Re: ? symptom ? Lynn/Marcie

[Guest guest]

I believe it's called the MS hug. I just started having a belted ribs feeling a couple of months ago, and have been on ldn for 15 months.

I prefer hugs from my husband! LOL

Arlene

[Guest guest]

In a message dated 6/27/2005 12:50:10 PM Eastern Daylight Time, workerchris24@... writes:

Been there and done that!! How does the LDN work for you?

Chris

Doesn't work as well as some have reported. In fact I was tempted to stop it several times, but the fact that it is supposed to stop progression kept me taking it.

I never had the vivid dreams, but I did toss and turn a lot in the beginning. After about 8 months, I started to get SOME bladder control.

But, I would try it and stick with it for at least the 6-9 months as suggested by Dr Bihari. Like I said earlier, I've been taking it for 15 months and plan to continue.

Good luck to you.

Arlene

[Guest guest]

hopefully the LDN will help!

thanks!

Lynn

Re: [low dose naltrexone] ? symptom ? Lynn/Marcie

I believe it's called the MS hug. I just started having a belted ribs feeling a couple of months ago, and have been on ldn for 15 months.

I prefer hugs from my husband! LOL

Arlene

[Guest guest]

Been there and done that!! How does the LDN work for you?arlizotte@... wrote:

I believe it's called the MS hug. I just started having a belted ribs feeling a couple of months ago, and have been on ldn for 15 months.

I prefer hugs from my husband! LOL

Arlene

Sports Rekindle the Rivalries. Sign up for Fantasy Football

[Guest guest]

I seem to get the idea that the effect of the drugs usefullness is directly related to the level of progression u are in when u start to take it. I am still walking and on some days can prolly do a half mile. I'm not that bad yet. Has the drug seemed to slow up the progression and how impaired were u when u started the treatment? Besides the bladder has there been any other positives?

Thanks-Chrisarlizotte@... wrote:

In a message dated 6/27/2005 12:50:10 PM Eastern Daylight Time, workerchris24@... writes:

Been there and done that!! How does the LDN work for you?

Chris

Doesn't work as well as some have reported. In fact I was tempted to stop it several times, but the fact that it is supposed to stop progression kept me taking it.

I never had the vivid dreams, but I did toss and turn a lot in the beginning. After about 8 months, I started to get SOME bladder control.

But, I would try it and stick with it for at least the 6-9 months as suggested by Dr Bihari. Like I said earlier, I've been taking it for 15 months and plan to continue.

Good luck to you.

Arlene

Stay connected, organized, and protected. Take the tour

[Guest guest]

In a message dated 6/27/2005 4:10:16 PM Eastern Daylight Time, workerchris24@... writes:

I seem to get the idea that the effect of the drugs usefullness is directly related to the level of progression u are in when u start to take it. I am still walking and on some days can prolly do a half mile. I'm not that bad yet. Has the drug seemed to slow up the progression and how impaired were u when u started the treatment? Besides the bladder has there been any other positives?

Thanks-Chris

Chris

It seems like that to me too. I think it did slow progression in some ways. I was using a cane most of the time when I started, but I probably could have used a walker at times. I use one now all the time in the house.

I didn't see much in the way of symptom relief, but I know a lot of other people on this forum have.

Perhaps someone else can chime in.

Arlene