RE. LDN- Focusing on Information dissemination,rather than testing

[Guest guest]

We live in England and I think things are a bit different here, about half the people we have told about LDN and wanted to try it have been turned down by there doctors and just given up, here you have to be persistent and then it is available. In many cases they have wanted to try it because they have seen how much it has helped my wife but still given up at the first obstacle. Of course calling for it to be tested is an obstacle being put up by the drug industry to slow acceptance, what test could even compare with the test it has already had over the last twenty years, but the tactic is working and up take is being slowed by lack of formal trail results. I agree spreading the word is the most important but trails going on in the background are only all to the good. Doctors have much more power than they should have and many people if told to go home and die quietly by a doctor will do just that, busy doctor must not be questioned. When they see someone else on a treatment that is working they will accept the standard statement from a doctor of that might have happened anyway(and pigs might fly). So those conducting trails will bring results long term. As far as I can see the term we have no evidence for that means - we have studiously avoided collecting data that might support that conclusion. People are reporting MRI scans with fewer scars, nothing has ever shown that before in any trial so hard evidence is available now.

Spreading the word however must be the number one priority.

Dave

Date: Mon, 18 Jul 2005 03:51:11 +0100 From: "Gerald Rollason" <grollason@...>Subject: LDN- Focusing on Information dissemination,rather than testingI also have been ( & still am!) sympathetic to the reservations expressed by Jan regarding calls for the testing of LDN:Furthermore, surely there are other drugs which have been accepted/adopted extensively for conditions other than their initial recognised purpose without going through the unnecessary, horribly expensive & time consuming rigmarole of further testing?! (-And I bet few of them are as free of side effects or taken in such low, safe doses as LDN!)This delaying may seem to be all very well for those for whom a major consideration in drug production is the maximising of potential profits, but for us steadily progressing patients, this unnecessary, time consuming, & seemingly endless shillyshallying around can seem about as pertinent as "Nero fiddling while Rome Burns"!Might it not be more productive to put our energy into focussing people`s minds on the already known, positive aspects of LDN usage, things like it`s efficacy, safety, ease of use & cheapness, & also to draw attention to the fact that it is already being utilized worldwide in a pragramatic, common sense response to it`s obvious value?Surely, as LDN continues to become more widely known & used, this knowledge & awareness will itself develop a growing momentum of understanding that it is the implementation of LDN`s wider usage that is now needed & appropiate?If we are already confident of LDN`s value, why should we continue to act as though we also are uncertain & need the reassurance of further esting?! -This hardly seems an attitude likely to inspire confidence in others!-It seems to me that the dissemination of info on LDN through such vehicles as Boyle Bradley`s recent book & radio interviews may very well be the most effective & immediate way to foster the widespread recognition & adoption of LDN as an important treatment for MS & many Autoimmune Disorders.Gerald----- Original Message ----- From: "rtee54" <xltrt@...>