>>

>>

>>

>>

>>

[Guest guest]

try 300mcgs of b6 for one month only, then reduce it to 200. my doctor who is a homeopath told me about that when i had neuropathy and it worked. If he has PD tremors, NADH can help that as well. Kathy

Re: [low dose naltrexone] Peripheral Neuropathy and LDN

My husband, who has Parkinson's, has pain in his right hand and arm thatseems to match the descriptions of neuropathy. He has been on LDN sincethe end of March and it has done nothing for his arm, but has helped inmany other ways. Sinemet, a Parkinson's medication, has not helped hisarm either. His neurologist was sure it was carpal tunnel, even thoughnerve conduction testing was negative, so he gave Rick a shot ofcortisone in the wrist, but that provided no relief either. At least thatdefinitively ruled out carpal tunnel.KathieOn Thu, 14 Jul 2005 17:43:18 -0000 "carol_bellon" <cbellon@...>writes:> > My dad has peripheral neuropathy which may be due to an auto immune > > problem. He is interested in trying LDN. Questions: 1. Has > anyone > with neuropathy taken LDN? 2. If yes, did it help? 3. Does anyone > > know of a doctor in Austin, TX who prescribes LDN for auto immune > conditions or otherwise?> > Thanks,> Carol> > > > > >

[Guest guest]

Yes, Rick has been taking DL-Phenylalanine. He started a couple weeks

ago taking 2 a day (AM and noon) but hadn't noticed any change with his

arm but did notice his blood pressure creeping up so dropped back to just

one a day. He had just weaned off blood pressure medication after being

on it for 10 years. I think all the supplements he is taking was helping

to keep it down without the medicine. Maybe it will be worth him trying

the DL-Phenylalanine at two a day longer and just get back on the BP

medicine if needed.

Kathie

On Thu, 14 Jul 2005 19:54:28 -0700 " Aletha Wittmann "

<Aletha@...> writes:

> Kathie,

>

> Have you had the chance to try DL-Phenylalanine yet? It says it is

> good for

> pain and for depression. I can't say if it helps with the pain as

> has

> not been in pain. But is sure helps with depression. So I am hoping

> that it

> is effective for pain as well. Please let me know if he has already

> tried

> it, or what the results are if he decides to try it.

>

> Thanks

>

> Aletha

> Re: [low dose naltrexone] Peripheral Neuropathy and LDN

>

>

> > My husband, who has Parkinson's, has pain in his right hand and

> arm that

> > seems to match the descriptions of neuropathy. He has been on LDN

> since

> > the end of March and it has done nothing for his arm, but has

> helped in

> > many other ways. Sinemet, a Parkinson's medication, has not

> helped his

> > arm either. His neurologist was sure it was carpal tunnel, even

> though

> > nerve conduction testing was negative, so he gave Rick a shot of

> > cortisone in the wrist, but that provided no relief either. At

> least that

> > definitively ruled out carpal tunnel.

> >

> > Kathie

> >

> >

> > On Thu, 14 Jul 2005 17:43:18 -0000 " carol_bellon "

> <cbellon@...>

> > writes:

> >>

> >> My dad has peripheral neuropathy which may be due to an auto

> immune

> >>

> >> problem. He is interested in trying LDN. Questions: 1. Has

> >> anyone

> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does

> anyone

> >>

> >> know of a doctor in Austin, TX who prescribes LDN for auto

> immune

> >> conditions or otherwise?

> >>

> >> Thanks,

> >> Carol

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Kathie,

Dr. Bihari has said that DL-Phenylalanine has a tendency to raise BP.

Regards,

Tom

Re: [low dose naltrexone] Peripheral Neuropathy and LDN

>>

>>

>> > My husband, who has Parkinson's, has pain in his right hand and

>> arm that

>> > seems to match the descriptions of neuropathy. He has been on LDN

>> since

>> > the end of March and it has done nothing for his arm, but has

>> helped in

>> > many other ways. Sinemet, a Parkinson's medication, has not

>> helped his

>> > arm either. His neurologist was sure it was carpal tunnel, even

>> though

>> > nerve conduction testing was negative, so he gave Rick a shot of

>> > cortisone in the wrist, but that provided no relief either. At

>> least that

>> > definitively ruled out carpal tunnel.

>> >

>> > Kathie

>> >

>> >

>> > On Thu, 14 Jul 2005 17:43:18 -0000 " carol_bellon "

>> <cbellon@...>

>> > writes:

>> >>

>> >> My dad has peripheral neuropathy which may be due to an auto

>> immune

>> >>

>> >> problem. He is interested in trying LDN. Questions: 1. Has

>> >> anyone

>> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does

>> anyone

>> >>

>> >> know of a doctor in Austin, TX who prescribes LDN for auto

>> immune

>> >> conditions or otherwise?

>> >>

>> >> Thanks,

>> >> Carol

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

[Guest guest]

Hi Kathie,

I am sorry, It don't think it is good to take DL-Phenylalanin with high

blood pressure (I am not 100% on that).

Aletha

Re: [low dose naltrexone] Peripheral Neuropathy and LDN

>>

>>

>> > My husband, who has Parkinson's, has pain in his right hand and

>> arm that

>> > seems to match the descriptions of neuropathy. He has been on LDN

>> since

>> > the end of March and it has done nothing for his arm, but has

>> helped in

>> > many other ways. Sinemet, a Parkinson's medication, has not

>> helped his

>> > arm either. His neurologist was sure it was carpal tunnel, even

>> though

>> > nerve conduction testing was negative, so he gave Rick a shot of

>> > cortisone in the wrist, but that provided no relief either. At

>> least that

>> > definitively ruled out carpal tunnel.

>> >

>> > Kathie

>> >

>> >

>> > On Thu, 14 Jul 2005 17:43:18 -0000 " carol_bellon "

>> <cbellon@...>

>> > writes:

>> >>

>> >> My dad has peripheral neuropathy which may be due to an auto

>> immune

>> >>

>> >> problem. He is interested in trying LDN. Questions: 1. Has

>> >> anyone

>> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does

>> anyone

>> >>

>> >> know of a doctor in Austin, TX who prescribes LDN for auto

>> immune

>> >> conditions or otherwise?

>> >>

>> >> Thanks,

>> >> Carol

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

[Guest guest]

I will share my BP story-

I have high blood pressure and went on DLPA in May. I took my blood pressure everyday and it did rise a bit. Dr. Bihari said I could take a lower dose of DLPA. I took 375mg. instead of 500mg. for a few weeks. I did not feel as well on the lower dose so I went back to the 500 mg. My BP normalized after a few weeks. I saw my doctor this morning and my BP was 118/80. I take 20 mg of vasotec daily for my BP.

-Sue

Re: [low dose naltrexone] Peripheral Neuropathy and LDN>>>>>> > My husband, who has Parkinson's, has pain in his right hand and>> arm that>> > seems to match the descriptions of neuropathy. He has been on LDN>> since>> > the end of March and it has done nothing for his arm, but has>> helped in>> > many other ways. Sinemet, a Parkinson's medication, has not>> helped his>> > arm either. His neurologist was sure it was carpal tunnel, even>> though>> > nerve conduction testing was negative, so he gave Rick a shot of>> > cortisone in the wrist, but that provided no relief either. At>> least that>> > definitively ruled out carpal tunnel.>> >>> > Kathie>> >>> >>> > On Thu, 14 Jul 2005 17:43:18 -0000 "carol_bellon">> <cbellon@...>>> > writes:>> >>>> >> My dad has peripheral neuropathy which may be due to an auto>> immune>> >>>> >> problem. He is interested in trying LDN. Questions: 1. Has>> >> anyone>> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does>> anyone>> >>>> >> know of a doctor in Austin, TX who prescribes LDN for auto>> immune>> >> conditions or otherwise?>> >>>> >> Thanks,>> >> Carol>> >>>> >>>> >>>> >>>> >>>> >>

[Guest guest]

Sue,

Do you take this for peripheral neuropathy?

If yes, does it help?

Thanks,

Carol

Re:

[low dose naltrexone] Peripheral Neuropathy and LDN

Hi Kathie,

I am sorry, It don't think it is good to take

DL-Phenylalanin with high

blood pressure (I am not 100% on that).

Aletha

Re: [low dose naltrexone]

Peripheral Neuropathy and LDN

>>

>>

>> > My husband, who has Parkinson's, has

pain in his right hand and

>> arm that

>> > seems to match the descriptions of

neuropathy. He has been on LDN

>> since

>> > the end of March and it has done

nothing for his arm, but has

>> helped in

>> > many other ways. Sinemet, a

Parkinson's medication, has not

>> helped his

>> > arm either. His neurologist

was sure it was carpal tunnel, even

>> though

>> > nerve conduction testing was

negative, so he gave Rick a shot of

>> > cortisone in the wrist, but that

provided no relief either. At

>> least that

>> > definitively ruled out carpal

tunnel.

>> >

>> > Kathie

>> >

>> >

>> > On Thu, 14 Jul 2005 17:43:18 -0000

" carol_bellon "

>> <cbellon@...>

>> > writes:

>> >>

>> >> My dad has peripheral neuropathy

which may be due to an auto

>> immune

>> >>

>> >> problem. He is interested

in trying LDN. Questions: 1. Has

>> >> anyone

>> >> with neuropathy taken LDN?

2. If yes, did it help? 3. Does

>> anyone

>> >>

>> >> know of a doctor in Austin, TX

who prescribes LDN for auto

>> immune

>> >> conditions or otherwise?

>> >>

>> >> Thanks,

>> >> Carol

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

[Guest guest]

Carol,

I take the DLPA and LDN for my chronic progressive MS. I feel energized all day....

cheers,

Sue

Re: [low dose naltrexone] Peripheral Neuropathy and LDN>>>>>> > My husband, who has Parkinson's, has pain in his right hand and>> arm that>> > seems to match the descriptions of neuropathy. He has been on LDN>> since>> > the end of March and it has done nothing for his arm, but has>> helped in>> > many other ways. Sinemet, a Parkinson's medication, has not>> helped his>> > arm either. His neurologist was sure it was carpal tunnel, even>> though>> > nerve conduction testing was negative, so he gave Rick a shot of>> > cortisone in the wrist, but that provided no relief either. At>> least that>> > definitively ruled out carpal tunnel.>> >>> > Kathie>> >>> >>> > On Thu, 14 Jul 2005 17:43:18 -0000 "carol_bellon">> <cbellon@...>>> > writes:>> >>>> >> My dad has peripheral neuropathy which may be due to an auto>> immune>> >>>> >> problem. He is interested in trying LDN. Questions: 1. Has>> >> anyone>> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does>> anyone>> >>>> >> know of a doctor in Austin, TX who prescribes LDN for auto>> immune>> >> conditions or otherwise?>> >>>> >> Thanks,>> >> Carol>> >>>> >>>> >>>> >>>> >>>> >>

[Guest guest]

Yes, we were aware of DL-Phenylalanine raising blood pressure and Rick

has been monitoring his BP. So we are not sure which is best to do--take

the DL-Phenylalanine and go back on blood pressure medication or take

neither.

Kathie

On Fri, 15 Jul 2005 11:37:15 -0400 " tom bayuk " <tbayuk@...>

writes:

> Kathie,

> Dr. Bihari has said that DL-Phenylalanine has a tendency to raise

> BP.

> Regards,

> Tom

[Guest guest]

Kathie, I agree with Aletha and others. I think not taking DL-Phenyl. is the lesser of the two evils by far. It is wonderful your husband has been able to wean himself off the blood pressure med as there are many side effects associated with it. It is too risky for him to continue with the amino acid in my opinion. What is he taking it for? If you want to help peripheral neuropathy, try alpha lipoic acid. It is good for the liver and helps regenerate nerves (lots of anecdotal info with ms) Kathy

Re: [low dose naltrexone] Peripheral Neuropathy and LDN> > > > My husband, who has Parkinson's, has pain in his right hand and > arm that> > seems to match the descriptions of neuropathy. He has been on LDN > since> > the end of March and it has done nothing for his arm, but has > helped in> > many other ways. Sinemet, a Parkinson's medication, has not > helped his> > arm either. His neurologist was sure it was carpal tunnel, even > though> > nerve conduction testing was negative, so he gave Rick a shot of> > cortisone in the wrist, but that provided no relief either. At > least that> > definitively ruled out carpal tunnel.> >> > Kathie> >> >> > On Thu, 14 Jul 2005 17:43:18 -0000 "carol_bellon" > <cbellon@...>> > writes:> >>> >> My dad has peripheral neuropathy which may be due to an auto > immune> >>> >> problem. He is interested in trying LDN. Questions: 1. Has> >> anyone> >> with neuropathy taken LDN? 2. If yes, did it help? 3. Does > anyone> >>> >> know of a doctor in Austin, TX who prescribes LDN for auto > immune> >> conditions or otherwise?> >>> >> Thanks,> >> Carol> >>> >>> >>> >>> >>> >>