Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 I was planning on waiting until September to post anything, because that will be my one year on ldn, but I had a question for the group and thought I might as well say something now. First of all, I have to say that I quit taking BetaSeron, cold turkey, in September of last year and started taking ldn. I was beginning to have a few more symptoms than I had (I had taken it for eight years) and the shots were becoming painful. The ldn came along right after my father died, and I felt like it was a sign of sorts. Whatever the reason, so far, so good. It's been 9 months, and other than some tingling in my hands and feet, I have been pretty much symptom free. I have RR MS, and have been very lucky in that the BetaSeron worked wonderfully for all those years, but I just felt that it had run it's course. I told myself that if the ldn kept me symptom free for one year, I would feel like it was really working and jump on the bandwagon to promote it to any and all, and I still feel the same way. I don't know why one year seems to be the magic number for me, because prior to the BetaSeron, I was having exacerbations every two months, but I just felt a year was a reasonable amount of time to test it. The reason that I am writing now is that my son, who is 24, was just diagnosed with Ankylosing Spondylitis, and the web sites that I have visited say that it is related to Chrohn's disease and is a form of arthritis. He has an appointment with a Rheumatic Specialist shortly and I was wondering if anyone thinks that ldn would be a sensible thing to take? I have seen on the web page that it is supposed to be helpful with Rheumatoid Arthritis and Chrohn's Disease, and so it seems logical that it might help with something related. Anyone know anything about this? I would appreciate anything anyone might have heard. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 > I was planning on waiting until September to post anything, because > that will be my one year on ldn, but I had a question for the group > and thought I might as well say something now. > > First of all, I have to say that I quit taking BetaSeron, cold > turkey, in September of last year and started taking ldn. I was > beginning to have a few more symptoms than I had (I had taken it for > eight years) and the shots were becoming painful. The ldn came along > right after my father died, and I felt like it was a sign of sorts. > Whatever the reason, so far, so good. It's been 9 months, and other > than some tingling in my hands and feet, I have been pretty much > symptom free. > > I have RR MS, and have been very lucky in that the BetaSeron worked > wonderfully for all those years, but I just felt that it had run it's > course. I told myself that if the ldn kept me symptom free for one > year, I would feel like it was really working and jump on the > bandwagon to promote it to any and all, and I still feel the same > way. I don't know why one year seems to be the magic number for me, > because prior to the BetaSeron, I was having exacerbations every two > months, but I just felt a year was a reasonable amount of time to > test it. > > The reason that I am writing now is that my son, who is 24, was just > diagnosed with Ankylosing Spondylitis, and the web sites that I have > visited say that it is related to Chrohn's disease and is a form of > arthritis. He has an appointment with a Rheumatic Specialist shortly > and I was wondering if anyone thinks that ldn would be a sensible > thing to take? I have seen on the web page that it is supposed to be > helpful with Rheumatoid Arthritis and Chrohn's Disease, and so it > seems logical that it might help with something related. Anyone know > anything about this? I would appreciate anything anyone might have > heard. ========= Ankylosing Spondylitis is classified as an autoimmune system disease and LDN is said to work on all autoimmune diseases. It's not listed on the LDN website because most likely Dr. Bihari has never had anyone come into his office with this particular disease. It would be in your son's best interest to use LDN as the FDA approved treatments for Ankyl. Spondyl. are immunosuppressive medications. Quote Link to comment Share on other sites More sharing options...
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