Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 a friend of mine in California who is a registered nurse.did. I assume you are talking about immunoglobulin. how is that working for you? Kathy [low dose naltrexone] IVIG and LDN Has anyone had IVIG infusions while still taking their nightly LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 In a message dated 7/1/2005 10:28:38 AM Eastern Daylight Time, laylnenx@... writes: As a matter of fact, call me crazy, but I think that Rebif made things worse. You're not crazy at all. I know that the Avonex I was on when first dx'd made me worse. I had such bad flu-like symptoms that kept me in bed for 2 days a week, I'm sure my body couldn't handle it. Other people have said they believed the CRABS made them worse, so you're not alone. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 I am in complete agreement with this opinion. --- arlizotte@... wrote: > > In a message dated 7/1/2005 10:28:38 AM Eastern > Daylight Time, > laylnenx@... writes: > > As a matter of fact, call me crazy, but I think > that Rebif made > things worse. > > > > > > You're not crazy at all. I know that the Avonex I > was on when first dx'd > made me worse. I had such bad flu-like symptoms > that kept me in bed for 2 days > a week, I'm sure my body couldn't handle it. > Other people have said they believed the CRABS made > them worse, so you're > not alone. > Arlene > ____________________________________________________ Sports Rekindle the Rivalries. Sign up for Fantasy Football http://football.fantasysports. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Thanks for validating my thoughts. Others, including my ex-neuro who placed a notation in my file that I was non-compliant, didn't seem to understand. I find it amazing that the some medical experts, who don't know the definitive cause, cure or how to manage all of the symptoms of MS, insist that you must take a particular drug over another. Until one thing or another has as much anectodotal evidence as LDN or is scientifically found to be successful in treating the majority of patients, all medical experts should remain open minded. > >> You're not crazy at all. I know that the Avonex I was on when first dx'd > made me worse. I had such bad flu-like symptoms that kept me in bed for 2 days > a week, I'm sure my body couldn't handle it. > Other people have said they believed the CRABS made them worse, so you're > not alone. > Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 VERY WELL SAID laylnenx I have felt the exact same way. How can so many doctors feel so confident in saying you should use the crab meds when they can't even tell you what the definitive cause for MS is. There is something terribly wrong with the way most doctors think. What ever happened to pure science, which has you look to see cause and effect? Being open minded is the key to showing that you really care as a doctor. [low dose naltrexone] Re: IVIG and LDN > Thanks for validating my thoughts. Others, including my ex-neuro who > placed a notation in my file that I was non-compliant, didn't seem to > understand. I find it amazing that the some medical experts, who > don't know the definitive cause, cure or how to manage all of the > symptoms of MS, insist that you must take a particular drug over > another. Until one thing or another has as much anectodotal evidence > as LDN or is scientifically found to be successful in treating the > majority of patients, all medical experts should remain open minded. > > > > > >> >>> You're not crazy at all. I know that the Avonex I was on when > first dx'd >> made me worse. I had such bad flu-like symptoms that kept me in > bed > for 2 days >> a week, I'm sure my body couldn't handle it. >> Other people have said they believed the CRABS made them worse, so > you're >> not alone. >> Arlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 they are either brainwashed, receiving a kickback from the pharmaceutical companies, or don't want to get a reputation as an alternative minded practitioner vas they fear they may lose their credibility in the western world. it is probably a combination of factors but it is a different world today. alternative is here to stay and growing by leaps and bounds.have you been able to obtain the ldn yet and where do you live? [low dose naltrexone] Re: IVIG and LDN Thanks for validating my thoughts. Others, including my ex-neuro who placed a notation in my file that I was non-compliant, didn't seem to understand. I find it amazing that the some medical experts, whodon't know the definitive cause, cure or how to manage all of the symptoms of MS, insist that you must take a particular drug over another. Until one thing or another has as much anectodotal evidence as LDN or is scientifically found to be successful in treating the majority of patients, all medical experts should remain open minded.> >> You're not crazy at all. I know that the Avonex I was on when first dx'd > made me worse. I had such bad flu-like symptoms that kept me in bed for 2 days > a week, I'm sure my body couldn't handle it. > Other people have said they believed the CRABS made them worse, so you're > not alone.> Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Fortunately, alternative medicines are making a huge come back. Although I do respect and appreciate the advances in medicine, like you, I do see a strong correlation between the economic gain for the pharmeceuticals and the prescribed conventional, standard treatments, while less profitable treatments are virtually ignored. Perhaps some doctors do get incentives ;> I live in NY and recently received my prescription for LDN. As fate would have it, I was scheduled to start Tysabri a few days after it was pulled. He then suggested Novantrone which I adamantly refused; I'd rather risk being in a wheel chair than dropping dead from heart failure. With all things considered, LDN seems the safest, best bet for me at this point. alternative is here to stay and growing by leaps and bounds.have you been able to obtain the ldn yet and where do you live? > [low dose naltrexone] Re: IVIG and LDN > > > Thanks for validating my thoughts. Others, including my ex-neuro who > placed a notation in my file that I was non-compliant, didn't seem to > understand. I find it amazing that the some medical experts, who > don't know the definitive cause, cure or how to manage all of the > symptoms of MS, insist that you must take a particular drug over > another. Until one thing or another has as much anectodotal evidence > as LDN or is scientifically found to be successful in treating the > majority of patients, all medical experts should remain open minded. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Absolutely, Aletha. Further, when you look at what's available you have to consider the side effects as well. We obviously are left with the final word as to whether or not we'll take a particular drug and in doing so should receive a constant level of support and understanding from our doctors, whether or not we ultimately choose to take what's recommended. The open minded and caring doctor will continue to partner with you to explore other possibilites, always keeping within their oath to first do no harm. Being open minded is the key to showing that you really care as a doctor. > > > [low dose naltrexone] Re: IVIG and LDN > > > > Thanks for validating my thoughts. Others, including my ex-neuro who > > placed a notation in my file that I was non-compliant, didn't seem to > > understand. I find it amazing that the some medical experts, who > > don't know the definitive cause, cure or how to manage all of the > > symptoms of MS, insist that you must take a particular drug over > > another. Until one thing or another has as much anectodotal evidence > > as LDN or is scientifically found to be successful in treating the > > majority of patients, all medical experts should remain open minded. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 God was with you I have no doubt. Your message gave me goosebumps as I think Novantrone is probably the most toxic of the CRABS and we already know about Tysabri . Good luck to you and don't forget the importance of diet, supplements, exercise and massage therapy . Take care, Kathy [low dose naltrexone] Re: IVIG and LDN> > > Thanks for validating my thoughts. Others, including my ex-neuro who > placed a notation in my file that I was non-compliant, didn't seem to > understand. I find it amazing that the some medical experts, who> don't know the definitive cause, cure or how to manage all of the > symptoms of MS, insist that you must take a particular drug over > another. Until one thing or another has as much anectodotal evidence > as LDN or is scientifically found to be successful in treating the > majority of patients, all medical experts should remain open minded.> Quote Link to comment Share on other sites More sharing options...
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