Re: husband has LBD, now in nursing home

[Guest guest]

Hi-

Even though I do understand the emotional devastation you are

feeling, I would suggest that you try with all your might not to let

LBD take you down with it. Please try to look at the positive

side of this, he is still with you. I do understand that you feel it

best that he takes his last breath, yet once they are gone there is

no more wishing. I know of the struggles and overwhelming

pain this leaves us with, yet once our loved ones are gone, we

cannot look into their eyes again and feel that bond we have

always known.

Please know you are being prayed for, and I am sure not

only by me, but my many members of this group. There is

such power in prayer. Revel in the strength you have, even

if you have to dig deep to find it.

My thoughts and prayers are with you this evening.

Hugs-

Sandie

Des Moines, IA

-- husband has LBD, now in nursing home

I am so depressed and feel very helpless seeing my husband like

this. I'm overwhelmed with sadness. He is now in a nursing home

again after 6 months of hospitals due to broken hip. I had him home

and it only lasted for 5 days before he fell and dislocated the hip

again. I see him almost every day and feel so very sorry that

his/our life has come to this. I know that there is nothing more

that I can do for him. I just needed to talk to someone tonight. I

pray everyday that he will just never wake up again but then it just

never happens. If this continues I don't know how I'll ever manage

to stay sane.

[Guest guest]

Pondme,

I was a caregiver for my Mom who passed away in 02. So I can not relate

what it means to lose a husband. I know I felt much as you do. I

expect to take care of Mom until she died and when she finally consented

to live with me, I really thought I had no more than a year and I would

lose her.. Well, 4 years later she finally passed away. I do think the

hardest part is knowing the end results of this disease and having no

idea when it will end.

Unfortunately you probably will stay sane and the stress will build up.

Part of that stress I had was related to my thinking I knew this should

be over and it was not and I had more and more problems to cope with.

One of the things I did not do for for myself as much as I could have

was to find a way to get some help for myself. And in the end no matter

how much I did, there remained some guilt over the question of did I do

enough.

I would encourage you to find a support group (in person as well as

here) of any kind you find helpful and go learn there are a lot of

others out here doing the same thing you are doing. Do not let the

disease dicate your life. (Yeah, I can say that now.) It was so hard to

do at the time.

You do know we have a spouse support group. Maybe they will be able to

share things with more credibility. I really know when it got really

bad I found a SW from the Alzheimers Association where Mom went to day

care and just unloaded. Sometimes that was enough. Just knowing I was

not alone took some stress off and helped me think more creatively. You

are able to spend time with the long good by that some do not have. Let

yourself do that.

I am think of you and sending you a Big Hug and wish I could be there to

help in some way.

Donna R

[Guest guest]

hello,

my name is sharon m my husband and i caregive for my 70year old father. i

understand your pain, and wish i could ease it, but you have foudn the right

place for companionship, where you can vent, scream, yell, cry, laugh, share

stories or whatever you wish. some of us are taking care of relatives others

are taking care of spouses or signifcant other , but we all are in this

together and are here for you, , since we are al scattered around the country

and

even the world, there isnt very often whe you dont get a response back fiarly

quickly, try to keep the faith, and feel the hugs we are sending you sharon m

a smile a day keeps the meanies away!!!

laughter is a breath of fresh air!

[Guest guest]

Hi, I am very sorry to hear of your husband's

condition. I am glad that you have reached out to us

in your time of need. I know you are overcome by all

that you have been through with your husband. Being a

caregiver of a LO with so many needs is not an easy

task. It is hard watching our LO's become but a shell

of the person they were. Know that you have done the

best that you could for your husband and that you are

not alone in this. My husband has LBD. I believe he is

in the beginning of the end stage. It is very hard to

watch him struggle with this disease and to see him

degress more and more. All that are involved with this

disease struggle.

It is very important that you take some time for

yourself and focus on other things that you enjoy

like; being with a friend, reading a book or a hobby.

I know it's easier said than done, but your husband is

in good hands and it sounds like you could use some

time for you and your health. This is a turning point

in your life and your health is very important too.

Please take care of yourself.

My thoughts and prayers are with you.......Jan C. in

California

--- pondme wrote:

>

> I am so depressed and feel very helpless seeing my

> husband like

> this. I'm overwhelmed with sadness. He is now in a

> nursing home

> again after 6 months of hospitals due to broken hip.

> I had him home

> and it only lasted for 5 days before he fell and

> dislocated the hip

> again. I see him almost every day and feel so very

> sorry that

> his/our life has come to this. I know that there is

> nothing more

> that I can do for him. I just needed to talk to

> someone tonight. I

> pray everyday that he will just never wake up again

> but then it just

> never happens. If this continues I don't know how

> I'll ever manage

> to stay sane.

>

>

>

>

__________________________________________________

[Guest guest]

Hi, I am very sorry to hear of your husband's

condition. I am glad that you have reached out to us

in your time of need. I know you are overcome by all

that you have been through with your husband. Being a

caregiver of a LO with so many needs is not an easy

task. It is hard watching our LO's become but a shell

of the person they were. Know that you have done the

best that you could for your husband and that you are

not alone in this. My husband has LBD. I believe he is

in the beginning of the end stage. It is very hard to

watch him struggle with this disease and to see him

degress more and more. All that are involved with this

disease struggle.

It is very important that you take some time for

yourself and focus on other things that you enjoy

like; being with a friend, reading a book or a hobby.

I know it's easier said than done, but your husband is

in good hands and it sounds like you could use some

time for you and your health. This is a turning point

in your life and your health is very important too.

Please take care of yourself.

My thoughts and prayers are with you.......Jan C. in

California

--- pondme wrote:

>

> I am so depressed and feel very helpless seeing my

> husband like

> this. I'm overwhelmed with sadness. He is now in a

> nursing home

> again after 6 months of hospitals due to broken hip.

> I had him home

> and it only lasted for 5 days before he fell and

> dislocated the hip

> again. I see him almost every day and feel so very

> sorry that

> his/our life has come to this. I know that there is

> nothing more

> that I can do for him. I just needed to talk to

> someone tonight. I

> pray everyday that he will just never wake up again

> but then it just

> never happens. If this continues I don't know how

> I'll ever manage

> to stay sane.

>

>

>

>

__________________________________________________