Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 You'll be fine, please let me know how you make out. -Nick > My first neurosurgeon's appt is in 8 hrs and I am scared and unable to sleep. Going to be a fun 1 hr drive there without sleep. > I don't know what to expect or what he will do. Everything I have researched has said I should have had immediate surgery (new nerve compression affecting genitals and rectal area) 2 months ago when it first showed up. > Then on top of it...my lawyer calls tonight and says the neuro's opinion is going to decide which direction my workers comp case will take. Talk about pressure!! What if this doc blows me off? What if he calls me a whiner or thinks I am a faker? > > I hate the unknown...my husband and best support system is out of the state for a month, and my friend who was going with me wanted to bring her friend so I told her to stay home. I am to nervous as it is without having to play hostess to a stranger. > I am on edge...I hate acting and feeling this way! I am losing it!!! > Okay...time to try and get some sleep...ya'll have a great day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 >My first neurosurgeon's appt is in 8 hrs and I am scared and unable to >sleep. Going to be a fun 1 hr drive there without sleep. >I don't know what to expect or what he will do. Everything I have >researched has said I should have had immediate surgery (new nerve >compression affecting genitals and rectal area) 2 months ago when it first >showed up. >Then on top of it...my lawyer calls tonight and says the neuro's opinion >is going to decide which direction my workers comp case will take. Talk >about pressure!! What if this doc blows me off? What if he calls me a >whiner or thinks I am a faker? > >I hate the unknown...my husband and best support system is out of the >state for a month, and my friend who was going with me wanted to bring her >friend so I told her to stay home. I am to nervous as it is without having >to play hostess to a stranger. >I am on edge...I hate acting and feeling this way! I am losing it!!! >Okay...time to try and get some sleep...ya'll have a great day!>> OK Dear one.......take some deep breaths! First & foremost....how can someone call you a faker...when your obviously NOT????????? I am truly sorry that your friend is not smart enough to get the hint to have her company stay home so that she can go with you. But...I had to go to my appt yesterday alone as well I'll try to report in on mine tonite. I know your prolly already gone.....so I'll be sending good vibes your way! Please let us know as soon as you get in!!!! Ask me about my new MSM lotion for aches/pains! http://www.scentsappeal.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Hi guys: This is my 4th day on LDN(3mg) and till now I have been fine...I had a major migraine all day long...(I don't take pain killers) and now that it has kind of subsided..I have coldness in/on the left corner of my mouth...also som balance problems....I just got over a relapse with return of all my regular movements... I am scared....please email some kind of encouragement.... Thx guyz! Life always gives you back what you give out. Your life is not a coincidence but a mirror of your own doings.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 You may feel some of your old symptoms in the beginning so not to worry. Keep taking the LDN and you will be fine. I'll look for the artical saying that old symptoms may resurface which aren't new symptoms and I think posted that again in last couple weeks if you want to check post, you may find it. Don't be scared b/c no need to be. Rhonda(still energized) --- In low dose naltrexone , se <maryse_k@y...> wrote: > Hi guys: > This is my 4th day on LDN(3mg) and till now I have been fine...I had a major migraine all day long...(I don't take pain killers) and now that it has kind of subsided..I have coldness in/on the left corner of my mouth...also som balance problems....I just got over a relapse with return of all my regular movements... > I am scared....please email some kind of encouragement.... > Thx guyz! > > > > > > > Life always gives you back what you give out. > > Your life is not a coincidence but a mirror of your own doings. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 WELL Folks my LDN is on it's way from Skips, they said that they would ship it out today. I'm getting a 30 day suppply of 1.5mg's and a 30 day supply of 3.0 mg's and a 210 day supply of the 4.5mg's. I'm as execited as a $2.00 hooker in church with a $5.00 sucker waiting outside for her. My one question, however is this, should I take it 9:00 PM with something to eat and if so something large or will just a snack do??? AS ALWAYS TX's RK [Norton AntiSpam] [low dose naltrexone] Re: scared... You may feel some of your old symptoms in the beginning so not to worry. Keep taking the LDN and you will be fine. I'll look for the artical saying that old symptoms may resurface which aren't new symptoms and I think posted that again in last couple weeks if you want to check post, you may find it. Don't be scared b/c no need to be.Rhonda(still energized)> Hi guys:> This is my 4th day on LDN(3mg) and till now I have been fine...I had a major migraine all day long...(I don't take pain killers) and now that it has kind of subsided..I have coldness in/on the left corner of my mouth...also som balance problems....I just got over a relapse with return of all my regular movements...> I am scared....please email some kind of encouragement....> Thx guyz!> > > > > > > Life always gives you back what you give out.> > Your life is not a coincidence but a mirror of your own doings.> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Take it AFTER 9pm, the later the better, JMHO. I usually take it on an empty stomach, not even with water. I also take it after 1AM 99% of the time. Re: [low dose naltrexone] Re: scared... WELL Folks my LDN is on it's way from Skips, they said that they would ship it out today. I'm getting a 30 day suppply of 1.5mg's and a 30 day supply of 3.0 mg's and a 210 day supply of the 4.5mg's. I'm as execited as a $2.00 hooker in church with a $5.00 sucker waiting outside for her. My one question, however is this, should I take it 9:00 PM with something to eat and if so something large or will just a snack do??? AS ALWAYS TX's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 , there is no reason to be scared. However, you having that feeling is a good thing because it means you are cautious with your treatment plan. Try to remember the CRABS are much much scarier than LDN will ever be!! Good Luck, Kathy [Norton AntiSpam] [low dose naltrexone] Re: scared... You may feel some of your old symptoms in the beginning so not to worry. Keep taking the LDN and you will be fine. I'll look for the artical saying that old symptoms may resurface which aren't new symptoms and I think posted that again in last couple weeks if you want to check post, you may find it. Don't be scared b/c no need to be.Rhonda(still energized)> Hi guys:> This is my 4th day on LDN(3mg) and till now I have been fine...I had a major migraine all day long...(I don't take pain killers) and now that it has kind of subsided..I have coldness in/on the left corner of my mouth...also som balance problems....I just got over a relapse with return of all my regular movements...> I am scared....please email some kind of encouragement....> Thx guyz!> > > > > > > Life always gives you back what you give out.> > Your life is not a coincidence but a mirror of your own doings.> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Skip told me to take my LDN at bedtime with or without food. Kathy [Norton AntiSpam] [low dose naltrexone] Re: scared... You may feel some of your old symptoms in the beginning so not to worry. Keep taking the LDN and you will be fine. I'll look for the artical saying that old symptoms may resurface which aren't new symptoms and I think posted that again in last couple weeks if you want to check post, you may find it. Don't be scared b/c no need to be.Rhonda(still energized)> Hi guys:> This is my 4th day on LDN(3mg) and till now I have been fine...I had a major migraine all day long...(I don't take pain killers) and now that it has kind of subsided..I have coldness in/on the left corner of my mouth...also som balance problems....I just got over a relapse with return of all my regular movements...> I am scared....please email some kind of encouragement....> Thx guyz!> > > > > > > Life always gives you back what you give out.> > Your life is not a coincidence but a mirror of your own doings.> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 TrudySo what if you are looking for sympathy?? I know that I would be just as scared as you are, if it were my brain they were talking about.Personally, I'm certainly not a Dr.; but, I agree with your hubby and BFF!! Another few weeks in order to find out all you can about these symptoms could only be for your own good. It may mean that hubby has to push off on his own for a little while; but, he'll get a much healthier wife when she arrives.Please think about this seriously!! Something is not right and these symptoms seem to have come on too suddenly.Gloria Hey, guys , I just need to share with y'all. I am really getting scared. I haven't really been giving much thought to the brain MRI and the results of many small bleeds in multiple areas of " white matter"( Wt heck is " white matter ?Teri , do you know? ) I can't get in to see nuerologist till oct. But my symtoms are progressing quickly. Scared cause I don't know progressing to what ?!! Walking is getting more difficult ; can't balance. The facial numbness is pretty often now. Tremors in arms and hands bad. And just forget about talking like a coherent person! Stutter and can't even remember what it was that I forgot ! LoL. I an starting tx this Friday, even tho Hubby and Becky( BFF) think I should see nuerologist first. They are afraid what tx might add to my condition. But I know that in six months we will have to start traveling again( hubbys job) so I have no time to spare. Anyway, it only ocurred to me a few days ago that this tremor and stutter might be permenent. I try to not get revved up about the unknown, try to stay calm. But I had such a difficult day( doing nothing ) and my imagination( or fear?) took over a few mins ago. People are talking about MY BRAIN for pete's sake! What is actually going on and how bad can it get? Like I said, I am really Scared ! I don't want to upset Becky and most of all Hubby. Hubby is showing signs of Caregiver Stress...I know he is so very worried and stressed, sleep issues, headaches. So I can't really stress them more with how bad today was for me. I know y'all will understand and let my worries bounce off of you. I'm not looking for sympathy, just need you're patience. And , yes, Don , send your powers of healing and best wishes . http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 Trudy...BREATHE.Now do it again.Okay, breathing now? Anatomy lesson. Your brain is composed of two kinds of tissue. Gray matter and white matter. The white matter is where the nerves are that connect everything. The gray matter in your brain is the part that is responsible for your thinking and movement and breathing. The white matter is the bundled nerves that connect all the gray matter together and make your body work and your brain function. What you are experiencing is a series of TIA's or Trans Ischemic Attacks. Also called mini bleeds or mini strokes. Your husband and BFF are correct in their thinking. Treatment needs to be postponed. I know you have gotten yourself psyched to do this treatment. I also know that what is going on right now in your head will make this treatment more difficult for you. Please heed their warnings and concerns. What is puzzling me is why nobody is doing anything about this. You are going to have to be your own advocate with this. What is happening to you is NOT normal. Sweetie, I have had a full blown stroke. Luckily I had no damage from it. You are gearing up to have a stroke. This needs to be fixed. This is more of a concern right now than the HCV is. I am not trying to scare you I am really wanting you to get this treated. I am scared for you right now. My ex father in law experienced this same thing. This needs to be taken care of with medication post haste. You need a very good neurologist. Not a run of the mill guy but a great one. You need someone to take this seriously. Whether you do this with a trip to the Emergency Room, which is probably where you will get the most intensive treatment quickly or going to a Neuro's office in the morning, this needs to be taken care of. In the larger scheme of things, this is a much bigger problem than the Hep C is. Sweetie, this needs to be looked at and corrected right away. How bad can it get? You don't want to know. Suffice to say, it appears that your brain is trying to have a full blown stroke. These are warnings. You might have a blockage somewhere that is causing this. They need to find the weak blood vessel and fix it. Now that I have said all that... breathe again. I know you are freaking out and I don't blame you. Scared is not a bad thing to be right now. But you need medical attention and you need it now. Not next week. Today. If it were me, I would be on the way to the Emergency Room. Please, get help for this.. the treatment can be postponed. Really it can. And please let us know what is going on okay?Hang in there honey, Teri From: "trudykinsey@..." <trudykinsey@...>Hcv < >Sent: Sun, September 12, 2010 10:36:00 PMSubject: [ ] Scared... Hey, guys , I just need to share with y'all. I am really getting scared. I haven't really been giving much thought to the brain MRI and the results of many small bleeds in multiple areas of " white matter"( Wt heck is " white matter ?Teri , do you know? ) I can't get in to see nuerologist till oct. But my symtoms are progressing quickly. Scared cause I don't know progressing to what ?!! Walking is getting more difficult ; can't balance. The facial numbness is pretty often now. Tremors in arms and hands bad. And just forget about talking like a coherent person! Stutter and can't even remember what it was that I forgot ! LoL. I an starting tx this Friday, even tho Hubby and Becky( BFF) think I should see nuerologist first. They are afraid what tx might add to my condition. But I know that in six months we will have to start traveling again( hubbys job) so I have no time to spare. Anyway, it only ocurred to me a few days ago that this tremor and stutter might be permenent. I try to not get revved up about the unknown, try to stay calm. But I had such a difficult day( doing nothing ) and my imagination( or fear?) took over a few mins ago. People are talking about MY BRAIN for pete's sake! What is actually going on and how bad can it get? Like I said, I am really Scared ! I don't want to upset Becky and most of all Hubby. Hubby is showing signs of Caregiver Stress...I know he is so very worried and stressed, sleep issues, headaches. So I can't really stress them more with how bad today was for me. I know y'all will understand and let my worries bounce off of you. I'm not looking for sympathy, just need you're patience. And , yes, Don , send your powers of healing and best wishes . http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 TeriI'm truly so glad that you were able to come from your sick bed and say all of this to Trudy!! I'm so grateful that we have someone like you on this site, to share your medical knowledge with us.Trudy, Teri has said it the best of all. Please do not take any of this crap that is happening to you lightly. I feel scared for you. It leaves me feeling so useless because I would just rather be there with you.Please do as Teri says so very well. Then you can let us all know that we were worrying for nothing!!Gloria Trudy...BREATHE.Now do it again.Okay, breathing now? Anatomy lesson. Your brain is composed of two kinds of tissue. Gray matter and white matter. The white matter is where the nerves are that connect everything. The gray matter in your brain is the part that is responsible for your thinking and movement and breathing. The white matter is the bundled nerves that connect all the gray matter together and make your body work and your brain function. What you are experiencing is a series of TIA's or Trans Ischemic Attacks. Also called mini bleeds or mini strokes. Your husband and BFF are correct in their thinking. Treatment needs to be postponed. I know you have gotten yourself psyched to do this treatment. I also know that what is going on right now in your head will make this treatment more difficult for you. Please heed their warnings and concerns. What is puzzling me is why nobody is doing anything about this. You are going to have to be your own advocate with this. What is happening to you is NOT normal. Sweetie, I have had a full blown stroke. Luckily I had no damage from it. You are gearing up to have a stroke. This needs to be fixed. This is more of a concern right now than the HCV is. I am not trying to scare you I am really wanting you to get this treated. I am scared for you right now. My ex father in law experienced this same thing. This needs to be taken care of with medication post haste. You need a very good neurologist. Not a run of the mill guy but a great one. You need someone to take this seriously. Whether you do this with a trip to the Emergency Room, which is probably where you will get the most intensive treatment quickly or going to a Neuro's office in the morning, this needs to be taken care of. In the larger scheme of things, this is a much bigger problem than the Hep C is. Sweetie, this needs to be looked at and corrected right away. How bad can it get? You don't want to know. Suffice to say, it appears that your brain is trying to have a full blown stroke. These are warnings. You might have a blockage somewhere that is causing this. They need to find the weak blood vessel and fix it. Now that I have said all that... breathe again. I know you are freaking out and I don't blame you. Scared is not a bad thing to be right now. But you need medical attention and you need it now. Not next week. Today. If it were me, I would be on the way to the Emergency Room. Please, get help for this.. the treatment can be postponed. Really it can. And please let us know what is going on okay?Hang in there honey, Teri From: "trudykinsey@..." <trudykinsey@...>Hcv < >Sent: Sun, September 12, 2010 10:36:00 PMSubject: [ ] Scared... Hey, guys , I just need to share with y'all. I am really getting scared. I haven't really been giving much thought to the brain MRI and the results of many small bleeds in multiple areas of " white matter"( Wt heck is " white matter ?Teri , do you know? ) I can't get in to see nuerologist till oct. But my symtoms are progressing quickly. Scared cause I don't know progressing to what ?!! Walking is getting more difficult ; can't balance. The facial numbness is pretty often now. Tremors in arms and hands bad. And just forget about talking like a coherent person! Stutter and can't even remember what it was that I forgot ! LoL. I an starting tx this Friday, even tho Hubby and Becky( BFF) think I should see nuerologist first. They are afraid what tx might add to my condition. But I know that in six months we will have to start traveling again( hubbys job) so I have no time to spare. Anyway, it only ocurred to me a few days ago that this tremor and stutter might be permenent. I try to not get revved up about the unknown, try to stay calm. But I had such a difficult day( doing nothing ) and my imagination( or fear?) took over a few mins ago. People are talking about MY BRAIN for pete's sake! What is actually going on and how bad can it get? Like I said, I am really Scared ! I don't want to upset Becky and most of all Hubby. Hubby is showing signs of Caregiver Stress...I know he is so very worried and stressed, sleep issues, headaches. So I can't really stress them more with how bad today was for me. I know y'all will understand and let my worries bounce off of you. I'm not looking for sympathy, just need you're patience. And , yes, Don , send your powers of healing and best wishes . http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 Hello Trudy,I will be sending many positive vibes your way you are not alone we are all here for you. Keep us posted, I know it sounds very scary but worry never solved anything so just try to relax and what will be was meant to be....much love <3 Be kinder than necessary because everyone you meet is fighting some kind of battle. Loving you, From: "trudykinsey@..." <trudykinsey@...>Hcv < >Sent: Sun, September 12, 2010 8:36:00 PMSubject: [ ] Scared... Hey, guys , I just need to share with y'all. I am really getting scared. I haven't really been giving much thought to the brain MRI and the results of many small bleeds in multiple areas of " white matter"( Wt heck is " white matter ?Teri , do you know? ) I can't get in to see nuerologist till oct. But my symtoms are progressing quickly. Scared cause I don't know progressing to what ?!! Walking is getting more difficult ; can't balance. The facial numbness is pretty often now. Tremors in arms and hands bad. And just forget about talking like a coherent person! Stutter and can't even remember what it was that I forgot ! LoL. I an starting tx this Friday, even tho Hubby and Becky( BFF) think I should see nuerologist first. They are afraid what tx might add to my condition. But I know that in six months we will have to start traveling again( hubbys job) so I have no time to spare. Anyway, it only ocurred to me a few days ago that this tremor and stutter might be permenent. I try to not get revved up about the unknown, try to stay calm. But I had such a difficult day( doing nothing ) and my imagination( or fear?) took over a few mins ago. People are talking about MY BRAIN for pete's sake! What is actually going on and how bad can it get? Like I said, I am really Scared ! I don't want to upset Becky and most of all Hubby. Hubby is showing signs of Caregiver Stress...I know he is so very worried and stressed, sleep issues, headaches. So I can't really stress them more with how bad today was for me. I know y'all will understand and let my worries bounce off of you. I'm not looking for sympathy, just need you're patience. And , yes, Don , send your powers of healing and best wishes . http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
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